Hello everyone,

I am surfing the internet looking for support groups and info on LKS.
My daughter is 3 1/2 and was diagnosed with LKS in May 2006. Her
receptive and expressive language has all but disappeared. Her EEG
continues to get worse, instead of better - even though she is on a
cocktail of Epilim, Lamictal and Prednisolone. The steriods are
really playing havoc with her behaviour, so much so that we are now
seeing a child psychiatrist and we are also considering medication to
curb her aggression, sleep issues, hyperactivity etc.

I feel like we are travelling a very long and lonely road here and the
end is no where is sight.

I would love to hear from anyone with a kind word and sound advice.

Peta