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LCASG · Lake County Autism Support Group
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Gluten Free Diet   Message List  
Reply | Forward Message #22 of 296 |
Re: [LCASG] Gluten Free Diet

Jane..my understanding of the GFCF diet and how you have modified it would tell me that it is not GF at all. The proteins in gluten supposedly can linger in the body for months after the slightest gluten infraction. They can take up to a year to leave the body...that's one of the reason the diet is so hard to do!
 
That being said, I wouldn't abandon where you are at but I would continue to look for a substitute bread. I would also inquire about what lead you to try the diet...were there some digestive issues prior? Or did he seem to be "high"? THose are the normal reasons...just having autism is not the best reason to try the diet...but then again certain high functioning people have gone GF and have benefited as well.
 
Unfortunately nothing in autism is 100%
 
Eric
 
 
In a message dated 2/7/2008 9:24:58 P.M. Central Standard Time, jashleydesigns@... writes:

Hello, I just joined the group. I have a 4 1/2 year old son with autism
and tried a gluten free diet in August. We did pretty well until
December, he lost some weight which made me very nervous. He did not
like the bread at all and seemed okay with meat and veggies but as time
went on refused all bread and finally, food. He had dry heaves for two
days in December and I decided the whole thing was crazy and made him a
pb&j sandwich. He was literally shaking as he ate. We are now on a
modified gluten free diet, that is, everything is gluten free except
bread. In the time we were totally gluten free I didn't notice any
significant change in him, although it was only 4 months. I'd love any
feedback from other parents that either found success or became
frustrated like me. I don't know if I should abandon the diet or not.

Thanks,

Jane

 





Fri Feb 8, 2008 3:35 am

nechapasi
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Message #22 of 296 |
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Hello, I just joined the group. I have a 4 1/2 year old son with autism and tried a gluten free diet in August. We did pretty well until December, he lost some...
jashleydesigns
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Feb 8, 2008
3:24 am

Jane..my understanding of the GFCF diet and how you have modified it would tell me that it is not GF at all. The proteins in gluten supposedly can linger in...
nechapasi@...
nechapasi
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Feb 8, 2008
3:35 am

Hi Eric Thanks for responding..yes there were some digestive issues. He has always had wheat bread and I switched him to white in December and his digestive...
Jane Ashley
jane@...
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Feb 8, 2008
3:49 am

Hi Jane, My son is on the diet. We see Dr Hicks in Delavan, WI. We had our son tested for allergies and peptides, Pretty much anthing we could test we...
Jodi Greissinger
jgreis1228
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Feb 8, 2008
4:04 am

Thanks for your fyi I just Started my son on it last week The only thing I can notice is that His stimming more but see we justed Stared it. I am assume it do...
joelkogen@...
apolloviirea...
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Feb 8, 2008
11:55 am

if your Child is in Danger for this GFCF Diet Stop once and Get your Child Back on Reg Food. i am also new to this But Safety of the Child should come 1st. ...
Joel Kogen
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Feb 10, 2008
1:21 am

Thanks for your reply...I have him on regular food but will have him tested for allergies and gluten sensitivity like Jodi did for her son. If he should be...
Jane Ashley
jane@...
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Feb 10, 2008
2:28 am

good luck Jane Ashley <jane@...> wrote: Thanks for your reply...I have him on regular food but will have him tested for allergies and gluten...
Joel Kogen
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Feb 10, 2008
2:47 am
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