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#10161 From: jaynelcrocker <jaynelcrocker@...>
Date: Sat Nov 14, 2009 8:16 pm
Subject: Scottish Parliament petition - OT
chelsea123dog
Offline Offline
Send Email Send Email
 

Folks, there’s 521 signatures as of today for the Scottish Parliament petition.  The deadline is 20th November and if we could get another couple of hundred that would be great.  The advantage to signing the SP petition is that anyone in the world can sign ie global petition.  It’s only been up for 3 weeks and Bob Thomson’s MP recommended a one month only petition.  As we all know, petitions are a way of raising a flag to put pressure on our local governments so can you please sign this, wherever you are in the world, it only takes 2 minutes http://epetitions.scottish.parliament.uk/view_petition.asp?PetitionID=353

 

You can also add discussion comments if you wish – very helpful indeed.  Everyone’s input and support is greatly appreciated.

 

Many thanks indeed!

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

 

 

 

 

 

 

From: LDNforFibro@yahoogroups.com [mailto:LDNforFibro@yahoogroups.com] On Behalf Of John Donnelly
Sent: 14 November 2009 17:56
To: lowdosenaltrexone@yahoogroups.com; LDNforFibro@yahoogroups.com; LDN_Users@yahoogroups.com; LDN_RaisingAwarenessUK@...; LDN_HIVAIDS@yahoogroups.com; LDN_4_Pets@yahoogroups.com; LDN_4_cancer@yahoogroups.com; Autism_LDN@yahoogroups.com
Subject: [LDNforFibro] 2008 conference

 

 

Hi All

 

I hope you are all keeping good today. We are in the middle of a storm here in Ireland. I have set up a new page on the database with all the video's thanks to Cyndi.

 

Everybody can sign the Scottish petition and as it will be closed soon please take this opportunity to sign it. It will only take 2 seconds so please please click here http://petitions.number10.gov.uk/LowDNaltrexone/


#10160 From: "Sandy Church" <wschurch@...>
Date: Sat Nov 14, 2009 8:41 pm
Subject: RE: Re: what to take for pain while on LDN - surgery and anesthesia?
oleoranch_17
Offline Offline
Send Email Send Email
 

Back in late August, I developed a kidney stone and sat straight up in bed at 4:00 a.m. with the pain.  It dawned on me immediately that anything I would normally take for the pain (Percocet or any codeine based product) would not work as I had taken my LDN at 10:00 just like a good girl.  It was a horribly helpless feeling.  Taking 5-6 Advil did nothing.  )o:

 

I had asked on the LDN email group at that time what I should do and if there was anything that I could have taken that would have worked better but got no response.  I also asked Dr. Skip but he never responded either.   Dr. Sullivan told me to take the Percocet anyway because something is better than nothing. (???)

I have basically come to the conclusion that there is no remedy for this so I have to be “proactive” instead of “reactive” -- I am taking some natural products to keep kidney stones at bay . . . .

Truly though, when you are suffering from severe pain, it is disheartening to know that you have nothing to give you relief.  24 hours seems like an eternity to wait (especially when you are writhing around on the floor in agony)!

 

Sandy

Rimrock Humane Society
find_us_on_facebook_badge
http://www.rimrockhumanesociety.org
"In this life, we cannot always do great things,
but we can do small things with great love."  ~ Mother Teresa

 

From: LDN_Users@yahoogroups.com [mailto:LDN_Users@yahoogroups.com] On Behalf Of lucretia1419
Sent: Saturday, November 14, 2009 10:37 AM
To: LDN_Users@yahoogroups.com
Subject: [LDN_Users] Re: what to take for pain while on LDN - surgery and anesthesia?

 

 

I have wondered about that, too, and hopefully thought through it. I take my LDN at night. Unless I fall out of my bed I am not likely to need emergency treatment. So by the time something drastic can happen the LDN is enough out of my system that the painkillers will work again. If I have an accident that knocks me out I won't care whether the painkillers work or not. For me, this all is an additional reason why I want to take my LDN before bedtime. I know, something can still happen, like a fall in the bathroom or something like that. But if I'm conscious I can tell the paramedics to use a non-opiate based painkiller, and if I'm not conscious, neither they nor I will care. I think.
Lucretia

--- In LDN_Users@yahoogroups.com, "swim2lakes" <swim2lakes@...> wrote:
>
>
> I've asked this same question and never really got an answer.
> The site mentions to stop one day before surgery or anesthesia, but i wonder about emergency hospitalizations when one is on LDN ???
>
> Thanks..
>
> --
>


#10159 From: tobdncng@...
Date: Sat Nov 14, 2009 1:27 pm
Subject: Polymyalgia Rheumatica or Temporal Arteritis
tobdncng
Offline Offline
Send Email Send Email
 
Polymyalgia Rheumatica or Temporal Arteritis
 
Just wondering if anyone has heard of this condition being used with LDN.  The person I am a caregiver for was tentatively diagnosed with this yesterday.  Any feed back is welcome. 
 
Glowing,

Marygrace~


#10158 From: "John Donnelly" <john@...>
Date: Sat Nov 14, 2009 5:56 pm
Subject: 2008 conference
johncarneint
Offline Offline
Send Email Send Email
 
Hi All
 
I hope you are all keeping good today. We are in the middle of a storm here in Ireland. I have set up a new page on the database with all the video's thanks to Cyndi.
 
Everybody can sign the Scottish petition and as it will be closed soon please take this opportunity to sign it. It will only take 2 seconds so please please click here http://petitions.number10.gov.uk/LowDNaltrexone/

#10157 From: "lucretia1419" <lucretia14@...>
Date: Sat Nov 14, 2009 5:37 pm
Subject: Re: what to take for pain while on LDN - surgery and anesthesia?
lucretia1419
Offline Offline
Send Email Send Email
 
I have wondered about that, too, and hopefully thought through it.  I take my
LDN at night.  Unless I fall out of my bed I am not likely to need emergency
treatment.  So by the time something drastic can happen the LDN is enough out of
my system that the painkillers will work again.  If I have an accident that
knocks me out I won't care whether the painkillers work or not.  For me, this
all is an additional reason why I want to take my LDN before bedtime.  I know,
something can still happen, like a fall in the bathroom or something like that. 
But if I'm conscious I can tell the paramedics to use a non-opiate based
painkiller, and if I'm not conscious, neither they nor I will care. I think.
Lucretia

--- In LDN_Users@yahoogroups.com, "swim2lakes" <swim2lakes@...> wrote:
>
>
> I've asked this same question and never really got an answer.
> The site mentions to stop one day before surgery or anesthesia, but i wonder
about emergency hospitalizations when one is on LDN ???
>
> Thanks..
>
> --
>

#10156 From: Dudley Delany <DudleyDelany@...>
Date: Sat Nov 14, 2009 10:51 am
Subject: Re: Re: what to take for pain while on LDN - surgery and anesthesia?
dudley_delany
Offline Offline
Send Email Send Email
 
Hi,

In my opinion, at best, after 24 hours there would be only a trace of LDN in the system--too little to be of any consequence in terms of interfering with anesthesia.

As far as a buildup of LDN is concerned, in my opinion, it is a rare occurrence and need not concern the average LDNer.

Best regards,

Dudley Delany
http://profiles.yahoo.com/dudley_delany

#10155 From: "bob Larson" <bobList@...>
Date: Sat Nov 14, 2009 9:50 am
Subject: RE: Re: what to take for pain while on LDN - surgery and anesthesia?
bob021147
Offline Offline
Send Email Send Email
 
the LDN correct dosage is that which should be gone from, eliminated by, the
body in about 6 hours.
if it's accumulating, then the dosage is too high.
i can't answer how to tell if it's accumulating.

________________________________

	 From: LDN_Users@yahoogroups.com [mailto:LDN_Users@yahoogroups.com]
On Behalf Of Sam
	 Sent: Friday, November 13, 2009 10:31 PM
	 To: LDN_Users@yahoogroups.com
	 Subject: Re: [LDN_Users] Re: what to take for pain while on LDN -
surgery and anesthesia?




		 That is a very good question. Also does it take only 24
hours for LDN to leave your body so that it would not conflict with any
anestheisia? If you are on LDN for a length of time and building up your
dosage wouldn't it take longer than one day? Any more info would be very
appreciated.
	 Sam

#10154 From: Sam <yaddayadda53@...>
Date: Sat Nov 14, 2009 3:31 am
Subject: Re: Re: what to take for pain while on LDN - surgery and anesthesia?
yaddayadda53
Offline Offline
Send Email Send Email
 
That is a very good question. Also does it take only 24 hours for LDN to leave your body so that it would not conflict with any anestheisia? If you are on LDN for a length of time and building up your dosage wouldn't it take longer than one day? Any more info would be very appreciated.
Sam

--- On Fri, 11/13/09, swim2lakes <swim2lakes@...> wrote:

I've asked this same question and never really got an answer.
The site mentions to stop one day before surgery or anesthesia, but i wonder about emergency hospitalizations when one is on LDN ???


 


#10153 From: "Celia" <celia@...>
Date: Fri Nov 13, 2009 2:44 pm
Subject: petitions
redharvester...
Offline Offline
Send Email Send Email
 
 
Please, if you haven't already, sign the Petitions re LDN, the first link is the Scottish Petition, any one in the world can sign this one -
 
 
 
 
Only UK citizens and ex pat's can sign this one -
 
 
We would really appreciate your help in getting a big last push on both of these petitions, if you believe in LDN then put your signatures on, it will only take a minute or two of your time....
Many thanks
Celia
 
 
 
 
 

#10152 From: "swim2lakes" <swim2lakes@...>
Date: Fri Nov 13, 2009 1:04 pm
Subject: Re: what to take for pain while on LDN - surgery and anesthesia?
swim2lakes
Offline Offline
Send Email Send Email
 
I've asked this same question and never really got an answer.
The site mentions to stop one day before surgery or anesthesia, but i wonder
about emergency hospitalizations when one is on LDN ???

Thanks..

--

#10151 From: Dudley Delany <DudleyDelany@...>
Date: Fri Nov 13, 2009 9:44 am
Subject: Re: what to take for pain while on LDN - surgery and anesthesia?
dudley_delany
Offline Offline
Send Email Send Email
 
Hi Sam,

This issue is discussed at

http://tinyurl.com/ldn-side-effects

Best regards,

Dudley

#10150 From: Sam <yaddayadda53@...>
Date: Fri Nov 13, 2009 4:50 am
Subject: Re: what to take for pain while on LDN - surgery and anesthesia?
yaddayadda53
Offline Offline
Send Email Send Email
 
Dudley,
 
Are there to your knowledge and protocols for what someone would have to do if they had to have surgery and any kind of anesthsia and were on LDN?
 
Thanks,
Sam

--- On Fri, 11/13/09, Dudley Delany <DudleyDelany@...> wrote: 
Hi Carla,

This site has a list of painkillers deemed compatible with LDN:

http://tinyurl. com/drugs- to-avoid- on-ldn


#10149 From: Dudley Delany <DudleyDelany@...>
Date: Fri Nov 13, 2009 3:23 am
Subject: Re: Re: responsing to ldn without prescription
dudley_delany
Offline Offline
Send Email Send Email
 
Hi Diane,

It is unlikely that you will be able to obtain compounded LDN without a prescription, because it is only available from compounding pharmacies. A compounding pharmacy wouldn't sell it to to without a prescription.

If the home-made LDN does not work for you, the compounded version won't either. It's the same drug, just in a different format.

Best regards,

Dudley Delany
http://profiles.yahoo.com/dudley_delany

#10148 From: JIM DIANE KOHLER <jimdianek@...>
Date: Fri Nov 13, 2009 1:59 am
Subject: Re: responsing to ldn without prescription
jimdianek
Offline Offline
Send Email Send Email
 
can you get ldn  compound without a prescription in California, USA.  the home made ldn does not work for me at all.
 
e-mail said i did not need a prescription for LDN.??????????????
Yes, if a drug company gets fda approval on ldn prescription it will cost a lot.  example now 4 ap time release pill. fda approved drug will cost
6,0000 a year for a prescription. this drug was costing only 50.00 for 90 days before fda approved drug.
Also a lady on this site said her insurance will paid for the ldn.  i ask her what was the name of the Insurance company. I never hear back from her again. I am wondering if she misunderstood what her insurance said.
diane 

         
                           jimdianek@...



#10147 From: Dudley Delany <DudleyDelany@...>
Date: Fri Nov 13, 2009 1:27 am
Subject: Re: What the papers say
dudley_delany
Offline Offline
Send Email Send Email
 
Hi John

You UK advocates are doing a phenomenal job of spreading the word about LDN. Keep keeping on!

With best wishes,

Dudley Delany
http://profiles.yahoo.com/dudley_delany

#10146 From: Dudley Delany <DudleyDelany@...>
Date: Fri Nov 13, 2009 1:21 am
Subject: Re: what to take for pain while on LDN
dudley_delany
Offline Offline
Send Email Send Email
 
Hi Carla,

This site has a list of painkillers deemed compatible with LDN:

http://tinyurl.com/drugs-to-avoid-on-ldn

If you are habituated to narcotic painkillers, you should wait two weeks before
starting LDN.

For a good source of information about LDN, visit

http://tinyurl.com/intro-to-ldn

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

#10145 From: "carlaulbrich" <carlau@...>
Date: Fri Nov 13, 2009 12:38 am
Subject: Re: prescription LDN
carlaulbrich
Offline Offline
Send Email Send Email
 
--- In LDN_Users@yahoogroups.com, "jimdianek" <jimdianek@...> wrote:
>
> I guess if LDN every becomes a prescripton drug.
> the price could be higher.
>
> I think everyone should have the information about LDN
> but some us will never be able to afford LDN.
> diane
>


You know you can purchase it now without a prescription, right?
Carla
http://www.thesingingpatient.com

#10144 From: "carlaulbrich" <carlau@...>
Date: Thu Nov 12, 2009 9:37 pm
Subject: what to take for pain while on LDN
carlaulbrich
Offline Offline
Send Email Send Email
 
Just a happy little note to say:
I got my naltrexone in the  mail
it's dissolving in distilled water right now.

I had to take some percaset (how do you spell that ? i never get it right) last
night for pain. presumably it will be out of my system by tonight and i can
start the LDN at bedtime?

I don't think it would be realistic to think i'll have no pain the second i
start LDN, so what do you guys take to deal with pain while on LDN?
Alee? advil?
what is OK?
Carla

#10143 From: jaynelcrocker <jaynelcrocker@...>
Date: Thu Nov 12, 2009 8:59 pm
Subject: Article in the Oxford Mail - OT
chelsea123dog
Offline Offline
Send Email Send Email
 

Folks,

 

Just to let you know we have an article re LDN that appeared in the Oxford Mail today http://www.oxfordmail.co.uk/news/4736055.Oxfordshire_MS_sufferer_calls_for_drugs_trial_after_finding_LDN/

 

Silvia (better known as Lucretia on the yahoo groups) has been campaigning tirelessly to get media awareness about our campaign to the Govt to fund trials for LDN.  I am so pleased to see this article appear in her local press.

 

If any of you can spare a minute to post a comment in support of LDN, this would be most appreciated.

 

Well done Lucretia, the article reads very well.

 

Thanks folks,

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

 

 

 

 

 

 


#10142 From: Roger Barker <rbarker@...>
Date: Thu Nov 12, 2009 7:51 pm
Subject: Re: LDN and empty stomach.
rehi383
Offline Offline
Send Email Send Email
 
Thanks for your reply Dudley. As it's best to take LDN just before retiring for the night I'll see about having a small supper and hour or so before bedtime then take the LDN and hit the hay.

Cheers,  Roger B
NZ


On 11/11/2009, at 11:56 AM, Dudley Delany wrote:

 

Hi Roger,

If you know that LDN should be taken on an empty stomach, surely you know also that it should be taken at bedtime.

This site discusses LDN dosing:

http://tinyurl.com/ldn-side-effects

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany



#10141 From: "John Donnelly" <john@...>
Date: Thu Nov 12, 2009 7:00 pm
Subject: What the papers say
johncarneint
Offline Offline
Send Email Send Email
 
The word is getting out,


 

 

(1)     Mid –Ulster Mail, N. Ireland  07th May 2009    Link          

(2)     John Donnelly’s 1st article in the Clondalkin Echo, Dublin, Ireland 13th May 2009   Link

(3)     John Donnelly’s 2nd article in the Clondalkin Echo, Dublin, Ireland 03rd June 2009  Link

(4)     Jayne Crocker The Western Telegraph, Wales 05th July 2009   Link  

(5)     Andrew Barnett The Swansea and West Wales Evening Post 21st Jul 09  Link

(6)     Bryan Lonsdale on the 4th Plinth –New Pathways (MSRC) p.6, Issue 57, Sep/Oct 09   Link

(7)     Bryan Lonsdale on the 4th Plinth –New Pathways (MSRC) p.6, Issue 57, Sep/Oct 09   Link

(8)     South Wales Evening Post on LDNNow Day 12th Sep 09  Link

(9)     Andrew Barnett Llanelli Star, Wales 13th Sep 09    Link  

(10) Celia & Maureen Wee County News, Scotland 16th Sep 09  Link

(11) Andrew  Wales on Line 21st Sep 2009  Link

(12) Western Mail, Wales 21st Sep 2009  Link

(13) The County Derry Post N. Ireland 22nd Sep 09  Link

(14) The Constitution 24th Sep 09 , N. Ireland   Link

(15) Jayne Crocker The Western Telegraph, Wales 09th Oct 2009   Link

(16) Daily Express 13th Oct 2009 (LDN Research trust – see comments)  Link

(17) Nursing in Practice 19th Oct 2009 (LDN Research Trust – see comments) Link

(18) Silvia Lane in Woodcote Correspondent, England Oct 09   Link

(19) Article in the Orcadian 15th Oct 2009 (LDN Awareness Week)   Link

(20) Llanelli Star, Wales. Andrew’s response RE MSS 21st Oct 2009  Link

(21) Mgt Anne Gachagan in  Evening Times, Glasgow, Scotland  26th Oct 2009  Link

(22) Silvia Lane letter in Henley Standard, England 23rd Oct 2009    Link

(23) Jayne Crocker The Western Telegraph, Wales 30th Oct 2009   Link  

(24) Silvia Lane 2nd letter in Henley Standard, England 02nd Nov 2009  Link  

(25) Jayne Crocker, Milford & West Wales Mercury,  12th Nov 2009   Link 

 

 

 

 

     


#10140 From: jaynelcrocker <jaynelcrocker@...>
Date: Thu Nov 12, 2009 3:42 pm
Subject: Article in my local paper - OT
chelsea123dog
Offline Offline
Send Email Send Email
 

Firstly, I’d like to thank everyone for their support with posting comments, giving thumbs up etc when given an opportunity to raise awareness about LDN.  This has now appeared in my local paper today and if anyone can support this by posting a comment with sharing your opinions/experiences with LDN, this would help a great deal.  If there’s enough comments, this article will remain on line for 2 weeks

 

Any help/support would be greatly appreciated – less than 2 weeks left!

 

http://www.milfordmercury.co.uk/news/4735577.Campaign_for_drugs_trial_gathers_pace/

 

Thanks again.

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

 

 

 

 

 

 


#10139 From: Dudley Delany <DudleyDelany@...>
Date: Wed Nov 11, 2009 11:14 pm
Subject: Re: LDN and empty stomach.
dudley_delany
Offline Offline
Send Email Send Email
 
If you take LDN with food, it will be released slowly, as food takes time to digest. See this site for dosing information:

http://tinyurl.com/ldn-side-effects

From: Crystals MS TM LDN Website
Sent: Wednesday, November 11, 2009 5:37 PM
To: LDN_Users@yahoogroups.com
Subject: Re: [LDN_Users] LDN and empty stomach.

Who said you had to take LDN on an empty stomach? LDN can be taken on with or without food.


 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 



From: Roger Barker <rbarker@...>
To: LDN_Users@yahoogroups.com
Sent: Tue, November 10, 2009 4:47:01 PM
Subject: [LDN_Users] LDN and empty stomach.

 

Can anyone tell me how long one should wait after taking LDN (on an
empty stomach) before eating anything - don't want to miss supper :-)

Cheers, Roger B
NZ



#10138 From: Crystals MS TM LDN Website <angelindisguise67@...>
Date: Wed Nov 11, 2009 11:03 pm
Subject: Re: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
angelindisgu...
Offline Offline
Send Email Send Email
 
They had a segment on the Doctor's Show today about giving kids Marijuana and said some parents bake it in cookies for the kids and it has helped them a lot.

http://www.thedoctorstv.com/main/show_synopsis/346?section=synopsis

 

 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 



From: jaynelcrocker <jaynelcrocker@...>
To: LDN_Users@yahoogroups.com
Sent: Tue, November 10, 2009 10:21:18 PM
Subject: RE: [LDN_Users] Re: OFF TOPIC: Can Marijuana Help Kids with Autism?

 

I’ll back that up with seeing my partner who suffers from SPMS, thanks for posting this.

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube. com/watch? v=CVpjsDK0LPA

 

 

 

 

 

 

From: LDN_Users@yahoogrou ps.com [mailto:LDN_ Users@yahoogroup s.com] On Behalf Of art_ldn
Sent: 10 November 2009 12:28
To: LDN_Users@yahoogrou ps.com
Subject: [LDN_Users] Re: OFF TOPIC: Can Marijuana Help Kids with Autism?

 

 

Marijuana should be legalized.

--- In LDN_Users@yahoogrou ps.com, Lela Landman <lelaji@...> wrote:
>
> > Hi all,
> > I am a Cancer patient and also have Polymyositis -Have been on LDN for about 6
> > months and am doing extremely well on it. I am also a medical marijuana user
> > although I don¹t use it very much anymore. I just went to see a movie called
> > The Horse Boy about a family in Texas with an autistic child that sounds
> > similar to Marie Myung-Ok Lee¹s son- it was a very moving story and his father
> > has written a book of the same name, his father is Rupert Issacson and the
> > book and the DVD are available on Amazon.com. This family went to Mongolia to
> > Shamans that helped although not cured his son immensely. He and his wife now
> > run a horse ranch in Texas dedicated to helping and healing other autistic
> > children. Just thought I¹d post this if Ms. Lee or anyone else is interested.
> > Lela Landman
> >
> >
> >
> > This mom says giving her kid pot has made all the difference.
> >
> > As the mother of an autistic child, Marie Myung-Ok Lee is navigating uncharted
> > territory as she struggles to manage her son's condition. She has bravely come
> > forward to share her son's battle with this mysterious disorder, and to
> > discuss how medical marijuana has brought them both back from the brink of
> > despair.
> >
> > During what Marie calls the "dark phase," her son J had unpredictable mood
> > swings that could erupt into fitful rages. Her 9-year-old would scream during
> > lengthy tantrums, he refused to eat and threw his food on the floor. J broke
> > plates, windows, and other household items as a way of expressing his pain and
> > frustration. The family would hide out within the confines of their home until
> > the darkness passed.
> >
> > J's behavior disrupted his school performance and terrified the staff. "The
> > teachers were wearing tae kwon do arm pads to protect themselves against his
> > biting," Marie said. The school monitored J's daily outbursts on an
> > "aggression chart" that documented as many as 300 episodes in one day that
> > involved hitting, kicking, biting, or pinching another person.
> >
> > With her son in crisis, Marie had no choice but to perform an intervention.
> > But the only solution offered by child psychiatrists came in a pill bottle.
> > "His school tried to force us to medicate him," says Marie, who feared the
> > risk of dangerous side effects associated with commonly prescribed
> > antipsychotic drugs like Risperdal. Many of the FDA-approved drugs on the
> > market used to treat symptoms of autism have no proven safety track record for
> > use in children.
> >
> > Despite the unknown risks, more kids are using prescription drugs than ever
> > before. The number of children on psychiatric meds has skyrocketed in recent
> > years, according to reports in medical journals such as Archives of Pediatrics
> > and Adolescent Medicine. Prescription drug use is growing faster among
> > children than the elderly and baby boomers. But when it comes to medicating
> > kids with marijuana, the issue becomes taboo.
> >
> > "There's no such thing as a harmless drug, but marijuana is much less harmful
> > than other drugs," said Lester Grinspoon, M.D., a professor emeritus of
> > psychiatry at Harvard Medical School. Dr. Grinspoon is a leading expert in the
> > field of medical marijuana, who has authored several books on the subject. "No
> > one in the world has died from marijuana," insists Grinspoon, who has spent
> > four decades researching the illicit drug.
> >
> > Undeterred by the social stigma, Marie pursued this more natural approach to
> > calm J's demons. After discussing her wishes with J's pediatrician, Marie
> > decided to check out Marinol, a synthetic form of THC, which is the primary
> > cannabinoid in marijuana. After fine-tuning J's dosage, she began hearing
> > praises like, "J was a pleasure to have in speech class," instead of
> > complaints about his violent episodes.
> >
> > After a few months, J built up a tolerance to the drug and his unruly behavior
> > returned. "The drawback of taking Marinol is that it's only THC. That's the
> > most powerful cannabinoid, but it may not be the most relevant," said Mitch
> > Earleywine, Ph.D., an associate professor of psychology at the State
> > University of New York at Albany. Earleywine says there are about 70 different
> > cannabinoids in the marijuana plant, many of which have medicinal value. Marie
> > decided to take a chance on the real deal.
> >
> > All it took was a signed prescription and a background check for J to become
> > the youngest person in Rhode Island to obtain a license for pot. After buying
> > some marijuana-infused olive oil, Marie made a batch of pot cookies. That
> > night, J ate half of one cookie and "he was tired and conked out," said Marie,
> > who checked hourly on his sleep, "half-expecting some red-eyed ogre from
> > Reefer Madness to come leaping out at us." To her relief, J slept soundly and
> > appeared happy and mellow the next day.
> >
> > Over the past four months, Marie has documented her son's progress in an
> > online blog entitled, Why I Give My 9-Year-Old Pot, Part II. While she doesn't
> > believe marijuana is a cure for autism, it "allows J to participate more fully
> > in life without the dangers and sometimes permanent side effects of
> > pharmaceutical drugs." Dr. Grinspoon has seen positive results with a number
> > of his autistic patients who are undergoing pot therapy. "I can confidently
> > say to a parent that marijuana relieves some types of pain. It's not going to
> > hurt them if you use it responsibly," Grinspoon says. Ingesting the drug works
> > better because the effects can last up to eight hours. "A little goes a long
> > way," says Earleywine, who reminds parents that the drug can take up to an
> > hour and a half to kick in, "so wait a little while before administering any
> > more."
> >
> > While a growing number of distressed parents are turning to the herbal remedy,
> > many moms with autistic kids are skeptical. "I feel it does more harm than
> > good," says Trish, the mother of a 7-year-old boy with autism. "You are
> > sedating the child, not treating the cause of the rage." Trish believes that
> > medicating kids with pot is a cop-out. "Nobody said parenting was going to be
> > easy, or that the solution to every problem is to get our children stoned."
> >
> > The mainstream medical community shuns the subject, and the government refuses
> > to fund any research that would legitimize marijuana use in treating autism or
> > aggression disorders. "Marijuana is a very loaded subject," says Cara
> > Natterson, M.D., a pediatrician and mother of two. "As a parent and as a
> > pediatrician, I feel a responsibility to know that what I am putting into a
> > child -- mine or someone else's -- is safe and tested."
> >
> > The American Academy of Pediatrics opposes the legalization of marijuana, but
> > does support further research into the potential medical benefits of cannabis.
> > "We need to make sure the treatment is safe -- we haven't done that,"
> > Natterson adds. The doctor can sympathize with parents who desperately want to
> > help their child. "But wanting to advocate for your child and making sure your
> > child is safe are two different things," Natterson said.
> >
> > Marie is confident that she has made the right choice when she sees J's
> > transformation. "He doesn't look stoned. He just looks like a happy little
> > boy."
> >
> > http://www.momlogic .com/2009/ 11/can_marijuana _help_kids_ with_autism. php
> >
> >
> >
> >
> >
>



#10137 From: Crystals MS TM LDN Website <angelindisguise67@...>
Date: Wed Nov 11, 2009 10:37 pm
Subject: Re: LDN and empty stomach.
angelindisgu...
Offline Offline
Send Email Send Email
 
Who said you had to take LDN on an empty stomach? LDN can be taken on with or without food.


 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 



From: Roger Barker <rbarker@...>
To: LDN_Users@yahoogroups.com
Sent: Tue, November 10, 2009 4:47:01 PM
Subject: [LDN_Users] LDN and empty stomach.

 

Can anyone tell me how long one should wait after taking LDN (on an
empty stomach) before eating anything - don't want to miss supper :-)

Cheers, Roger B
NZ



#10136 From: "sonya_terri" <sonya_terri@...>
Date: Wed Nov 11, 2009 10:08 pm
Subject: LDN for Closed Head Injury?
sonya_terri
Online Now Online Now
Send Email Send Email
 
Does anyone else take LDN for Closed Head Injury symptoms? If so, does it help
with the constant bad headache? Thanks for any info, for a friend of mine.
Sonya

#10135 From: "tbayuk" <tbayuk@...>
Date: Wed Nov 11, 2009 3:16 pm
Subject: Very Important Info
tmbayuk
Offline Offline
Send Email Send Email
 
I have been diagnosed with MS since 1984 and have done very well utilizing vitamins, minerals, exercise, stretching Etc...No drugs ever except for 4.5mg. of LDN.  I do use a wheelchair because of spasms in my legs.  Thankfully I do not have and have never had any other problems.
I am on Medicare and was fortunate enough to have a "Power Chair" delivered to me last night.  This chair is an absolute Godsend and is truly a life changing treasure.
The supplier is a specialist in these matters.  He told me that the new proposed healthcare bill will NOT allow for ownership of these chairs to any individidual.  That is a disgusting  and hidden in the 1,900 page bill.  Everyone with a disability or potential disability needs to know this.
I have written three books about MS as most of you know and given away several thousand..this will definitely be in my fourth.
Best Regards and wishes,
Tom Bayuk
 

#10134 From: Lela Landman <lelaji@...>
Date: Wed Nov 11, 2009 8:06 am
Subject: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
lelaji3
Offline Offline
Send Email Send Email
 
Hi Dudley,
 Thanks I wasn’t aware of Dr. Jaquelyn McCandless’s book –that sounds great. I don’t understand why you think my post sounds like an ad for pot. My post is about the movie “The Horse Boy” in response to the post about this mother using marijuana for her autistic son.  I think you might have been confused and thought I posted the long story of the marijuana helping this boy- I didn’t and I am not sure  who did. I got the post from art_ldn on  Sunday 11/8 in my e-mail inbox and just responded because I had just seen this movie about this family taking their son to Mongolia in search  of Shamans to help heal their son of autism. It was a very touching movie.
All the best to you,
Lela
 
   

Hi Lela,

Are you aware that Dr. Jaquelyn McCandless has successfully used LDN to treat autism and written a book about her experience called "Children With Starving Brain"?

Your post reads like an ad for pot!

All the best,

Dudley Delany
http://profiles.yahoo.com/dudley_delany
 
   




#10133 From: jaynelcrocker <jaynelcrocker@...>
Date: Wed Nov 11, 2009 4:21 am
Subject: RE: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
chelsea123dog
Offline Offline
Send Email Send Email
 

I’ll back that up with seeing my partner who suffers from SPMS, thanks for posting this.

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

 

 

 

 

 

 

From: LDN_Users@yahoogroups.com [mailto:LDN_Users@yahoogroups.com] On Behalf Of art_ldn
Sent: 10 November 2009 12:28
To: LDN_Users@yahoogroups.com
Subject: [LDN_Users] Re: OFF TOPIC: Can Marijuana Help Kids with Autism?

 

 

Marijuana should be legalized.

--- In LDN_Users@yahoogroups.com, Lela Landman <lelaji@...> wrote:
>
> > Hi all,
> > I am a Cancer patient and also have Polymyositis -Have been on LDN for about 6
> > months and am doing extremely well on it. I am also a medical marijuana user
> > although I don¹t use it very much anymore. I just went to see a movie called
> > The Horse Boy about a family in Texas with an autistic child that sounds
> > similar to Marie Myung-Ok Lee¹s son- it was a very moving story and his father
> > has written a book of the same name, his father is Rupert Issacson and the
> > book and the DVD are available on Amazon.com. This family went to Mongolia to
> > Shamans that helped although not cured his son immensely. He and his wife now
> > run a horse ranch in Texas dedicated to helping and healing other autistic
> > children. Just thought I¹d post this if Ms. Lee or anyone else is interested.
> > Lela Landman
> >
> >
> >
> > This mom says giving her kid pot has made all the difference.
> >
> > As the mother of an autistic child, Marie Myung-Ok Lee is navigating uncharted
> > territory as she struggles to manage her son's condition. She has bravely come
> > forward to share her son's battle with this mysterious disorder, and to
> > discuss how medical marijuana has brought them both back from the brink of
> > despair.
> >
> > During what Marie calls the "dark phase," her son J had unpredictable mood
> > swings that could erupt into fitful rages. Her 9-year-old would scream during
> > lengthy tantrums, he refused to eat and threw his food on the floor. J broke
> > plates, windows, and other household items as a way of expressing his pain and
> > frustration. The family would hide out within the confines of their home until
> > the darkness passed.
> >
> > J's behavior disrupted his school performance and terrified the staff. "The
> > teachers were wearing tae kwon do arm pads to protect themselves against his
> > biting," Marie said. The school monitored J's daily outbursts on an
> > "aggression chart" that documented as many as 300 episodes in one day that
> > involved hitting, kicking, biting, or pinching another person.
> >
> > With her son in crisis, Marie had no choice but to perform an intervention.
> > But the only solution offered by child psychiatrists came in a pill bottle.
> > "His school tried to force us to medicate him," says Marie, who feared the
> > risk of dangerous side effects associated with commonly prescribed
> > antipsychotic drugs like Risperdal. Many of the FDA-approved drugs on the
> > market used to treat symptoms of autism have no proven safety track record for
> > use in children.
> >
> > Despite the unknown risks, more kids are using prescription drugs than ever
> > before. The number of children on psychiatric meds has skyrocketed in recent
> > years, according to reports in medical journals such as Archives of Pediatrics
> > and Adolescent Medicine. Prescription drug use is growing faster among
> > children than the elderly and baby boomers. But when it comes to medicating
> > kids with marijuana, the issue becomes taboo.
> >
> > "There's no such thing as a harmless drug, but marijuana is much less harmful
> > than other drugs," said Lester Grinspoon, M.D., a professor emeritus of
> > psychiatry at Harvard Medical School. Dr. Grinspoon is a leading expert in the
> > field of medical marijuana, who has authored several books on the subject. "No
> > one in the world has died from marijuana," insists Grinspoon, who has spent
> > four decades researching the illicit drug.
> >
> > Undeterred by the social stigma, Marie pursued this more natural approach to
> > calm J's demons. After discussing her wishes with J's pediatrician, Marie
> > decided to check out Marinol, a synthetic form of THC, which is the primary
> > cannabinoid in marijuana. After fine-tuning J's dosage, she began hearing
> > praises like, "J was a pleasure to have in speech class," instead of
> > complaints about his violent episodes.
> >
> > After a few months, J built up a tolerance to the drug and his unruly behavior
> > returned. "The drawback of taking Marinol is that it's only THC. That's the
> > most powerful cannabinoid, but it may not be the most relevant," said Mitch
> > Earleywine, Ph.D., an associate professor of psychology at the State
> > University of New York at Albany. Earleywine says there are about 70 different
> > cannabinoids in the marijuana plant, many of which have medicinal value. Marie
> > decided to take a chance on the real deal.
> >
> > All it took was a signed prescription and a background check for J to become
> > the youngest person in Rhode Island to obtain a license for pot. After buying
> > some marijuana-infused olive oil, Marie made a batch of pot cookies. That
> > night, J ate half of one cookie and "he was tired and conked out," said Marie,
> > who checked hourly on his sleep, "half-expecting some red-eyed ogre from
> > Reefer Madness to come leaping out at us." To her relief, J slept soundly and
> > appeared happy and mellow the next day.
> >
> > Over the past four months, Marie has documented her son's progress in an
> > online blog entitled, Why I Give My 9-Year-Old Pot, Part II. While she doesn't
> > believe marijuana is a cure for autism, it "allows J to participate more fully
> > in life without the dangers and sometimes permanent side effects of
> > pharmaceutical drugs." Dr. Grinspoon has seen positive results with a number
> > of his autistic patients who are undergoing pot therapy. "I can confidently
> > say to a parent that marijuana relieves some types of pain. It's not going to
> > hurt them if you use it responsibly," Grinspoon says. Ingesting the drug works
> > better because the effects can last up to eight hours. "A little goes a long
> > way," says Earleywine, who reminds parents that the drug can take up to an
> > hour and a half to kick in, "so wait a little while before administering any
> > more."
> >
> > While a growing number of distressed parents are turning to the herbal remedy,
> > many moms with autistic kids are skeptical. "I feel it does more harm than
> > good," says Trish, the mother of a 7-year-old boy with autism. "You are
> > sedating the child, not treating the cause of the rage." Trish believes that
> > medicating kids with pot is a cop-out. "Nobody said parenting was going to be
> > easy, or that the solution to every problem is to get our children stoned."
> >
> > The mainstream medical community shuns the subject, and the government refuses
> > to fund any research that would legitimize marijuana use in treating autism or
> > aggression disorders. "Marijuana is a very loaded subject," says Cara
> > Natterson, M.D., a pediatrician and mother of two. "As a parent and as a
> > pediatrician, I feel a responsibility to know that what I am putting into a
> > child -- mine or someone else's -- is safe and tested."
> >
> > The American Academy of Pediatrics opposes the legalization of marijuana, but
> > does support further research into the potential medical benefits of cannabis.
> > "We need to make sure the treatment is safe -- we haven't done that,"
> > Natterson adds. The doctor can sympathize with parents who desperately want to
> > help their child. "But wanting to advocate for your child and making sure your
> > child is safe are two different things," Natterson said.
> >
> > Marie is confident that she has made the right choice when she sees J's
> > transformation. "He doesn't look stoned. He just looks like a happy little
> > boy."
> >
> > http://www.momlogic.com/2009/11/can_marijuana_help_kids_with_autism.php
> >
> >
> >
> >
> >
>


#10132 From: "Judy Harford" <jlharford@...>
Date: Wed Nov 11, 2009 2:09 am
Subject: Re:No results?
judy_harford
Offline Offline
Send Email Send Email
 
CFS/ME is one of the hardest diseases to treat with LDN, not because it doesn't work, but because there is so much involved in the CFS/ME that must be treated. LDN is not a stand alone treatment. You also need to treat the viral side of CFS. Have you joined the LDNforCFS yahoo group? There are a lot of people there that might have suggestions to help you.
 
Also, in the preliminary results of the Stanford trial for fibromyalgia, it was discovered that some people just take longer to show any results. Give it at least six months before you question whether it is working. It is actually pretty rare for people to notice immediate results. LDN is usually a gradual process where you notice that one thing is slightly better, and then a while later you notice one other thing isn't as bad as it was before. While I did notice a slight decrease in my fibro pain after about a month or so, it wasn't until I had been on LDN for 6-8 months before I noticed it had dropped to an average of 2-3. And I still have some pain on many days, it's just that now it is totally manageable.
 
Judy H
To better health through knowledge
Started taking LDN (Low Dose Naltrexone) on 1/21/2009 for Fibromyalgia, Hypothyroid, PCOS and Restless Legs Syndrome
http://health.groups.yahoo.com/group/LDNforFibro/
 

Posted by: "6dickersons@..." 6dickersons@...   6dickersons@...

Mon Nov 9, 2009 5:52 am (PST)



Hi There,

I've been on LDN for almost 2 months. I have celiac and have had chronic fatigue for a very long time. Sometimes the fatigue is quite debilitating.

My doctor started my on 1.5mg of LDN for 10 days, then 3.0mg for 10 days and finally I've been on 4.5mg for about 30 days.

I'm not sleeping better. I wake up very groggy still. I don't notice increased energy. But I really believe that LDN can still help me. I understand why it would work and I don't want to give up on it yet.

When I hear of how quickly others feel better using LDN, I get a little discouraged. Has anyone had my experience with it. What did you do?

Is there anything that I could be doing that keeps it from working? I try to follow the SCD to the best of my ability which is not 100% (right now we are traveling frequently and it gets challenging), though I am always gluten free.

I would greatly appreciate your opinions and suggestions. I'd like to stick with LDN if there is hope of feeling better.

Many THanks,
Betty

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