LandauKleffnerSyndrome : Landau-Kleffner Syndrome

LandauKleffnerSyndrome · Landau-Kleffner Syndrome

Group Information

Members: 119
Category: Epilepsy
Founded: Jan 9, 2006
Language: English

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Activity within 7 days:

2 New Members - 43 New Messages - New Questions

Description

This is a support group for parents, carers, relatives or friends of children or adults with Landau-Kleffner Syndrome.

This is Tai aged 3 before starting steroid treatment for LKS

Most Recent Messages

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mild intermittent slowing of background eeg Hi all, Bennett had his 48 hour EEG done a few weeks ago which showed no seizure activity or epileptiform activity but DID show mild intermittent background Posted - Sat Nov 21, 2009 6:46 pm	Pamela psbassin Offline Send Email
Question about Dulac protocol! We've finally persuaded our neurologist to let us try hydrocortisone. Gregor had leukaemia at 3, which is why she's been reluctant to lower his immunity, but Posted - Sat Nov 21, 2009 6:04 pm	megan40hughes Offline Send Email
Normal age Sharon said that Trent's a little older than normal for LKS. I was just wondering what is approxamitly the normal age, and how long it can take for the Posted - Sat Nov 21, 2009 4:15 pm	jsbpow Offline Send Email
Re: Neurologist ? Megan, thank you for the info. I am going to try and get Trent into Dr Patel. I was wondering if you could tell me how she is. Is she knowledgable about LKS, Posted - Sat Nov 21, 2009 3:23 pm	jsbpow Offline Send Email
Re: Neurologist ? Erin, Shaking seizures not being a part of LKS?? That makes no sense at all. Seizures are inherently part of LKS. 70% of children with LKS experience them. 30% Posted - Sat Nov 21, 2009 2:41 am	Sharon cgibson91 Offline Send Email
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Message History

	Jan	Feb	Mar	Apr	May	Jun	Jul	Aug	Sep	Oct	Nov	Dec
2009	24	43	130	86	45	105	186	70	44	63	99
2008	46	55	4	19	66	48	50	32	20	31	30	11
2007		14		39	29	36	23	12	47	22	21	46
2006				1	1		7	1	9		9

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