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Beaumont sees results in nation's 1st urinary nerve rewiring surgeries for spina bifida patients
Seven children from across the United States are gaining bladder control through a revolutionary, first-in-the-nation nerve rerouting surgery for patients with spina bifida.
https://www.beaumonthospitals.com/news-story-beaumont-results-urinary-nerve-rewiring-surgeries-spina-bifida-patients
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Latex Allergy Links
http://www.latexallergylinks.org/
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More than Skin Deep - Not-so-subtle markers unmask 'occult' spinal dysraphism
"They call these occult spinal dysraphisms, but in fact they are not really occult," said David McLone, M.D., FAAP, professor of surgery at Northwestern University and chairman of pediatric neurosurgery at Children's Memorial Hospital, Chicago. "Most of these children have markers--either a hemangioma, a hairy patch, a dimple, or a lump--that tells you there's some problem with the underlying nervous system."
http://nasw.org/users/twoharts/OSD.html
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Neurogenic Bladders
The normal function of the urinary bladder is to store and expel urine in a coordinated, controlled fashion. This coordinated activity is regulated by the central and peripheral nervous systems. Neurogenic bladder is a term applied to a malfunctioning urinary bladder due to neurologic dysfunction or insult emanating from internal or external trauma, disease, or injury.
http://www.emedicine.com/med/topic3176.htm
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Neurosurgery4Kids - Tethered Spinal Cord
Good site from Primary Childrens Hospital of Utah with an excellent description of the signs, symptoms and causes of TC written in laymens terms.
http://neurosurgery4kids.net/tetheredspinalcord.htm
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Spinal Dysraphism/Myelomeningocele
Spinal dysraphism can be classified as closed forms or open forms, which include myelocele, meningocele, and myelomeningocele. These open forms are often associated with hydrocephalus and Arnold-Chiari malformation type II and may be classified as spina bifida aperta. Von Recklinghausen (1886) gave a detailed account of spina bifida cystica (aperta). Spina bifida is described in the medieval literature, although the condition was recognized even earlier. Indeed, the association of foot deformities with lumbar or lumbosacral hypertrichosis may be the origin of the mythological figure of the satyr.
http://www.emedicine.com/radio/topic643.htm
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Spinal Lipomas
Lipomas of the spinal cord are among the most fascinating lesions encountered by the pediatric neurosurgeon. An understanding of spinal lipomas may, however, be difficult because the terminology used to describe the accumulations of spinal fat is confusing, inconsistently applied, and at times contradictory. An anatomical characterization of lipomas may assist in understanding these lesions.
http://www.medscape.com/viewarticle/405673
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Split Cord Malformation: Part I: A Unified Theory of Embryogenesis for Double Spinal Cord Malformations.
http://www.neurosurgery-online.com/pt/re/neurosurg/abstract.00006123-199209000-00010.htm;jsessionid=DDYWqjZv3ogLHcNYUrj2F7EUiEJcKuhO1qfH0GWHfifDqqTDTEEV!-379314127!-949856144!9001!-1
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Symptomatic cerebellar tonsillar ectopia in lipomyelomeningocele patients
An article discussing the links between LMC and Chiari
http://www.cerebrospinalfluidresearch.com/content/2/S1/S19
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THE ADHESIVE ARACHNOIDITIS SYNDROME
Adhesive arachnoiditis presents with diverse symptoms, which may relate to problems outside the CNS, and could therefore be described as a syndromic picture. However, bearing in mind that the treatments used for the neurological symptoms may cause a variety of side-effects, it is difficult to say exactly which symptoms can be directly and solely ascribed to arachnoiditis and which are more complex in origin.
http://www.arachnoiditis.info/content/the_adhesive_arachnoiditis_syndrome/the_adhesive_arachnoiditis_syndrome_12.html
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Tethered Cord Syndrome and Occult Spinal Dysraphism
I think you need to register (for free) on this site to view link... If you don't want to, email me for a copy of the article at conni60640@aol.com
http://www.aans.org/education/journal/neurosurgical/jan01/10-1-1.pdf
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Tethered Cord and Association of Imperforate Anus With Occult Spinal Dysraphism
Article exerpts from Fred Epstein and Dimitris E. Tsakayannis and Robert C. Shamberger
http://www.pullthrough.org/ptnn13.html
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Tethered cord syndrome in children: a review
The treatment of a patient with symptoms of a tethered spinal cord and in whom a fatty infiltrated terminal filum is found is controversial. The authors review their experience and the literature regarding this aspect of occult spinal dysraphism. From experience, transection of a fatty terminal filum in patients with symptoms related to excessive caudal cord tension is a minor procedure that generally yields good results. The most problematic issue in the literature is what patients and symptoms are best suited to surgical treatment
http://www.aans.org/education/journal/neurosurgical/Aug07/23-2-2-1206.pdf
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The American Society of Pediatric Neurosurgeons
http://www.aspn.org/
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Vibralite 3, yahoo comparison shopping link
The Vibralite 3 watch has been recommended by one of our members as an easy, discreet way to remind children when it's time to go to the bathroom, cath, take meds, or whatever they need to do. A great way of encouraging independence without nagging!
http://shopping.yahoo.com/search/;_ylc=X3oDMTJmbTd1YzMwBF9TAzk2MDc5MjYwBGFkZ3JwAzI4NzY3NDA0MwRldnQDODg1MDcxMwRrA3ZpYnJhbGl0ZTMEb21tA2Jyb2FkBHNlYwNrYgRzbGsDdGl0bGU-?view=l&p=vibralite3&sp=pall&no_truncation=1&sem=google
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What is syringomyelia?
Info on syrinxes from the American Syringomyelia Alliance Project site
http://www.asap.org/syringomyelia.html
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