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#10143 From: jaynelcrocker <jaynelcrocker@...>
Date: Thu Nov 12, 2009 8:59 pm
Subject: Article in the Oxford Mail - OT
chelsea123dog
Offline Offline
Send Email Send Email
 

Folks,

 

Just to let you know we have an article re LDN that appeared in the Oxford Mail today http://www.oxfordmail.co.uk/news/4736055.Oxfordshire_MS_sufferer_calls_for_drugs_trial_after_finding_LDN/

 

Silvia (better known as Lucretia on the yahoo groups) has been campaigning tirelessly to get media awareness about our campaign to the Govt to fund trials for LDN.  I am so pleased to see this article appear in her local press.

 

If any of you can spare a minute to post a comment in support of LDN, this would be most appreciated.

 

Well done Lucretia, the article reads very well.

 

Thanks folks,

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

 

 

 

 

 

 


#10142 From: Roger Barker <rbarker@...>
Date: Thu Nov 12, 2009 7:51 pm
Subject: Re: LDN and empty stomach.
rehi383
Offline Offline
Send Email Send Email
 
Thanks for your reply Dudley. As it's best to take LDN just before retiring for the night I'll see about having a small supper and hour or so before bedtime then take the LDN and hit the hay.

Cheers,  Roger B
NZ


On 11/11/2009, at 11:56 AM, Dudley Delany wrote:

 

Hi Roger,

If you know that LDN should be taken on an empty stomach, surely you know also that it should be taken at bedtime.

This site discusses LDN dosing:

http://tinyurl.com/ldn-side-effects

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany



#10141 From: "John Donnelly" <john@...>
Date: Thu Nov 12, 2009 7:00 pm
Subject: What the papers say
johncarneint
Offline Offline
Send Email Send Email
 
The word is getting out,


 

 

(1)     Mid –Ulster Mail, N. Ireland  07th May 2009    Link          

(2)     John Donnelly’s 1st article in the Clondalkin Echo, Dublin, Ireland 13th May 2009   Link

(3)     John Donnelly’s 2nd article in the Clondalkin Echo, Dublin, Ireland 03rd June 2009  Link

(4)     Jayne Crocker The Western Telegraph, Wales 05th July 2009   Link  

(5)     Andrew Barnett The Swansea and West Wales Evening Post 21st Jul 09  Link

(6)     Bryan Lonsdale on the 4th Plinth –New Pathways (MSRC) p.6, Issue 57, Sep/Oct 09   Link

(7)     Bryan Lonsdale on the 4th Plinth –New Pathways (MSRC) p.6, Issue 57, Sep/Oct 09   Link

(8)     South Wales Evening Post on LDNNow Day 12th Sep 09  Link

(9)     Andrew Barnett Llanelli Star, Wales 13th Sep 09    Link  

(10) Celia & Maureen Wee County News, Scotland 16th Sep 09  Link

(11) Andrew  Wales on Line 21st Sep 2009  Link

(12) Western Mail, Wales 21st Sep 2009  Link

(13) The County Derry Post N. Ireland 22nd Sep 09  Link

(14) The Constitution 24th Sep 09 , N. Ireland   Link

(15) Jayne Crocker The Western Telegraph, Wales 09th Oct 2009   Link

(16) Daily Express 13th Oct 2009 (LDN Research trust – see comments)  Link

(17) Nursing in Practice 19th Oct 2009 (LDN Research Trust – see comments) Link

(18) Silvia Lane in Woodcote Correspondent, England Oct 09   Link

(19) Article in the Orcadian 15th Oct 2009 (LDN Awareness Week)   Link

(20) Llanelli Star, Wales. Andrew’s response RE MSS 21st Oct 2009  Link

(21) Mgt Anne Gachagan in  Evening Times, Glasgow, Scotland  26th Oct 2009  Link

(22) Silvia Lane letter in Henley Standard, England 23rd Oct 2009    Link

(23) Jayne Crocker The Western Telegraph, Wales 30th Oct 2009   Link  

(24) Silvia Lane 2nd letter in Henley Standard, England 02nd Nov 2009  Link  

(25) Jayne Crocker, Milford & West Wales Mercury,  12th Nov 2009   Link 

 

 

 

 

     


#10140 From: jaynelcrocker <jaynelcrocker@...>
Date: Thu Nov 12, 2009 3:42 pm
Subject: Article in my local paper - OT
chelsea123dog
Offline Offline
Send Email Send Email
 

Firstly, I’d like to thank everyone for their support with posting comments, giving thumbs up etc when given an opportunity to raise awareness about LDN.  This has now appeared in my local paper today and if anyone can support this by posting a comment with sharing your opinions/experiences with LDN, this would help a great deal.  If there’s enough comments, this article will remain on line for 2 weeks

 

Any help/support would be greatly appreciated – less than 2 weeks left!

 

http://www.milfordmercury.co.uk/news/4735577.Campaign_for_drugs_trial_gathers_pace/

 

Thanks again.

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

 

 

 

 

 

 


#10139 From: Dudley Delany <DudleyDelany@...>
Date: Wed Nov 11, 2009 11:14 pm
Subject: Re: LDN and empty stomach.
dudley_delany
Offline Offline
Send Email Send Email
 
If you take LDN with food, it will be released slowly, as food takes time to digest. See this site for dosing information:

http://tinyurl.com/ldn-side-effects

From: Crystals MS TM LDN Website
Sent: Wednesday, November 11, 2009 5:37 PM
To: LDN_Users@yahoogroups.com
Subject: Re: [LDN_Users] LDN and empty stomach.

Who said you had to take LDN on an empty stomach? LDN can be taken on with or without food.


 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 



From: Roger Barker <rbarker@...>
To: LDN_Users@yahoogroups.com
Sent: Tue, November 10, 2009 4:47:01 PM
Subject: [LDN_Users] LDN and empty stomach.

 

Can anyone tell me how long one should wait after taking LDN (on an
empty stomach) before eating anything - don't want to miss supper :-)

Cheers, Roger B
NZ



#10138 From: Crystals MS TM LDN Website <angelindisguise67@...>
Date: Wed Nov 11, 2009 11:03 pm
Subject: Re: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
angelindisgu...
Offline Offline
Send Email Send Email
 
They had a segment on the Doctor's Show today about giving kids Marijuana and said some parents bake it in cookies for the kids and it has helped them a lot.

http://www.thedoctorstv.com/main/show_synopsis/346?section=synopsis

 

 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 



From: jaynelcrocker <jaynelcrocker@...>
To: LDN_Users@yahoogroups.com
Sent: Tue, November 10, 2009 10:21:18 PM
Subject: RE: [LDN_Users] Re: OFF TOPIC: Can Marijuana Help Kids with Autism?

 

I’ll back that up with seeing my partner who suffers from SPMS, thanks for posting this.

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube. com/watch? v=CVpjsDK0LPA

 

 

 

 

 

 

From: LDN_Users@yahoogrou ps.com [mailto:LDN_ Users@yahoogroup s.com] On Behalf Of art_ldn
Sent: 10 November 2009 12:28
To: LDN_Users@yahoogrou ps.com
Subject: [LDN_Users] Re: OFF TOPIC: Can Marijuana Help Kids with Autism?

 

 

Marijuana should be legalized.

--- In LDN_Users@yahoogrou ps.com, Lela Landman <lelaji@...> wrote:
>
> > Hi all,
> > I am a Cancer patient and also have Polymyositis -Have been on LDN for about 6
> > months and am doing extremely well on it. I am also a medical marijuana user
> > although I don¹t use it very much anymore. I just went to see a movie called
> > The Horse Boy about a family in Texas with an autistic child that sounds
> > similar to Marie Myung-Ok Lee¹s son- it was a very moving story and his father
> > has written a book of the same name, his father is Rupert Issacson and the
> > book and the DVD are available on Amazon.com. This family went to Mongolia to
> > Shamans that helped although not cured his son immensely. He and his wife now
> > run a horse ranch in Texas dedicated to helping and healing other autistic
> > children. Just thought I¹d post this if Ms. Lee or anyone else is interested.
> > Lela Landman
> >
> >
> >
> > This mom says giving her kid pot has made all the difference.
> >
> > As the mother of an autistic child, Marie Myung-Ok Lee is navigating uncharted
> > territory as she struggles to manage her son's condition. She has bravely come
> > forward to share her son's battle with this mysterious disorder, and to
> > discuss how medical marijuana has brought them both back from the brink of
> > despair.
> >
> > During what Marie calls the "dark phase," her son J had unpredictable mood
> > swings that could erupt into fitful rages. Her 9-year-old would scream during
> > lengthy tantrums, he refused to eat and threw his food on the floor. J broke
> > plates, windows, and other household items as a way of expressing his pain and
> > frustration. The family would hide out within the confines of their home until
> > the darkness passed.
> >
> > J's behavior disrupted his school performance and terrified the staff. "The
> > teachers were wearing tae kwon do arm pads to protect themselves against his
> > biting," Marie said. The school monitored J's daily outbursts on an
> > "aggression chart" that documented as many as 300 episodes in one day that
> > involved hitting, kicking, biting, or pinching another person.
> >
> > With her son in crisis, Marie had no choice but to perform an intervention.
> > But the only solution offered by child psychiatrists came in a pill bottle.
> > "His school tried to force us to medicate him," says Marie, who feared the
> > risk of dangerous side effects associated with commonly prescribed
> > antipsychotic drugs like Risperdal. Many of the FDA-approved drugs on the
> > market used to treat symptoms of autism have no proven safety track record for
> > use in children.
> >
> > Despite the unknown risks, more kids are using prescription drugs than ever
> > before. The number of children on psychiatric meds has skyrocketed in recent
> > years, according to reports in medical journals such as Archives of Pediatrics
> > and Adolescent Medicine. Prescription drug use is growing faster among
> > children than the elderly and baby boomers. But when it comes to medicating
> > kids with marijuana, the issue becomes taboo.
> >
> > "There's no such thing as a harmless drug, but marijuana is much less harmful
> > than other drugs," said Lester Grinspoon, M.D., a professor emeritus of
> > psychiatry at Harvard Medical School. Dr. Grinspoon is a leading expert in the
> > field of medical marijuana, who has authored several books on the subject. "No
> > one in the world has died from marijuana," insists Grinspoon, who has spent
> > four decades researching the illicit drug.
> >
> > Undeterred by the social stigma, Marie pursued this more natural approach to
> > calm J's demons. After discussing her wishes with J's pediatrician, Marie
> > decided to check out Marinol, a synthetic form of THC, which is the primary
> > cannabinoid in marijuana. After fine-tuning J's dosage, she began hearing
> > praises like, "J was a pleasure to have in speech class," instead of
> > complaints about his violent episodes.
> >
> > After a few months, J built up a tolerance to the drug and his unruly behavior
> > returned. "The drawback of taking Marinol is that it's only THC. That's the
> > most powerful cannabinoid, but it may not be the most relevant," said Mitch
> > Earleywine, Ph.D., an associate professor of psychology at the State
> > University of New York at Albany. Earleywine says there are about 70 different
> > cannabinoids in the marijuana plant, many of which have medicinal value. Marie
> > decided to take a chance on the real deal.
> >
> > All it took was a signed prescription and a background check for J to become
> > the youngest person in Rhode Island to obtain a license for pot. After buying
> > some marijuana-infused olive oil, Marie made a batch of pot cookies. That
> > night, J ate half of one cookie and "he was tired and conked out," said Marie,
> > who checked hourly on his sleep, "half-expecting some red-eyed ogre from
> > Reefer Madness to come leaping out at us." To her relief, J slept soundly and
> > appeared happy and mellow the next day.
> >
> > Over the past four months, Marie has documented her son's progress in an
> > online blog entitled, Why I Give My 9-Year-Old Pot, Part II. While she doesn't
> > believe marijuana is a cure for autism, it "allows J to participate more fully
> > in life without the dangers and sometimes permanent side effects of
> > pharmaceutical drugs." Dr. Grinspoon has seen positive results with a number
> > of his autistic patients who are undergoing pot therapy. "I can confidently
> > say to a parent that marijuana relieves some types of pain. It's not going to
> > hurt them if you use it responsibly," Grinspoon says. Ingesting the drug works
> > better because the effects can last up to eight hours. "A little goes a long
> > way," says Earleywine, who reminds parents that the drug can take up to an
> > hour and a half to kick in, "so wait a little while before administering any
> > more."
> >
> > While a growing number of distressed parents are turning to the herbal remedy,
> > many moms with autistic kids are skeptical. "I feel it does more harm than
> > good," says Trish, the mother of a 7-year-old boy with autism. "You are
> > sedating the child, not treating the cause of the rage." Trish believes that
> > medicating kids with pot is a cop-out. "Nobody said parenting was going to be
> > easy, or that the solution to every problem is to get our children stoned."
> >
> > The mainstream medical community shuns the subject, and the government refuses
> > to fund any research that would legitimize marijuana use in treating autism or
> > aggression disorders. "Marijuana is a very loaded subject," says Cara
> > Natterson, M.D., a pediatrician and mother of two. "As a parent and as a
> > pediatrician, I feel a responsibility to know that what I am putting into a
> > child -- mine or someone else's -- is safe and tested."
> >
> > The American Academy of Pediatrics opposes the legalization of marijuana, but
> > does support further research into the potential medical benefits of cannabis.
> > "We need to make sure the treatment is safe -- we haven't done that,"
> > Natterson adds. The doctor can sympathize with parents who desperately want to
> > help their child. "But wanting to advocate for your child and making sure your
> > child is safe are two different things," Natterson said.
> >
> > Marie is confident that she has made the right choice when she sees J's
> > transformation. "He doesn't look stoned. He just looks like a happy little
> > boy."
> >
> > http://www.momlogic .com/2009/ 11/can_marijuana _help_kids_ with_autism. php
> >
> >
> >
> >
> >
>



#10137 From: Crystals MS TM LDN Website <angelindisguise67@...>
Date: Wed Nov 11, 2009 10:37 pm
Subject: Re: LDN and empty stomach.
angelindisgu...
Offline Offline
Send Email Send Email
 
Who said you had to take LDN on an empty stomach? LDN can be taken on with or without food.


 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 



From: Roger Barker <rbarker@...>
To: LDN_Users@yahoogroups.com
Sent: Tue, November 10, 2009 4:47:01 PM
Subject: [LDN_Users] LDN and empty stomach.

 

Can anyone tell me how long one should wait after taking LDN (on an
empty stomach) before eating anything - don't want to miss supper :-)

Cheers, Roger B
NZ



#10136 From: "sonya_terri" <sonya_terri@...>
Date: Wed Nov 11, 2009 10:08 pm
Subject: LDN for Closed Head Injury?
sonya_terri
Offline Offline
Send Email Send Email
 
Does anyone else take LDN for Closed Head Injury symptoms? If so, does it help
with the constant bad headache? Thanks for any info, for a friend of mine.
Sonya

#10135 From: "tbayuk" <tbayuk@...>
Date: Wed Nov 11, 2009 3:16 pm
Subject: Very Important Info
tmbayuk
Offline Offline
Send Email Send Email
 
I have been diagnosed with MS since 1984 and have done very well utilizing vitamins, minerals, exercise, stretching Etc...No drugs ever except for 4.5mg. of LDN.  I do use a wheelchair because of spasms in my legs.  Thankfully I do not have and have never had any other problems.
I am on Medicare and was fortunate enough to have a "Power Chair" delivered to me last night.  This chair is an absolute Godsend and is truly a life changing treasure.
The supplier is a specialist in these matters.  He told me that the new proposed healthcare bill will NOT allow for ownership of these chairs to any individidual.  That is a disgusting  and hidden in the 1,900 page bill.  Everyone with a disability or potential disability needs to know this.
I have written three books about MS as most of you know and given away several thousand..this will definitely be in my fourth.
Best Regards and wishes,
Tom Bayuk
 

#10134 From: Lela Landman <lelaji@...>
Date: Wed Nov 11, 2009 8:06 am
Subject: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
lelaji3
Offline Offline
Send Email Send Email
 
Hi Dudley,
 Thanks I wasn’t aware of Dr. Jaquelyn McCandless’s book –that sounds great. I don’t understand why you think my post sounds like an ad for pot. My post is about the movie “The Horse Boy” in response to the post about this mother using marijuana for her autistic son.  I think you might have been confused and thought I posted the long story of the marijuana helping this boy- I didn’t and I am not sure  who did. I got the post from art_ldn on  Sunday 11/8 in my e-mail inbox and just responded because I had just seen this movie about this family taking their son to Mongolia in search  of Shamans to help heal their son of autism. It was a very touching movie.
All the best to you,
Lela
 
   

Hi Lela,

Are you aware that Dr. Jaquelyn McCandless has successfully used LDN to treat autism and written a book about her experience called "Children With Starving Brain"?

Your post reads like an ad for pot!

All the best,

Dudley Delany
http://profiles.yahoo.com/dudley_delany
 
   




#10133 From: jaynelcrocker <jaynelcrocker@...>
Date: Wed Nov 11, 2009 4:21 am
Subject: RE: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
chelsea123dog
Offline Offline
Send Email Send Email
 

I’ll back that up with seeing my partner who suffers from SPMS, thanks for posting this.

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

 

 

 

 

 

 

From: LDN_Users@yahoogroups.com [mailto:LDN_Users@yahoogroups.com] On Behalf Of art_ldn
Sent: 10 November 2009 12:28
To: LDN_Users@yahoogroups.com
Subject: [LDN_Users] Re: OFF TOPIC: Can Marijuana Help Kids with Autism?

 

 

Marijuana should be legalized.

--- In LDN_Users@yahoogroups.com, Lela Landman <lelaji@...> wrote:
>
> > Hi all,
> > I am a Cancer patient and also have Polymyositis -Have been on LDN for about 6
> > months and am doing extremely well on it. I am also a medical marijuana user
> > although I don¹t use it very much anymore. I just went to see a movie called
> > The Horse Boy about a family in Texas with an autistic child that sounds
> > similar to Marie Myung-Ok Lee¹s son- it was a very moving story and his father
> > has written a book of the same name, his father is Rupert Issacson and the
> > book and the DVD are available on Amazon.com. This family went to Mongolia to
> > Shamans that helped although not cured his son immensely. He and his wife now
> > run a horse ranch in Texas dedicated to helping and healing other autistic
> > children. Just thought I¹d post this if Ms. Lee or anyone else is interested.
> > Lela Landman
> >
> >
> >
> > This mom says giving her kid pot has made all the difference.
> >
> > As the mother of an autistic child, Marie Myung-Ok Lee is navigating uncharted
> > territory as she struggles to manage her son's condition. She has bravely come
> > forward to share her son's battle with this mysterious disorder, and to
> > discuss how medical marijuana has brought them both back from the brink of
> > despair.
> >
> > During what Marie calls the "dark phase," her son J had unpredictable mood
> > swings that could erupt into fitful rages. Her 9-year-old would scream during
> > lengthy tantrums, he refused to eat and threw his food on the floor. J broke
> > plates, windows, and other household items as a way of expressing his pain and
> > frustration. The family would hide out within the confines of their home until
> > the darkness passed.
> >
> > J's behavior disrupted his school performance and terrified the staff. "The
> > teachers were wearing tae kwon do arm pads to protect themselves against his
> > biting," Marie said. The school monitored J's daily outbursts on an
> > "aggression chart" that documented as many as 300 episodes in one day that
> > involved hitting, kicking, biting, or pinching another person.
> >
> > With her son in crisis, Marie had no choice but to perform an intervention.
> > But the only solution offered by child psychiatrists came in a pill bottle.
> > "His school tried to force us to medicate him," says Marie, who feared the
> > risk of dangerous side effects associated with commonly prescribed
> > antipsychotic drugs like Risperdal. Many of the FDA-approved drugs on the
> > market used to treat symptoms of autism have no proven safety track record for
> > use in children.
> >
> > Despite the unknown risks, more kids are using prescription drugs than ever
> > before. The number of children on psychiatric meds has skyrocketed in recent
> > years, according to reports in medical journals such as Archives of Pediatrics
> > and Adolescent Medicine. Prescription drug use is growing faster among
> > children than the elderly and baby boomers. But when it comes to medicating
> > kids with marijuana, the issue becomes taboo.
> >
> > "There's no such thing as a harmless drug, but marijuana is much less harmful
> > than other drugs," said Lester Grinspoon, M.D., a professor emeritus of
> > psychiatry at Harvard Medical School. Dr. Grinspoon is a leading expert in the
> > field of medical marijuana, who has authored several books on the subject. "No
> > one in the world has died from marijuana," insists Grinspoon, who has spent
> > four decades researching the illicit drug.
> >
> > Undeterred by the social stigma, Marie pursued this more natural approach to
> > calm J's demons. After discussing her wishes with J's pediatrician, Marie
> > decided to check out Marinol, a synthetic form of THC, which is the primary
> > cannabinoid in marijuana. After fine-tuning J's dosage, she began hearing
> > praises like, "J was a pleasure to have in speech class," instead of
> > complaints about his violent episodes.
> >
> > After a few months, J built up a tolerance to the drug and his unruly behavior
> > returned. "The drawback of taking Marinol is that it's only THC. That's the
> > most powerful cannabinoid, but it may not be the most relevant," said Mitch
> > Earleywine, Ph.D., an associate professor of psychology at the State
> > University of New York at Albany. Earleywine says there are about 70 different
> > cannabinoids in the marijuana plant, many of which have medicinal value. Marie
> > decided to take a chance on the real deal.
> >
> > All it took was a signed prescription and a background check for J to become
> > the youngest person in Rhode Island to obtain a license for pot. After buying
> > some marijuana-infused olive oil, Marie made a batch of pot cookies. That
> > night, J ate half of one cookie and "he was tired and conked out," said Marie,
> > who checked hourly on his sleep, "half-expecting some red-eyed ogre from
> > Reefer Madness to come leaping out at us." To her relief, J slept soundly and
> > appeared happy and mellow the next day.
> >
> > Over the past four months, Marie has documented her son's progress in an
> > online blog entitled, Why I Give My 9-Year-Old Pot, Part II. While she doesn't
> > believe marijuana is a cure for autism, it "allows J to participate more fully
> > in life without the dangers and sometimes permanent side effects of
> > pharmaceutical drugs." Dr. Grinspoon has seen positive results with a number
> > of his autistic patients who are undergoing pot therapy. "I can confidently
> > say to a parent that marijuana relieves some types of pain. It's not going to
> > hurt them if you use it responsibly," Grinspoon says. Ingesting the drug works
> > better because the effects can last up to eight hours. "A little goes a long
> > way," says Earleywine, who reminds parents that the drug can take up to an
> > hour and a half to kick in, "so wait a little while before administering any
> > more."
> >
> > While a growing number of distressed parents are turning to the herbal remedy,
> > many moms with autistic kids are skeptical. "I feel it does more harm than
> > good," says Trish, the mother of a 7-year-old boy with autism. "You are
> > sedating the child, not treating the cause of the rage." Trish believes that
> > medicating kids with pot is a cop-out. "Nobody said parenting was going to be
> > easy, or that the solution to every problem is to get our children stoned."
> >
> > The mainstream medical community shuns the subject, and the government refuses
> > to fund any research that would legitimize marijuana use in treating autism or
> > aggression disorders. "Marijuana is a very loaded subject," says Cara
> > Natterson, M.D., a pediatrician and mother of two. "As a parent and as a
> > pediatrician, I feel a responsibility to know that what I am putting into a
> > child -- mine or someone else's -- is safe and tested."
> >
> > The American Academy of Pediatrics opposes the legalization of marijuana, but
> > does support further research into the potential medical benefits of cannabis.
> > "We need to make sure the treatment is safe -- we haven't done that,"
> > Natterson adds. The doctor can sympathize with parents who desperately want to
> > help their child. "But wanting to advocate for your child and making sure your
> > child is safe are two different things," Natterson said.
> >
> > Marie is confident that she has made the right choice when she sees J's
> > transformation. "He doesn't look stoned. He just looks like a happy little
> > boy."
> >
> > http://www.momlogic.com/2009/11/can_marijuana_help_kids_with_autism.php
> >
> >
> >
> >
> >
>


#10132 From: "Judy Harford" <jlharford@...>
Date: Wed Nov 11, 2009 2:09 am
Subject: Re:No results?
judy_harford
Offline Offline
Send Email Send Email
 
CFS/ME is one of the hardest diseases to treat with LDN, not because it doesn't work, but because there is so much involved in the CFS/ME that must be treated. LDN is not a stand alone treatment. You also need to treat the viral side of CFS. Have you joined the LDNforCFS yahoo group? There are a lot of people there that might have suggestions to help you.
 
Also, in the preliminary results of the Stanford trial for fibromyalgia, it was discovered that some people just take longer to show any results. Give it at least six months before you question whether it is working. It is actually pretty rare for people to notice immediate results. LDN is usually a gradual process where you notice that one thing is slightly better, and then a while later you notice one other thing isn't as bad as it was before. While I did notice a slight decrease in my fibro pain after about a month or so, it wasn't until I had been on LDN for 6-8 months before I noticed it had dropped to an average of 2-3. And I still have some pain on many days, it's just that now it is totally manageable.
 
Judy H
To better health through knowledge
Started taking LDN (Low Dose Naltrexone) on 1/21/2009 for Fibromyalgia, Hypothyroid, PCOS and Restless Legs Syndrome
http://health.groups.yahoo.com/group/LDNforFibro/
 

Posted by: "6dickersons@..." 6dickersons@...   6dickersons@...

Mon Nov 9, 2009 5:52 am (PST)



Hi There,

I've been on LDN for almost 2 months. I have celiac and have had chronic fatigue for a very long time. Sometimes the fatigue is quite debilitating.

My doctor started my on 1.5mg of LDN for 10 days, then 3.0mg for 10 days and finally I've been on 4.5mg for about 30 days.

I'm not sleeping better. I wake up very groggy still. I don't notice increased energy. But I really believe that LDN can still help me. I understand why it would work and I don't want to give up on it yet.

When I hear of how quickly others feel better using LDN, I get a little discouraged. Has anyone had my experience with it. What did you do?

Is there anything that I could be doing that keeps it from working? I try to follow the SCD to the best of my ability which is not 100% (right now we are traveling frequently and it gets challenging), though I am always gluten free.

I would greatly appreciate your opinions and suggestions. I'd like to stick with LDN if there is hope of feeling better.

Many THanks,
Betty

#10131 From: "Sandbay Resort" <sandbay@...>
Date: Wed Nov 11, 2009 1:25 am
Subject: Re: Re: [lowdosenaltrexone] An Update on Stan's Angels
mills5_98_99
Offline Offline
Send Email Send Email
 

Hi,
 This site has been very helpful when my husband came down with MS.  I want to thank you for it!  He is doing well on LDN and holding his own and taking only LDN.
  I would like to unsubscribe to this site, and have tried to do so many times, but can't seem to get it done.  I have sent many e-mails to do so, but continue to receive these e-mails.  Don't get me wrong guys, this has been very helpful.
  If you can help me, I would appreciate it.  God bless you all and take care.  You all are hero's and should be proud of yourselves.

Hollie
----- Original Message -----
Sent: Tuesday, November 10, 2009 5:02 PM
Subject: [LDN_Users] Re: [lowdosenaltrexone] An Update on Stan's Angels

 

I had a run in with this Stan whoever he says he is about a couple years ago and he was very arrogant back then as well and didn't want to know anything about LDN. I had him on my MySpace and when he started being that way I deleted him off. He wanted to know what he could do for me lol....I told him nothing....
 

 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 



From: JOYCE MARTINO <jam2006@verizon.net>
To: LDN_Users@yahoogroups.com; lowdosenaltrexone@yahoogroups.com; Sherri White <sherriwhitern@yahoo.com>
Sent: Mon, November 9, 2009 9:39:01 PM
Subject: Re: [lowdosenaltrexone] An Update on Stan's Angels

 



Very very interesting.  Why am I not surprised.  Thanks for this.  I will continue with my LDN and share with as many as I can reach.   joyce 
 



#10130 From: jaynelcrocker <jaynelcrocker@...>
Date: Wed Nov 11, 2009 1:16 am
Subject: RE: [lowdosenaltrexone] An Update on Stan's Angels
chelsea123dog
Offline Offline
Send Email Send Email
 

Absolutely right, sometimes saying nothing is the best thing of all.  People just delete him.  However, do let him know how surprised you are he hasn’t heard of LDN as it has been in existence of MS for 20+ years and that Michael Moore is investing the case re LDN.  Whilst he claims to have 100s of 1000s of followers, MM has loads more, and I tell you what, if MM comes knocking on your door, be afraid, be very afraid.  He is not easy to deal with. 

 

Hope Dr David Gluck is getting a lot of enquiries at the LDNinfo.org site!

 

Jayne

Jayne Crocker

Chairperson, LDNNow

tel: +44 (0) 7877 492 669

www.ldnnow.com <- click on petition link to support LDN as a front line treatment

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=CVpjsDK0LPA

 

 

 

 

 

 

From: lowdosenaltrexone@yahoogroups.com [mailto:lowdosenaltrexone@yahoogroups.com] On Behalf Of Crystals MS TM LDN Website
Sent: 11 November 2009 01:03
To: LDN_Users@yahoogroups.com; lowdosenaltrexone@yahoogroups.com
Subject: Re: [lowdosenaltrexone] An Update on Stan's Angels

 

 

I had a run in with this Stan whoever he says he is about a couple years ago and he was very arrogant back then as well and didn't want to know anything about LDN. I had him on my MySpace and when he started being that way I deleted him off. He wanted to know what he could do for me lol....I told him nothing....
 

 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 

 

 


From: JOYCE MARTINO <jam2006@...>
To: LDN_Users@yahoogroups.com; lowdosenaltrexone@yahoogroups.com; Sherri White <sherriwhitern@...>
Sent: Mon, November 9, 2009 9:39:01 PM
Subject: Re: [lowdosenaltrexone] An Update on Stan's Angels

 



Very very interesting.  Why am I not surprised.  Thanks for this.  I will continue with my LDN and share with as many as I can reach.   joyce 

 

 

 


#10129 From: Crystals MS TM LDN Website <angelindisguise67@...>
Date: Wed Nov 11, 2009 1:02 am
Subject: Re: [lowdosenaltrexone] An Update on Stan's Angels
angelindisgu...
Offline Offline
Send Email Send Email
 
I had a run in with this Stan whoever he says he is about a couple years ago and he was very arrogant back then as well and didn't want to know anything about LDN. I had him on my MySpace and when he started being that way I deleted him off. He wanted to know what he could do for me lol....I told him nothing....
 

 

May there be a miracle in YOUR life today and may you have the EYES to see it.

From My Heart to Yours
Love, Hugs & Blessings,
Crystal
LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 4 years on LDN with Skip's Pharmacy..... No Relapses....


Crystal's MS,TM & LDN Website
www.crystalsmstmldn.org

Mary Boyle Bradley’s LDN Online Radio Show

http://www.blogtalkradio.com/mary-boyle-bradley

LDN Website
www.ldninfo.org

Crystal's LDN Support Group
http://health.groups.yahoo.com/group/LDN_Users/

LowDose Naltrexone Database
http://ldn-database.carnebeach.com/

LDN Help - International Users' Resources
www.ldn-help.com

Up the Creek with a Paddle
www.marybradleybooks.com

Skip's CompoundingPharmacy
www.skipspharmacy.com


"We either make ourselves miserable, or we make ourselves strong. The amount of work is the same."

 



From: JOYCE MARTINO <jam2006@...>
To: LDN_Users@yahoogroups.com; lowdosenaltrexone@yahoogroups.com; Sherri White <sherriwhitern@...>
Sent: Mon, November 9, 2009 9:39:01 PM
Subject: Re: [lowdosenaltrexone] An Update on Stan's Angels

 



Very very interesting.  Why am I not surprised.  Thanks for this.  I will continue with my LDN and share with as many as I can reach.   joyce 
 



#10128 From: "dAVId" <dhallgar@...>
Date: Tue Nov 10, 2009 11:41 pm
Subject: Re: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
flexfifty
Offline Offline
Send Email Send Email
 
Oddly enough, I read in countries (Holland) where marijuana was made legal, or overlooked, the use of harder street drugs fell off by fifty percent.   However, it  seems we here in the USA have to invent the wheel, else it will not role correctly.
david a
----- Original Message -----
From: art_ldn
Sent: Tuesday, November 10, 2009 6:28 AM
Subject: [LDN_Users] Re: OFF TOPIC: Can Marijuana Help Kids with Autism?

 

Marijuana should be legalized.

--- In LDN_Users@yahoogroups.com, Lela Landman <lelaji@...> wrote:
>
> > Hi all,
> > I am a Cancer patient and also have Polymyositis -Have been on LDN for about 6
> > months and am doing extremely well on it. I am also a medical marijuana user
> > although I don¹t use it very much anymore. I just went to see a movie called
> > The Horse Boy about a family in Texas with an autistic child that sounds
> > similar to Marie Myung-Ok Lee¹s son- it was a very moving story and his father
> > has written a book of the same name, his father is Rupert Issacson and the
> > book and the DVD are available on Amazon.com. This family went to Mongolia to
> > Shamans that helped although not cured his son immensely. He and his wife now
> > run a horse ranch in Texas dedicated to helping and healing other autistic
> > children. Just thought I¹d post this if Ms. Lee or anyone else is interested.
> > Lela Landman
> >
> >
> >
> > This mom says giving her kid pot has made all the difference.
> >
> > As the mother of an autistic child, Marie Myung-Ok Lee is navigating uncharted
> > territory as she struggles to manage her son's condition. She has bravely come
> > forward to share her son's battle with this mysterious disorder, and to
> > discuss how medical marijuana has brought them both back from the brink of
> > despair.
> >
> > During what Marie calls the "dark phase," her son J had unpredictable mood
> > swings that could erupt into fitful rages. Her 9-year-old would scream during
> > lengthy tantrums, he refused to eat and threw his food on the floor. J broke
> > plates, windows, and other household items as a way of expressing his pain and
> > frustration. The family would hide out within the confines of their home until
> > the darkness passed.
> >
> > J's behavior disrupted his school performance and terrified the staff. "The
> > teachers were wearing tae kwon do arm pads to protect themselves against his
> > biting," Marie said. The school monitored J's daily outbursts on an
> > "aggression chart" that documented as many as 300 episodes in one day that
> > involved hitting, kicking, biting, or pinching another person.
> >
> > With her son in crisis, Marie had no choice but to perform an intervention.
> > But the only solution offered by child psychiatrists came in a pill bottle.
> > "His school tried to force us to medicate him," says Marie, who feared the
> > risk of dangerous side effects associated with commonly prescribed
> > antipsychotic drugs like Risperdal. Many of the FDA-approved drugs on the
> > market used to treat symptoms of autism have no proven safety track record for
> > use in children.
> >
> > Despite the unknown risks, more kids are using prescription drugs than ever
> > before. The number of children on psychiatric meds has skyrocketed in recent
> > years, according to reports in medical journals such as Archives of Pediatrics
> > and Adolescent Medicine. Prescription drug use is growing faster among
> > children than the elderly and baby boomers. But when it comes to medicating
> > kids with marijuana, the issue becomes taboo.
> >
> > "There's no such thing as a harmless drug, but marijuana is much less harmful
> > than other drugs," said Lester Grinspoon, M.D., a professor emeritus of
> > psychiatry at Harvard Medical School. Dr. Grinspoon is a leading expert in the
> > field of medical marijuana, who has authored several books on the subject. "No
> > one in the world has died from marijuana," insists Grinspoon, who has spent
> > four decades researching the illicit drug.
> >
> > Undeterred by the social stigma, Marie pursued this more natural approach to
> > calm J's demons. After discussing her wishes with J's pediatrician, Marie
> > decided to check out Marinol, a synthetic form of THC, which is the primary
> > cannabinoid in marijuana. After fine-tuning J's dosage, she began hearing
> > praises like, "J was a pleasure to have in speech class," instead of
> > complaints about his violent episodes.
> >
> > After a few months, J built up a tolerance to the drug and his unruly behavior
> > returned. "The drawback of taking Marinol is that it's only THC. That's the
> > most powerful cannabinoid, but it may not be the most relevant," said Mitch
> > Earleywine, Ph.D., an associate professor of psychology at the State
> > University of New York at Albany. Earleywine says there are about 70 different
> > cannabinoids in the marijuana plant, many of which have medicinal value. Marie
> > decided to take a chance on the real deal.
> >
> > All it took was a signed prescription and a background check for J to become
> > the youngest person in Rhode Island to obtain a license for pot. After buying
> > some marijuana-infused olive oil, Marie made a batch of pot cookies. That
> > night, J ate half of one cookie and "he was tired and conked out," said Marie,
> > who checked hourly on his sleep, "half-expecting some red-eyed ogre from
> > Reefer Madness to come leaping out at us." To her relief, J slept soundly and
> > appeared happy and mellow the next day.
> >
> > Over the past four months, Marie has documented her son's progress in an
> > online blog entitled, Why I Give My 9-Year-Old Pot, Part II. While she doesn't
> > believe marijuana is a cure for autism, it "allows J to participate more fully
> > in life without the dangers and sometimes permanent side effects of
> > pharmaceutical drugs." Dr. Grinspoon has seen positive results with a number
> > of his autistic patients who are undergoing pot therapy. "I can confidently
> > say to a parent that marijuana relieves some types of pain. It's not going to
> > hurt them if you use it responsibly," Grinspoon says. Ingesting the drug works
> > better because the effects can last up to eight hours. "A little goes a long
> > way," says Earleywine, who reminds parents that the drug can take up to an
> > hour and a half to kick in, "so wait a little while before administering any
> > more."
> >
> > While a growing number of distressed parents are turning to the herbal remedy,
> > many moms with autistic kids are skeptical. "I feel it does more harm than
> > good," says Trish, the mother of a 7-year-old boy with autism. "You are
> > sedating the child, not treating the cause of the rage." Trish believes that
> > medicating kids with pot is a cop-out. "Nobody said parenting was going to be
> > easy, or that the solution to every problem is to get our children stoned."
> >
> > The mainstream medical community shuns the subject, and the government refuses
> > to fund any research that would legitimize marijuana use in treating autism or
> > aggression disorders. "Marijuana is a very loaded subject," says Cara
> > Natterson, M.D., a pediatrician and mother of two. "As a parent and as a
> > pediatrician, I feel a responsibility to know that what I am putting into a
> > child -- mine or someone else's -- is safe and tested."
> >
> > The American Academy of Pediatrics opposes the legalization of marijuana, but
> > does support further research into the potential medical benefits of cannabis.
> > "We need to make sure the treatment is safe -- we haven't done that,"
> > Natterson adds. The doctor can sympathize with parents who desperately want to
> > help their child. "But wanting to advocate for your child and making sure your
> > child is safe are two different things," Natterson said.
> >
> > Marie is confident that she has made the right choice when she sees J's
> > transformation. "He doesn't look stoned. He just looks like a happy little
> > boy."
> >
> > http://www.momlogic.com/2009/11/can_marijuana_help_kids_with_autism.php
> >
> >
> >
> >
> >
>


#10127 From: "Dudley Delany" <DudleyDelany@...>
Date: Tue Nov 10, 2009 10:56 pm
Subject: Re: LDN and empty stomach.
dudley_delany
Offline Offline
Send Email Send Email
 
Hi Roger,

If you know that LDN should be taken on an empty stomach, surely you know also
that it should be taken at bedtime.

This site discusses LDN dosing:

http://tinyurl.com/ldn-side-effects

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

#10126 From: Roger Barker <rbarker@...>
Date: Tue Nov 10, 2009 10:47 pm
Subject: LDN and empty stomach.
rehi383
Offline Offline
Send Email Send Email
 
Can anyone tell me how long one should wait after taking LDN (on an
empty stomach) before eating anything - don't want to miss supper :-)

Cheers,  Roger B
NZ

#10125 From: soheila A <soadl80@...>
Date: Tue Nov 10, 2009 10:14 pm
Subject: Re: Re: No results?
soadl80
Offline Offline
Send Email Send Email
 
you should give LDN much more time to see improvements. It takes some time, even months. you should know LDN is not like a painkiller to see the result within a short time. if you don't see any improvements after one year, then stop it but not before that. 

--- On Tue, 11/10/09, skg1011 <skg1011@...> wrote:

From: skg1011 <skg1011@...>
Subject: [LDN_Users] Re: No results?
To: LDN_Users@yahoogroups.com
Date: Tuesday, November 10, 2009, 12:30 PM

 
Hi Betty. I have been on LDN for one week at 3 mg. I haven't seen any changes in my MS. I have had MS for 16 years and I'm wondering if I just have too much damage.

I will stay on LDN because I have no insurance and this is the only thing I can afford. Good luck to both of us.

--- In LDN_Users@yahoogrou ps.com, "dAVId" <dhallgar@.. .> wrote:
>
> Betty, I would not allow myself to be discouraged, as they say, it took quite a while to get down where you are, so it may take some time for LDN to correct your immune system, then the immune system to correct your body.
> I am very sensitive to medication, and I felt a kick in the pants within a couple weeks of LDN, and got another kick in the pants when I began
> ALA, as I must have had problems converting glucose to energy. Oral ALA broke me into a sweat for a couple days, the sweats broke, and I have more energy.
> kind regards david a
>



#10124 From: "skg1011" <skg1011@...>
Date: Tue Nov 10, 2009 8:30 pm
Subject: Re: No results?
skg1011
Offline Offline
Send Email Send Email
 
Hi Betty.  I have been on LDN for one week at 3 mg.  I haven't seen any changes
in my MS.  I have had MS for 16 years and I'm wondering if I just have too much
damage.

I will stay on LDN because I have no insurance and this is the only thing I can
afford.  Good luck to both of us.

--- In LDN_Users@yahoogroups.com, "dAVId" <dhallgar@...> wrote:
>
> Betty, I would not allow myself to be discouraged, as they say, it took quite
a while to get down where you are, so it may take some time for LDN to correct
your immune system, then the immune system to correct your body.
> I am very sensitive to medication, and I felt a kick in the pants within a
couple weeks of LDN, and got another kick in the pants when I began
> ALA, as I must have had problems converting glucose to energy.  Oral ALA broke
me into a sweat for a couple days, the sweats broke, and I have more energy.
> kind regards david a
>

#10123 From: JIM DIANE KOHLER <jimdianek@...>
Date: Tue Nov 10, 2009 8:21 pm
Subject: Insurance price for ldn from insurance company
jimdianek
Offline Offline
Send Email Send Email
 
Hi
thanks for letting me know about the insurance company paying for LDN prescription.
Hope you do not mind me asking you what insurance company that you have for LDN prescription.
I understand how confusing the donut hold is for people to understand and deal with...I have kaiser ins. so i have to paid down about 5,000 dollars before i can get copaxone prescription.  I is hard to pay this amount out so I use my credit card and, and pay it down. So far my husband works so i have been able to get the copaxone.  waiting to see what the senators vote on the new health bill.

diane 

           



#10122 From: "art_ldn" <rtee54@...>
Date: Tue Nov 10, 2009 5:57 pm
Subject: The Fraud of Medical Marijuana
art_ldn
Offline Offline
Send Email Send Email
 
Pot smokers usually agree that smoking pot is more fun than
drinking alcohol. Pot smokers seem like a harmless lot. There are
no pot smokers whom you can see laying in the gutter covered with
their own excrement, urine and vomit. They generally do not dig
through garbage cans for something to eat or beg for money to
feed their pot habit. Neither are these people found in the
emergency wards after passing out and falling under a tram or an
automobile or having their heads wrapped in bandages after
blacking out and falling flat onto their faces. You do not
usually find these pot smokers belligerently picking fights and
suffering the cuts and contusions that result thereby. Neither do
they suffer from liver and kidney malfunction, high cancer rates,
arthritis and heart disease. They do not have a high incidence of
auto accidents where they drive over innocent pedestrians. Also,
arson, destruction of property, vandalism, assault and battery,
murder, theft, etc., are not noticeably high among this group.
However, you DO find such things and many other evils besides
among those people who drink alcohol to excess...

(continued)

http://tinyurl.com/cly5u8

#10121 From: Nancy <sday13@...>
Date: Tue Nov 10, 2009 5:18 pm
Subject: Insurance & LDN
noble_day
Offline Offline
Send Email Send Email
 
I've been going through the process of trying to decide about Medicare
and donut holes and parts A & B & D and supplimental & blah blah. It's
so difficult with a muddled brain, but I think it would be anyway.

I called one company yesterday to see about coverage for LDN and
Copaxone, in particular. "yes", she said, "in 2010, it (LDN) has been
added to coverage". That was after I explained what L-D-N stands for.

I was surprised and asked for the web page she was on. I could tell
she didn't know diddly about what I was asking and was filling boxes &
reading results to me. She didn't "know", when I asked. About 4.5 vs
50 mg. As I thought, Naltrexone listed under drug abuse at 50mg is
covered.

DH said "doesn't matter, we'll find a way" for the LDN. It's different
for the copaxone, which is on the list - as a code 5 ($500+ co-pay,
$310 deductible).

Now to get my brain & energy to look into types of costs for switching
to a different CRAB, their side effects & results. Seems they cover
more on the other 3, when I drive to an attended medical facility and
have a nurse or 3 keep watch over me and do the injecting
(infusions?). Ticks me off! This one is working for my PRMS, I just
don't have the money to pay 3 or 4 hundred a MONTH out of pocket for a
Specialty drug that "they" refuse to allow to have a generic version.
On my limited income, anything out of pocket is also out of house
payment.

Sent from my iPod,
Nancy

#10120 From: "John Donnelly" <john@...>
Date: Tue Nov 10, 2009 5:17 pm
Subject: LDN Radio Show Reminder
johncarneint
Offline Offline
Send Email Send Email
 
From Mary

 
 

Getting ready to broadcast at 1PM Eastern ... I will be interviewing Lori Miles who will share her MS and LDN story .. If you know anyone with MS give them this link ..
http://www.blogtalkradio.com/mary-boyle-bradley

The call in number is 1646 200 40 47


#10119 From: Garnet <garnet@...>
Date: Tue Nov 10, 2009 3:50 pm
Subject: The Horse Boy
garnetridge
Offline Offline
Send Email Send Email
 
I stumbled on a story of a local family, autism and horses,
this morning that I thought I would share.

This is a wonderful story of the Isaccson family and their
autistic son, Rowan, who led them to his need to be in
nature through contact with horses. He crawled under a fence
one day, much to his father's horror and threw
himself on the ground in front of a mare named Betsy, who
immediately responded with caring attention.

There is a documentary film and a book. The movie and book
are called The Horse Boy. These You Tube videos are
heartwarming and amazing.

http://preview.tinyurl.com/yge66va

http://www.youtube.com/watch?v=p2_dVq-bOrM&feature=PlayList&p=DB131556B1E34BAD&i\
ndex=1&playnext=2&playnext_from=PL


The family has formed a fee-free donation based Equine
Therapy foundation for Autistic Children.

http://horseboyfoundation.org/


Garnet


------------------
http://groups.yahoo.com/group/Very_Low_Dose_Naltrexone
http://groups.yahoo.com/group/LDN_Information

Dr Chris Steele, ITV's This Morning supporting LDN
http://www.youtube.com/watch?v=CVpjsDK0LPA

#10118 From: Bill Roberts <bmr323@...>
Date: Tue Nov 10, 2009 1:25 pm
Subject: FW: EverydayHealth.com: The Science Behind Medical Marijuana
morrrelll
Offline Offline
Send Email Send Email
 

Subject: EverydayHealth.com: The Science Behind Medical Marijuana
Date: Tue, 10 Nov 2009 08:23:19 -0500

The Science Behind Medical Marijuana
The Science Behind Medical Marijuana transcript, page 1 - A heated debate has raged among researchers, government agencies and the public about medical marijuana use.


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#10117 From: william russell morley <williamrussellmorley@...>
Date: Tue Nov 10, 2009 12:55 pm
Subject: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
morleywillia...
Offline Offline
Send Email Send Email
 
this was not only a brave and loving thing to do - it showed an intuitiveness which was exactly right - here's the link to your own governments patent office which awarded none other than the u.s. governments own dept of health and human services a patent for a particular cannabis derived or discovered molecule - here's your government knowingly covering up and putting people in jail and "treatment" programs to keep them FROM a known by them and patented by them resolution to many a medical disorder!!!!!!!!!

 http://patft.uspto.gov/netacgi/nph-Parser?Sect1=PTO1&Sect2=HITOFF&d=PALL&p=1&u=%2Fnetahtml%2FPTO%2Fsrchnum.htm&r=1&f=G&l=50&s1=6630507.PN.&OS=PN/6630507&RS=PN/6630507

On Sun, Nov 8, 2009 at 2:27 PM, art_ldn <rtee54@...> wrote:
 

This mom says giving her kid pot has made all the difference.

As the mother of an autistic child, Marie Myung-Ok Lee is navigating uncharted territory as she struggles to manage her son's condition. She has bravely come forward to share her son's battle with this mysterious disorder, and to discuss how medical marijuana has brought them both back from the brink of despair.

During what Marie calls the "dark phase," her son J had unpredictable mood swings that could erupt into fitful rages. Her 9-year-old would scream during lengthy tantrums, he refused to eat and threw his food on the floor. J broke plates, windows, and other household items as a way of expressing his pain and frustration. The family would hide out within the confines of their home until the darkness passed.

J's behavior disrupted his school performance and terrified the staff. "The teachers were wearing tae kwon do arm pads to protect themselves against his biting," Marie said. The school monitored J's daily outbursts on an "aggression chart" that documented as many as 300 episodes in one day that involved hitting, kicking, biting, or pinching another person.

With her son in crisis, Marie had no choice but to perform an intervention. But the only solution offered by child psychiatrists came in a pill bottle. "His school tried to force us to medicate him," says Marie, who feared the risk of dangerous side effects associated with commonly prescribed antipsychotic drugs like Risperdal. Many of the FDA-approved drugs on the market used to treat symptoms of autism have no proven safety track record for use in children.

Despite the unknown risks, more kids are using prescription drugs than ever before. The number of children on psychiatric meds has skyrocketed in recent years, according to reports in medical journals such as Archives of Pediatrics and Adolescent Medicine. Prescription drug use is growing faster among children than the elderly and baby boomers. But when it comes to medicating kids with marijuana, the issue becomes taboo.

"There's no such thing as a harmless drug, but marijuana is much less harmful than other drugs," said Lester Grinspoon, M.D., a professor emeritus of psychiatry at Harvard Medical School. Dr. Grinspoon is a leading expert in the field of medical marijuana, who has authored several books on the subject. "No one in the world has died from marijuana," insists Grinspoon, who has spent four decades researching the illicit drug.

Undeterred by the social stigma, Marie pursued this more natural approach to calm J's demons. After discussing her wishes with J's pediatrician, Marie decided to check out Marinol, a synthetic form of THC, which is the primary cannabinoid in marijuana. After fine-tuning J's dosage, she began hearing praises like, "J was a pleasure to have in speech class," instead of complaints about his violent episodes.

After a few months, J built up a tolerance to the drug and his unruly behavior returned. "The drawback of taking Marinol is that it's only THC. That's the most powerful cannabinoid, but it may not be the most relevant," said Mitch Earleywine, Ph.D., an associate professor of psychology at the State University of New York at Albany. Earleywine says there are about 70 different cannabinoids in the marijuana plant, many of which have medicinal value. Marie decided to take a chance on the real deal.

All it took was a signed prescription and a background check for J to become the youngest person in Rhode Island to obtain a license for pot. After buying some marijuana-infused olive oil, Marie made a batch of pot cookies. That night, J ate half of one cookie and "he was tired and conked out," said Marie, who checked hourly on his sleep, "half-expecting some red-eyed ogre from Reefer Madness to come leaping out at us." To her relief, J slept soundly and appeared happy and mellow the next day.

Over the past four months, Marie has documented her son's progress in an online blog entitled, Why I Give My 9-Year-Old Pot, Part II. While she doesn't believe marijuana is a cure for autism, it "allows J to participate more fully in life without the dangers and sometimes permanent side effects of pharmaceutical drugs." Dr. Grinspoon has seen positive results with a number of his autistic patients who are undergoing pot therapy. "I can confidently say to a parent that marijuana relieves some types of pain. It's not going to hurt them if you use it responsibly," Grinspoon says. Ingesting the drug works better because the effects can last up to eight hours. "A little goes a long way," says Earleywine, who reminds parents that the drug can take up to an hour and a half to kick in, "so wait a little while before administering any more."

While a growing number of distressed parents are turning to the herbal remedy, many moms with autistic kids are skeptical. "I feel it does more harm than good," says Trish, the mother of a 7-year-old boy with autism. "You are sedating the child, not treating the cause of the rage." Trish believes that medicating kids with pot is a cop-out. "Nobody said parenting was going to be easy, or that the solution to every problem is to get our children stoned."

The mainstream medical community shuns the subject, and the government refuses to fund any research that would legitimize marijuana use in treating autism or aggression disorders. "Marijuana is a very loaded subject," says Cara Natterson, M.D., a pediatrician and mother of two. "As a parent and as a pediatrician, I feel a responsibility to know that what I am putting into a child -- mine or someone else's -- is safe and tested."

The American Academy of Pediatrics opposes the legalization of marijuana, but does support further research into the potential medical benefits of cannabis. "We need to make sure the treatment is safe -- we haven't done that," Natterson adds. The doctor can sympathize with parents who desperately want to help their child. "But wanting to advocate for your child and making sure your child is safe are two different things," Natterson said.

Marie is confident that she has made the right choice when she sees J's transformation. "He doesn't look stoned. He just looks like a happy little boy."

http://www.momlogic.com/2009/11/can_marijuana_help_kids_with_autism.php



#10116 From: "art_ldn" <rtee54@...>
Date: Tue Nov 10, 2009 12:28 pm
Subject: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
art_ldn
Offline Offline
Send Email Send Email
 
Marijuana should be legalized.


--- In LDN_Users@yahoogroups.com, Lela Landman <lelaji@...> wrote:
>
> >  Hi all,
> > I am a Cancer patient and also have Polymyositis -Have been on LDN for about
6
> > months and am doing extremely well on it. I am also a medical marijuana user
> > although I don¹t use it very much anymore.  I just went to see a movie
called
> > The Horse Boy  about a family in Texas with an autistic child that sounds
> > similar to Marie Myung-Ok Lee¹s son- it was a very moving story and his
father
> > has written a book of the same name, his father is Rupert Issacson and the
> > book and the DVD are available on Amazon.com. This family went to Mongolia
to
> > Shamans that helped although not cured his son immensely. He and his wife
now
> > run a horse ranch in Texas dedicated to helping and healing other autistic
> > children. Just thought I¹d post this if Ms. Lee or anyone else is
interested.
> > Lela Landman
> >
> >
> >
> > This mom says giving her kid pot has made all the difference.
> >
> > As the mother of an autistic child, Marie Myung-Ok Lee is navigating
uncharted
> > territory as she struggles to manage her son's condition. She has bravely
come
> > forward to share her son's battle with this mysterious disorder, and to
> > discuss how medical marijuana has brought them both back from the brink of
> > despair.
> >
> > During what Marie calls the "dark phase," her son J had unpredictable mood
> > swings that could erupt into fitful rages. Her 9-year-old would scream
during
> > lengthy tantrums, he refused to eat and threw his food on the floor. J broke
> > plates, windows, and other household items as a way of expressing his pain
and
> > frustration. The family would hide out within the confines of their home
until
> > the darkness passed.
> >
> > J's behavior disrupted his school performance and terrified the staff. "The
> > teachers were wearing tae kwon do arm pads to protect themselves against his
> > biting," Marie said. The school monitored J's daily outbursts on an
> > "aggression chart" that documented as many as 300 episodes in one day that
> > involved hitting, kicking, biting, or pinching another person.
> >
> > With her son in crisis, Marie had no choice but to perform an intervention.
> > But the only solution offered by child psychiatrists came in a pill bottle.
> > "His school tried to force us to medicate him," says Marie, who feared the
> > risk of dangerous side effects associated with commonly prescribed
> > antipsychotic drugs like Risperdal. Many of the FDA-approved drugs on the
> > market used to treat symptoms of autism have no proven safety track record
for
> > use in children.
> >
> > Despite the unknown risks, more kids are using prescription drugs than ever
> > before. The number of children on psychiatric meds has skyrocketed in recent
> > years, according to reports in medical journals such as Archives of
Pediatrics
> > and Adolescent Medicine. Prescription drug use is growing faster among
> > children than the elderly and baby boomers. But when it comes to medicating
> > kids with marijuana, the issue becomes taboo.
> >
> > "There's no such thing as a harmless drug, but marijuana is much less
harmful
> > than other drugs," said Lester Grinspoon, M.D., a professor emeritus of
> > psychiatry at Harvard Medical School. Dr. Grinspoon is a leading expert in
the
> > field of medical marijuana, who has authored several books on the subject.
"No
> > one in the world has died from marijuana," insists Grinspoon, who has spent
> > four decades researching the illicit drug.
> >
> > Undeterred by the social stigma, Marie pursued this more natural approach to
> > calm J's demons. After discussing her wishes with J's pediatrician, Marie
> > decided to check out Marinol, a synthetic form of THC, which is the primary
> > cannabinoid in marijuana. After fine-tuning J's dosage, she began hearing
> > praises like, "J was a pleasure to have in speech class," instead of
> > complaints about his violent episodes.
> >
> > After a few months, J built up a tolerance to the drug and his unruly
behavior
> > returned. "The drawback of taking Marinol is that it's only THC. That's the
> > most powerful cannabinoid, but it may not be the most relevant," said Mitch
> > Earleywine, Ph.D., an associate professor of psychology at the State
> > University of New York at Albany. Earleywine says there are about 70
different
> > cannabinoids in the marijuana plant, many of which have medicinal value.
Marie
> > decided to take a chance on the real deal.
> >
> > All it took was a signed prescription and a background check for J to become
> > the youngest person in Rhode Island to obtain a license for pot. After
buying
> > some marijuana-infused olive oil, Marie made a batch of pot cookies. That
> > night, J ate half of one cookie and "he was tired and conked out," said
Marie,
> > who checked hourly on his sleep, "half-expecting some red-eyed ogre from
> > Reefer Madness to come leaping out at us." To her relief, J slept soundly
and
> > appeared happy and mellow the next day.
> >
> > Over the past four months, Marie has documented her son's progress in an
> > online blog entitled, Why I Give My 9-Year-Old Pot, Part II. While she
doesn't
> > believe marijuana is a cure for autism, it "allows J to participate more
fully
> > in life without the dangers and sometimes permanent side effects of
> > pharmaceutical drugs." Dr. Grinspoon has seen positive results with a number
> > of his autistic patients who are undergoing pot therapy. "I can confidently
> > say to a parent that marijuana relieves some types of pain. It's not going
to
> > hurt them if you use it responsibly," Grinspoon says. Ingesting the drug
works
> > better because the effects can last up to eight hours. "A little goes a long
> > way," says Earleywine, who reminds parents that the drug can take up to an
> > hour and a half to kick in, "so wait a little while before administering any
> > more."
> >
> > While a growing number of distressed parents are turning to the herbal
remedy,
> > many moms with autistic kids are skeptical. "I feel it does more harm than
> > good," says Trish, the mother of a 7-year-old boy with autism. "You are
> > sedating the child, not treating the cause of the rage." Trish believes that
> > medicating kids with pot is a cop-out. "Nobody said parenting was going to
be
> > easy, or that the solution to every problem is to get our children stoned."
> >
> > The mainstream medical community shuns the subject, and the government
refuses
> > to fund any research that would legitimize marijuana use in treating autism
or
> > aggression disorders. "Marijuana is a very loaded subject," says Cara
> > Natterson, M.D., a pediatrician and mother of two. "As a parent and as a
> > pediatrician, I feel a responsibility to know that what I am putting into a
> > child -- mine or someone else's -- is safe and tested."
> >
> > The American Academy of Pediatrics opposes the legalization of marijuana,
but
> > does support further research into the potential medical benefits of
cannabis.
> > "We need to make sure the treatment is safe -- we haven't done that,"
> > Natterson adds. The doctor can sympathize with parents who desperately want
to
> > help their child. "But wanting to advocate for your child and making sure
your
> > child is safe are two different things," Natterson said.
> >
> > Marie is confident that she has made the right choice when she sees J's
> > transformation. "He doesn't look stoned. He just looks like a happy little
> > boy."
> >
> > http://www.momlogic.com/2009/11/can_marijuana_help_kids_with_autism.php
> >
> >
> >
> >
> >
>

#10115 From: "Dudley Delany" <DudleyDelany@...>
Date: Tue Nov 10, 2009 11:00 am
Subject: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
dudley_delany
Offline Offline
Send Email Send Email
 
Hi Lela,

Are you aware that Dr. Jaquelyn McCandless has successfully used LDN to treat autism and written a book about her experience called "Children With Starving Brain"?

Your post reads like an ad for pot!

All the best,

Dudley Delany
http://profiles.yahoo.com/dudley_delany

#10114 From: Lela Landman <lelaji@...>
Date: Tue Nov 10, 2009 1:22 am
Subject: Re: OFF TOPIC: Can Marijuana Help Kids with Autism?
lelaji3
Offline Offline
Send Email Send Email
 
Hi all,
I am a Cancer patient and also have Polymyositis -Have been on LDN for about 6 months and am doing extremely well on it. I am also a medical marijuana user although I don’t use it very much anymore.  I just went to see a movie called The Horse Boy  about a family in Texas with an autistic child that sounds similar to Marie Myung-Ok Lee’s son- it was a very moving story and his father has written a book of the same name, his father is Rupert Issacson and the book and the DVD are available on Amazon.com. This family went to Mongolia to Shamans that helped although not cured his son immensely. He and his wife now run a horse ranch in Texas dedicated to helping and healing other autistic children. Just thought I’d post this if Ms. Lee or anyone else is interested.
Lela Landman
 
   

This mom says giving her kid pot has made all the difference.

As the mother of an autistic child, Marie Myung-Ok Lee is navigating uncharted territory as she struggles to manage her son's condition. She has bravely come forward to share her son's battle with this mysterious disorder, and to discuss how medical marijuana has brought them both back from the brink of despair.

During what Marie calls the "dark phase," her son J had unpredictable mood swings that could erupt into fitful rages. Her 9-year-old would scream during lengthy tantrums, he refused to eat and threw his food on the floor. J broke plates, windows, and other household items as a way of expressing his pain and frustration. The family would hide out within the confines of their home until the darkness passed.

J's behavior disrupted his school performance and terrified the staff. "The teachers were wearing tae kwon do arm pads to protect themselves against his biting," Marie said. The school monitored J's daily outbursts on an "aggression chart" that documented as many as 300 episodes in one day that involved hitting, kicking, biting, or pinching another person.

With her son in crisis, Marie had no choice but to perform an intervention. But the only solution offered by child psychiatrists came in a pill bottle. "His school tried to force us to medicate him," says Marie, who feared the risk of dangerous side effects associated with commonly prescribed antipsychotic drugs like Risperdal. Many of the FDA-approved drugs on the market used to treat symptoms of autism have no proven safety track record for use in children.

Despite the unknown risks, more kids are using prescription drugs than ever before. The number of children on psychiatric meds has skyrocketed in recent years, according to reports in medical journals such as Archives of Pediatrics and Adolescent Medicine. Prescription drug use is growing faster among children than the elderly and baby boomers. But when it comes to medicating kids with marijuana, the issue becomes taboo.

"There's no such thing as a harmless drug, but marijuana is much less harmful than other drugs," said Lester Grinspoon, M.D., a professor emeritus of psychiatry at Harvard Medical School. Dr. Grinspoon is a leading expert in the field of medical marijuana, who has authored several books on the subject. "No one in the world has died from marijuana," insists Grinspoon, who has spent four decades researching the illicit drug.

Undeterred by the social stigma, Marie pursued this more natural approach to calm J's demons. After discussing her wishes with J's pediatrician, Marie decided to check out Marinol, a synthetic form of THC, which is the primary cannabinoid in marijuana. After fine-tuning J's dosage, she began hearing praises like, "J was a pleasure to have in speech class," instead of complaints about his violent episodes.

After a few months, J built up a tolerance to the drug and his unruly behavior returned. "The drawback of taking Marinol is that it's only THC. That's the most powerful cannabinoid, but it may not be the most relevant," said Mitch Earleywine, Ph.D., an associate professor of psychology at the State University of New York at Albany. Earleywine says there are about 70 different cannabinoids in the marijuana plant, many of which have medicinal value. Marie decided to take a chance on the real deal.

All it took was a signed prescription and a background check for J to become the youngest person in Rhode Island to obtain a license for pot. After buying some marijuana-infused olive oil, Marie made a batch of pot cookies. That night, J ate half of one cookie and "he was tired and conked out," said Marie, who checked hourly on his sleep, "half-expecting some red-eyed ogre from Reefer Madness to come leaping out at us." To her relief, J slept soundly and appeared happy and mellow the next day.

Over the past four months, Marie has documented her son's progress in an online blog entitled, Why I Give My 9-Year-Old Pot, Part II. While she doesn't believe marijuana is a cure for autism, it "allows J to participate more fully in life without the dangers and sometimes permanent side effects of pharmaceutical drugs." Dr. Grinspoon has seen positive results with a number of his autistic patients who are undergoing pot therapy. "I can confidently say to a parent that marijuana relieves some types of pain. It's not going to hurt them if you use it responsibly," Grinspoon says. Ingesting the drug works better because the effects can last up to eight hours. "A little goes a long way," says Earleywine, who reminds parents that the drug can take up to an hour and a half to kick in, "so wait a little while before administering any more."

While a growing number of distressed parents are turning to the herbal remedy, many moms with autistic kids are skeptical. "I feel it does more harm than good," says Trish, the mother of a 7-year-old boy with autism. "You are sedating the child, not treating the cause of the rage." Trish believes that medicating kids with pot is a cop-out. "Nobody said parenting was going to be easy, or that the solution to every problem is to get our children stoned."

The mainstream medical community shuns the subject, and the government refuses to fund any research that would legitimize marijuana use in treating autism or aggression disorders. "Marijuana is a very loaded subject," says Cara Natterson, M.D., a pediatrician and mother of two. "As a parent and as a pediatrician, I feel a responsibility to know that what I am putting into a child -- mine or someone else's -- is safe and tested."

The American Academy of Pediatrics opposes the legalization of marijuana, but does support further research into the potential medical benefits of cannabis. "We need to make sure the treatment is safe -- we haven't done that," Natterson adds. The doctor can sympathize with parents who desperately want to help their child. "But wanting to advocate for your child and making sure your child is safe are two different things," Natterson said.

Marie is confident that she has made the right choice when she sees J's transformation. "He doesn't look stoned. He just looks like a happy little boy."

http://www.momlogic.com/2009/11/can_marijuana_help_kids_with_autism.php

 
   




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