Allison, I'm not sure what viscous trap I need to get out of. I eat
green vegetables with every dinner meal, as well as a green salad.
Many dinner meals are a green "chef's salad."  I feel good, and all
my heart tests, blood tests, etc. come back in the very normal
range. And apparently all those additives must not be staying in my
system because my MS continues to improve, and my energy is good,
too, as I begin to exercise more and more.
As I have said in other posts, I don't know for sure that LDN is the
reason I have improved so dramatically, and, likewise, I don't know
that my "SAD" diet is the reason I am losing weight. I personally
believe both; I plan on, of course continuing the LDN, and I also
plan on continuing the same basic diet until I reach my goal of 195
pounds. At that time, I hope to revert back to what I consider a
normal breakfast, lunch, and dinner as published by nutritionists
and control my weight by exercise. 

I enjoyed the article, Russ and rated it excellent! Bill Roberts

--- In LDN_Users@yahoogroups.com, "Russ Miles" <milesruss@...> wrote:
>
> My New Song - MelodyBy Russ Miles
> <http://ezinearticles.com/?expert=Russ_Miles>
>
> Not all ezine articles are "Intentional." Some just happen. Such
is the
> case with this brief article which was stimulated as a result of
another
> published ezine article which included some of my poetry. Melody
is the
> mame of the MS victim who had e-mailed me. This e-mail is my reply.
>
>
>
> [READ FULL ARTICLE
> <http://ezinearticles.com/?My-New-Song---Melody&id=166727> ]
>
> * NOTE: At the very bottom of the brief article's page is where
you rate
> the article.
>
> ** Please return to the very top of that same page to post your
comment
> and/or e-mail to friends :)
>
> Thank you ~ Russ:))
>

Allison, I'm not sure what viscous trap I need to get out of. I eat
green vegetables with every dinner meal, as well as a green salad.
Many dinner meals are a green "chef's salad."  I feel good, and all
my heart tests, blood tests, etc. come back in the very normal
range. And apparently all those additives must not be staying in my
system because my MS continues to improve, and my energy is good,
too, as I begin to exercise more and more.
As I have said in other posts, I don't know for sure that LDN is the
reason I have improved so dramatically, and, likewise, I don't know
that my "SAD" diet is the reason I am losing weight. I personally
believe both; I plan on, of course continuing the LDN, and I also
plan on continuing the same basic diet until I reach my goal of 195
pounds. At that time, I hope to revert back to what I consider a
normal breakfast, lunch, and dinner as published by nutritionists
and control my weight by exercise.
--- In LDN_Users@yahoogroups.com, Allison Pugh <alpdesigns1@...>
wrote:
>
> Do you know the effects food additives, aflatoxins, gluten,
acrylamides, MSG and sugar have on MS?  They're all in what you
eat.  You may be losing weight for reasons other than you think.
Only one piece of fruit?  Where are the green vegetables?  Your diet
has already been published as SAD (standard American diet).  I hope
you find your way out of this viscous trap.  Allison
>
> Bill Roberts <bmr323@...> wrote:   LOL. Thanks, Jason. I didn't
get this out of any books or from my
> doctor, but it is working well, and I have been getting regular
> check-ups, blood tests, etc., and everything seems to be good. If
it
> weren't so short and sweet, I'd make it a book and try to make
some
> money. LOL. Bill
>
> --- In LDN_Users@yahoogroups.com, Jason Vaccaro <jaynbeth@> wrote:
> >
> > Bill,
> >
> > Stop it, your making me hungry Lol!
> >
> > Jason
> > On Mar 23, 2006, at 8:06 PM, Bill Roberts wrote:
> >
> > > Since I stopped taking IV steroids last June, mdiet has been:
> > > One banana, apple, or orange for breakfast with an eight ounce
> glass
> > > of water; at least sixteen ounces of water during the morning;
> two hot
> > > pockets for lunch with sixteen ounces of water; a bag of
buttered
> > > popcorn and eight ounces of water in the afternoon; and a full
> meal
> > > (Salad, meat and veggies) with sixteen ounces of water for
> dinner. I
> > > take a multi-vitamin every morning, too.
> > > Every Saturday morning, my best friend and I go to Huddle
House
> for a
> > > big, sinful breakfast of three eggs, bacon, hashbrowns, toast,
> coffee,
> > > and water.
> > > I have lost fifty pounds since last July, and my goal is to
lose
> > > thirty-five more by the end of the year.
> > >
> > >
> > >
> > >
> > >
> > >
> > > Yahoo! Groups Links
> > >
> > >
> > >
> > >
> > >
> > >
> >
>
>
>
>
>
>
> ---------------------------------
>   YAHOO! GROUPS LINKS
>
>
>     Visit your group "LDN_Users" on the web.
>
>     To unsubscribe from this group, send an email to:
>  LDN_Users-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
> ---------------------------------
>
>
>
>
>
> ---------------------------------
> Blab-away for as little as 1¢/min. Make  PC-to-Phone Calls using
Yahoo! Messenger with Voice.
>

My New Song - Melody

[READ FULL ARTICLE]

* NOTE: At the very bottom of the brief article's page is where you rate the article.

** Please return to the very top of that same page to post your comment and/or e-mail to friends :)

Thank you ~ Russ:))

LOL. Thanks, Jason. I didn't get this out of any books or from my
doctor, but it is working well, and I have been getting regular
check-ups, blood tests, etc., and everything seems to be good. If it
weren't so short and sweet, I'd make it a book and try to make some
money. LOL. Bill

--- In LDN_Users@yahoogroups.com, Jason Vaccaro <jaynbeth@...> wrote:
>
> Bill,
>
> Stop it, your making me hungry Lol!
>
> Jason
> On Mar 23, 2006, at 8:06 PM, Bill Roberts wrote:
>
> > Since I stopped taking IV steroids last June, mdiet has been:
> > One banana, apple, or orange for breakfast with an eight ounce
glass
> > of water; at least sixteen ounces of water during the morning;
two hot
> > pockets for lunch with sixteen ounces of water; a bag of buttered
> > popcorn and eight ounces of water in the afternoon; and a full
meal
> > (Salad, meat and veggies) with sixteen ounces of water for
dinner. I
> > take a multi-vitamin every morning, too.
> > Every Saturday morning, my best friend and I go to Huddle House
for a
> > big, sinful breakfast of three eggs, bacon, hashbrowns, toast,
coffee,
> > and water.
> > I have lost fifty pounds since last July, and my goal is to lose
> > thirty-five more by the end of the year.
> >
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
>

LOL. Thanks, Jason. I didn't get this out of any books or from my
doctor, but it is working well, and I have been getting regular
check-ups, blood tests, etc., and everything seems to be good. If it
weren't so short and sweet, I'd make it a book and try to make some
money. LOL. Bill

--- In LDN_Users@yahoogroups.com, Jason Vaccaro <jaynbeth@...> wrote:
>
> Bill,
>
> Stop it, your making me hungry Lol!
>
> Jason
> On Mar 23, 2006, at 8:06 PM, Bill Roberts wrote:
>
> > Since I stopped taking IV steroids last June, mdiet has been:
> > One banana, apple, or orange for breakfast with an eight ounce
glass
> > of water; at least sixteen ounces of water during the morning;
two hot
> > pockets for lunch with sixteen ounces of water; a bag of buttered
> > popcorn and eight ounces of water in the afternoon; and a full
meal
> > (Salad, meat and veggies) with sixteen ounces of water for
dinner. I
> > take a multi-vitamin every morning, too.
> > Every Saturday morning, my best friend and I go to Huddle House
for a
> > big, sinful breakfast of three eggs, bacon, hashbrowns, toast,
coffee,
> > and water.
> > I have lost fifty pounds since last July, and my goal is to lose
> > thirty-five more by the end of the year.
> >
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
>

I did get progressively worse; I tried all of the CRABs except Beat
Seron and only stopped them during the six month period when I was
on Cytoxan. The problem was that with all of these meds, they would
say, regardless of how rapidly I was progressing, "Just think how
much faster you would be progressing if you weren't taking it. No
way for them to lose, eh? I did completely stop using them when I
began taking LDN. Thanks! Bill


--- In LDN_Users@yahoogroups.com, wensu baki <wensubar@...> wrote:
>
> Bill,
>    Your story is really good.  I have a question for
> you.  Did you find that your symptoms got
> progressively worse when you were on the crab drugs as
> compared to when you weren't on them?   I too was
> diagnosed in 98 and in 2000 was told that I was
> progressing to secondary progressive,  but when I got
> off the crab drugs, I stayed with a dxd's of RRMS.
> coincidence? I think not.  I just was curious if this
> was the situation with everybody else.  Your story is
> pure inspiration to at least try something new if
> there is no negetive setback (as there is with the
> crabs).
>
> W2
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>

Wendy,

I've been on Avonex and Betaseron for about 3 years, and I personally
feel that it's made me worse.  Every weekend I take it I get more and
more fatigued and depressed.  That's why I'm trying to make the switch
to LDN as well as changing my eating habits.  Tomorrow I'm supposed to
take my shot of Avonex and I've decided not to take it.

All the best,

Jason
On Mar 23, 2006, at 9:28 PM, wensu baki wrote:

> Bill,
>    Your story is really good.  I have a question for
> you.  Did you find that your symptoms got
> progressively worse when you were on the crab drugs as
> compared to when you weren't on them?   I too was
> diagnosed in 98 and in 2000 was told that I was
> progressing to secondary progressive,  but when I got
> off the crab drugs, I stayed with a dxd's of RRMS.
> coincidence? I think not.  I just was curious if this
> was the situation with everybody else.  Your story is
> pure inspiration to at least try something new if
> there is no negetive setback (as there is with the
> crabs).
>
> W2
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

Bill,

Stop it, your making me hungry Lol!

Jason
On Mar 23, 2006, at 8:06 PM, Bill Roberts wrote:

> Since I stopped taking IV steroids last June, mdiet has been:
> One banana, apple, or orange for breakfast with an eight ounce glass
> of water; at least sixteen ounces of water during the morning; two hot
> pockets for lunch with sixteen ounces of water; a bag of buttered
> popcorn and eight ounces of water in the afternoon; and a full meal
> (Salad, meat and veggies) with sixteen ounces of water for dinner. I
> take a multi-vitamin every morning, too.
> Every Saturday morning, my best friend and I go to Huddle House for a
> big, sinful breakfast of three eggs, bacon, hashbrowns, toast, coffee,
> and water.
> I have lost fifty pounds since last July, and my goal is to lose
> thirty-five more by the end of the year.
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

Wendy,

I've been on Avonex and Betaseron for about 3 years, and I personally
feel that it's made me worse.  Every weekend I take it I get more and
more fatigued and depressed.  That's why I'm trying to make the switch
to LDN as well as changing my eating habits.  Tomorrow I'm supposed to
take my shot of Avonex and I've decided not to take it.

All the best,

Jason
On Mar 23, 2006, at 9:28 PM, wensu baki wrote:

> Bill,
>    Your story is really good.  I have a question for
> you.  Did you find that your symptoms got
> progressively worse when you were on the crab drugs as
> compared to when you weren't on them?   I too was
> diagnosed in 98 and in 2000 was told that I was
> progressing to secondary progressive,  but when I got
> off the crab drugs, I stayed with a dxd's of RRMS.
> coincidence? I think not.  I just was curious if this
> was the situation with everybody else.  Your story is
> pure inspiration to at least try something new if
> there is no negetive setback (as there is with the
> crabs).
>
> W2
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

Bill,
    Your story is really good.  I have a question for
you.  Did you find that your symptoms got
progressively worse when you were on the crab drugs as
compared to when you weren't on them?   I too was
diagnosed in 98 and in 2000 was told that I was
progressing to secondary progressive,  but when I got
off the crab drugs, I stayed with a dxd's of RRMS.
coincidence? I think not.  I just was curious if this
was the situation with everybody else.  Your story is
pure inspiration to at least try something new if
there is no negetive setback (as there is with the
crabs).

W2

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Hi Jason,

Thanks so much for the invite!  It looks like you are off to a great start!  Power to ya Jason!

Take Care Leslie

Since I stopped taking IV steroids last June, mdiet has been:
One banana, apple, or orange for breakfast with an eight ounce glass
of water; at least sixteen ounces of water during the morning; two hot
pockets for lunch with sixteen ounces of water; a bag of buttered
popcorn and eight ounces of water in the afternoon; and a full meal
(Salad, meat and veggies) with sixteen ounces of water for dinner. I
take a multi-vitamin every morning, too.
Every Saturday morning, my best friend and I go to Huddle House for a
big, sinful breakfast of three eggs, bacon, hashbrowns, toast, coffee,
and water.
I have lost fifty pounds since last July, and my goal is to lose
thirty-five more by the end of the year.

Allison. I have to agree with you. I've been feeling much better
since I've changed my diet. Not to mention how much weight I've lost.
16 lbs!

Jason


On Mar 23, 2006, at 5:35 PM, Allison Pugh wrote:

> I think the solution is in the food we eat.  Chemicals will never
> replace nature, but they can help in some cases (such as LDN).  There
> is an LDN convention coming soon.  Here is a little information:
>  
>
> The Future is Now!!!
> Susan Sedlock, chairperson of the Second Annual Low Dose Naltrexone
> Conference, has announced the date as Friday, April 7th, 2006—cherry
> blossom time in Washington, D.C.!
> The meeting will be held on the campus of the National Institutes of
> Health in the Lister Hill Center Auditorium of the National Library of
> Medicine (NLM), located approximately 5 miles from Washington D.C. in
> Bethesda, Maryland. The NLM/Lister Hill Center (buildings 38 & 38a)
> are in the southeast corner of the campus of the National Institutes
> of Health.
> The conference theme, "The Future Is Now," was selected because it
> reflects the amazing strides that have been made in LDN research and
> clinical trials since our last gathering. Dr. David Gluck, who hosted
> the First Annual LDN Conference in New York last June, will kick off
> the 2006 conference with a brief review of "The Year in LDN."
> We will also hear from Dr Jill Smith, Dr Jacquelyn McCandless, Dr Phil
> Boyle, Dr Pat Crowley. Dr Skip Lenz will also be there!
> For More information go to http://www.lowdosenaltrexone.org/
>
>
> Bill Roberts wrote:
>> Science is a LONG way from solving all of anyone's problems, including
>> my MS; but if LDN JUST halts the progression of the disease, it will
>> be the solution to MANY problems, not the least of which will be
>> availability of an effective treatment for those who cannot afford or
>> tolerate the CRABS. That is why it is such a travesty that non-profits
>> such as the NMSS, and/or insurance companies haven't already funded
>> the studies necessary for the approval of LDN for the treatment of MS,
>> among other diseases.
>>
>>
>>
>>
>> While this is an amazing story and I'm happy for you, LDN s not a cure
>> for MS nor was it intended to be.  It's primary purpose is to halt the
>> progression of the disease.  Any other improvents are a bonus.  I just
>> don't want other members to think this is the solution to all of their
>> problems.  I've taken LDN for a little over a year and have had no
>> exacerbations. I changed my diet and began physical therapy also.
>> While I have seen positive results, I can't contribute them all to
>> LDN.  Allison
>>
>>
>>
>>
>>
>
> New Yahoo! Messenger with Voice. Call regular phones from your PC for
> low, low rates.
> YAHOO! GROUPS LINKS
>
> ▪  Visit your group "LDN_Users" on the web.
>  
> ▪  To unsubscribe from this group, send an email to:
>  LDN_Users-unsubscribe@yahoogroups.com
>  
> ▪  Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
>
>

We've had 13 new members join since I've started the group yesterday!
Welcome everyone!

Jason (Group Owner)

Allison.  I have to agree with you.  I've been feeling much better
since I've changed my diet.  Not to mention how much weight I've lost.
16 lbs!

Jason


On Mar 23, 2006, at 5:35 PM, Allison Pugh wrote:

> I think the solution is in the food we eat.  Chemicals will never
> replace nature, but they can help in some cases (such as LDN).  There
> is an LDN convention coming soon.  Here is a little information:
>  
>
> The Future is Now!!!
> Susan Sedlock, chairperson of the Second Annual Low Dose Naltrexone
> Conference, has announced the date as Friday, April 7th, 2006—cherry
> blossom time in Washington, D.C.!
> The meeting will be held on the campus of the National Institutes of
> Health in the Lister Hill Center Auditorium of the National Library of
> Medicine (NLM), located approximately 5 miles from Washington D.C. in
> Bethesda, Maryland. The NLM/Lister Hill Center (buildings 38 & 38a)
> are in the southeast corner of the campus of the National Institutes
> of Health.
> The conference theme, "The Future Is Now," was selected because it
> reflects the amazing strides that have been made in LDN research and
> clinical trials since our last gathering. Dr. David Gluck, who hosted
> the First Annual LDN Conference in New York last June, will kick off
> the 2006 conference with a brief review of "The Year in LDN."
> We will also hear from Dr Jill Smith, Dr Jacquelyn McCandless, Dr Phil
> Boyle, Dr Pat Crowley. Dr Skip Lenz will also be there!
> For More information go to http://www.lowdosenaltrexone.org/
>
>
> Bill Roberts <bmr323@...> wrote:
>> Science is a LONG way from solving all of anyone's problems, including
>> my MS; but if LDN JUST halts the progression of the disease, it will
>> be the solution to MANY problems, not the least of which will be
>> availability of an effective treatment for those who cannot afford or
>> tolerate the CRABS. That is why it is such a travesty that non-profits
>> such as the NMSS, and/or insurance companies haven't already funded
>> the studies necessary for the approval of LDN for the treatment of MS,
>> among other diseases.
>>
>>
>>
>>
>> While this is an amazing story and I'm happy for you, LDN s not a cure
>> for MS nor was it intended to be.  It's primary purpose is to halt the
>> progression of the disease.  Any other improvents are a bonus.  I just
>> don't want other members to think this is the solution to all of their
>> problems.  I've taken LDN for a little over a year and have had no
>> exacerbations. I changed my diet and began physical therapy also.
>> While I have seen positive results, I can't contribute them all to
>> LDN.  Allison
>>
>>
>>
>>
>>
>
> New Yahoo! Messenger with Voice. Call regular phones from your PC for
> low, low rates.
> YAHOO! GROUPS LINKS
>
>  ▪   Visit your group "LDN_Users" on the web.
>  
>  ▪   To unsubscribe from this group, send an email to:
>  LDN_Users-unsubscribe@yahoogroups.com
>  
>  ▪   Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
>
>

The Future is Now!!!

Science is a LONG way from solving all of anyone's problems, including
my MS; but if LDN JUST halts the progression of the disease, it will
be the solution to MANY problems, not the least of which will be
availability of an effective treatment for those who cannot afford or
tolerate the CRABS. That is why it is such a travesty that non-profits
such as the NMSS, and/or insurance companies haven't already funded
the studies necessary for the approval of LDN for the treatment of MS,
among other diseases.




While this is an amazing story and I'm happy for you, LDN s not a cure
for MS nor was it intended to be.  It's primary purpose is to halt the
progression of the disease.  Any other improvents are a bonus.  I just
don't want other members to think this is the solution to all of their
problems.  I've taken LDN for a little over a year and have had no
exacerbations. I changed my diet and began physical therapy also.
While I have seen positive results, I can't contribute them all to
LDN.  Allison

Science is a LONG way from solving all of anyone's problems, including
my MS; but if LDN JUST halts the progression of the disease, it will
be the solution to MANY problems, not the least of which will be
availability of an effective treatment for those who cannot afford or
tolerate the CRABS. That is why it is such a travesty that non-profits
such as the NMSS, and/or insurance companies haven't already funded
the studies necessary for the approval of LDN for the treatment of MS,
among other diseases.




While this is an amazing story and I'm happy for you, LDN s not a cure
for MS nor was it intended to be.  It's primary purpose is to halt the
progression of the disease.  Any other improvents are a bonus.  I just
don't want other members to think this is the solution to all of their
problems.  I've taken LDN for a little over a year and have had no
exacerbations. I changed my diet and began physical therapy also.
While I have seen positive results, I can't contribute them all to
LDN.  Allison

Hello,

This email message is a notification to let you know that
a file has been uploaded to the Files area of the LDN_Users
group.

   File        : /LDN Testimonies/Bill Roberts LDN Testimony.doc
   Uploaded by : jev1756 <jaynbeth@...>
   Description : Bill Roberts LDN Testimony

You can access this file at the URL:
http://groups.yahoo.com/group/LDN_Users/files/LDN%20Testimonies/Bill%20Roberts%2\
0LDN%20Testimony.doc

To learn more about file sharing for your group, please visit:
http://help.yahoo.com/help/us/groups/files

Regards,

jev1756 <jaynbeth@...>

Allison,
Thank you for your insights; I agree one hundred percent with your
statement that LDN is not a cure nor is it meant to be. I still have
MS, and I still have symptoms. The point I was making, in reference
to non-profits such as the NMSS, is that LDN DOES offer everything
that the CRABS do, except that it is taken orally, is way, WAY
cheaper, has fewer negative side-effects, and from my own personal
experience has not only stopped the progression (So far), it has
also greatly improved my condition; and their is enough data out
their for them to have already funded the studies necessary to get
LDN approved for the treatment of MS. To do less is contrary to
their mission statement.
I stopped taking Rebif when I began taking LDN. I have changed
nothing else. I am not a physician or a scientist, so I cannot
scientifically attribute my improvement to the LDN. I don't really
neet to. I do know that my neurologist attributes my improvewent to
the LDN, and I have gone from having almost monthly exacerbations to
not having even one since I started taking the LDN. I even went
through major surgery five weeks ago, and have not had a whisper of
an episode. My neuro has since prescribed it to other MS patients.
Just as everyone's MS is different, their reaction to treatment will
be different.I will hope and pray that everyone fairs as well as I
have. Thanks, and God Bless, Bill

In LDN_Users@yahoogroups.com, Allison Pugh <alpdesigns1@...> wrote:
>
> While this is an amazing story and I'm happy for you, LDN s not a
cure for MS nor was it intended to be.  It's primary purpose is to
halt the progression of the disease.  Any other improvents are a
bonus.  I just don't want other members to think this is the
solution to all of their problems.  I've taken LDN for a little over
a year and have had no exacerbations. I changed my diet and began
physical therapy also. While I have seen positive results, I can't
contribute them all to LDN.  Allison
>
> Bill Roberts <bmr323@...> wrote:  23 March 2006
> My name is William (Bill) Roberts; I am 56 years old, was
diagnosed
> with RRMS in 1998, and upgraded to Secondary Progressive in 2002.
My
> chief symptoms are (were) extreme mixed slep apnea, COPD,
inability
> to walk, total deafness in my left ear, and inability to
concentrate
> for any period of time. I have been treated with Avonex, Copaxone,
> and Rebif of the ABCR drugs, chemotherapy (Cytoxan, plasma
exchange,
> as well as many many sessions of IV steroids (Solumedrol). As of
> june, 2005, I was on oxygen 24/7, wheelchair bound, having a flair
> of my MS on an average of once a month, and doctors had told me
that
> my breathing difficulties, caused by the MS, would ultimately
result
> in my demise. I had also ballooned in weight to 289 pounds. Two of
> the top neurologists in Birmingham consulted and agreed that,
while
> continuing on rebif, I should begin taking a week of IV steroids
> every three months, regardless of my condition.I did not feel that
> the steroids were offering enough positive results any longer, and
I
> did not want to take any more. I asked if they would mind my
getting
> an alternate opinion from anothe neurologist. They agreed.
> My new neuro reran all of the standard MS tests, including MRIs.
> After studying the results, she suggested I stay on the rebif and
> see what the next two months showed with regard to flares or
> episodes, then to probably go back on chemotherapy. I asked her,
at
> that time, if she would prescribe a drug LDN (Low Dose
Naltrexone),
> for me. I had read a great deal about it and talked to a number of
> MS sufferers who had improved with the use of LDN. She said she
had
> never prescribed it but had also read a lot about it. She agreed
to
> prescribe it.
> I began, around the first of July, 2005, with 1.5 Mg per day for
the
> first week, then increased to 3.0 Mg from then, on. I also stopped
> taking the Rebif at that time. While I did not notice any
> improvement for the first three months, I also had NO flares
either.
> Then, I began to notice that my breathing was improving- I could
> take time off from the oxygen for extended periods of time; the
> strength in my legs and arms was improving- I began to be able to
> take short walks with a walker, then longer walks, then changed to
a
> cane, then actually walked to the bathroom without assistance! My
> sleep began to improve, as well.Improvement continued and actually
> increased, so that when I went for my six month check-up with my
> neuro, I did not even take my cane, and I blew away my neuro by
> acing all the tests. I am now driving again after four years,
> walking totally without assistance, and have dropped my weight
down
> to 232 pounds. I hope to get back to my normal weight of 195 by
> year's end.
> I attribute this miraculous improvement to LDN, attitude, faith,
and
> my new neurologist's willingness to prescribe LDN for me.
> I realize that money and profits are the motivation for initiating
> studies to have LDN approved for treatment of MS, as well as ALS,
> Alzeimer's, Parkinson', AIDS, Cancer, etc. With that in mind, and
> knowing that the standard treatment for MS, the ABCR drugs, all
cost
> insurance companies and/or patients in excess of $1000.00 per
month,
> I do not understand why insurance companies are not initiating
these
> studies themselves.  LDN costs under $40.00 per month. I also do
not
> understand why, if the "Mission Statement" of the National MS
> Society is to "find a cure for MS," THEY are not funding these
> studies.
> Thank you. Sincerely,
> William (Bill) Roberts
> 807 Gene Ed Circle
> Sylacauga, Alabama 35150
> 256-245-4627
> bmr323@...
>
>
>
>
>
>
>
>
>
> ---------------------------------
>   YAHOO! GROUPS LINKS
>
>
>     Visit your group "LDN_Users" on the web.
>
>     To unsubscribe from this group, send an email to:
>  LDN_Users-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
> ---------------------------------
>
>
>
>
>
> ---------------------------------
> Blab-away for as little as 1¢/min. Make  PC-to-Phone Calls using
Yahoo! Messenger with Voice.
>

That will be fine, Jason. Thank you, Bill Roberts--- In
LDN_Users@yahoogroups.com, Jason Vaccaro <jaynbeth@...> wrote:
>
> Bill,
>
> Thanks for sharing your story!  It seems that LDN has been some
what
> of a God send for you!  Would you mind if I put it in the files
> sections as your personal testimony so others could have access to
it?
>
> Thanks,
>
> Jason
> On Mar 23, 2006, at 2:09 PM, Bill Roberts wrote:
>
> > 23 March 2006
> > My name is William (Bill) Roberts; I am 56 years old, was
diagnosed
> > with RRMS in 1998, and upgraded to Secondary Progressive in
2002. My
> > chief symptoms are (were) extreme mixed slep apnea, COPD,
inability
> > to walk, total deafness in my left ear, and inability to
concentrate
> > for any period of time. I have been treated with Avonex,
Copaxone,
> > and Rebif of the ABCR drugs, chemotherapy (Cytoxan, plasma
exchange,
> > as well as many many sessions of IV steroids (Solumedrol). As of
> > june, 2005, I was on oxygen 24/7, wheelchair bound, having a
flair
> > of my MS on an average of once a month, and doctors had told me
that
> > my breathing difficulties, caused by the MS, would ultimately
result
> > in my demise. I had also ballooned in weight to 289 pounds. Two
of
> > the top neurologists in Birmingham consulted and agreed that,
while
> > continuing on rebif, I should begin taking a week of IV steroids
> > every three months, regardless of my condition.I did not feel
that
> > the steroids were offering enough positive results any longer,
and I
> > did not want to take any more. I asked if they would mind my
getting
> > an alternate opinion from anothe neurologist. They agreed.
> > My new neuro reran all of the standard MS tests, including MRIs.
> > After studying the results, she suggested I stay on the rebif and
> > see what the next two months showed with regard to flares or
> > episodes, then to probably go back on chemotherapy. I asked her,
at
> > that time, if she would prescribe a drug LDN (Low Dose
Naltrexone),
> > for me. I had read a great deal about it and talked to a number
of
> > MS sufferers who had improved with the use of LDN. She said she
had
> > never prescribed it but had also read a lot about it. She agreed
to
> > prescribe it.
> > I began, around the first of July, 2005, with 1.5 Mg per day for
the
> > first week, then increased to 3.0 Mg from then, on. I also
stopped
> > taking the Rebif at that time. While I did not notice any
> > improvement for the first three months, I also had NO flares
either.
> > Then, I began to notice that my breathing was improving- I could
> > take time off from the oxygen for extended periods of time; the
> > strength in my legs and arms was improving- I began to be able to
> > take short walks with a walker, then longer walks, then changed
to a
> > cane, then actually walked to the bathroom without assistance! My
> > sleep began to improve, as well.Improvement continued and
actually
> > increased, so that when I went for my six month check-up with my
> > neuro, I did not even take my cane, and I blew away my neuro by
> > acing all the tests. I am now driving again after four years,
> > walking totally without assistance, and have dropped my weight
down
> > to 232 pounds. I hope to get back to my normal weight of 195 by
> > year's end.
> > I attribute this miraculous improvement to LDN, attitude, faith,
and
> > my new neurologist's willingness to prescribe LDN for me.
> > I realize that money and profits are the motivation for
initiating
> > studies to have LDN approved for treatment of MS, as well as ALS,
> > Alzeimer's, Parkinson', AIDS, Cancer, etc. With that in mind, and
> > knowing that the standard treatment for MS, the ABCR drugs, all
cost
> > insurance companies and/or patients in excess of $1000.00 per
month,
> > I do not understand why insurance companies are not initiating
these
> > studies themselves.  LDN costs under $40.00 per month. I also do
not
> > understand why, if the "Mission Statement" of the National MS
> > Society is to "find a cure for MS," THEY are not funding these
> > studies.
> > Thank you. Sincerely,
> > William (Bill) Roberts
> > 807 Gene Ed Circle
> > Sylacauga, Alabama 35150
> > 256-245-4627
> > bmr323@...
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
>

23 March 2006
My name is William (Bill) Roberts; I am 56 years old, was diagnosed
with RRMS in 1998, and upgraded to Secondary Progressive in 2002. My
chief symptoms are (were) extreme mixed slep apnea, COPD, inability
to walk, total deafness in my left ear, and inability to concentrate
for any period of time. I have been treated with Avonex, Copaxone,
and Rebif of the ABCR drugs, chemotherapy (Cytoxan, plasma exchange,
as well as many many sessions of IV steroids (Solumedrol). As of
june, 2005, I was on oxygen 24/7, wheelchair bound, having a flair
of my MS on an average of once a month, and doctors had told me that
my breathing difficulties, caused by the MS, would ultimately result
in my demise. I had also ballooned in weight to 289 pounds. Two of
the top neurologists in Birmingham consulted and agreed that, while
continuing on rebif, I should begin taking a week of IV steroids
every three months, regardless of my condition.I did not feel that
the steroids were offering enough positive results any longer, and I
did not want to take any more. I asked if they would mind my getting
an alternate opinion from anothe neurologist. They agreed.
My new neuro reran all of the standard MS tests, including MRIs.
After studying the results, she suggested I stay on the rebif and
see what the next two months showed with regard to flares or
episodes, then to probably go back on chemotherapy. I asked her, at
that time, if she would prescribe a drug LDN (Low Dose Naltrexone),
for me. I had read a great deal about it and talked to a number of
MS sufferers who had improved with the use of LDN. She said she had
never prescribed it but had also read a lot about it. She agreed to
prescribe it.
I began, around the first of July, 2005, with 1.5 Mg per day for the
first week, then increased to 3.0 Mg from then, on. I also stopped
taking the Rebif at that time. While I did not notice any
improvement for the first three months, I also had NO flares either.
Then, I began to notice that my breathing was improving- I could
take time off from the oxygen for extended periods of time; the
strength in my legs and arms was improving- I began to be able to
take short walks with a walker, then longer walks, then changed to a
cane, then actually walked to the bathroom without assistance! My
sleep began to improve, as well.Improvement continued and actually
increased, so that when I went for my six month check-up with my
neuro, I did not even take my cane, and I blew away my neuro by
acing all the tests. I am now driving again after four years,
walking totally without assistance, and have dropped my weight down
to 232 pounds. I hope to get back to my normal weight of 195 by
year's end.
I attribute this miraculous improvement to LDN, attitude, faith, and
my new neurologist's willingness to prescribe LDN for me.
I realize that money and profits are the motivation for initiating
studies to have LDN approved for treatment of MS, as well as ALS,
Alzeimer's, Parkinson', AIDS, Cancer, etc. With that in mind, and
knowing that the standard treatment for MS, the ABCR drugs, all cost
insurance companies and/or patients in excess of $1000.00 per month,
I do not understand why insurance companies are not initiating these
studies themselves.  LDN costs under $40.00 per month. I also do not
understand why, if the "Mission Statement" of the National MS
Society is to "find a cure for MS," THEY are not funding these
studies.
Thank you. Sincerely,
William (Bill) Roberts
807 Gene Ed Circle
Sylacauga, Alabama 35150
256-245-4627
bmr323@...

Bill,

Thanks for sharing your story!  It seems that LDN has been some what
of a God send for you!  Would you mind if I put it in the files
sections as your personal testimony so others could have access to it?

Thanks,

Jason
On Mar 23, 2006, at 2:09 PM, Bill Roberts wrote:

> 23 March 2006
> My name is William (Bill) Roberts; I am 56 years old, was diagnosed
> with RRMS in 1998, and upgraded to Secondary Progressive in 2002. My
> chief symptoms are (were) extreme mixed slep apnea, COPD, inability
> to walk, total deafness in my left ear, and inability to concentrate
> for any period of time. I have been treated with Avonex, Copaxone,
> and Rebif of the ABCR drugs, chemotherapy (Cytoxan, plasma exchange,
> as well as many many sessions of IV steroids (Solumedrol). As of
> june, 2005, I was on oxygen 24/7, wheelchair bound, having a flair
> of my MS on an average of once a month, and doctors had told me that
> my breathing difficulties, caused by the MS, would ultimately result
> in my demise. I had also ballooned in weight to 289 pounds. Two of
> the top neurologists in Birmingham consulted and agreed that, while
> continuing on rebif, I should begin taking a week of IV steroids
> every three months, regardless of my condition.I did not feel that
> the steroids were offering enough positive results any longer, and I
> did not want to take any more. I asked if they would mind my getting
> an alternate opinion from anothe neurologist. They agreed.
> My new neuro reran all of the standard MS tests, including MRIs.
> After studying the results, she suggested I stay on the rebif and
> see what the next two months showed with regard to flares or
> episodes, then to probably go back on chemotherapy. I asked her, at
> that time, if she would prescribe a drug LDN (Low Dose Naltrexone),
> for me. I had read a great deal about it and talked to a number of
> MS sufferers who had improved with the use of LDN. She said she had
> never prescribed it but had also read a lot about it. She agreed to
> prescribe it.
> I began, around the first of July, 2005, with 1.5 Mg per day for the
> first week, then increased to 3.0 Mg from then, on. I also stopped
> taking the Rebif at that time. While I did not notice any
> improvement for the first three months, I also had NO flares either.
> Then, I began to notice that my breathing was improving- I could
> take time off from the oxygen for extended periods of time; the
> strength in my legs and arms was improving- I began to be able to
> take short walks with a walker, then longer walks, then changed to a
> cane, then actually walked to the bathroom without assistance! My
> sleep began to improve, as well.Improvement continued and actually
> increased, so that when I went for my six month check-up with my
> neuro, I did not even take my cane, and I blew away my neuro by
> acing all the tests. I am now driving again after four years,
> walking totally without assistance, and have dropped my weight down
> to 232 pounds. I hope to get back to my normal weight of 195 by
> year's end.
> I attribute this miraculous improvement to LDN, attitude, faith, and
> my new neurologist's willingness to prescribe LDN for me.
> I realize that money and profits are the motivation for initiating
> studies to have LDN approved for treatment of MS, as well as ALS,
> Alzeimer's, Parkinson', AIDS, Cancer, etc. With that in mind, and
> knowing that the standard treatment for MS, the ABCR drugs, all cost
> insurance companies and/or patients in excess of $1000.00 per month,
> I do not understand why insurance companies are not initiating these
> studies themselves.  LDN costs under $40.00 per month. I also do not
> understand why, if the "Mission Statement" of the National MS
> Society is to "find a cure for MS," THEY are not funding these
> studies.
> Thank you. Sincerely,
> William (Bill) Roberts
> 807 Gene Ed Circle
> Sylacauga, Alabama 35150
> 256-245-4627
> bmr323@...
>
>
>
>
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

23 March 2006
My name is William (Bill) Roberts; I am 56 years old, was diagnosed
with RRMS in 1998, and upgraded to Secondary Progressive in 2002. My
chief symptoms are (were) extreme mixed slep apnea, COPD, inability
to walk, total deafness in my left ear, and inability to concentrate
for any period of time. I have been treated with Avonex, Copaxone,
and Rebif of the ABCR drugs, chemotherapy (Cytoxan, plasma exchange,
as well as many many sessions of IV steroids (Solumedrol). As of
june, 2005, I was on oxygen 24/7, wheelchair bound, having a flair
of my MS on an average of once a month, and doctors had told me that
my breathing difficulties, caused by the MS, would ultimately result
in my demise. I had also ballooned in weight to 289 pounds. Two of
the top neurologists in Birmingham consulted and agreed that, while
continuing on rebif, I should begin taking a week of IV steroids
every three months, regardless of my condition.I did not feel that
the steroids were offering enough positive results any longer, and I
did not want to take any more. I asked if they would mind my getting
an alternate opinion from anothe neurologist. They agreed.
My new neuro reran all of the standard MS tests, including MRIs.
After studying the results, she suggested I stay on the rebif and
see what the next two months showed with regard to flares or
episodes, then to probably go back on chemotherapy. I asked her, at
that time, if she would prescribe a drug LDN (Low Dose Naltrexone),
for me. I had read a great deal about it and talked to a number of
MS sufferers who had improved with the use of LDN. She said she had
never prescribed it but had also read a lot about it. She agreed to
prescribe it.
I began, around the first of July, 2005, with 1.5 Mg per day for the
first week, then increased to 3.0 Mg from then, on. I also stopped
taking the Rebif at that time. While I did not notice any
improvement for the first three months, I also had NO flares either.
Then, I began to notice that my breathing was improving- I could
take time off from the oxygen for extended periods of time; the
strength in my legs and arms was improving- I began to be able to
take short walks with a walker, then longer walks, then changed to a
cane, then actually walked to the bathroom without assistance! My
sleep began to improve, as well.Improvement continued and actually
increased, so that when I went for my six month check-up with my
neuro, I did not even take my cane, and I blew away my neuro by
acing all the tests. I am now driving again after four years,
walking totally without assistance, and have dropped my weight down
to 232 pounds. I hope to get back to my normal weight of 195 by
year's end.
I attribute this miraculous improvement to LDN, attitude, faith, and
my new neurologist's willingness to prescribe LDN for me.
I realize that money and profits are the motivation for initiating
studies to have LDN approved for treatment of MS, as well as ALS,
Alzeimer's, Parkinson', AIDS, Cancer, etc. With that in mind, and
knowing that the standard treatment for MS, the ABCR drugs, all cost
insurance companies and/or patients in excess of $1000.00 per month,
I do not understand why insurance companies are not initiating these
studies themselves.  LDN costs under $40.00 per month. I also do not
understand why, if the "Mission Statement" of the National MS
Society is to "find a cure for MS," THEY are not funding these
studies.
Thank you. Sincerely,
William (Bill) Roberts
807 Gene Ed Circle
Sylacauga, Alabama 35150
256-245-4627
bmr323@...

Hello Everyone!

Just wanted to let you know that 10 Members joined the group
yesterday and today!  Welcome everybody!  Please feel free to add
files or post links to help others find information about LDN.  When
we get enough members I'd like to use the polls section so we can get
an idea on how different people are responding to LDN.

Although it's not a requirement to be a member of this group, please
tell us a little bit about yourselves and how LDN has helped you or
your loved one.

Thanks again guys!

Jason (List Owner)

On Mar 22, 2006, at 8:21 PM, Russ Miles wrote:

> Hi Jason :) 
>
>  Glad that you are providing a new venue for LDN info and interchange
> of information. The more the merrier!  I'll link your new group you to
> the "Multiple Sclerosis" section of my personal website
> http://MilesBooks.com when I get a chance.
>
> Got to hobble...lol... ~Hugs~   Russ:))
>
> YAHOO! GROUPS LINKS
>
>  ▪   Visit your group "LDN_Users" on the web.
>  
>  ▪   To unsubscribe from this group, send an email to:
>  LDN_Users-unsubscribe@yahoogroups.com
>  
>  ▪   Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
>
>

Hi Jason :) 

 Glad that you are providing a new venue for LDN info and interchange of information. The more the merrier!  I'll link your new group you to the "Multiple Sclerosis" section of my personal website http://MilesBooks.com when I get a chance.

Got to hobble...lol... ~Hugs~   Russ:))

Links have also been added.

Jason
On Mar 22, 2006, at 7:32 PM, LDN_Users@yahoogroups.com  wrote:

>
> Hello,
>
> This email message is a notification to let you know that
> a file has been uploaded to the Files area of the LDN_Users
> group.
>
>   File        : /Ma docs LDN.doc
>   Uploaded by : jev1756 <jaynbeth@...>
>   Description : Massachusetts Docs that Prescribe LDN
>
> You can access this file at the URL:
> http://groups.yahoo.com/group/LDN_Users/files/Ma%20docs%20LDN.doc
>
> To learn more about file sharing for your group, please visit:
> http://help.yahoo.com/help/us/groups/files
>
> Regards,
>
> jev1756 <jaynbeth@...>
>
>
>
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

Hello,

This email message is a notification to let you know that
a file has been uploaded to the Files area of the LDN_Users
group.

   File        : /Ma docs LDN.doc
   Uploaded by : jev1756 <jaynbeth@...>
   Description : Massachusetts Docs that Prescribe LDN

You can access this file at the URL:
http://groups.yahoo.com/group/LDN_Users/files/Ma%20docs%20LDN.doc

To learn more about file sharing for your group, please visit:
http://help.yahoo.com/help/us/groups/files

Regards,

jev1756 <jaynbeth@...>

Welcome to the group!