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Group Information

  • Members: 368
  • Category: Cancers
  • Founded: Jan 31, 2000
  • Language: English
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Activity within 7 days:

1 New Member - New Questions

Description

Welcome to KECF, a moderated forum for families affected by retinoblastoma (Rb), an aggressive eye cancer affecting babies and young children. We are parents and survivors who aim to offer hope and encouragement for all who have been touched by Rb.

Three things to remember about retinoblastoma:
  • Rb usually develops before three years of age and is highly curable when diagnosed early and treated correctly
  • The most common early sign is a white pupil that can be seen in flash photos and certain types of light. White pupil in a young child should prompt an urgent referral to an ophthalmologist (eye doctor) for a dilated eye exam
  • More than 96% of children survive this cancer in the developed world, but 92% of affected children live in less developed countries, and global survival is less than 20%
This group is moderated by Daisy's Eye Cancer Fund (DECF), an organisation taking a global response to childhood retinoblastoma. To learn more about Rb and the work of DECF, please visit the DECF website

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 3 1 30 13 9 1 2 1
2008 1 9 23 5 14 41 28 2 2 2 5 33
2007 34 52 61 172 57 17 52 19 14 28 12 2
2006 108 104 160 79 60 44 57 36 16 56 39 35
2005 90 123 161 122 58 48 92 80 118 107 107 98
2004 147 85 84 63 49 75 58 13 40 62 58 44
2003 200 90 176 107 235 209 158 113 154 36 66 67
2002 40 3 5 84 20 33 50 116 51 86 57 50
2001 94 96 77 14 190 143 20 103 47 14 3 19
2000 3 41 33 16 7 18 21 4 6 22
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Related Link: http://www.daisyseyecancerfund.org
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