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LandauKleffnerSyndrome · Landau-Kleffner Syndrome

Group Information

  • Members: 119
  • Category: Epilepsy
  • Founded: Jan 9, 2006
  • Language: English
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Activity within 7 days:

2 New Members - 43 New Messages - New Questions

Description

This is a support group for parents, carers, relatives or friends of children or adults with Landau-Kleffner Syndrome.








This is Tai aged 3 before starting steroid treatment for LKS

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mild intermittent slowing of background eeg
Hi all, Bennett had his 48 hour EEG done a few weeks ago which showed no seizure activity or epileptiform activity but DID show mild intermittent background
Posted - Sat Nov 21, 2009 6:46 pm
Pamela
psbassin
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Question about Dulac protocol!
We've finally persuaded our neurologist to let us try hydrocortisone. Gregor had leukaemia at 3, which is why she's been reluctant to lower his immunity, but
Posted - Sat Nov 21, 2009 6:04 pm
megan40hughes
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Normal age
Sharon said that Trent's a little older than normal for LKS. I was just wondering what is approxamitly the normal age, and how long it can take for the
Posted - Sat Nov 21, 2009 4:15 pm
jsbpow
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Re: Neurologist ?
Megan, thank you for the info. I am going to try and get Trent into Dr Patel. I was wondering if you could tell me how she is. Is she knowledgable about LKS,
Posted - Sat Nov 21, 2009 3:23 pm
jsbpow
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Re: Neurologist ?
Erin, Shaking seizures not being a part of LKS?? That makes no sense at all. Seizures are inherently part of LKS. 70% of children with LKS experience them. 30%
Posted - Sat Nov 21, 2009 2:41 am
Sharon
cgibson91
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 24 43 130 86 45 105 186 70 44 63 99
2008 46 55 4 19 66 48 50 32 20 31 30 11
2007 14 39 29 36 23 12 47 22 21 46
2006 1 1 7 1 9 9
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