test please ignore

G'day Shazz.

Before you go to doc check out this site www.darkerblue/kienbock as is full of info including questions and answers for docs.

Long term pain killers? In my books what will they do to your internal system?

I prefer to go without them.

Wax bath, yes I have had several, relaxing and felt great at the time, but to tell the truth I don't think they helped at all.

Where abouts are you, as there may be others in your area. So maybe you will get to meet another KDer.

Take care Shazz and let us know how appointment goes.

Col

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it was 3 years before they found out what was wrong with my wrist.
it hurt so bad but every e-ray nothing came back, nothing was wrong.
so i could not stand the pain any more so my mom took me to her
doctor and he made me go get an mri so the test came back as i had
kienbocks, well i had surgry like 3 months ago and i am doing good
now they found it at stage 4, yep i had the last stage. so that is
mu story, e-mail me for more info

Hi Shazz, info on celebrex can be found on www.medsafe.govt.nz. Go
into data sheets and find the alphabetical listings. I use this site
a lot for all drugs cos it gives good ?unbiased information. I think
if you already have a cardiac complaint, then there maybe reasons to
be cautious with celebrex. That still doesn't mean you should stop
taking it. I know the site is a kiwi one and I'm not sure if there
are drug name changes between countries. But give it a whirl or as my
mother used to say "suck it and see" She was a little odd though!!!!
Lois

Hi shazz,
i had a prc 3/02 could not stand the pain so went for total fusion
11/14/02 my doc put in synthic bone and a plate with 6 screws, my
hands are very thin so my plate pokes out and the doc will have to
take it out soon as the bones grow together. he says the tendons will
grow under it and rub it will hurt like hell. i was in stage 4 and
had a total collapse of the lunate.  to me the fusion was the best
thing i ever did.  i am still healing and on disability from the
goverment. i do not know how much longer it will take. but i can not
wait until the next surgery...lol  i do keep my splint on most of the
time it does help with pain. but of that is not good enough my doc
put me on lortab 7.5 for bad pain. without my splint or hand i do not
know what i would do. it just makes me feel better. when the left
gets well on the left i get to go for my right hand yeah!  as far as
the bath it is a miricle.  after diping i wrap it in cling wrap and
the heating pad for 15 minutes.  that is what the therpist did after
the 3/02 surgery so i am doing that as well.  if i can be of any help
let me know.  wishing you a pain free day.

your kd frind
Toni Reeves

--- In KienbockDisease_Australia@yahoogroups.com, "shazzjp
<mitsu64@h...>" <mitsu64@h...> wrote:
> Hi guys....just love being part of such a supportive group of
people.
> Never met any of you and maybe never will but is great to know
there
> are fellow sufferers who do understand what we are all going
through
> in various degrees.
>
> I "stumbled" onto using Celebrex (200mg once daily) after injuring
my
> foot and needing an anti-inflammatory. Found it very good. I have
> heard mutterings through websites and friends in the medical
> profession saying that taking it long term - nearly 3 yrs now- will
> have adverse effects on my heart. What is the current feeling or
> knowledge about this? Can anyone help me?
>
> I want to be informed before I see the specialist on Monday. I find
> that like most specialists, my ortho surgeon responds better to me
> and my questions if I give him the impression that I have made an
> effort to get some info about KD and its latest treatments.
>
> I am scared out of my wits about this appointment on Monday. Keep
me
> in your thoughts and prayers please.
>
> Also can anyone who has had a total wrist fusion give me an idea of
> approx. healing time. I am due to start a 6 month teaching contract
> in June and I need to decide if I need a total fusion, whether I
> should get it done before hand or wait till my contract is finished
> in December - and I will have to explore my pain options if
December
> is my choice.
>
> Anyone ever had a wax bath for their wrist? The physio who made my
> static brace let me use one and the relief was amazing. At that
time
> they were not available commercially.
>
> Well, my painkillers are kicking in and I need some shut eye. Maybe
I
> will wake up tomorrow and this disease will be a bad
> dream........just maybe.
>
> Nite all and take care
>
> ~~Shazz~~

----- Original Message -----

From: shazzjp <mitsu64@...>

To: KienbockDisease_Australia@yahoogroups.com

Sent: Wednesday, February 05, 2003 11:16 PM

Subject: [KienbockDisease_Australia] Celebrex

Hi guys....just love being part of such a supportive group of people.
Never met any of you and maybe never will but is great to know there
are fellow sufferers who do understand what we are all going through
in various degrees.

I "stumbled" onto using Celebrex (200mg once daily) after injuring my
foot and needing an anti-inflammatory. Found it very good. I have
heard mutterings through websites and friends in the medical
profession saying that taking it long term - nearly 3 yrs now- will
have adverse effects on my heart. What is the current feeling or
knowledge about this? Can anyone help me?

I want to be informed before I see the specialist on Monday. I find
that like most specialists, my ortho surgeon responds better to me
and my questions if I give him the impression that I have made an
effort to get some info about KD and its latest treatments.

I am scared out of my wits about this appointment on Monday. Keep me
in your thoughts and prayers please.

Also can anyone who has had a total wrist fusion give me an idea of
approx. healing time. I am due to start a 6 month teaching contract
in June and I need to decide if I need a total fusion, whether I
should get it done before hand or wait till my contract is finished
in December - and I will have to explore my pain options if December
is my choice.

Anyone ever had a wax bath for their wrist? The physio who made my
static brace let me use one and the relief was amazing. At that time
they were not available commercially.

Well, my painkillers are kicking in and I need some shut eye. Maybe I
will wake up tomorrow and this disease will be a bad
dream........just maybe.

Nite all and take care

~~Shazz~~



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KienbockDisease_Australia-unsubscribe@yahoogroups.com



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Hi guys....just love being part of such a supportive group of people.
Never met any of you and maybe never will but is great to know there
are fellow sufferers who do understand what we are all going through
in various degrees.

I "stumbled" onto using Celebrex (200mg once daily) after injuring my
foot and needing an anti-inflammatory. Found it very good. I have
heard mutterings through websites and friends in the medical
profession saying that taking it long term - nearly 3 yrs now- will
have adverse effects on my heart. What is the current feeling or
knowledge about this? Can anyone help me?

I want to be informed before I see the specialist on Monday. I find
that like most specialists, my ortho surgeon responds better to me
and my questions if I give him the impression that I have made an
effort to get some info about KD and its latest treatments.

I am scared out of my wits about this appointment on Monday. Keep me
in your thoughts and prayers please.

Also can anyone who has had a total wrist fusion give me an idea of
approx. healing time. I am due to start a 6 month teaching contract
in June and I need to decide if I need a total fusion, whether I
should get it done before hand or wait till my contract is finished
in December - and I will have to explore my pain options if December
is my choice.

Anyone ever had a wax bath for their wrist? The physio who made my
static brace let me use one and the relief was amazing. At that time
they were not available commercially.

Well, my painkillers are kicking in and I need some shut eye. Maybe I
will wake up tomorrow and this disease will be a bad
dream........just maybe.

Nite all and take care

~~Shazz~~



To unsubscribe from this group, send an email to:
KienbockDisease_Australia-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

Hi guys....just love being part of such a supportive group of people.
Never met any of you and maybe never will but is great to know there
are fellow sufferers who do understand what we are all going through
in various degrees.

I "stumbled" onto using Celebrex (200mg once daily) after injuring my
foot and needing an anti-inflammatory. Found it very good. I have
heard mutterings through websites and friends in the medical
profession saying that taking it long term - nearly 3 yrs now- will
have adverse effects on my heart. What is the current feeling or
knowledge about this? Can anyone help me?

I want to be informed before I see the specialist on Monday. I find
that like most specialists, my ortho surgeon responds better to me
and my questions if I give him the impression that I have made an
effort to get some info about KD and its latest treatments.

I am scared out of my wits about this appointment on Monday. Keep me
in your thoughts and prayers please.

Also can anyone who has had a total wrist fusion give me an idea of
approx. healing time. I am due to start a 6 month teaching contract
in June and I need to decide if I need a total fusion, whether I
should get it done before hand or wait till my contract is finished
in December - and I will have to explore my pain options if December
is my choice.

Anyone ever had a wax bath for their wrist? The physio who made my
static brace let me use one and the relief was amazing. At that time
they were not available commercially.

Well, my painkillers are kicking in and I need some shut eye. Maybe I
will wake up tomorrow and this disease will be a bad
dream........just maybe.

Nite all and take care

~~Shazz~~

Thanks for that Lois!
I was taking vioxx for a while there but honestly couldn't feel it having
any effect. I also have tramadol for when the pain gets too much. The first
time I had it, it made me quite dopey but now it only works sometimes if I
haven't had it in quite a while.
Unfortunately Paracetemol has never worked for me, even as a child. I used
to suffer from migraines so we found from an early age that I have a high
tolerance to prescription drugs. (Give me a joint though and I'm on the
floor for hours haha hmm... forget that one will we? hehe). I haven't heard
of amytriptyline but I'll ask my doctor about it. Something that might work?
For someone who used to take the natural way through things (Echinacea and
sleep for colds, perseverance for headaches lol), I certainly feel like a
drug cocktail lately!
Anyway, thank you very much for that info! It was very helpful

Ali



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Hi Ali, if celebrex works for you then that's fantastic. Here are
some other tips for pain relief for anyone that's interested:
- if you take paracetemol, make sure that you take it regularly. That
means take it every 4 hours. This drug is underestimated because it
is readily available. It also improves the performance of other drugs
such as anti inflammatories, codeine and tramadol. If you use panadol
a lot, just get your liver function levels checked every couple of
months.
- codeine is another very good drug. (use with paracetemol). Make
sure you eat lots of kiwi fruit so you don't get bunged up though.
1/10th of this drug converts to morphine in your system
- tramadol works slightly differently but can often make people feel
nauseous. I use this one and have found it very good. If you have a
job that requires a lot of responsibility or concentration, be wary
as you can float through the day (sometimes not a bad option compared
with pain)
- amytriptyline. Although the purpose of this drug is for
antidepression, it has excellent pain relief properties because the
neurotransmitters it targets for depression are also the ones for
pain. It also improves your sleep patterns
- vioxx is a anti inflam which does not have the side effect of
potentially creating an ulcer or bleeding in the bowel. It's the new
celebrex but may cost a lot. (It does in NZ)

Don't be afraid to use medications if you need them. I apologise if I
am preaching to the converted, or if these drugs have been tried and
have been found to be ineffective. I have an interest in pain
management (especially at work) so if anyone has any other good drugs
they want to share, please let me know. Hope this helps someone.

Lois

I just had another appointment with the normal doctor who is helping to
treat my wrist. He spoke with my physiotherapist who wants to order a bone
growth stimulator to use on the wrist. He didn't know if it had been used in
KD before but said he couldn't see a problem in trying. Apparently it would
have to be used every day for about 6 months. Has anyone else used one? If
so did it help? I haven't had any sugery yet and the PT is basically just to
try to keep the ROM that I have, and for monitering my wrist while I'm in
the guard (which is 24/7) so that it doesn't get lazy and cause more
problems.
I've also been taking celebrex 100mg to get rid of the synovitis. So far
it's been brilliant but I don't know if that's just a mentally stimulated
thing, like maybe I think it's working so it is. I don't really care either
way the pain I *haven't* felt has been great hehe

best wishes to everyone!:o)

Ali

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I've always wanted a brightly coloured stripey brace with glitter on
the straps!!!! (The older I get, the younger I become. Sad isn't it?)
Speaking of colour, Col, how do you get the type face and colour of
your messages to look the way it does. I'm still a novice at the old
computer etc but it looks nicer than this type face.

All hail to pain free wrists!!  Lois



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I just had another appointment with the normal doctor who is helping to
treat my wrist. He spoke with my physiotherapist who wants to order a bone
growth stimulator to use on the wrist. He didn't know if it had been used in
KD before but said he couldn't see a problem in trying. Apparently it would
have to be used every day for about 6 months. Has anyone else used one? If
so did it help? I haven't had any sugery yet and the PT is basically just to
try to keep the ROM that I have, and for monitering my wrist while I'm in
the guard (which is 24/7) so that it doesn't get lazy and cause more
problems.
I've also been taking celebrex 100mg to get rid of the synovitis. So far
it's been brilliant but I don't know if that's just a mentally stimulated
thing, like maybe I think it's working so it is. I don't really care either
way the pain I *haven't* felt has been great hehe

best wishes to everyone!:o)

Ali

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Welcome Shazz, Sorry you have to be here but this is the best place for a person with KD to be. All our best hopes and wishes, Melodie & Jay

 Shazz Pratten <mitsu64@...> wrote:

Dear Fellow KD Sufferers

Was so pleased to find your group and discover that you are homegrown down
here in Oz.
After yrs - and I mean years - of pain, Xrays, medical opinions and honestly
believing I was going out of my mind, I was much "relieved" to discover that
I had Kienbocks Disease. My diagnosis was purely accidental and caused great
excitement with the radiographer who picked it up. No-one else in the office
quite knew what he was getting excited about.
Not long after my diagnosis I discovered I was pregnant with our third child
and this didn't impress my ortho surgeon. After our daughter was born and I
learnt to care for her virtually one handed as the pain in my wrist so so
intense and I had no strength, I had my lunate removed and a
capitate/schaphoid fusion.
That was in 1997 and the surgeon gave me 5 yrs - 10 if I was lucky. Well
guess what.....5 yrs is up and I have an appointment with him again next
Monday.
I am full of fear and trepidation as to what he is going to tell me but the
pain is at times almost unbearable, it overides everything.
It is awful having this disease and trying to explain it to others. Even
people in the nursing profession will look at you with a bemused look when
you tell them what you have.
I hope to gain some support from being a member of this group. My husband
and my children have been wonderful but I am sure you will all agree that
unless you have this disease, you can't real;ly appreciate it.
Till next time
Shazz

I've always wanted a brightly coloured stripey brace with glitter on
the straps!!!! (The older I get, the younger I become. Sad isn't it?)
Speaking of colour, Col, how do you get the type face and colour of
your messages to look the way it does. I'm still a novice at the old
computer etc but it looks nicer than this type face.

All hail to pain free wrists!!  Lois

----- Original Message -----

From: Alison Beattie

To: KienbockDisease_Australia@yahoogroups.com

Sent: Tuesday, February 04, 2003 9:37 PM

Subject: [KienbockDisease_Australia] funky wrist guard

Dy said:
  "the brace is kinda trendy tho hehe a cool purple color with black velcro
straps.."

awww man! How come you get a purple one! I have a white one with blue
straps. I did however get mine signed by the drummer and lead singer of a
band I went to see two weeks back, so it is worth more now hehe.
Happy healing!

Ali





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