Hi Alany,

Here are some links to the websites, which has much more activity
than this one.

http://health.groups.yahoo.com/group/Folkslist/messages
http://health.groups.yahoo.com/group/lks/?yguid=159066648
http://health.groups.yahoo.com/group/RareEpilepsySyndromes/?
yguid=159066648
http://brain.hastypastry.net/forums/forumdisplay.php?f=153

Let us know how you get on with your daughter

Sam



--- In LandauKleffnerSyndrome@yahoogroups.com, ajh1 <ajh1@...> wrote:
>
> I used to be on that list but I can't find it again. I looked at
the
> Folks website today for it but I came across this one.
>
> By the way I am new. I have suspected LKS for quite some time
because
> there is no other explanation. Many tests later we come to the
> diagnosis. She is on Trileptal but it doesn't seem to be 100% yet.
She
> is about half the dose of where she should be and building up.
>
> Thank you for letting me be part,
> Alany
>
> Michelle wrote:
> >
> > For those of you on here, I wanted to let you know there are 2
other
> > forums for LKS named "lks" and "folkslist" which both have a much
> > higher number of members. If you haven't found them yet, they are
> > worth looking at.
> >
> > Michelle
> >
> >
>