LDN_4_cancer : Messages : 7869-7899 of 7899

I apologise for this coming through to the list.

Linda

#7897

From: <jcastron1@...>
Date: Thu Dec 24, 2009 3:51 pm
Subject: Re: Other sources of LDN

mpastata

Offline

For those that use the dissolved system, drug stores sell droppers with markings and 4.5 would be easy to work with. I suppose there is a small risk, for those not very careful, that they might not be getting 4.5 of LDN when they use this system, however, I do not know that for sure.

Joe C.

#7896

From: carcinoidwarrior <carcinoidwarrior@...>
Date: Thu Dec 24, 2009 3:25 pm
Subject: Re: Other sources of LDN

carcinoidwar...

Offline

Mary,

The way pills are made there is no guarantee that dividing them in half will yield equal doses so the best way to dose without a reliable compounding pharmacist filling a prescription is as Zahavi suggests - AllDayChemist is one place to get 50 mg tabs, River Pharmacy is another.

Good luck, Jackie

--- On Thu, 12/24/09, mfrontino <mfrontino@...> wrote:

From: mfrontino <mfrontino@...>
Subject: [LDN_4_cancer] Other sources of LDN
To: LDN_4_cancer@yahoogroups.com
Date: Thursday, December 24, 2009, 9:06 AM

I have a friend who wants to start LDN as she lost her mom and sister to breast cancer.

She found a site IAS = International Antiaging Systems that sells in pill form (not compounded capsule) (30) pills 4.5 mgs for $50.00. The brand name is Narvcol. She plans on starting at 2.5 by dividing the pill in half.

Does anybody here have experience with this brand of LDN....is it acceptable in this form?

I told her it was a little pricey but a good source if her doctor won't prescribe it.

Merry Xmas to all members,
Mary

#7895

From: ido zahavi <zahavi100@...>
Date: Thu Dec 24, 2009 3:14 pm
Subject: Other sources of LDN

z100a2002

Offline

she can try alldaychemist.they sell the 50 mg tablets and you disolve it in 50ml�distilled water keep it in the frigdge and draw with syringe without a needle as much as you need.also when she decide to use the pills you mentioned,it is better to devide with liquid as you do not know what is the filler and what is the naltrexone.always shake good before use

#7894

From: "mfrontino" <mfrontino@...>
Date: Thu Dec 24, 2009 3:06 pm
Subject: Other sources of LDN

mfrontino

Online Now

I have a friend who wants to start LDN as she lost her mom and sister to breast
cancer.

She found a site IAS = International Antiaging Systems that sells in pill form
(not compounded capsule) (30) pills  4.5 mgs for $50.00.  The brand name is
Narvcol.  She plans on starting at 2.5 by dividing the pill in half.

Does anybody here have experience with this brand of LDN....is it acceptable  in
this form?

I told her it was a little pricey but a good source if her doctor won't
prescribe it.

Merry Xmas to all members,
Mary

#7893

From: "John Donnelly" <john@...>
Date: Thu Dec 24, 2009 11:10 am
Subject: Re: Re:TIP for 2010

johncarneint

Offline

Thanks MJH

I will get Jacinta's D3 level checked on the 4th of January she is taking 5000iu for about 5 months now so I hope its high enough

----- Original Message -----

From: foxhillers@...

To: LDN_4_cancer@yahoogroups.com

Sent: Thursday, December 24, 2009 10:39 AM

Subject: [LDN_4_cancer] Re:TIP for 2010

John

Magnesium is another pain reliever, specifically pain caused by muscles spasms. I have found liquid forms taken internally to be the most effective. Too much calcium without enough magnesium will also cause muscle spasm pain.

As I wrote on the LDN group, I have found vitamin D3 in blood levels above about 70, provide a significant decrease in bone pain, especially in my spine.

Hope this helps

mjh

Posted by: "John Donnelly" john@carnebeach.com johncarneint

Wed Dec 23, 2009 12:46 pm (PST)

Hi Guys

An important tip for you all.
We think we have narrowed down why Jacinta has the bone pain. It is from the radiation, but why did it come now. We went through everything that she is on now and cant find what caused the sudden pain. We never looked at what she stopped taking. Jacinta was on Magnesium to help stop sweating for 3 months and as it didn't work she stopped taking it and then pain.
So my tip for you all, Keep a diary of any changes in meds, Vitamin's etc and anything unusual like a pain that may come and go. It will make life much easier for you when a problem pops up
John
www.ldndatabase.com

#7892

From: foxhillers@...
Date: Thu Dec 24, 2009 5:39 am
Subject: Re:TIP for 2010

mjhampstead

Offline

John

Magnesium is another pain reliever, specifically pain caused by muscles spasms. I have found liquid forms taken internally to be the most effective. Too much calcium without enough magnesium will also cause muscle spasm pain.

As I wrote on the LDN group, I have found vitamin D3 in blood levels above about 70, provide a significant decrease in bone pain, especially in my spine.

Hope this helps

mjh

Posted by: "John Donnelly" john@... johncarneint

Wed Dec 23, 2009 12:46 pm (PST)

Hi Guys

An important tip for you all.
We think we have narrowed down why Jacinta has the bone pain. It is from the radiation, but why did it come now. We went through everything that she is on now and cant find what caused the sudden pain. We never looked at what she stopped taking. Jacinta was on Magnesium to help stop sweating for 3 months and as it didn't work she stopped taking it and then pain.
So my tip for you all, Keep a diary of any changes in meds, Vitamin's etc and anything unusual like a pain that may come and go. It will make life much easier for you when a problem pops up
John
www.ldndatabase.com

#7891

From: marilynjpappas@...
Date: Thu Dec 24, 2009 12:59 am
Subject: Re: TIP for 2010

mrsp62

Offline

That's a great idea! Thanks John.

Marilyn

-----Original Message-----
From: John Donnelly <john@...>
To: LDN_4_cancer@yahoogroups.com; ldnforcancer <ldnforcancer@yahoogroups.com>; LungCancerSupportFamily@yahoogroups.com
Sent: Wed, Dec 23, 2009 2:46 pm
Subject: [LDN_4_cancer] TIP for 2010

Hi Guys

An important tip for you all.

We think we have narrowed down why Jacinta has the bone pain. It is from the radiation, but why did it come now. We went through everything that she is on now and cant find what caused the sudden pain. We never looked at what she stopped taking. Jacinta was on Magnesium to help stop sweating for 3 months and as it didn't work she stopped taking it and then pain.

So my tip for you all, Keep a diary of any changes in meds, Vitamin's etc and anything unusual like a pain that may come and go. It will make life much easier for you when a problem pops up

#7890

From: jaynelcrocker <jaynelcrocker@...>
Date: Wed Dec 23, 2009 9:22 pm
Subject: LDNNows Petition to 10 Downing Street

jaynecrocker64

Offline

Firstly, on behalf of LDNNow I would like to thank each and every one of you who has supported us with the LDNNow petitions to both 10 Downing Street and the Scottish Parliament

With regards to the LDNNow petition to 10 Downing Street, the petition is only the tip of the iceberg of LDNNow’s activities and far from being the main thrust. It is a rallying flag for us to get the support needed, secondly to prove that the demand for LDN is there, an opportunity to educate the public through the media about Low Dose Naltrexone, and most of all an opportunity to work with our MPs, AMs, MEPs, MSPs, etc.

The response from the government is in agreement with us - there is a need for LDN trials and research, and they did point out how to get more research into LDN. Andrew Lansley, MP, the Shadow Health Minister advised us about this back in August and we took immediate action by contacting NIHR. I am pleased to inform everyone that the NIHR TA will be discussing this at their panel meeting on 19^th January 2010. We have requested to participate in this meeting.

By petitioning No 10 Downing Street has opened many doors for us and that was its purpose. As a political/pressure group and as a result of this petition, we have got many MPs working together who are currently putting a petition to the House of Commons which will be lead by Nia Griffiths MP and Stephen Crabb MP (and Chairman of the Conservative Parties Human Rights Committee. In addition the team at LDNNow is growing and all pulling together to make this movement happen. We will keep you updated on the results as they mature.

We always felt the Government were going to respond as they did but we have been working around this for a year now so are actually ahead of the game (so to speak). The question which remains is who will finance this research? At LDN Now we firmly believe the public sector must fill the vacuum left by the private sector here and this is why we are fully committed to engagement with our politicians to ensure this important research is done so that all who can benefit from LDN treatment get the chance to do so.

As mentioned on these forums previously, this is rapidly becoming a human rights issue so please watch out for the link to the European Parliament to help make LDN available to all. This should be available in the New Year.

And on that note may I take this opportunity on behalf of the team at LDNNow to once again thank you for your support throughout this year and wish you all a Merry Christmas. Roll on 2010!

Jayne

Jayne Crocker

http//www.LDNNow.com/

tel: +44 (0) 7877 492 669

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=5p5nhzP2OaI

Follow us on twitter http://twitter.com/LD_Naltrexone

For factual information on LDN, join here http://groups.yahoo.com/group/LDN_Information

#7889

From: "John Donnelly" <john@...>
Date: Wed Dec 23, 2009 8:46 pm
Subject: TIP for 2010

johncarneint

Offline

Hi Guys

An important tip for you all.

So my tip for you all, Keep a diary of any changes in meds, Vitamin's etc and anything unusual like a pain that may come and go. It will make life much easier for you when a problem pops up

#7888

From: jaynelcrocker <jaynelcrocker@...>
Date: Wed Dec 23, 2009 6:08 pm
Subject: RE: Test for Opioid receptors

jaynecrocker64

Offline

Hi Mike,

If my memory serves me correctly (and don’t bank on it), there use to be such a kit available. If I am not mistaken Dr Phil Boyle in Ireland is looking into purchasing such a kit but where he is at with this I am not sure. Measuring endorphin levels I believe would be a great help.

Jayne Crocker

http//www.LDNNow.com/

tel: +44 (0) 7877 492 669

Dr Chris Steele, ITV's This Morning supporting LDN

http://www.youtube.com/watch?v=5p5nhzP2OaI

Follow us on twitter http://twitter.com/LD_Naltrexone

For factual information on LDN, join here http://groups.yahoo.com/group/LDN_Information

From: LDN_4_cancer@yahoogroups.com [mailto:LDN_4_cancer@yahoogroups.com] On Behalf Of induction@...
Sent: 23 December 2009 17:56
To: LDN 4 cancer
Subject: Re: [LDN_4_cancer] Test for Opioid receptors

Skip,

Would it be more reasonable to measure LDN effect by measuring blood endorphin
levels at perhaps 10 ( or, "N") hours after last taking the LDN daily dose and comparing this
reading to a Pre-LDN base line for that person?
This seems to me as a better possible indicator because the ratio of body mass
to LDN actual dose for that person should peak in endorphin level when the dose /
body mass ratio is the best.

Of course, to protect the status of the endorphin base line, in this test period, one would have to
avoid pain, sex and the other things which release endorphins.

Maybe a test to measure endorphins already exists and is cost effective.

Regards,
Mike

----- Original Message -----
From: slenzrph@...
To: LDN 4 cancer
Sent: Wed, 23 Dec 2009 17:32:38 +0000 (UTC)
Subject: Re: [LDN_4_cancer] Test for Opioid receptors

I will keep it simple, don't be insulted. The number of receptor

sites is widely variable. The number of cells that have opioid

receptor sites is variable. the number of receptor sites on each specific

cell is variable.

So, quantifying the number of receptor sites is almost impossible,

certaining not finacially acheievable.

Dr.Skip

good question, first time I heard this one. Out of the mouth of

babes.

In a message dated 12/23/2009 10:45:35 A.M. Eastern Standard Time,

mfrontino@... writes:

As a new member of this group I read and reread. I have a question. Steve's

  doc called Dr. Zagon about his treatment plan and Dr. Zagon had suggested to

  her that 4.5 mg per day might be too much and that the opioid receptors on the

  cells of the body can become overloaded due to too much LDN amking the LDN

  ineffective. So they reduced Steve's LDN dose.

Is there a test to

  determine saturation levels of the receptors so you would know if you need to

  adjust the dose? Seems to me that would be a reasonable way to know how LDN

  was working in the body. Sure would be nice to take the guesswork out of the

  equation.

Mary

#7887

From: induction@...
Date: Wed Dec 23, 2009 5:55 pm
Subject: Re: Test for Opioid receptors

mike3885

Offline

So, quantifying the number of receptor sites is almost impossible,

certaining not finacially acheievable.

Dr.Skip

good question, first time I heard this one. Out of the mouth of

babes.

In a message dated 12/23/2009 10:45:35 A.M. Eastern Standard Time,

mfrontino@... writes:

As a new member of this group I read and reread. I have a question. Steve's

  doc called Dr. Zagon about his treatment plan and Dr. Zagon had suggested to

  her that 4.5 mg per day might be too much and that the opioid receptors on the

  cells of the body can become overloaded due to too much LDN amking the LDN

  ineffective. So they reduced Steve's LDN dose.

Is there a test to

  determine saturation levels of the receptors so you would know if you need to

  adjust the dose? Seems to me that would be a reasonable way to know how LDN

  was working in the body. Sure would be nice to take the guesswork out of the

  equation.

Mary

#7886

From: mary frontino <mfrontino@...>
Date: Wed Dec 23, 2009 5:48 pm
Subject: Re: Test for Opioid receptors

mfrontino

Online Now

Ya never know until you ask.....thanks for the info and keeping it simple!!

Mary

--- On Wed, 12/23/09, slenzrph@... <slenzrph@...> wrote:

From: slenzrph@... <slenzrph@...>
Subject: Re: [LDN_4_cancer] Test for Opioid receptors
To: LDN_4_cancer@yahoogroups.com
Date: Wednesday, December 23, 2009, 12:32 PM

I will keep it simple, don't be insulted. The number of receptor sites is widely variable. The number of cells that have opioid receptor sites is variable. the number of receptor sites on each specific cell is variable.

So, quantifying the number of receptor sites is almost impossible, certaining not finacially acheievable.

Dr.Skip

good question, first time I heard this one. Out of the mouth of babes.

In a message dated 12/23/2009 10:45:35 A.M. Eastern Standard Time, mfrontino@... writes:

As a new member of this group I read and reread. I have a question. Steve's doc called Dr. Zagon about his treatment plan and Dr. Zagon had suggested to her that 4.5 mg per day might be too much and that the opioid receptors on the cells of the body can become overloaded due to too much LDN amking the LDN ineffective. So they reduced Steve's LDN dose.

Is there a test to determine saturation levels of the receptors so you would know if you need to adjust the dose? Seems to me that would be a reasonable way to know how LDN was working in the body. Sure would be nice to take the guesswork out of the equation.

Mary

#7885

From: slenzrph@...
Date: Wed Dec 23, 2009 12:32 pm
Subject: Re: Test for Opioid receptors

skipthepharm

Offline

I will keep it simple, don't be insulted. The number of receptor sites is widely variable. The number of cells that have opioid receptor sites is variable. the number of receptor sites on each specific cell is variable.

So, quantifying the number of receptor sites is almost impossible, certaining not finacially acheievable.

Dr.Skip

good question, first time I heard this one. Out of the mouth of babes.

In a message dated 12/23/2009 10:45:35 A.M. Eastern Standard Time, mfrontino@... writes:

As a new member of this group I read and reread. I have a question. Steve's doc called Dr. Zagon about his treatment plan and Dr. Zagon had suggested to her that 4.5 mg per day might be too much and that the opioid receptors on the cells of the body can become overloaded due to too much LDN amking the LDN ineffective. So they reduced Steve's LDN dose.

Is there a test to determine saturation levels of the receptors so you would know if you need to adjust the dose? Seems to me that would be a reasonable way to know how LDN was working in the body. Sure would be nice to take the guesswork out of the equation.

Mary

#7884

From: "mfrontino" <mfrontino@...>
Date: Wed Dec 23, 2009 3:43 pm
Subject: Test for Opioid receptors

mfrontino

Online Now

As a new member of this group I read and reread.  I have a question.  Steve's
doc called  Dr. Zagon about his treatment plan and Dr. Zagon had suggested to
her that 4.5 mg per day might be too much and that the opioid receptors on the
cells of the body can become overloaded due to too much LDN amking the LDN
ineffective. So they reduced Steve's LDN dose.

Is there a test to determine saturation levels of the receptors so you would
know if you need to adjust the dose?  Seems to me that would be a reasonable way
to know how LDN was working in the body.  Sure would be nice to take the
guesswork out of the equation.

Mary

#7883

From: "John Donnelly" <john@...>
Date: Mon Dec 21, 2009 11:49 pm
Subject: Radiation pain

johncarneint

Offline

Hi All

It looks like I have got to the bottom of the pain Jacinta has in her rib. Is seems it is normal to have bone pain months after the Stereotactic Radiation. Its now 10 months since Jacinta had this done and the pain is in the rib bone right beside where the tumor was.

Has anybody come across any remedy for this.

#7882

From: "John Donnelly" <john@...>
Date: Sat Dec 19, 2009 6:01 pm
Subject: Re: The World's LDN Database

johncarneint

Offline

Hi Marilyn

That's easy, when you first fill in the database it will send you an email with a URL for you to go back and edit your details. Now if you are like me and delete important emails all you need to do is send me an email with the email address you used and I will send you the link

----- Original Message -----

From: marilynjpappas@...

To: LDN_4_cancer@yahoogroups.com

Sent: Saturday, December 19, 2009 4:26 PM

Subject: Re: [LDN_4_cancer] The World's LDN Database

John,

How do I go back and update my info on the database?

Marilyn

-----Original Message-----
From: John Donnelly <john@carnebeach.com>
To: LungCancerSupportFamily@yahoogroups.com; lowdosenaltrexone@yahoogroups.com; LDNforFibro@yahoogroups.com; ldnforcancer <ldnforcancer@yahoogroups.com>; LDN_Users@yahoogroups.com; LDN_HIVAIDS@yahoogroups.com; LDN_4_Pets@yahoogroups.com; LDN_4_cancer@yahoogroups.com; healingparkinsons@yahoogroups.com; Autism_LDN@yahoogroups.com
Sent: Fri, Dec 18, 2009 7:58 pm
Subject: [LDN_4_cancer] The World's LDN Database

Hi Everybody

The LDN Database has hit 386 entries, this is fantastic and thanks to everybody for taking the 2 minutes it takes to put in your experience with LDN this will help people so much in the future.

If you have started LDN recently or have forgotten to put your experience on the database could you please visit www.ldndatabase.com and help save lives.

Thanks again and have a great week

John
www.ldndatabase.com

#7881

From: marilynjpappas@...
Date: Sat Dec 19, 2009 4:26 pm
Subject: Re: The World's LDN Database

mrsp62

Offline

John,

How do I go back and update my info on the database?

Marilyn

-----Original Message-----
From: John Donnelly <john@...>
To: LungCancerSupportFamily@yahoogroups.com; lowdosenaltrexone@yahoogroups.com; LDNforFibro@yahoogroups.com; ldnforcancer <ldnforcancer@yahoogroups.com>; LDN_Users@yahoogroups.com; LDN_HIVAIDS@yahoogroups.com; LDN_4_Pets@yahoogroups.com; LDN_4_cancer@yahoogroups.com; healingparkinsons@yahoogroups.com; Autism_LDN@yahoogroups.com
Sent: Fri, Dec 18, 2009 7:58 pm
Subject: [LDN_4_cancer] The World's LDN Database

Hi Everybody

The LDN Database has hit 386 entries, this is fantastic and thanks to everybody for taking the 2 minutes it takes to put in your experience with LDN this will help people so much in the future.

If you have started LDN recently or have forgotten to put your experience on the database could you please visit www.ldndatabase.com and help save lives.

Thanks again and have a great week

John
www.ldndatabase.com

#7880

From: "John Donnelly" <john@...>
Date: Sat Dec 19, 2009 1:58 am
Subject: The World's LDN Database

johncarneint

Offline

Hi Everybody

The LDN Database has hit 386 entries, this is fantastic and thanks to everybody for taking the 2 minutes it takes to put in your experience with LDN this will help people so much in the future.

If you have started LDN recently or have forgotten to put your experience on the database could you please visit www.ldndatabase.com and help save lives.

Thanks again and have a great week

#7879

From: carcinoidwarrior <carcinoidwarrior@...>
Date: Fri Dec 18, 2009 5:48 pm
Subject: Re: LDN in your system

carcinoidwar...

Offline

That depends on the individual's biochemistry and metabolism rate and the dosage. I very much doubt that swollen glands are an indicator of the continued presence of naltrexone in your system.

Best wishes fighting that infection.

Jackie

--- On Fri, 12/18/09, mfrontino <mfrontino@...> wrote:

From: mfrontino <mfrontino@...>
Subject: [LDN_4_cancer] LDN in your system
To: LDN_4_cancer@yahoogroups.com
Date: Friday, December 18, 2009, 9:21 AM

I did a search but I'm sure this question has come up before. How long after you stop using LDN does it take to wash out of your system? My glands are still swollen after I have been off of it for 3 days addressing a yeast infection. Once I get that under control I will retry the LDN but at a lower dose.

#7878

From: "mfrontino" <mfrontino@...>
Date: Fri Dec 18, 2009 3:21 pm
Subject: LDN in your system

mfrontino

Online Now

I did a search but I'm sure this question has come up before.  How long after
you stop using LDN does it take to wash out of your system?  My glands are still
swollen after I have been off of it for 3 days addressing a yeast infection. 
Once I get that under control I will retry the LDN but at a lower dose.

#7877

From: Edward Sturr <esturr@...>
Date: Wed Dec 16, 2009 9:47 pm
Subject: Re: LDN, ALA and Biotin

esturr@...

Dr. Berkson's rec to take a B-Complex with ALA should be observed. Most B complexs have
little biotin. The rec I've read is to take one mg (1000 micrograms) for each 100 mg of
ALA, which is what I take. Note the ALA by Life Extension includes that proportion.
I add Biotin to my B to achieve that ratio.

Note also the statement about B 12.

Ariella wrote:

At the LDN conference at NIH this year, Dr Berkson talked about taking LDN with Alpha Lipoic Acid. Since ALA depletes Vit B (and Biotin?) he also recommended supplementing with a B complex. I'm currently taking LDN 4.5 mg with ALA 600 mg/day(for cancer) and have added a B complex. Not sure what dosage might be best and if an additional Biotin supplement might be needed. Anyone have any info/experience with this?

Thanx
Sam

#7876

From: "Ariella" <ariel77@...>
Date: Wed Dec 16, 2009 7:53 pm
Subject: LDN, ALA and Biotin

ariel77x

Offline

At the LDN conference at NIH this year, Dr Berkson talked about taking LDN with
Alpha Lipoic Acid. Since ALA depletes Vit B (and Biotin?) he also recommended
supplementing with a B complex. I'm currently taking LDN 4.5 mg with ALA 600
mg/day(for cancer) and have added a B complex. Not sure what dosage might be
best and if an additional Biotin  supplement might be needed. Anyone have any
info/experience with this?

Thanx
Sam

#7875

From: "mfrontino" <mfrontino@...>
Date: Tue Dec 15, 2009 9:04 pm
Subject: Re: Having severe reactions

mfrontino

Online Now

How did you know it was a yeast infection?  I've had vaginal yeast
infections...that is all.  Were you able to confirm that with tests?  And also
did you stop the LDN until you got the yeast under control?

Mary

--- In LDN_4_cancer@yahoogroups.com, "dAVId" <dhallgar@...> wrote:
>
> The roller coaster ride, perhaps, ditto Mary, had the same after two weeks, it
was an accumulation of yeast/fungus for me.  I have leukemia, and for whatever
reason,
> LDN in some indirect/direct way encourages yeast/fungal infections to get the
upper hand.
> I started taking oral lamisil pills, and wahoo, I began feeling loads better
within 24 hours.
> stay well, david a
>
>   ----- Original Message -----
>   From: mfrontino
>   To: LDN_4_cancer@yahoogroups.com
>   Sent: Tuesday, December 15, 2009 8:56 AM
>   Subject: [LDN_4_cancer] Having severe reactions
>
>
>
>   I'm new to this group. I had a mascetomy 11-2002 and did IPT treatment and
have been cancer free ever since then. Last year I had trouble with thyroid
nodules but no cancer. I'm late getting on the LDN bandwagon but I decided to
take it after much research as a preventative. I started 4.5 at night 11-22-09.
So I have only been on it a couple of weeks.
>
>   For the past week I have been feeling fatigued and all of a sudden I was
experiencing what I thought was TMJ however last night when I was feeling my
neck at the back of the lower jaw bone the lymph node is very sore and swollen.
I took LDN last night at 10PM as usual and now this AM my right side gland is
sore (but not swollen). I'm not going to panic but I am going to stop the LDN
for a couple of days and see if this subsides and then perhaps start again every
other day.
>
>   I would be extremely grateful for any advice.
>
>   Mary
>

#7874

From: "dAVId" <dhallgar@...>
Date: Tue Dec 15, 2009 3:20 pm
Subject: Re: Having severe reactions

dhallgar

Offline

The roller coaster ride, perhaps, ditto Mary, had the same after two weeks, it was an accumulation of yeast/fungus for me. I have leukemia, and for whatever reason,

LDN in some indirect/direct way encourages yeast/fungal infections to get the upper hand.

I started taking oral lamisil pills, and wahoo, I began feeling loads better within 24 hours.

stay well, david a

----- Original Message -----

From: mfrontino

To: LDN_4_cancer@yahoogroups.com

Sent: Tuesday, December 15, 2009 8:56 AM

Subject: [LDN_4_cancer] Having severe reactions

I'm new to this group. I had a mascetomy 11-2002 and did IPT treatment and have been cancer free ever since then. Last year I had trouble with thyroid nodules but no cancer. I'm late getting on the LDN bandwagon but I decided to take it after much research as a preventative. I started 4.5 at night 11-22-09. So I have only been on it a couple of weeks.

For the past week I have been feeling fatigued and all of a sudden I was experiencing what I thought was TMJ however last night when I was feeling my neck at the back of the lower jaw bone the lymph node is very sore and swollen. I took LDN last night at 10PM as usual and now this AM my right side gland is sore (but not swollen). I'm not going to panic but I am going to stop the LDN for a couple of days and see if this subsides and then perhaps start again every other day.

I would be extremely grateful for any advice.

Mary

#7873

From: "mfrontino" <mfrontino@...>
Date: Tue Dec 15, 2009 2:56 pm
Subject: Having severe reactions

mfrontino

Online Now

I'm new to this group.  I had a mascetomy 11-2002 and did IPT treatment and have
been cancer free ever since then.  Last year I had trouble with thyroid nodules
but no cancer.  I'm late getting on the LDN bandwagon but I decided to take it
after much research as a preventative.  I started 4.5 at night 11-22-09.  So I
have only been on it a couple of weeks.


For the past week I have been feeling fatigued and all of a sudden I was
experiencing what I thought was TMJ however last night when I was feeling my
neck at the back of the lower jaw bone the lymph node is very sore and swollen. 
I took LDN last night at 10PM as usual and now this AM my right side gland is
sore (but not swollen).  I'm not going to panic but I am going to stop the LDN
for a couple of days and see if this subsides and then perhaps start again every
other day.


I would be extremely grateful for any advice.

Mary

#7872

From: "Cheryl" <c.mcduff@...>
Date: Mon Dec 14, 2009 9:17 pm
Subject: Information needed from New Zealand people on LDN

c.mcduff...

Offline

I would like to help Linda Elsegood from the LDN Research Trust with the new
website "LDN Aware" in New Zealand. The more people who know about LDN the more
people will benefit from LDN.



I'm looking for LDN advocates in NZ to help me. I would like to know who is
prescribing and who is dispensing LDN, any help and information you can give me
would be most welcome and if you would like to work along side me I would
appreciate it as at the moment there is very little information in NZ.


Thanks so much.

Cheryl

#7871

From: "z100a2002" <zahavi100@...>
Date: Sun Dec 13, 2009 10:13 am
Subject: surgery for cancer and metastatsis

z100a2002

Offline

for all those who trust regular treatment for cancer and wonder how they get
metastatsis

http://www.healthwatchersnews.com/2009/12/preventing-surgery-induced-cancer-meta\
stasis/

#7870

From: "jim_n_steph" <stephgreen@...>
Date: Fri Dec 11, 2009 5:28 pm
Subject: Re: Newly Diagnosed

jim_n_steph

Offline

I really appreciate all these resources. It's nice to have a community that
understands what you are going through.


--- In LDN_4_cancer@yahoogroups.com, carcinoidwarrior <carcinoidwarrior@...>
wrote:
>
> You can buy 50mg tabs called Nodict from River Pharmacy (Canada).  These can
be dissolved in 50ml of distilled water and you can dose with a well-marked
syringe.  Naltrexone is not available in the US without prescription but it is
NOT illegal to possess without a prescription.
> You can also find prescribing doctors in your area by asking Dee or Crystal,
both on this list.
> You may also find it useful to discuss your husband's treatment with Dr.
Zagon.  
> http://fred.psu.edu/ds/retrieve/fred/investigator/isz1
> Best wishes,  Jackie
>
> --- On Fri, 12/11/09, ileostomy4me <ktorell@...> wrote:
>
> From: ileostomy4me <ktorell@...>
> Subject: [LDN_4_cancer] Re: Newly Diagnosed
> To: LDN_4_cancer@yahoogroups.com
> Date: Friday, December 11, 2009, 12:00 AM
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>  
>
>
>
>
>
>
>
>
>
>
>
>
>
> --- In LDN_4_cancer@ yahoogroups. com, Stephanie Green <stephgreen@ ...>
wrote:
>
> >
>
> > Greetings,
>
> >
>
> > My husband was recently diagnosed with stage 3b rectal cancer. He is
>
> > set to start neoadjuvant chemoradiation within the next 1-2 weeks.
>
> >
>
> > I'd like to know what your experience with taking LDN concurrently
>
> > with chemoradiation has been and if anyone knows about
>
> > contraindications for why you wouldn't take LDN during chemoradiation.
>
> > Also, my husband's medical oncologist is a very conservative, only
>
> > standards of care, type doctor. How do I get LDN prescribed if he won't?
>
> >
>
> > Any info you can provide would be greatly appreciated.
>
> >
>
> >
>
> > Thanks,
>
> > Steph
>
>
>
> Hi Steph,
>
> I am almost eight years out from rectal cancer 3b, I have an ileostomy that
works just fine.
>
> I went through chemo and radiation after getting the ileostomy.  I have been
on LDN for over two years now...I did have a mets to my right lung three years
after the rectal cancer, that is when I found out about LDN.  I am now into
almost 5 years remission from the metastses of the rectal cancer.  I did not
have chemo for the second occurence... too long a story, but there were
complications to the two thoracotomies for removal of the lung cancer.  Ah
Ha...but I am doing well...alternativel y I am getting IV vitamin C.  If there
is any way you can find a alternative MD that does vitamin C IV...you really
must!
>
>
>
> Google Vit. C IV therapy...Your spouse could get it while getting chemo and
radiation and it would greatly decrease his side effects and give him his health
back quickly.  The key is to use very high dose vitamin C...low dose actually
helps cancer to avoid the chemo, high dose kills cancer...do the research!
>
>
>
> Good luck to you and your spouse, it is a journey indeed!
>
> If you have questions please contact me off list.
>
> Karen
>
> >
>

Reply | Forward | Messages in this Topic (9)

#7869

From: carcinoidwarrior <carcinoidwarrior@...>
Date: Fri Dec 11, 2009 3:00 pm
Subject: Re: Re: Newly Diagnosed

carcinoidwar...

Offline