Hi everyone,
It’s been a long time since I have posted so I thought now is as good of a
time as any. I found out about a year ago now about my KD in my left wrist
after about a year before that of going to doctors, specialists, about 5
x-rays, then finally an MRI. Anyway, Last August 10th 2007 I had my
operation by Dr. Ian Hargreaves from Sydney (he came to Tassie to do it) He
did the bone graft and attached plates to my wrist bones. It was absolutely
excruciating when I came home from hospital and ended up being dosed up on
pandadine forte for a week til it felt a bit better. I was in a half cast
for almost two months then started physio which honestly I didn’t really see
the point of because paying $50 twice every week for someone to move my
wrist up and down to me was silly but I kept going for about another 2months
until I saw my specialist again for the second time after my operation and
he said to discontinue physio so I did and at the moment, 7 months since my
surgery things seem okay (touch wood) I am happy not to have that horrible
aching stinging KD pain anymore but I have quite limited movement in my
wrist, probably ¼ movement compared to the right wrist and occasionally it
can get sore and sometimes I can feel a sort of nervy/stinging pain which I
think is the plates on the bone settling with my muscles and nerves ect.
However, I am always so worried in the back of my mind that I will stuff it
up again and the blood supply to the bone will be cut off again. I am always
conscious and very protective of my wrist but as I work in Administration
and type constantly I have to use it. I read everyone’s posts as they come
into my email and although KD is awful and seems to have so many
complications and different outcomes it is good to have this site to be able
to talk to people and share stories. I wish everyone the best with their KD
procedures. Cheers, Nikki.
_____
From: KienbockDisease_Australia@yahoogroups.com
[mailto:KienbockDisease_Australia@yahoogroups.com] On Behalf Of
tebcontractors
Sent: Wednesday, 26 March 2008 8:24 PM
To: KienbockDisease_Australia@yahoogroups.com
Subject: [Kienbock Disease Australia] Re: up for another surgery
--- In KienbockDisease_ <mailto:KienbockDisease_Australia%40yahoogroups.com>
Australia@yahoogroups.com, "caritalively"
<island.girl.12@...> wrote:
>
> Hello all,
>
> I wanted to share some ugly news that I found out today. After
> visiting with my lovely doctor today, I found out that this
wonderful
> disease that we all have does not stop..........even when the
doctor
> has removed everything possible to remove. Ok, short version....I
> found out 3 yrs ago I had KD, I was in the 4th stage, we did the
> necessary surgery to fix the problem, well that did not go
> good....went in for a second surgery because of bones
> knocking.....well now almost 3 years later I am told today that due
> to the shifting of all the bones in my hand (mind you I don't have
> any wrist bones any longer with the exception of a relocated bone)
I
> now have 3 bones on the top of my hand that are shifting and its
> going to require a fusion.
>
> Has anyone ever heard of this type of procedure? I have of wrist
> fusions (which I will be up for in a few years) but never a bone
> fusion on the top of your hand.
>
> Any input or info. on that would be greatly appreciated.
>
>
> Well thanks for listening all. Sometimes its hard to complain and
> explain to folks that don't understand this disease. But I
honestly
> thought that after the first surgery it would be done, but I don't
> think it ever will, and unfortunately it will be a life long
thing.
>
> Well I wish you all a great week, without any pain.
>
> Thanks again,
> Carita
>
I really feel for ya, I have just had my first surgery. It was a bone
graft and I dont think it is working because I am in alot of pain.
I know what your going through, I hope that they can sort it out soon.
Take care.
Tom
No virus found in this incoming message.
Checked by AVG.
Version: 7.5.519 / Virus Database: 269.22.0/1341 - Release Date: 24/03/2008
3:03 PM
[Non-text portions of this message have been removed]
--- In KienbockDisease_Australia@yahoogroups.com, "caritalively"
<island.girl.12@...> wrote:
>
> Hello all,
>
> I wanted to share some ugly news that I found out today. After
> visiting with my lovely doctor today, I found out that this
wonderful
> disease that we all have does not stop..........even when the
doctor
> has removed everything possible to remove. Ok, short version....I
> found out 3 yrs ago I had KD, I was in the 4th stage, we did the
> necessary surgery to fix the problem, well that did not go
> good....went in for a second surgery because of bones
> knocking.....well now almost 3 years later I am told today that due
> to the shifting of all the bones in my hand (mind you I don't have
> any wrist bones any longer with the exception of a relocated bone)
I
> now have 3 bones on the top of my hand that are shifting and its
> going to require a fusion.
>
> Has anyone ever heard of this type of procedure? I have of wrist
> fusions (which I will be up for in a few years) but never a bone
> fusion on the top of your hand.
>
> Any input or info. on that would be greatly appreciated.
>
>
> Well thanks for listening all. Sometimes its hard to complain and
> explain to folks that don't understand this disease. But I
honestly
> thought that after the first surgery it would be done, but I don't
> think it ever will, and unfortunately it will be a life long
thing.
>
> Well I wish you all a great week, without any pain.
>
> Thanks again,
> Carita
>
I really feel for ya, I have just had my first surgery. It was a bone
graft and I dont think it is working because I am in alot of pain.
I know what your going through, I hope that they can sort it out soon.
Take care.
Tom
Hi, my name is Tom. I have just recently had a bone graft to treat
Kienbocks disease and almost two months on the pain is still there. My
wrist is still in a cast, but I am worried that the operation did not
work.
is it normal to still feel the pain a month after the operation?
HI KELLY,
SOUNDS LIKE THAT KD MONSTER WASN'T NICE TO YOU AT ALL.
THE NERVE IN THE PIN ,YOU KNOW THAT WAS A BIG OUCH FOR SURE.THAT WAS SOMETHING
THAT HAPPENED TO ME.BUT I HAD A TENDON INVOLVED ALSO. IT WASN'T PURTY.BUT I DID
GET OVER IT.TIME AND PATIENCE.I HOPE YOUR SURGERY GOES WELL AND WILL BE THINKING
OF YOU ALL.
HOPE EVERYONE IS BEING PAIN FREE.
JOJO.
[Non-text portions of this message have been removed]
OMG! A nerve in the pin?? I hope it works out for you. Please do not get your
hopes up. The shortening and the hardware are a big pain the arm!! They don't
tell you that the bone flexes thus making the hardware move. Which in turn
causes much pain. Especially if you use it a lot which you do. If I wash my
bathroom walls which takes 2 hours.My hands are no good for at least 2 days.
Hope all goes well.
Michele B.
Kelly Brimhall <kvb1076@...> wrote: I had my
first surgery a year ago in April. they did a vascular bone graft. I had pins
holding the graft in place. I was in a cast for 2 months (in sounds much longer
when you say it that way instead of 8 weeks.) I was pain free for about 4-5
months and the pain returned. they did an MRI and found that most of it was
still not getting the blood flow. I am now scheduled to have another surgery
April 22 (almost exactly a year) They are going to do the ulnar shortening. I am
REALLY hoping this will help. I am a Firefighter, Paramedic and a State Fire
Instructor - all of which involve extensive use of my hands and strength. I
really do not know what I will do if this can't be fixed. I'm trying not to get
my hopes up. I'm also very nervous about having another surgery. The last one
was supposed to be same day, in and out. Well I ended up staying 4 days. I was
in agony. They had me on a morphine drip - that
did not work. The had me on a demerol drip - that
did not work. They finally opened my wrist back up and found that the pin had
a nerve twisted in it. They remedied that and I was MUCH better and went home
the next day. Just hoping this one goes much better. I'll let ya know. Here's
wishing for pain free days for all!!!!!
Thanks for listening,
Kelly
Dance like no one's watching....Kelly
----- Original Message ----
From: Michele Barnes <michele_m_barnes@...>
To: KienbockDisease_Australia@yahoogroups.com
Sent: Monday, March 24, 2008 11:37:20 AM
Subject: Re: [Kienbock Disease Australia] Re: aches
No that is not it either because I have a full fusion on the left and no bones
removed from the right. Just an Ulnar shortening. Unless the tendons and are
just having a heck of a time adjusting?? Could you shift in a full fusion?? Does
anyone know of anyone who has had this problem??
caritalively <island.girl. 12@hotmail. com> wrote: Hi Michele,
I am to this day having problems after my 2 surgries. I am up for my
third here in the next few months (when i have time built up at work)
my doctor has informed me that due to my last 2 surgries the
remaining bones that are left in my hand....are now shifting and I am
up for a top hand fusion. Maybe you should have your doctor check to
see if maybe that is an issue for you to?
Hope this helps.
Wishing you a pain free day.
--- In KienbockDisease_ Australia@ yahoogroups. com, Michele Barnes
<michele_m_barnes@ ...> wrote:
>
> Does anyone still have aches that are deep thinking you still have
KD in your wrist after surgery?? I had Ulnar shortening on the right
wrist and if i use it or sleep on it funny it aches all day. had MRI
with negative results thank GOD! What the heck is it then?? Had bad
TFCC tear repair in that wrist to. With the fusion in the left,
sometimes I can not even pick something up it hurts so bad. Anybody
have anything for me??
>
> Michele
>
>
> ------------ --------- --------- ---
> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.
Try it now.
>
> [Non-text portions of this message have been removed]
>
------------ --------- --------- ---
Never miss a thing. Make Yahoo your homepage.
[Non-text portions of this message have been removed]
__________________________________________________________
Never miss a thing. Make Yahoo your home page.
http://www.yahoo.com/r/hs
[Non-text portions of this message have been removed]
---------------------------------
Never miss a thing. Make Yahoo your homepage.
[Non-text portions of this message have been removed]
I had my first surgery a year ago in April. they did a vascular bone graft. I
had pins holding the graft in place. I was in a cast for 2 months (in sounds
much longer when you say it that way instead of 8 weeks.) I was pain free for
about 4-5 months and the pain returned. they did an MRI and found that most of
it was still not getting the blood flow. I am now scheduled to have another
surgery April 22 (almost exactly a year) They are going to do the ulnar
shortening. I am REALLY hoping this will help. I am a Firefighter, Paramedic
and a State Fire Instructor - all of which involve extensive use of my hands and
strength. I really do not know what I will do if this can't be fixed. I'm trying
not to get my hopes up. I'm also very nervous about having another surgery. The
last one was supposed to be same day, in and out. Well I ended up staying 4
days. I was in agony. They had me on a morphine drip - that did not work. The
had me on a demerol drip - that
did not work. They finally opened my wrist back up and found that the pin had a
nerve twisted in it. They remedied that and I was MUCH better and went home the
next day. Just hoping this one goes much better. I'll let ya know. Here's
wishing for pain free days for all!!!!!
Thanks for listening,
Kelly
Dance like no one's watching....Kelly
----- Original Message ----
From: Michele Barnes <michele_m_barnes@...>
To: KienbockDisease_Australia@yahoogroups.com
Sent: Monday, March 24, 2008 11:37:20 AM
Subject: Re: [Kienbock Disease Australia] Re: aches
No that is not it either because I have a full fusion on the left and no bones
removed from the right. Just an Ulnar shortening. Unless the tendons and are
just having a heck of a time adjusting?? Could you shift in a full fusion?? Does
anyone know of anyone who has had this problem??
caritalively <island.girl. 12@hotmail. com> wrote: Hi Michele,
I am to this day having problems after my 2 surgries. I am up for my
third here in the next few months (when i have time built up at work)
my doctor has informed me that due to my last 2 surgries the
remaining bones that are left in my hand....are now shifting and I am
up for a top hand fusion. Maybe you should have your doctor check to
see if maybe that is an issue for you to?
Hope this helps.
Wishing you a pain free day.
--- In KienbockDisease_ Australia@ yahoogroups. com, Michele Barnes
<michele_m_barnes@ ...> wrote:
>
> Does anyone still have aches that are deep thinking you still have
KD in your wrist after surgery?? I had Ulnar shortening on the right
wrist and if i use it or sleep on it funny it aches all day. had MRI
with negative results thank GOD! What the heck is it then?? Had bad
TFCC tear repair in that wrist to. With the fusion in the left,
sometimes I can not even pick something up it hurts so bad. Anybody
have anything for me??
>
> Michele
>
>
> ------------ --------- --------- ---
> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.
Try it now.
>
> [Non-text portions of this message have been removed]
>
------------ --------- --------- ---
Never miss a thing. Make Yahoo your homepage.
[Non-text portions of this message have been removed]
________________________________________________________________________________\
____
Never miss a thing. Make Yahoo your home page.
http://www.yahoo.com/r/hs
[Non-text portions of this message have been removed]
No that is not it either because I have a full fusion on the left and no bones
removed from the right. Just an Ulnar shortening. Unless the tendons and are
just having a heck of a time adjusting?? Could you shift in a full fusion?? Does
anyone know of anyone who has had this problem??
caritalively <island.girl.12@...> wrote: Hi
Michele,
I am to this day having problems after my 2 surgries. I am up for my
third here in the next few months (when i have time built up at work)
my doctor has informed me that due to my last 2 surgries the
remaining bones that are left in my hand....are now shifting and I am
up for a top hand fusion. Maybe you should have your doctor check to
see if maybe that is an issue for you to?
Hope this helps.
Wishing you a pain free day.
--- In KienbockDisease_Australia@yahoogroups.com, Michele Barnes
<michele_m_barnes@...> wrote:
>
> Does anyone still have aches that are deep thinking you still have
KD in your wrist after surgery?? I had Ulnar shortening on the right
wrist and if i use it or sleep on it funny it aches all day. had MRI
with negative results thank GOD! What the heck is it then?? Had bad
TFCC tear repair in that wrist to. With the fusion in the left,
sometimes I can not even pick something up it hurts so bad. Anybody
have anything for me??
>
> Michele
>
>
> ---------------------------------
> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.
Try it now.
>
> [Non-text portions of this message have been removed]
>
---------------------------------
Never miss a thing. Make Yahoo your homepage.
[Non-text portions of this message have been removed]
my story.... in 2002 had sudden bad pain in left wrist in Oct. In 2003 Jan
diagnosed with KD stage 3. Had Proximal Row Carpectomy a month later and was
told I would probably need a fusion at 65. I was 34. At age 34 I got a full
fusion of the left wrist. The fusion was causing so much pain that know one knew
why. So I went to Mayo Clinic. They said take the hardware out!! So after a year
I had it taken out. They wanted to wait a full year to make sure the fusion
took. After that was removed more than half of the pain was gone and I could use
my fingers like grabbing etc. You have to be very careful not to hit it or fall.
It could break and they treat it like a broken wrist. I have pain on the inside
of the wrist. Sometimes I can not grab or ring out a wash cloth. All depends on
the day. I can not sleep where it is suspended. It will hurt then to. So if you
are asking if it feels better to have the hardware out the answer is yes. I can
deal with the little aches. As for the
other wrist I had a TFCC tear repair and then ulnar shortening and the n the
hardware taken out due to chronic pain from the hardware. They took that out 5
months early! They did not want to but I insisted. I still have the pain in he
wrist like I have KD. I do not know why. Dr.s do not know why either. So I have
had 3 and 3 on both wrists. So I would get the metal out as so as possible.Hope
this helps and keep in touch.
LORI KEMP <hdoink@...> wrote:
Hi Michelle, I was reading your message to the group and I noticed you have had
a fusion. Was that a full wrist fusion that you had? My husband has KD in both
hands. They tell us that is highly unusual to have it in both wrists. He has
had two surgeries on each wrist so far. At this point he is looking at a full
wrist fusion in the left wrist. He is right handed thank goodness. I'm just
trying to talk to someone who has had a fusion done already to see what it's
really like. Any help you can give is much appreciated. In answer to your
question about the aches after surgery, my husband still is in constant pain in
both hands. The pain in the right wrist we are told is from the plates used
during a previous surgery. They could be taken out and in most likelyhood his
pain will go away. At this point we don't really trust anything we are told in
relation to this disease. Every surgery he has had we were told the pain would
go away after everything healed. WRONG!
Does your pain get worse when you do any kind of activity with your hands? His
seems to. But what can you do? You have to work and live life.
Hope to hear back from you.
Lori
To: KienbockDisease_Australia@...:
michele_m_barnes@...: Fri, 21 Mar 2008 00:49:56 -0700Subject:
[Kienbock Disease Australia] aches
Does anyone still have aches that are deep thinking you still have KD in your
wrist after surgery?? I had Ulnar shortening on the right wrist and if i use it
or sleep on it funny it aches all day. had MRI with negative results thank GOD!
What the heck is it then?? Had bad TFCC tear repair in that wrist to. With the
fusion in the left, sometimes I can not even pick something up it hurts so bad.
Anybody have anything for me??Michele---------------------------------Be a
better friend, newshound, and know-it-all with Yahoo! Mobile. Try it
now.[Non-text portions of this message have been removed]
__________________________________________________________
Test your Star IQ
http://club.live.com/red_carpet_reveal.aspx?icid=redcarpet_HMTAGMAR
[Non-text portions of this message have been removed]
---------------------------------
Looking for last minute shopping deals? Find them fast with Yahoo! Search.
[Non-text portions of this message have been removed]
Hi Michelle, I was reading your message to the group and I noticed you have had
a fusion. Was that a full wrist fusion that you had? My husband has KD in both
hands. They tell us that is highly unusual to have it in both wrists. He has
had two surgeries on each wrist so far. At this point he is looking at a full
wrist fusion in the left wrist. He is right handed thank goodness. I'm just
trying to talk to someone who has had a fusion done already to see what it's
really like. Any help you can give is much appreciated. In answer to your
question about the aches after surgery, my husband still is in constant pain in
both hands. The pain in the right wrist we are told is from the plates used
during a previous surgery. They could be taken out and in most likelyhood his
pain will go away. At this point we don't really trust anything we are told in
relation to this disease. Every surgery he has had we were told the pain would
go away after everything healed. WRONG! Does your pain get worse when you do
any kind of activity with your hands? His seems to. But what can you do? You
have to work and live life.
Hope to hear back from you.
Lori
To: KienbockDisease_Australia@...:
michele_m_barnes@...: Fri, 21 Mar 2008 00:49:56 -0700Subject:
[Kienbock Disease Australia] aches
Does anyone still have aches that are deep thinking you still have KD in your
wrist after surgery?? I had Ulnar shortening on the right wrist and if i use it
or sleep on it funny it aches all day. had MRI with negative results thank GOD!
What the heck is it then?? Had bad TFCC tear repair in that wrist to. With the
fusion in the left, sometimes I can not even pick something up it hurts so bad.
Anybody have anything for me??Michele---------------------------------Be a
better friend, newshound, and know-it-all with Yahoo! Mobile. Try it
now.[Non-text portions of this message have been removed]
_________________________________________________________________
Test your Star IQ
http://club.live.com/red_carpet_reveal.aspx?icid=redcarpet_HMTAGMAR
[Non-text portions of this message have been removed]
Hi Michele,
I am to this day having problems after my 2 surgries. I am up for my
third here in the next few months (when i have time built up at work)
my doctor has informed me that due to my last 2 surgries the
remaining bones that are left in my hand....are now shifting and I am
up for a top hand fusion. Maybe you should have your doctor check to
see if maybe that is an issue for you to?
Hope this helps.
Wishing you a pain free day.
--- In KienbockDisease_Australia@yahoogroups.com, Michele Barnes
<michele_m_barnes@...> wrote:
>
> Does anyone still have aches that are deep thinking you still have
KD in your wrist after surgery?? I had Ulnar shortening on the right
wrist and if i use it or sleep on it funny it aches all day. had MRI
with negative results thank GOD! What the heck is it then?? Had bad
TFCC tear repair in that wrist to. With the fusion in the left,
sometimes I can not even pick something up it hurts so bad. Anybody
have anything for me??
>
> Michele
>
>
> ---------------------------------
> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.
Try it now.
>
> [Non-text portions of this message have been removed]
>
DEAR COL,
I WILL WISH THE BEST FOR YOU AND JUST REMEMBER IT WILL GET BETTER,PLEASE JUST
REMEMBER WE ARE ALL HERE FOR YOU.KEEPING YOURSELF BUSY IN YOUR BUSINESS RIGHT
NOW COULD BE A GOOD THING.
JUST REMEMBER IF YOU NEED TO TALK OR VENT WE ARE HERE.
JOJO.
[Non-text portions of this message have been removed]
Does anyone still have aches that are deep thinking you still have KD in your
wrist after surgery?? I had Ulnar shortening on the right wrist and if i use it
or sleep on it funny it aches all day. had MRI with negative results thank GOD!
What the heck is it then?? Had bad TFCC tear repair in that wrist to. With the
fusion in the left, sometimes I can not even pick something up it hurts so bad.
Anybody have anything for me??
Michele
---------------------------------
Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
[Non-text portions of this message have been removed]
G'day Col,
Sorry to hear about you and Lisa, I hope that you get over it really
soon. There is always a light at the end of the tunnel.
Wishing you all the best,
Muneera
Hi Col,
I'm so sorry to hear your news and will be thinking of you at this tough time.
You must be feeling very low and really hope you come through this and feel
better soon.
You take care and mail anytime if you want a shoulder.
Take care
Fiona
Col <KienbockDisease@...> wrote:
G'day all,
Sorry haven't posted in a while, but unfortunately Lisa and I have
broken up, she just doesn't love me anymore so I have been very down
lately.
Anyway I am selling the house and moving on, as soon as I am
re-established in my new home (I am buying another house)I will get
back on the net and have a good chat to all.
Keep in touch guys as i need a lot of support right now, even my
doctor says i am unwell.
For all you folks that have posted lately sorry that i haven't
replied, but when your on a downer like I am, you just don't feel like
doing anything at all. Luckily my business is going good as its the
only thing keeping me going at the moment.
Toni can i ask that you please take over the running of the group for
a while just in case i am off line for a while.
Have a Happy Easter everyone,
talk soon,
Col
---------------------------------
Rise to the challenge for Sport Relief with Yahoo! for Good
[Non-text portions of this message have been removed]
G'day all,
Sorry haven't posted in a while, but unfortunately Lisa and I have
broken up, she just doesn't love me anymore so I have been very down
lately.
Anyway I am selling the house and moving on, as soon as I am
re-established in my new home (I am buying another house)I will get
back on the net and have a good chat to all.
Keep in touch guys as i need a lot of support right now, even my
doctor says i am unwell.
For all you folks that have posted lately sorry that i haven't
replied, but when your on a downer like I am, you just don't feel like
doing anything at all. Luckily my business is going good as its the
only thing keeping me going at the moment.
Toni can i ask that you please take over the running of the group for
a while just in case i am off line for a while.
Have a Happy Easter everyone,
talk soon,
Col
Ok so with all the failed surgeries 6 tota, I can not find a pain
killer that I am not allergic to or becomes allergic to down the line.
I have major aching in the left fusion and doubly so in the left wrist
that had the tfcc tear repair and the ulnar shortening.So what the
hay!! I am now on Lyrica. Does absolutely nothing. I take it 3 times a
day!! Anyone have any natural remedies other than an ax!! Shoot me an
email. I am about to go insane.
Michele B.
--- In KienbockDisease_Australia@yahoogroups.com, "Heather"
<poopycat@...> wrote:
>
> Hey ya'll - how the #%&?! are ya? Bet you thought my KD had eaten my
> brain and died me! You were right. Look forward to checking back in...
>
> Heather
>
Kienbock Disease Australia Support & Information Group
Risk
Factors
Different
predisposed risk factors have been implicated in the development of this
Disease. The most commonly cited factors are the interruption of the blood
supply to the lunate, negative ulnar variance, and the workplace environment.
These factors, as well as how to minimize the risk for developing this disease
will be discussed in the following paragraphs
Stahl
believed that in a lunate with an already tenuous blood supply, traumatic
compression fracture leads to avascular necrosis.
Lee
found three vascular patterns in lunates from cadavers: a single vessel, either
volar or dorsal, supplying the entire bone; several vessels at both volar and
dorsal surfaces of the lunate without central anastomosis; and several vessels
at both volar and dorsal surfaces of the lunate with central anastomosis.
Therefore according to Lee, patients with the former two patterns are at greater
risk for developing Kienbock's Disease.
In
fresh specimens, Gelberman and associates also studied the extraossoeus
and intraosseous blood supply of the lunate. They found that in intraosseous
blood supply consisted from three patterns : Y in 59%, I in 31%,
and X in 10%, with dorsal and volar anastomosis just distal to the center
of the lunate. Evaluation of the terminal vessels in the lunate allowed
Gelberman and associates to conclude that the proximal subchondral bone,
adjacent to the radial articular surface, was least vascular. Because of the
rich extraeossis blood supply, they discounted the theory held by some that interruption
of vessels entering a single pole of lunate caused avascularity. Based on the
work, Gelberman and co-workers suggested that it is intraosseous disruption of
vascularity, owing to repeated trauma with compression fracture, that cause
Kienbock's Disease.
Negative
ulnar variance as a risk factor has received considerable attention from the
research community. In 1928, Hulton noted that a short ulnar was present
in 78% of his patients with Kienbock Disease, where as only 23% of normal
patients had a short ulnar. He called this condition ulnar minus variant. Since
the condition was first discovered, many authors have confirmed negative ulnar
variance in patients with Kienbock's disease.
Theoretically,
a short ulnar variance, relative to the distal articular surface of the radius,
causes increased shear and compressive loads on the lunate. Elaborate studies by
Werner and associates proved that altered load transmission through the
radial carpal joint with ulnar minus variance predisposes the radiolunate
articulation to increase loads. This is thought to be a contributing factor in
the development of Kienbock's Disease.
Until
recently, Hulton's findings have been confirmed by many investigators but has
been questioned by others. To date, this controversy has not been resolved. To
make matters more complicated accurate measurement of ulnar variance is not
simple. As pointed out by Epner and Palmer, the apparent variance
changes with the position of the arm.
With
this in mind, Palmer and associates further standardized the method for
determining ulnar variance. They found the position of the distal ulnar, in
relation to the distal radial surface changes with varying degrees of forearm
rotation and that the change in variance was least with the elbow fixed at 90
degrees, The standard view recommended is a poster anterior wrist radiograph
obtained with the patient's shoulder abducted 90 degrees, the elbow flexed 90
degrees, and the forearm in neutral rotation. The importance of accurate
measurement of ulnar variance is highlighted by the recent gain in popularity of
ulnar lengthening and radial shortening techniques to treat Kienbock's Disease
It
appears the effect of aging on ulnar variance supports the theory that negative
ulnar variance is a predisposed risk factor in the development of this disease.
It has been shown by several researchers that ulnar variance increase with age.
The cause of the increase of ulnar variance with aging is unknown, but it might
be due to shortening of the radius because the force of the forearm muscle is
mainly transferred to the radius to developing Kienbock's Disease.
Although
Kienbock's Disease mostly affects young, active males, usually in the 3rd or 4th
decade of life, Yoshida reported that of a 127 cases reviewed, 15
patients were found with aged onset. Among these 15 cases women predominated.
This is a striking difference from Kienbock's Disease in young adults. Other
findings reported from that study revealed that symptoms in elderly are usually
not so severe and conservative treatment is typically effective. It was also
shown that the degree of negative ulnar variance was not as great as in the
young effected population. Several other researchers have shown that the degree
of negative variance is greater in males than in females. This supports the
findings that males are more susceptible.
Besides
the anatomical and biological factors, the workplace also has been implicated as
a contributing factor to the advancement of this disease. Occupations which
require the use of pneumatic tools such as a rivet gun and hammers are all at
particular risk for the development of Kienbock's Disease. The increased impact
loading upon the wrist is thought to be a catalyst for the disruption of the
blood supply to the lunate ultimately leading to its demise. The etiology of
Kienbock's disease is thought to be either repeated minimal trauma or by a
single acute episode. The underlying theme behind the theory of repeated minimal
trauma is repetition coupled with force. Both established Cumulative Trauma
Disorders (CTD) risk factors have been recognized as potentially harmful
elements to the musculoskeletal system. The other proposed etiology, a single
acute episode, indicates that force may be of greater importance. In either
case, ergonomist must evaluate these factors carefully when designing or
redesigning the workplace.
Wrist
posture has been indirectly implied as another possible risk factor for the
development of Kienbock's Disease. In two separate studies, individuals with
cerebral palsy were evaluated because they have a high muscle tone, which is
essentially repeated trauma, and the radiocarpul joint is constantly exposed to
considerably higher pressure than what is found in normal individuals. Rooker
and Goodfellow found five cases of kienbock's Disease in a group of 53
adults with cerebral palsy. An abnormally flexed wrist posture was a common
feature in all five cases. This suggested to them that this extreme posture
compromised the blood supply to the lunate and was considered a contributing
factor to the development of Kienbock's Disease. In a more recent study, Joji
reported that there is increased pressure between the radius and lunate due to
the dynamics conditions so excessive muscle tone characteristics of cerebral
palsy. The resting posture of their subjects was predominantly ulnar flexion
with one case of volar flexion. Joji and associates went on to conclude that it
was unlikely that volar flexion was the cause of Kienbock's Disease. However, in
both studies a resting deviated wrist posture was observed. It is therefore
possible that deviated wrist postures, incorporated with other risk factors
could lead to the development of Kienbock's Disease.
It
appears that the dominant hand of the worker is at the greatest risk for
developing Kienbock's Disease. This finding is consistent with the etiology. In
fact, the majority of the time Kienbock's Disease is unilateral.
Like
many other Cumulative Trauma Disorder's, Kienbock's Disease can be treated by
various medical interventions. Many of these interventions will relieve symptoms
but if the individual is returned to similar activities it is possible to see a
reoccurrence of Kienbock's Disease.
Subject:
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ColPickering
Group
Founder
Kienbock Disease Australia Support and
Information Group
Kienbock Disease Australia Support & Information Group
Onset
of Kienbock's Disease
Kienbock'
Disease is an isolated disorder of the lunate resulting from vascular compromise
to the bone. The symptoms include wrist pain, limited range and motion, and
decreased grip strength.
Kienbock's
Disease presents in various forms. The changes in the lunate may be very
localized or diffuse. With progression, the lunate may fracture into two pieces
or crumble into granules or produce an osteochondral fracture from one surface.
The
cartilage is not primarily involved in the pathogenesis and remains relatively
healthy. Bone death occurs over time. Often, a symptomatic wrist will
demonstrate normal X-rays with the diagnosis evident only on MRI. The degree of
loading of the wrist appears to be important and changes in the lunate are
cumulative.
Additional
fault plates may form in other areas of the lunate. This phenomenon is probably
present in most of our carpul bones, but time and avoidance of similar overload
injuries preclude development of multiple plates. Areas in the lunate reach a
critical state in which either a small section or most of the bone becomes
relatively walled off by multiple fault plates and further normal injuries can
no longer heal effectively because the capillary blood supply is inadequate.
Causing the bone to die, providing a significant area further limiting vascular
access.
Changing
one or more of the aetiological factors can halt progression and the necrosis
areas walled off by fault plates can probably heal. Collapsed areas, however,
remained deformed.
Most
cases of Kienbock's disease develop, then, as a result of a long process of
insult which is multifactorial in etiology, producing overload within the
substance of the bone. In the susceptible lunate, miniplanes of injury result in
relatively avascular fault plates, gradually sectioning off areas in the lunate.
Healing in these small areas cannot occur quickly enough if the abnormal loads
and demand continue, ultimately resulting in areas of cell death.
Kienbock Disease Australia Support & Information Group
SALVAGE
PROCEDURES in Kienbock's Disease
In
stage IV Kienbock's Disease, good results have been reported with Proximal Row
Carpectomy (PRC) and wrist arthrodesis (total fusion).
Choice
between the two procedures is determined by the needs and desires of the patient
and the integrity of the articular surfaces of the lunate fossa and the
capitate.
Proximal
row carpectomy should be reserved for those people who desire motion over
strength, whereas the wrist fusion is preferable in those people who need
strength. Total wrist arthroplasty is generally contraindicated in young active
people. Treatment choice must be based on a number of variables, including the
experience of the surgeon, the desires and activity level of yourself.
In the
early stages, efforts should be made to salvage the lunate and prevent loss of
normal architecture. In the later stages, efforts should be made to restore that
architecture. In the end stage, normal architecture must be sacrificed to
restore function.
PROXIMAL
ROW CARPECTOMY:
Excising
the proximal carpal row so that the capitate articulates with the lunate fossa
on the radius is rarely indicated, as the capitate and radial articulations are
almost invariable damaged by the disease process to the lunate. However, the
procedure can produce good results in carefully selected cases of wrist arthritis
where the two key articular surfaces are considered to be satisfactory on
radiographic assessment. The proximal carpul bones are excised through a dorsal
approach with dorsal capular repair. The wrist is rested in a cast in neutral
flexion/extension for 4-6 weeks and the mobilized. Power and movement are only
slowly regained but the patient usually obtains 40-60' of flexion/extension
range around the neutral point with moderate grip strength one year after
surgery. If the key articular surfaces were in satisfactory condition
pre-operatively, reasonable pain relief is obtained.
ARTHRODESIS
of the wrist.
Fusion
of an osteoarthritic wrist is most commonly obtained by the use of a plate and
screws to radius, carpus and third metacarpal, augmented with cancellous bone
graft. Slight dorsal angulation potentiates grasp. The dorsal incision extends
to the radius, retracting the extensor indicis proprius compartment radially and
the extensor compartment ulnarly. The dorsal two thirds of the articular
surfaces of the wrist joint are rawed and the cavitates packed with cancellous
bone. Modern low profile plates and screws are not unduly prominent, and there
is normally no need to remove the metal work unless discomfort is experienced.
The stability of the fixation is such that the fingers and the thumb can be
mobilized immediately. The dissection can largely avoid direct exposure of the
extensor tendons, reducing the risk of tendon adhesions.
DENERVATION
of the wrist.
No
attempt is made to treat the arthritis, simply the pain that it causes. The
nerves that supply the carpus are classified into radial, median and ulnar
groups, and a serial nerve blocks will reveal to an extent the likely result of
ablation of these various nerves. An extensive long term study has shown it to
be useful in reducing pain but retaining movement, apparently without the risk
of a Charcot joint. ninety per cent of these series were considered to have
gained reasonable pain relief (60% pain free and 30% improved).
OPERATION
DETAILS
(44
year old patient0
(P2) Bilateral Wrist
Denervation / 3 Incisions on each wrist / 2 Dorsal Incisions / 4th & 5th
Compartments / Posterior Interosseous Nerve divided / Branches of Ulnar Nerve
divided / Volar Curved Incisions / Radial Nerve and Vessel Branches divided /
Anterior Interosseous Nerve and Branches Identified and divided / 20mls
Ropivacaine to each wrist / Vicryl Fat / Nylon Skin / Jelenet/Melolin/Wool/Crepe
POST
OP COMMENTS - Elevate / Home / Reduce dressing 72 hrs / Out Patients Review
2 weeks
Kienbock Disease Australia Support & Information Group
Treatments
Kienbocks
Disease may be treated by immobilization, revascularization, ulnar lengthening
or radial shortening, simple excision, limited intercarpul fusion, or salvage
procedures.
Immobilization
Prolonged
immobilization of the wrist has been tried in all stages of Kienbock's disease.
In some cases it has shown to lead to continued collapse of the lunate. For
Stage I, however, immobilization may be indicated in hopes that the vascular
insult is kept to a minimum and that the lunate is given a chance to heal.
Because diagnosis in this stage is often difficult, a trial period of
immobilization may result in characteristic radiographic changes that establish
the diagnosis.
Revascularization
In
stage II Kienbock's Disease, before the lunate has collapsed, it is possible for
the lunate to regain blood supply.
One
procedure is which a small piece of volar radial bone, still attached to the
pronator quadratus muscle, is grafted to the avascular lunate. This procedure is
done through the volar approach with division of the palmer and transverse
carpul ligaments in order to mobilize the median nerve. After the volar wrist is
entered the lunate is burred with a high speed drill in preparation to receive a
1 to 1.5 cm piece of radial bone still attached to the pronator quadratus
muscle. This is secured with pull out wires or clips.
A
similar revascularization procedure uses the pisiform. Pisiform transfer on its
vascular pedicle. Has found uniformly good results
Another
is described as direct transplanting of a vascular bundle into the vascular
lunate, with successful results.
It must
be remembered, however, that none of the revascularization procedures are likely
to work in the face of severe collapse (stage III), for even if they are
successful in re-establishing blood supply, lunate height and normal carpul
kinematics will not be restored.
Ulna
Lengthening and Radial Shortening
On the
basis of the theory that ulnar minus variance is a significant etiologic factor
in Kienbock's Disease, some have advocated equalization of the distal articular
surfaces by either ulnar lengthening or radial shortening. Both procedures have
had good results reported. However, it seems unlikely that leveling of the
distal articular surfaces of the lunate can restore an already collapsed lunate.
These procedures remain questionable in advanced stage III.
Both
radial shortening and ulnar lengthening require osteotomy. A segment of bone is
removed when radial shortening is done and a segment of bone graft inserted when
ulnar lengthening is done. After either, fixation is usually accomplished with a
compression plate. It is generally recommended that the ulnar variance be
changed to 1 to 2 ml positive variance by placing an appropriate sized
interpositional graft during ulnar lengthening.
Radial
shortening may be preferable to some because it does not require a second
surgical incision to harvest bone graft.
Excision
of the Lunate
Lunate
excision was one of the first surgical procedures for Kienbock's Disease. The
rational of this procedure is to remove sequested bone that is provoking painful
synovitis. Some have reported good results from simple excision others critize
the procedure predicting late proximal migration of the capitate.
Limited
Intercarpul fusion
Its
most important advantage is that radiocarpul motion is maintained, unlike with
complete wrist arthrodesis.
Patients
with severe fragmentation of the lunate undergo resection of the necrotic bone,
osteotomy of the capitate in its mid portion, and proximal displacement of the
proximal capitate fragment, which is secured to the scaphoid and triquetrum with
bone pegs. Essentially, the space vacated by excision of the lunate is filled by
the proximal half of the capitate fragment, and the space left by osteotomy of
the capitate is filled by autogenus bone graft. The procedure is then completed
by performing arthrodesis of contiguous surfaces of the hamate, capitate,
scaphoid and triquetrum by first denuding articular surfaces and securing the
bone with small cortical bone pegs. When the lunate remains suitably intact,
osteotomy of the capitate is omitted, as is lunate excision, and the contiguous
surface of the lunate, scaphoid, triquetrum, hamate and capitate are
arthrodesed.
Once again buggin you for Stories for "Kienbock's Disease:The Real Story".
Info required : any thing and every thing you want to
share on, how you deal with Kienbock's Disease. Your story on how you found out
you had Kienbock's Disease. How you deal with Kienbock's Disease in your every
day life and how it has affected your life. The operations you have had and
your stages variations etc...
Please email : KDTheRealStory@...
Thanks to all those who wish to participate in
this venture.
I hope that it will offer and teach people down the track how we
all look after KD and care for ourselves as we are all different, and as we all
no we are rarely the same, as KD cases are not alike.
And as Kienbock's Disease is a rare Disease. Well, I feel its about time we started documenting as many cases as we can.
I would like as much response as possible. You can remain anonymous if you
wish.
Please email :KDTheRealStory@...
I also ask when you send your story could you please send it in HTML format or
in a format that can be converted to HTML, thankyou.
Kienbock Disease Australia Support & Information Group
Stages
of Kienbock's Disease
Kienbock's
Disease follows a specific progressive pattern which is formed into stages.
Initially,
in the early phases of Kienbock's Disease, the changes are localized to the
lunate. In these phases, radiographs reveal increased density, which progresses
to lunate collapse. In the later phases, the pathology involves the mechanical
structure and kinematics of the wrist, not just the lunate. In the more severe
disease, the proximal widens, and rotatory instability of the scaphoid and
diffuses degenerative changes occur.
Stage
I
In
this Stage, radiographs are normal except for the possibility of a linear or
compression fracture that may be shown on tomography. In this phase, bone scan
usually is abnormal, and magnetic resonance imaging (MRI) is currently
diagnostic.
It
should be noted that MRI was not available for the diagnosis of this disorder
when this classification was devised. Many have suggested that Stage 0 should be
added for those cases in which MRI changes are the only diagnostic clues. It
should be clearly understood that these cases fit into Stage I.
Stage
I was a stage awaiting a diagnostic tool. In fact, Litchman states in his paper
that "radionucleide scanning in stage I may be abnormal, and refinements in
current techniques may soon permit reliable early diagnosis.
Stage
II
Disease
in this Stage is still localized to the lunate. The size, shape, anatomic
relationship, and kinematics of the carpal bones are not significally altered.
The lunate has a definite increased density relative to the other carpal bones.
Late in this Stage, some bone height may be lost on the radial side of the
lunate fracture that may be shown on tomography. In this phase, bone scan
usually is abnormal, and MRI is currently diagnostic.
Stage
III
This
Stage is the transitional one in which the disease begins to affect the carpal
structure and kinematics. At this point, the lunate has collapsed in the frontal
plane and elongated in the sagittal plane. The capitate begins to migrate
proximally. Foreshortening of the scaphoid (the ring sign), scapholunate
dissocation, and ulnar deviation of the triquetrum may or may not be present
radiographically. Measurements of the carpal height ratios, or the lunar
perimeter and lunate area indices, help determine the degree of carpal collapse.
This
transitional Stage is divided into Stages IIIA and IIIB. In Stage IIIA, lunate
collapse occurs without fixed scaphoid rotation and other secondary
derangements.
Stage
IV
All
the findings of Stage III are present as well as generalized degenerative
changes in the carpus. The surface of the adjoining bones affected resulting in
generalized inter-carpal arthritis in the wrist.
CHAT ROOM: Letting all members know that there is regular CHAT SESSIONSTens times a
week at http://groups.yahoo.com/group/KienbockDisease_Australia/Chat. For Real Chat
times refer to Kienbock Disease Australia
Chat memo. It would be good to see more members in the chat room as it is a
fast way of gathering information, or even if its to get something off your
mind, we also have a bit of a laugh with each other as well.
FILES: If you have any information you would like to share, you can list
them in Files section. Also
I am currently storing stories for Kienbock Disease The Real Story
PHOTOS: If you have any x-rays or photos you wish to share you can place
them in the Photosection.
DATABASE: The Database has member
contact info in it. You are welcome to leave your details there if you wish.
POLLS: Letting all members know that there are some Polls running and I
ASK ALL MEMBERS to fill in these POLLS as it gives us an idea as a group
the differences between our condition of Kienbock's Disease. I also ask all
members to update these POLLS every six months, because as time goes by,
so does your condition change and the operations you may have. All Polls are strictly
confidential.
EDIT
MEMBERSHIP: If you change your email address, I ask all members to edit that
information on their membership details, thankyou.
CALENDAR: If you have any useful happenings? (operations,
birthdays etc...) you can mark them in the Calendar Also chat
topics for the week can be found here.
This Information is only available to group members, as non
members can only access the home page. Once again I welcome all new members, and one day the answer to that
question we seek." How and why did I get Kienbock's Disease ?" may be
answered.
Assistant Moderator's Toni (USA), Jay (Canada)
and Fiona (UK).
Disclaimer All references to the subject 'Kienbock's Disease' is from
members
own personal experiences or personal research done by members.
It should never be taken as 'yes' this will fix me, but we will give you
options of what is available, specialist's in your location to see etc... and what to look forward to into the future from past
experience's.
Kienbock Disease Australia Support & Information Group
What
is Kienbock's Disease ?
"The
Disease you never hear off or you have never heard off, until you get
it".......( Col Pickering )
Avascular
Necrosis of the Lunate
n:
osteochondrosis affecting the lunate bone - called also lunatomalacia.
Basically,
the blood supply to the lunate bone shuts off, which causes the bone to die,
with eventual collapse of the lunate bone.
As this
is a RARE DISEASE little is known about its causes.
KIENBOCK
ROBERT ( 1871-1953 ) Austrian Radiologist.
Kienbock
pioneered in Radiology. From 1910-1911 he published descriptions
"Concerning Traumatic Malacia of the lunate and its Consequences :
Degeneration and Compression Fractures", descriptions of dislocations of
the hand and a slowly progressive Chronic Osteoitis involving the Lunate Bone.
Kienbock
described the process of Lunatomalacia both the Radiographic changes seen with
the disease, and the clinical symptomatology that accompanied it.
Radiographically,
Kienbock described various changes in the lunate with the vast majority of cases
beginning the disease in the proximal portion, preserving the distal portion
articulating with the capitate. In some radiographs, the shape of the lunate was
preserved and only the internal structure was altered, with radiographs
demonstrating areas of increased intensity. In most radiographs, however, with
the progression of the disease, the shape of the lunate was significantly
affected with the destruction of the proximal portion and loss in height of the
bone.
Kienbock
noted that the disease usually occurred in men in their thirty's and forty's who
were heavy labourers. Frequently they would have an antecedent trauma with
negative radiographs and were diagnosed with a sprain. Overtime, the clinical
course would progress with pain, swelling and restricted motion of the wrist.
Percussion of the third metacarpal ( the hand held in a fist ) produced pain in
the lunate region and when comparing hands shortening of the carpus might be
evident.
Radiographs
demonstrated radiographic changes in the lunate and loosening of the radiocarpul
joint, which Kienbock thought promoted mechanical damage. This loosening
probably referred to the increased radiocarpul space due to synovitis,
proceeding radiocarpul arthrosis.
Kienbock
favoured the view that the condition was due to a disturbance in the nutrition
of the lunate, caused by a rupture of the ligaments from a sprain or
sublixation. Leading to, rather than being a result of compression fractures.
Kienbock
believed that recovery from this disturbed nutrition only occurred in acute
cases, and in late cases, it could be treated only by removal of the lunate.
Usually
at surgery or on a post mortem examination, the lunate was found in two
fragments, as previously described by anatomist's, one volar and one dorsal.
Kienbock Disease Australia Support & Information Group
Diagnosis
of Kienbock's Disease
Kienbock's
Disease is diagnosed radiographically. The characteristic changes of
the lunate include increased density, fracture lines, fragmentation,
and progressive collapse of the lunate.
It
should be distinguished from other causes of wrist pain and swelling
particularly in the early stages.
Disorders
to rule out include rheumatoid arthritis, post traumatic arthritis,
synoval based disease, acute fracture, carpul instability, and ulnar
abutment syndromes. The radiographic hallmark of increased density
seen typically in Kienbock's disease should be distinguished from
transient vascular compromise.
Once
the Diagnosis of Kienbock's Disease is established, the degree of
involvement should be determined in order to assist you through the
many treatment options. Casting for 2 to 3 weeks in uncertain cases
will usually reveal the diagnosis by relative disuse osteoporosis of
the adjacent carpul bones.