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Jennifer-

My daughter was dxed at 18 months. At 15 months she had a 10 word
vocab but talked like a deaf child. At 18 months she lost everything,
language, comprehension, she was just a shell of her former self.
Everyone thought that she was deaf. Family and friends especially.
She is now 9 and reads buy sight words only. She has little phonics
and has trouble with sounding words out because she can't hear them
correctly. Example: Goat is doat and Good is goood. She sings songs
with the right notes but the words are mostly jargon(really fast). If
it wasn't for the tune we wouldn't know what she was singing. Her
words are mostly monatone and she listens to TV on full volume. She
rewinds and fastwords tapes until she gets what they are saying. She
is now on her 6th VCR this year. She ahs some autistic like behaviors
but we feel that it is just the way that she copes with not
understanding. Like sequencing. She knows how thing go like ABCs and
numbers and has a hard time making words and problems with actual
puzzles. The knowing that they are in order gets in the way.

feel freee to call me anytime 702-818-4792

Gina S.














--- In LandauKleffnerSyndrome@yahoogroups.com, Jennifer Gager
<gagegang@...> wrote:
>
> Hi,
> My name is Jennifer and I have a son who was diagnosed with
> Developmental Aphasia (meaning it wasn't acquired). I have yet to
> talk/meet with anyone who has a child with this diagnosis. I've
> wondered if he has Landau-Kleffner syndrome, but the major
difference
> is that he NEVER had normal language (as far as I have been
aware).
> Does the onset HAVE to be around the age of 3? Could his have been
an
> earlier onset? Before language even began? An EEG was done on him
and
> he has abnormal brain activity on both sides of his brain. But
there
> is no sign of seizures (from looking at the EEG of about 30 min.
> duration--and a seizure has never been witnessed by anyone). My
son
> is now 9 years old. He is a SUPER sweet boy who aims to please.
He is
> not a trouble/problem child at ALL. He has had an incredibly
difficult
> time learning how to read---so much to remember (example: does "sh"
say
> "ch", "th", "h" or "sh"?)!! Any help from anyone would be most
> appreciated. Also, just knowing someone who understands my
> frustrations would be nice. :o) What are some of the major
symptoms
> of a child with Laundau-Kleffner?
> Thank you and Blessings,
> Jennifer
>







Sun Sep 24, 2006 4:37 pm

donabug2001
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Message #18 of 1721 |
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Hi, My name is Jennifer and I have a son who was diagnosed with Developmental Aphasia (meaning it wasn't acquired). I have yet to talk/meet with anyone who...
Jennifer Gager
jenngager
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Jul 4, 2006
6:07 pm

Hi Jennifer, I'm Sam, mum to Tai aged 5(thats him in the photo!). We live in England. Tai was diagnosed with LKS in April 2004. Tai has never had a seizure...
Sam
samcambridge
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Jul 5, 2006
10:34 am

Hi Sam, I appreciate your reply. My son had his one and only EEG done in October of 2004. It was done in the morning and was only watched for about 30-40 min....
Jennifer Gager
jenngager
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Jul 5, 2006
2:52 pm

Hey again.... I was just thinking about saying that my son is NOT losing his language---but maybe he is, it is just so subtle? For example: when he was trying...
Jennifer Gager
jenngager
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Jul 5, 2006
3:00 pm

Hi Jennifer, Yes, this sounds very familiar. Not with Tai, but so many parents have reported this in their children. One day they learn something, the next its...
Sam
samcambridge
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Jul 6, 2006
1:36 pm

Jennifer- My daughter was dxed at 18 months. At 15 months she had a 10 word vocab but talked like a deaf child. At 18 months she lost everything, language,...
.
donabug2001
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Sep 24, 2006
4:43 pm
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