Hi Everyone,

Maybe you've wondered why promising alternative treatments like LDN do not
receive more publicity. A book entitled, "Racketeering in Medicine: Suppressing
Alternatives," explains and exposes the fact that Big Pharma and other special
interest groups are doing everything they can to promote drugs and surgery,
while keeping people in the dark about alternative treatments. For more
information, visit

http://tinyurl.com/yrfgnj

Check it out!

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

----- Original Message -----

From: Bruce Guilmette, Ph. D.

To: LDN_Users@yahoogroups.com

Sent: Monday, November 05, 2007 4:21 AM

Subject: RE: [LDN_Users] Re:MMS

Have not had time to look at it, but from what I am seeing, it looks more like hype than fact.  I really need to spend some serious time at pubmed (www.pubmed.com), but when I put in “chlorine dioxide cancer” as a search string it brought back only 13 studies. The first study published on it lead off with an article that says “We conclude that sodium chlorate caused some thyroid gland neoplasms in male and female rats. The pancreatic islet cell tumors in female mice may have been related to sodium chlorate exposure.”  Sodium chlorate is the result of disinfecting drinking water with chlorine dioxide.  This is not something that I would be particularly eager to do to myself.   

My basic criteria for something safe/effective is to find legit published studies done by reputable scientific groups.  I want a minimum of 30 studies and 80% of those positive.  Again, this is my criteria and it is pretty conservative, but I am not in a rush to dump more chemicals into me that do not have an established track record.  People are all too eager to grasp at unknowns when there are viable avenues to pursue.

I just went back and looked at a couple more.  If you want to use it, go for it but don’t ask my blessing.  All I see is TOXIC and significant cytogenic damage.  That is not something I want to put in anyone’s body, let alone mine.

Regards,

Bruce Guilmette, Ph.D.

http://survivecancerfoundation.org

---

From: LDN_Users@yahoogroups.com [mailto:LDN_Users@yahoogroups.com] On Behalf Of Dave Carlin
Sent: Sunday, November 04, 2007 8:53 PM
To: LDN_Users@yahoogroups.com
Subject: Re: [LDN_Users] Re: Furnace

Hi Dr Bruce.

Wondering if you have heard about this new chlorine dioxide craze going on right now (MMS)

It claims to be a cure for cancer, malaria, and many other things. Have you heard of it?

---

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Checked by AVG Free Edition.
Version: 7.5.503 / Virus Database: 269.15.21/1109 - Release Date: 11/4/2007 11:05 AM

Does anybody here have any experience with GABA for anxiety?

Thanks,
Alana

Does anybody here have experience with DLPA for depression?

Thank you,
Alana

Hi Molly,

In cases of MS, Dr. Skip Lenz, a Florida pharmacist and LDN expert, recommends
1.5 mg nightly for the first month, 3 mg the next month, and the 4.5 mg
thereafter.

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany


-----Original Message-----
From: enlightenedmolly
Sent: Friday, November 16, 2007 5:04 PM
To: LDN_Users@yahoogroups.com
Subject: [LDN_Users] Re: LDN and Symtom Relief....../Copaxone

--- In LDN_Users@yahoogroups.com, toddsgirl1977@... wrote:
>
> My neuro told me that I wouldn't see anything as far as improvement
on
> Copaxone for 8 months.  Did anyone experience this?
>
> Samantha   </HTML>
>

I was on Copaxone for 8 YEARS and didn't see any improvement. I guess I
didn't progress a lot, but I did progress.  I stopped taking the
Copaxone in April and have not noticed a change.  I don't think it was
doing anything for me.  I started taking LDN on Monday. I have already
noticed an improvement in my walking/balance.  I am only taking 1mg now
and am anxious to get to at least 3 1/2 mg.




Yahoo! Groups Links

--- In LDN_Users@yahoogroups.com, toddsgirl1977@... wrote:
>
> My neuro told me that I wouldn't see anything as far as improvement
on
> Copaxone for 8 months.  Did anyone experience this?
>
> Samantha   </HTML>
>

I was on Copaxone for 8 YEARS and didn't see any improvement. I guess I
didn't progress a lot, but I did progress.  I stopped taking the
Copaxone in April and have not noticed a change.  I don't think it was
doing anything for me.  I started taking LDN on Monday. I have already
noticed an improvement in my walking/balance.  I am only taking 1mg now
and am anxious to get to at least 3 1/2 mg.

Susanne,

Please use distilled water when you dissolve your 50 mg. Naltrexone.
I don't know if you can buy it at pharmacies where you live.

Have a fine day :-)...
From Ingrid

Bruce,

That is wonderful news!

Nice to start the day hearing good stuff like that!

Alana






>>>  Just a quick note.Passed the 3 year mark since terminal
diagnosis.  No
> chemo, surgery, radiation of any kind.
>

----- Original Message -----

From: Bruce Guilmette, Ph. D.

To: LDN_Users@yahoogroups.com

Sent: Sunday, November 11, 2007 4:38 PM

Subject: [LDN_Users] surviving

Just a quick note…Passed the 3 year mark since terminal diagnosis.  No chemo, surgery, radiation of any kind.

Regards,

Bruce Guilmette, Ph.D.

http://survivecancerfoundation.org

author:  There's More To Life Than Just Living

---

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Joyce Nelson

President CEO NMSS

Salary $361,731.00!!!


National Multiple Sclerosis Society founded in 1946

Total Revenue

$99,695,906.00!!!


Cure for Multiple Sclerosis = ZERO

Safe, Effective, Inexpensive treatment for MS funded by the NMSS =
ZERO



http://www.charitynavigator.org/index.cfm?
bay=search.summary&orgid=4189

Provigil Warning!!!

For all of you that have been prescribed Provigil (modafinil) for MS-
related fatigue: the FDA has issued a warning that Provigil has been
linked to serious skin rashes and psychiatric symptoms.

Instead of me trying to restate these warnings, I give you this,
straight from the FDA letter:

   a.. Skin rashes: "Rare cases of serious or life-threatening rash,
including SJS (Stevens-Johnson Syndrome), Toxic Epidermal Necrolysis
(TEN), and Drug Rash with Eosinophilia and Systemic Symptoms (DRESS)
have been reported in adults and children in worldwide post-marketing
experience. The reporting rate of TEN and SJS associated with
modafinil use, which is generally accepted to be an underestimate due
to underreporting, exceeds the background incidence rate. Estimates
of the background incidence rate for these serious skin reactions in
the general population range between 1 to 2 cases per million-person
years."

   b.. "Psychiatric adverse experiences (including anxiety, mania,
hallucinations, and suicidalideation) have been reported in patients
treated with modafinil. Caution should be exercised when PROVIGIL is
given to patients with a history of psychosis, depression, or mania.
If psychiatric symptoms develop in association with PROVIGIL
administration, consider discontinuing PROVIGIL."

Bottom line: Contact your doctor if you are on Provigil and concerned
(and IMMEDIATELY contact your doctor if you experience ANY sort of
unusual rash or mood changes while taking Provigil).

Wednesday October 31, 2007

http://ms.about.com/b/2007/10/31/provigil-warning.htm

Hi Kiki,

I found it  -



October 1, 2007



http://wor710.com/pages/48794.php



Alana

Tim, Sorry this is so late in coming, but my computer has been down. I
wrote this about a year ago, and I continue to do great! Please feel free to
call(256-245-4627) or email me  if you have more questions. Bill Roberts




My MS Experience
My name is William (Bill) Roberts; I am 57 years old, was diagnosed with
RRMS in 1998, and upgraded to Secondary Progressive in 2002. My chief
symptoms are (were) extreme mixed sleep apnea, COPD, inability to walk,
total deafness in my left ear, and inability to concentrate for any period
of time. I have been treated with Avonex, Copaxone, and Rebif of the ABCR
drugs, chemotherapy (Cytoxan, plasma exchange, as well as many, many
sessions of IV steroids (Solumedrol). As of June, 2005, I was on oxygen
24/7, wheelchair bound, having a flair of my MS on an average of once a
month, and doctors had told me that my breathing difficulties, caused by the
MS, would ultimately result in my demise. I had also ballooned in weight to
289 pounds. Two of the top neurologists in Birmingham consulted and agreed
that, while continuing on Rebif, I should begin taking a week of IV steroids
every three months, regardless of my condition. I did not feel that the
steroids were offering enough positive results any longer, and I did not
want to take any more. I asked if they would mind my getting an alternate
opinion from another neurologist. They agreed.
My new neurologist reran all of the standard MS tests, including MRIs. After
studying the results, she suggested I stay on the Rebif and see what the
next two months showed with regard to flares or episodes, then to probably
go back on chemotherapy. I asked her, at that time, if she would prescribe a
drug LDN (Low Dose Naltrexone), for me. I had read a great deal about it and
talked to a number of MS sufferers who had improved with the use of LDN, a
medication that is FDA approved as a treatment for Heroin addiction and
alcoholism. She said she had never prescribed it but had also read a lot
about it. She agreed to prescribe it.
I began, around the first of July, 2005, with 1.5 Mg per day for the first
week, then increased to 3.0 Mg from then, on. I also stopped taking the
Rebif at that time. While I did not notice any improvement for the first
three months, I also had NO flares either. Then, I began to notice that my
breathing was improving- I could take time off from the oxygen for extended
periods of time; the strength in my legs and arms was improving- I began to
be able to take short walks with a walker, then longer walks, then changed
to a cane, then actually walked to the bathroom without assistance! My sleep
began to improve, as well. Improvement continued and actually increased, so
that when I went for my six month check-up with my neurologist, I did not
even take my cane, and I blew away my neurologist by acing all the tests. I
am now driving again after four years, walking totally without assistance,
and have dropped my weight down to 232 pounds. I hope to get back to my
normal weight of 195 by year's end.  In April, after my wife was diagnosed
as a borderline diabetic, I walked in a “Walk For Diabetes.” I walked just
over 21/2 miles, with no assistance, beginning with the first group out and
finishing with the first group in! I was both pleased and proud to
accomplish something  else I never thought I would be able to do again. Now,
I plan to spend the summer building a fence in our back yard and
re-landscaping  it.
LDN is NOT a cure for MS. I still have it, and I still have issues with it
that I have to deal with everyday, but I attribute my miraculous improvement
to LDN, attitude, faith, and my new neurologist's willingness to prescribe
LDN for me. It is allowing me to do things I never thought I would be able
to do again, and if it were to become an approved treatment for MS it could
not only possibly do the same for others that it has done for me, but it
could also possibly free up millions of dollars that could be used to find
the cause of diseases such as MS. Finding the cause for a disease  brings
researchers MUCH closer to finding a true cure.
Pharmaceutical companies need to be able to make a profit off of the drugs
they develop through their research. The cost of  such research is very
high, and  LDN, a very inexpensive medication, will not produce the profits
those companies need in order to warrant their doing the trials to get it
approved for MS, as well as ALS, Alzheimer’s, Parkinson’s, AIDS, Crohn’s,
many types of cancer, child autism, and even Rheumatoid arthritis. .
Websites- http://www.lowdosenaltrexone.org  and http://www.ldners.org

Thank you. Sincerely,
William (Bill) Roberts



>From: "Tim Purcell" <jsbam2003@...>
>Reply-To: LDN_Users@yahoogroups.com
>To: LDN_Users@yahoogroups.com
>Subject: [LDN_Users] Your Help Neded
>Date: Sat, 03 Nov 2007 15:46:39 -0000
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>FILETIME=[C3177210:01C81E5B]
>
>Sorry if you get this post several times, if you belong to different
>boards you just might, but I truly would like your help so please
>bear with me. 1st about me. In May of this year I was diagnosed with
>Clinically Isolated Syndrome, after an exasperation that left me
>walking with a cane. After all the standard MS tests I was found to
>have 8 separate lesions on my brain and spinal fluid consistent with
>MS, but because I could not remember (at the time) any other odd
>past problems this had to be considered my first attack and the
>diagnosis had to be CIS and not MS, until I had a separate attack. I
>have since had new symptoms in the last few weeks (and remembered
>some old ones) and am fairly sure the diagnosis will become MS when
>I visit my Neurologist next. I started on Avonex in July and think
>maybe that the attack I have been having in the last few weeks has
>not been as bad as it might have been because of the Avonex. So like
>everyone else I have been on the internet as much as possible since
>then and that has led me to you LDN folks. It took me a while to
>actually start investigating LDN because there are just too many
>snake oil salesmen out there and unless you dig a little deeper, on
>the surface LDN seems to fit into that category. The only reason I
>eventfully started my investigation was because I found out that
>know body was trying to sell me anything. Now that you know where I
>am coming from, I would like to ask a few of you, actually the more
>the better, to give me some direct information. I have been trying
>to find stories from LDN users that have been successfully using LDN
>for many years and have also been under a Doctors care for that
>time. I know the stories are out there but one gets very dizzy
>trying to find all the sites or old posts that store your stories.
>If at all possible I would like to have a data base of sorts with
>personal stories of long term LDN users that have had great success
>that can be verified by their doctor. I am going to my Dr in a
>little over a month and I want to have a talk with him about LDN,
>but I really want it be as informed as possible. Also, if by chance
>any of you have discussed LDN with my doctor, Dr Victor Rivera at he
>Maxine Mesinger Multiple Sclerosis Clinic in Houston Texas, I would
>also like to know how that went. Please, any and all long term
>success stories are welcome; I have a friend with cancer of the
>esophagus and I would love to get him to at least look at LDN and do
>some investigations of his own. Please send these to me via my
>private email address so it does not clutter up the board, unless
>you want to share your stories once again with the masses.
>Thank You in Advance
>Tim Purcell
>
>

_________________________________________________________________
Be the first to know who’s in and who’s out.  Check out the xRank.
http://search.live.com/xrank/results.aspx?q=britney+spears&FORM=MGCC01

This past summer, a friend got rid of her narcolepy-like symptoms by
going gluten free (right before she took on a job as a flight
attendant at age 55).  So I tried it. (I read about it 20 years ago
in Judy Graham's MS books....Duh!...) I'm a Southern girl and rice
has always been my main staple so it was easy giving up pasta and
bread.  I have easily dropped 20 pounds with no cravings (That's
where I think LDN helped).  If I should eat something bad, I feel it
in my hands first.  My symptom I am trying to eliminate is inability
to stay focused...like read a book!  I definitely feel more
empowered.  Also I started with some of the things I learned at
www.earthclinic.com like oil pulling, black strap molasses, coconut
oil,etc. The Gluten stuff makes sense and it is too bad that they
(medical establishment) didn't pay attention to this in the past.
With my gut problems as a kid ('50's), they just said I was
a "nervous child", so now I have a MS dx, osteoporosis overnight,
never had kids,jawbone infection. So folks, pay attention to this.It
is inherited.  One MS friend said that her neuro, upon dx, said "I'm
sending you over for allergy testing".  She said, "I'm not allergic
to anything.  He said, "You are, you just don't know you are".
Thanks, Kiki, for bringing this to the forefront.  Good luck. With
LDN, it should be a "Piece of cake", right??? MAG

--- In LDN_Users@yahoogroups.com, "tbayuk" <tbayuk@...> wrote:
> Sent: Thursday, November 08, 2007 6:35 PM
> Subject: read to the end....soooooo interesting!!
>
>
> I find that when I do not eat, I walk better and feel better
overall. I cannot put my finger on why...but I will try a no
wheat/gluten diet for a few weeks to see if it helps. It will be
very hard because I love my pasta and bread and cakes
and...............and.....................................! I'll let
you know if anything eventful occurs. This article really was
interesting for a few different neuro diseases. I hope you find it
as informative as I did.
>
> Kiki
>
>
http://jccglutenfree.googlepages.com/theneurologicalmanifestationsofg
luten
>
>
>
>
>
> -------------------------------------------------------------------
-------------
> See what's new at AOL.com and Make AOL Your Homepage.
>

Hi Kiki,


I understand your feelings,
but  -
there are lots of gluten free products out now.

You can also make your own.


Have you checked out the SC Diet sites?
If memory serves, I think they have recipes.



www.scdiet.com

www.scdiet.org



Also, Dr. Hoffman had a program  -
I will try and find it for you.


Alana







>>>  It will be very hard because I love my pasta and bread and cakes
and...............and.....................................!

This seems like a really nice, friendly, helpful, positive, supportive,
non-judgemental group  -
but it is very quiet.

How can we get people talking in here?

Hope everyone is doing well and will be able to rest and relax this
weekend.

Alana

Hi Yvette,

A lot of people cannot tolerate MSG.
I can't, and I have an aunt who must avoid it also.

Alana






--- In LDN_Users@yahoogroups.com, Yvette Deluca Davis
<atlanteanproductions@...> wrote:
>
> and don't forget, MSG is just as bad.
>
> I know, for me.. when I accidentally get MSG, I lose balance (think
> walking pinball), develop stuttering that makes Porky Pig look like a
> top orator, my vision goes out, and my left arm gets weak.
>
>
> Yvette

and don't forget, MSG is just as bad.

I know, for me.. when I accidentally get MSG, I lose balance (think
walking pinball), develop stuttering that makes Porky Pig look like a
top orator, my vision goes out, and my left arm gets weak.


Yvette
MS - 1st symptom 20 years ago, tentative MS dx, 10 yrs ago, final MS dx
2 yrs ago.
on ldn 3 1/2 weeks.

>
>


--
Yvette Deluca Davis
Freelance Writer
Atlantean Productions


www.atlanteanproductions.com



Homeschooling outside the bell curve
http://exceptionalhomeschool.blogspot.com/


Living and learning with Multiple Sclerosis
http://www.xanga.com/Ms_Quill

Works on spiders, too.
As a homeschool experiment, my daughter treated a couple ant hills in
our back yard with aspartame. She also laid a trail of the stuff where
we had ants in the house. 36 hours later, no more ants, and a couple of
dead spiders, too. We don't have roaches, but I'd be curious to see
what, if any effect, aspartame had on roaches.

Yvette

Art Hansen wrote:
>
>
>
> "How does it Work: Aspartame is a neuropoison. It most likely kills
> the ants by interfering with their nervous system. It could be
> direct, like stopping their heart, or something more subtle like
> killing their sense of taste so they can't figure out what is
> eatable, or smell, so they can't follow their trails, or mis-identify
> their colonies members, so they start fighting each other. Not sure
> what causes them to end up dying, just know that for many species of
> ants it will kill them quickly and effectively."
>
> .
>
>


--
Yvette Deluca Davis
Freelance Writer
Atlantean Productions


www.atlanteanproductions.com



Homeschooling outside the bell curve
http://exceptionalhomeschool.blogspot.com/


Living and learning with Multiple Sclerosis
http://www.xanga.com/Ms_Quill

From Larry Frieders R. Ph.:


ASPARTAME (NutraSweet®) IS NOT YOUR FRIEND

It is a toxic chemical that can have serious effects on our nervous
system. I wrote about it on this page. There's a lot to the aspartame
story. It is a very profitable item for the drug company that makes
it. You can find it in just about every kind of food - even in some
so-called health foods. There are many studies that emphasize the
toxic nature of aspartame yet it is still on the market and remains
very popular.
It is sold as a no-calorie sweetener and most of us live with the
belief that using it instead of something like sugar (that contains
calories) will help up loose weight. That isn't true.

Recently I received an email from a friend with links to an
interesting article in The Idaho Observer. It is an interesting story
about how one person has used aspartame to get ride of - kill -
pests, like ants. Here's a quote from the article,

"How does it Work: Aspartame is a neuropoison. It most likely kills
the ants by interfering with their nervous system. It could be
direct, like stopping their heart, or something more subtle like
killing their sense of taste so they can't figure out what is
eatable, or smell, so they can't follow their trails, or mis-identify
their colonies members, so they start fighting each other. Not sure
what causes them to end up dying, just know that for many species of
ants it will kill them quickly and effectively."

Isn't that interesting? Here's a chemical that is in just about every
sweet food product and it is powerful enough to kill ants. Does
anyone really think that it would be ok for humans to ingest? I
don't. Do yourself a health-favor and get aspartame out of your diet.
Watch those labels. Our government insists that manufacturers put
them on all foods for a reason. When you know what you're eating you
will know what to avoid - or at least you'll know why you feel bad
when you've eaten something like aspartame.

http://www.thecompounder.com/newsletter20060927.php