| Name |
Creator |
 LNS Links
Pioneer Links about LNS
|
|
Web sites on LNS
These are links to web sites by LNS families or Organizations
|
|
Arc: The Arc
The Arc of the United States works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community. Follow the links to find an Arc in your state.
http://www.thearc.org/about.htm |
aymanwish
|
Digital Info
The Accessible Book Collection is a private non-profit providing adaptive reading material or information access for the blind & disabled
http://www.accessiblebookcollection.org |
ay2001ya
|
European LNS Website
http://www.lesch-nyhan.eu |
aymanwish
|
FDA Product Safety Information - Thanks Naomi
Gateway for timely safety information on the drugs and other medical products regulated by the U.S. Food and Drug Administration.
http://www.fda.gov/medwatch/ |
aymanwish
|
Find Your Senator
US Senate
http://www.senate.gov/ |
ay2001ya
|
French Association for Lesch-Nyhan Action - Maladie Genetique
Text in French
http://orphanet.infobiogen.fr/associations/LNA/LNA.html |
aymanwish
|
Google's Academic Search Engine (Google Scholar)
Google has launched its first ACADEMIC SEARCH ENGINE (Beta Version). Google staff are digitizing references in 5 major academic libraries around the United States to make available to the public domain.
http://scholar.google.com |
aymanwish
|
Harcourt Educational Measurement
Source for Testing Practices in Education
https://harcourtassessment.com/hai/International.aspx |
aymanwish
|
How to Write Letters of Medical Necessity
If you have a Health Insurance company that you need to convince about covering the cost of necessary medical equipment or services, you need to review this advice from a pro. Follow the Links, too.
http://www.rifton.com/r/Resources/LettersOfMedicalNecessity/Index.htm |
aymanwish
|
Inclusion Research Institute
IRI is to develop, research, and disseminate educational, therapeutic, and technological innovations that enable persons of all ages, including individuals with disabilities or other disadvantages to be independent, productive and included in schools, communities, and places of employment.
http://www.inclusionresearch.org |
ay2001ya
|
Italian Web Site for LNS
Text in English
http://www.webst.it/lesch-nyhan/engl2.htm |
aymanwish
|
Language Translation Web Site
Copy & Paste Your Text to Translate it to Another Langauge
http://babel.altavista.com/translate.dyn |
aymanwish
|
Learn to Negotiate the Best Options for Your Child
There is nothing better than having a plan before you ask for services for your child. Learn how to be prepared. It's simple.
http://www.wrightslaw.com/advoc/tips/palmer_negotiation_process.htm |
aymanwish
|
National Family Caregivers Association (NFCA)
NFCA is a grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones.
http://www.nfcacares.org/ |
aymanwish
|
National Society of Genetic Counselors
Find a genetic counselor in your area
http://www.nsgc.org/ |
aymanwish
|
Online Genetic Support Groups Directory
Find support groups for many diseases
http://www.mostgene.org/support/index.htm |
aymanwish
|
Parents Helping Parents
Empowering Families & Communities to Meet Children's Special Needs. Take it from those who have walked your road, before you. You can find a lot of helpful info & links.
http://www.php.com/ |
aymanwish
|
Philip Baker's Home Page
This is one Proud LNS gentleman with a wonderful web page to show.
http://hometown.aol.com/pbaker71/myhomepage/profile.html |
aymanwish
|
Philip Baker's Website
Philip Baker's New website rich with information and useful links
http://www.philipbaker.org |
aymanwish
|
Publisize or Read Consumer Complaints.
Check complaints on any product or service, before you buy.
http://www.complaints.com/ |
aymanwish
|
Robbie Carrera's Home Page
This is a great effort entered by the Carrera Family. Good going, Robbie. Great job! :-)
http://www.geocities.com/help4leschnyhan/ |
aymanwish
|
SNT or Special Needs Trusts for Individuals with Disabilities
This is a link to the web site of a law firm that provides a lot of information about SNTs (Special Needs Trusts)
http://www.achievingindependence.com/ |
aymanwish
|
SNT or Special Needs Trusts for Individuals with Disabilities
This web site describes the essentials of an SNT in simple language and simple format, easy to read and understand.
http://www.marthachurchill.com/ddsntintro.htm |
aymanwish
|
SNTs by the Oley Foundation
More personal perspectives about SNTs one should think about.
http://c4isr.com/oley/lifeline/Specialneeds.html |
aymanwish
|
Succeed by Thinking
This is a source for books that may assist in figuring out the services you may need for your child, Kindergarten to Adult. Books are of general interest to the public at large. However, some resources address children with special needs. Though LNS families usually go it on their own, these resources may assist our children in planning for their specific educational needs. This is a private site, selling books on Critical Thinking related to the academic curriculum that may benefit our sons.
http://www.succeedbythinking.com |
aymanwish
|
The National Work At Home Moms Association
Non Profit Association Helping families one mom at a time. S.A.M. Program. Professional Expos and Seminars. Career resources.
http://www.nationalworkathomemomassociation.com/ |
aymanwish
|
Ukranian web site on LNS
http://www.ibis-birthdefects.org/start/ukrainian/ulesch.htm |
aymanwish
|
Wrights Law Firm
This law firm specializes in Special Education and their web site provides a wealth of information about educating people with disabilities in the school environment and in the community.
http://www.wrightslaw.com/ |
aymanwish
|
Yahoogroups.com Terms of Service
http://docs.yahoo.com/info/terms/ |
aymanwish
|
Yellow Pages for Kids with Disabilities by State in USA
Links to U.S. Help Organizations
http://www.fetaweb.com/help/states.htm |
aymanwish
|
