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LGgliomakids · Low Grade Glioma Kids

Group Information

  • Members: 355
  • Category: Brain Tumors
  • Founded: May 26, 2006
  • Language: English
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53 New Messages

Description

This is a support group for parents of children with low grade gliomas of any type - juvenile pilocytic astrocytoma (JPA), pilomxyoic astrocytoma (PMA), pleomorphic xanthoastrocytoma (PXA), fibrillary astrocytoma, oligodendroglioma or ganglioglioma. All locations are welcome including brainstem, cerebellar, thalamic, hypothalamic, cerebral, tectal plate and optic pathway. Those with multifocal or disseminated low grade gliomas are also welcome.

This is a place to connect with others going through similar experiences- a chance to talk about people who don't understand "benign" brain tumors, handling "watch and wait", and to discuss advocacy/research.

In addiition to using the site like a traditional listserve (getting posts sent to an email address), one can also use this similar to a bulletin board/forum by going to the mainsite to view posts from the web. It is possible to see an entire thread in this way. From the website one can also look at relevant links and files as well as reviewing the archive history.

We are pleased to be the listserve of choice for the organization FightPLGA (and its older sister Fight JPA). This non-profit organization is the only worldwide organization dedicated to fighting PLGA by accelerating the pace of PLGA research through dedicated fundraising, increasing researcher awareness and uniting the PLGA community by providing resources and information .

For more information on pediatric low grade gliomas- www.fightjpa.org or www.fightplga.org

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 364 346 502 279 312 338 161 232 184 260 168
2008 429 276 338 269 204 316 278 443 358 375 376 322
2007 242 194 144 113 210 122 97 82 181 161 182 185
2006 9 154 171 258 286 137 140 115

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