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LandauKleffnerSyndrome · Landau-Kleffner Syndrome
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Reply | Forward Message #251 of 1721 |
Re: [LandauKleffnerSyndrome] new

Hi!
Im Sam and I have a 6 year old daughter with LKS She had no speech until about a year ago and now doesnt stop talking! I think it varies but Lititia is just going from strength to strength and so far has had no relapses as such.
 
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Thu Nov 1, 2007 7:11 am

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cristianosdevil
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Forward 		Message #251 of 1721 |
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Hi My name is Sue and my daughter Anna was recently identified with LKS. She has a host of medical issues with generalize seizures starting at 3. She is 9... 		v21teacher
Offline Send Email 		Nov 1, 2007
3:09 am

Hi! Im Sam and I have a 6 year old daughter with LKS She had no speech until about a year ago and now doesnt stop talking! I think it varies but Lititia is ...
cristianosdevil@...
cristianosdevil
Offline Send Email 		Nov 1, 2007
7:11 am

Hi Sue, I am Daunette, and I have a 7 year old boy with LKS. He was diagnosed at at 3. Learning is a struggle for him too but he has learned to read almost...
kelomom
Offline Send Email 		Nov 1, 2007
5:52 pm

Hi Sue, I am also Sam, mum to Tai age 7. As the other Sam said, this illness varies greatly from child to child. I assume that your daughter has had an EEG...
Sam
samcambridge
Offline Send Email 		Nov 3, 2007
10:22 pm

Hi Sam Thanks for the email info.; So here is the 411 on Anna. Yes she has the spike pattern in her slow wave sleep cycle as documented by a video EEG during...
SL
v21teacher
Offline Send Email 		Nov 4, 2007
5:23 pm

Hi Sue, Some doctors do chose the pulse dose method. I know that it can be extremely effective in some children, without the usual side effects of steroids....
Sam
samcambridge
Offline Send Email 		Nov 4, 2007
9:43 pm

Sam THANK YOu so much for helping me through this.. so let me clarify Anna takes 5 ten milligram tablets of prednison each day for 5 days (wed - sunday) then...
v21teacher
Offline Send Email 		Nov 5, 2007
1:52 am

Sue - I feel your pain about not meeting IEP goals!! I am a teacher in the same district that my LKS child is in. It is tough! This is our districts first year...
Martha
mrth_ryn
Offline Send Email 		Nov 5, 2007
3:51 am

HI Sue, My daughter was diagnosed with LKS at 3. When first diagnosed she still had an expressive vocab of 200 or more words - was making short sentences,...
Murray, Peta E
bptl4
Offline Send Email 		Nov 5, 2007
3:10 am
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