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Reply | Forward Message #184 of 1721 |
Re: [LandauKleffnerSyndrome] Re: Adults w/LKS

When I was in the school for kids with aphasia, I was ages at 9 thr. 14, they didn't use sign language. There were about 7 kids with one teacher and one aid. When my auditory processing didn't improve enough the teacher recommended that I needed sign language so I went to public high school with a hearing impaired program. That was when I started to learn sign language. The program for kids with aphasia helps me get my speech back again.
 
How is your son doing? I was on ACTH for one and a half years, from my ages at  7 1/2 to 9. It is help me stop my seizures. I never had a seizure since age 9. Now, I am 23. I hope your son doing better.
 
Katie

sjones0707 <sjones0707@...> wrote:
My son is 7. He was diagnosed with LKS 3 years ago. He has done
great up until about a month ago. He has started having problems
with receptive language again and I'm concerned about school.

Katie,
Did you have an aid in the classroom, did you use sign language? Any
info on your school experiences would be greatly appreciated.

Thanks

--- In LandauKleffnerSyndrome@yahoogroups.com, Noreen Usler
<nusler2002@...> wrote:
>
> Hi Sam,
>
> Thank you Sam. We tried to find out how to get in touch with
Courtney but weren't able to. Would anyone be able to give Courtney
our email address?
>
> Thank you again,
> Noreen & Katie
>
>
>
> Sam <Sammycambridge@...> wrote:
> --- In LandauKleffnerSyndrome@yahoogroups.com, "keusler"
> <keusler@> wrote:
> >
> > Hi, my name is Katie. I am 23 years old. I have problems
processing
> > language since I had LKS as a child. Does everyone have any
> > questions for me? I have no seizure since I was 9. But I still
> > struggle with understanding language. I wish to contact people
with
> > same problems processing languages or I answer questions from
> > parents.
>
> Re: adult LKS seeks peer support
>
> Hi Katie and Noreen,
> Here is a message from Courtney, posted on the LKS board, which
I've
> copied onto this board for you. Click on the link to go to it:
> http://health.groups.yahoo.com/group/lks/?yguid=159066648. Hope you
> get it
> Sam
>
> --- In lks@yahoogroups.com, NLeGendre@ wrote:
> >Hello, it has been a while since I've posted on here too. I would
> be very interested in meeting an adult with LKS, or who has had MST
> (like me). I have never meant anyone with LKS, and it has been hard
> going 16 years after my MST not knowing someone with a similiar
> experience. I am 21 years old and a student with optimistic views
> about my future but still realistic when it comes to the fact that I
> am different than most people my age...I would be glad to meet or
> communicate with someone who is of my age. It would brighten my
> day..hope to hear back from ya!
>
> Courtney
>
> > <<I'm trying to locate some type of support for my daughter. She
> is 23 now
> > and, although she is doing quite well, she still suffers from
> receptive
> > aphasia. Any help you could give would be great. No, I don't have
> access to the
> > pedi LKS list.
> >
> > Thanks again,
> > Noreen Usler [keusler@]>>
>
>
>
>
>
>
> ---------------------------------
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Sun Sep 2, 2007 9:12 pm

keusler
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Message #184 of 1721 |
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Hi, What treatment was your son on? Has anything changed in terms of his treatment? Sam...
Sam
samcambridge
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Aug 28, 2007
10:21 am

When I was in the school for kids with aphasia, I was ages at 9 thr. 14, they didn't use sign language. There were about 7 kids with one teacher and one aid....
Katie Usler
keusler
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Sep 2, 2007
9:45 pm

Hi Noreen, Thanks so much for your story. As Rosa says it gives us hope for the future. It is great that Katie has a job and can drive. I do worry about the...
Sam
samcambridge
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May 30, 2007
1:24 pm

Sam, For some reason I can't get into message 20046. It looks like there are only 111 messages. Thanks, Noreen Sam <Sammycambridge@...> wrote: Hi Noreen, I...
Noreen Usler
nusler2002
Offline Send Email
Jun 2, 2007
2:02 am

He was diagnosed at 4 and 1/2. At that time we did 3 months of ACTH. After that, we had to start Prednisone. He responded very well. Over the last three...
Sherry Jones
sjones0707
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Sep 2, 2007
2:50 pm

Hi, My son was diagnosed at age 3 and a half, he has just turned 7. We tried the Prednisolone after his diagnosis, and this cleared his EEG. As we reduced the...
Sam
samcambridge
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Sep 2, 2007
9:40 pm

Sam, I feel our neurologist is just playing a guessing game with meds for Kyra. First we tried Klonopin, she was on that for 5 mos, and continued to have...
Terry Street
groovy1202
Offline Send Email
Sep 2, 2007
10:26 pm

Terry - The prednisone was our miracle. My daughter, Hannah was on pred at age 7 (She is now 10)for about 9 months ( Iwanted it longer) it has worked for her...
Martha
mrth_ryn
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Sep 6, 2007
12:59 am

Terry, My son has never been diagnosed with LKS, but what he has (developmental aphasia) is the closest thing to LKS that I can find ANY kind of...
Jennifer Gager
jenngager
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Sep 6, 2007
4:08 pm

Terry, Since she is so young and having feeding problems anyway, you might want to look into the ketogenic diet. (It worked for my daughter for a year and a...
Lisa Matzenbach
peachannetoo
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Sep 2, 2007
10:54 pm
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