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Reply | Forward Message #8062 of 10653 |
RE: [LDN_Users] Intro

Hello Valerie,
I also have Hashimoto's and have had for over 20 years. It was treated with
Synthroid for years. In 1995 I became very sick with what was later
diagnosed as chronic fatigue syndrome. Strangely my thyroid began to measure
healthy. The truth was I was no longer converting T4 to T3, so the Synthroid
was building up in my system but was of no use.

I also learned around 1998 that I have very low growth hormone. I was
fortunate to be treated by an avant guard endocrinologist who knew how to
document low growth hormone using a stress test for IGF1 levels. This
allowed me to take injected growth hormone covered by insurance. I would
strongly encourage you to call every endocrinologist in your area and ask
the receptionist if he/she treats ADULTS with growth hormone and if they
accept your insurance. You should be able to get treatment if you have
decent insurance. (I know, that is a rare bird these days.)

BTW low growth hormone levels are very common in chronic fatigue syndrome
and Lyme patients. (These two groups are undistiquishable - no surprise as
cfs is probably a few chronic, virtually untreatable infections.) If LDN
helps you it may be because it helps sleep and improved the immune system. I
don't know. I just take it because it helps.

I also think that MS and ALS and Hashimoto's and RA etc are all caused by
undiagnosed chronic infections such as mycoplasmas and c. pneumonia etc.

Paula



Hi I am Valerie. Possibly some know me from the thyroid and adrenal
gropups I am on and moderate. At any rate I have heard just enough about
this treatment to peak my curiousity and nto enough to really know
anything about it. I suffer from several autoimmune doseases such as
Hashimoto's and possibly autoi8mmine DIabetes (Latent Onset Type 1
Diabetic) as well as undetectable IGF-1 whihc my doc thinks is either
autoimmune or genetic, we can not find useful information about the
cause of this it is so rare. but I may be interested in a trial of LDN
to see if it might be helpful for this condition as we are at a
standstill with treatingit. Replacement homrones are WAY outside my
price range at $700 a vial and I may need two vials a month, so I have
bene using experimental IGF-1 LR3 products but only minimal success and
still undetectable in labs. So any information would be veyr helpful.

--
Valerie Taylor Artistic Grooming- Hurricane WV




Mon Jun 1, 2009 11:58 pm

pjeanneus
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http://www.lowdosenaltrexone.org <http://www.lowdosenaltrexone.org> - LDN Website http:// <http://www.crystalangel.org> www.crystalangel.org - My Website has...
Crystal
crystalangel...
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Apr 17, 2007
2:23 am

Do you have anyone in Wisconsin that prescribes LDN? Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ ...
Akiba
akyba
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Apr 17, 2007
3:29 am

... I live in Northwest Missouri? Anyone close to me? I'm close to Iowa, Nebraska, and Kansas, so sometimes someone in one of those states will be closer to...
Martha
marmac7
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Apr 19, 2007
4:27 pm

... Since I foggily managed to send the above message to the group, rather than to Crystal personally I might as well say hello to everyone. Hi. I joined this...
Martha
marmac7
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Apr 19, 2007
6:48 pm

Martha How much and what kind of Magnesium and fish oil do you take daily for how long. Magnesium is especially important to those with FMS. Hope this helps,...
foxhillers@...
mjhampstead
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Apr 19, 2007
9:07 pm

... Thanks for your input. I've been taking magnesium for a decade or so. I've experimented with different types, but right now take magnesium glycinate. 500...
Martha
marmac7
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Apr 19, 2007
11:00 pm

Hi Martha, My name is Carla and my husband was diagnosed with transverse myelitis in 2005. You might want to get a specialist to check you for transverse...
carla watson
carlawatson62
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Apr 19, 2007
10:59 pm

For any new members joining I have my own website about MS,TM, LDN and Lots More at www.crystalangel.org Also here is the LDN website at...
Crystal
crystalangel...
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Apr 19, 2007
11:11 pm

Whatever the label, the pain and functional decline, etc are the same. May I suggest you try Mg Chloride (liquid) or MoM or NaturalCalm PLUS malic acid? The...
foxhillers@...
mjhampstead
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Apr 19, 2007
11:32 pm

Crystal Nice site. TOo bad for those of us on dialup modems to not enjoy your video..... takes way too long to load. mh ...
foxhillers@...
mjhampstead
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Apr 19, 2007
11:32 pm

Hi I am Valerie. Possibly some know me from the thyroid and adrenal gropups I am on and moderate. At any rate I have heard just enough about this treatment to...
Valerie Taylor
valharly
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Jun 1, 2009
7:04 pm

Hi Val, I've been trialing LDN for a month and a half to see what it will do for my Hashi's and CFS. Haven't gotten new labs yet to check the antibodies,...
ejojunk
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Jun 1, 2009
10:49 pm

Thanks Ericka, I ordered some tonight and as soon as I have ti I will be giving it a trial. my IGF-1 issue is so weird.. I cannot find much of anything abtou...
Valerie Taylor
valharly
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Jun 1, 2009
11:07 pm

Valerie, how did they measure your IGF-1? There is no measure of growth hormone, just IGF-1. It has to be measured after stress such as exercise. If it doesn't...
Paula Carnes
pjeanneus
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Jun 2, 2009
12:15 am

I have had arginine stimulation testing for Growth Homrone that shows it fine. IGF-1 is steady in the blood so can be tested without exercise and is a way...
Valerie Taylor
valharly
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Jun 2, 2009
1:05 am

Hello Valerie, I also have Hashimoto's and have had for over 20 years. It was treated with Synthroid for years. In 1995 I became very sick with what was later ...
Paula Carnes
pjeanneus
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Jun 2, 2009
12:04 am

Wel first I ave NO insurance and am selfemployed so I am nto eligible for aid from anyone. I have NORMAL Growht Hormone, but undetectable IGF-1. This si not...
Valerie Taylor
valharly
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Jun 2, 2009
1:04 am

Wow, Valerie, you are an unusual case. I am so sorry you have been so sick and with some symptoms that are not clear. In my small town in South Carolina...
Paula Carnes
pjeanneus
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Jun 2, 2009
2:35 am

I have had all the testing for tick born diseases. Once I healed my adrneals thise all come up negative an dI suspect weakened arenal function is what stops...
Valerie Taylor
valharly
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Jun 2, 2009
12:20 pm

Valerie, I hope no one minds but I would be most interested in more details. I have been sick since 1995 at some level - sometimes better, sometimes worse. ...
Paula Carnes
pjeanneus
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Jun 2, 2009
9:33 pm

I used saliva cortisol testing which you can order your self rfom www.canaryclub.org it will tell you if your adrenls (the heart of your immune system) are...
Valerie Taylor
valharly
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Jun 2, 2009
10:17 pm

Valerie, do you collect saliva at different times of the day for one day or several days? Also, how were you tested for tick borne infections? You wrote that...
Paula Carnes
pjeanneus
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Jun 2, 2009
11:47 pm

I had several differnt kinds of blood testing done. I have nto had it doine in several years now as those symoptoms that i HAD seem to be gione and I no longer...
Valerie Taylor
valharly
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Jun 3, 2009
12:06 am

Hi Valerie, Welcome to the group! Here is a website you may find helpful in understanding and working with LDN: http://tinyurl.com/intro-to-ldn With best...
Dudley Delany
dudley_delany
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Jun 1, 2009
7:20 pm
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