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Reply | Forward Message #252 of 1721 |
Re: new

Hi Sue,

I am Daunette, and I have a 7 year old boy with LKS. He was
diagnosed at at 3. Learning is a struggle for him too but he has
learned to read almost on grade level. He does OK with math, just a
little below grade level. Communication is still tough for him since
he has both receptive and expressive issues. Each child with LKS is
different. This is a spectrum disorder wherein children are affected
differently. Keep hope alive. Read to your child. Be gentle and
patient. Your child may not have speech but emotions are intact. If
your child is oppostitional I would reccommend the book "easy to
love, difficult to discipline" by Becky Bailey. It helped me gain
some objective insight into my son. I also now have a perfectly
reasonable 3 year old as a result of using suggestions from the
book.

As for your fears, this is not the end of the road. search the
internet for information on LKS or acquired epileptic aphasia. Get
involved in school. Learn about the IEP process and special
education rights. Trust your gut. With patience, knowledge, and
perseverance your child's potential is unlimited.

email me with your # if you'd like to talk.

Good luck, God bless you





Thu Nov 1, 2007 5:52 pm

kelomom
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Message #252 of 1721 |
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Hi My name is Sue and my daughter Anna was recently identified with LKS. She has a host of medical issues with generalize seizures starting at 3. She is 9...
v21teacher
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Nov 1, 2007
3:09 am

Hi! Im Sam and I have a 6 year old daughter with LKS She had no speech until about a year ago and now doesnt stop talking! I think it varies but Lititia is ...
cristianosdevil@...
cristianosdevil
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Nov 1, 2007
7:11 am

Hi Sue, I am Daunette, and I have a 7 year old boy with LKS. He was diagnosed at at 3. Learning is a struggle for him too but he has learned to read almost...
kelomom
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Nov 1, 2007
5:52 pm

Hi Sue, I am also Sam, mum to Tai age 7. As the other Sam said, this illness varies greatly from child to child. I assume that your daughter has had an EEG...
Sam
samcambridge
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Nov 3, 2007
10:22 pm

Hi Sam Thanks for the email info.; So here is the 411 on Anna. Yes she has the spike pattern in her slow wave sleep cycle as documented by a video EEG during...
SL
v21teacher
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Nov 4, 2007
5:23 pm

Hi Sue, Some doctors do chose the pulse dose method. I know that it can be extremely effective in some children, without the usual side effects of steroids....
Sam
samcambridge
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Nov 4, 2007
9:43 pm

Sam THANK YOu so much for helping me through this.. so let me clarify Anna takes 5 ten milligram tablets of prednison each day for 5 days (wed - sunday) then...
v21teacher
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Nov 5, 2007
1:52 am

Sue - I feel your pain about not meeting IEP goals!! I am a teacher in the same district that my LKS child is in. It is tough! This is our districts first year...
Martha
mrth_ryn
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Nov 5, 2007
3:51 am

HI Sue, My daughter was diagnosed with LKS at 3. When first diagnosed she still had an expressive vocab of 200 or more words - was making short sentences,...
Murray, Peta E
bptl4
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Nov 5, 2007
3:10 am
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