This is intended as a support group for families of children with LLDs. We welcome those families who are seeking information on treatment, in particular limb lengthening, as well as those who have been through this process. Those who have been considering alternatives to limb lengthening are also welcome to join.

This group will be monitored by staff from the International Center for Limb Lengthening, and we hope to have some of the ICLL physicians available occasionally to answer questions if time allows.

Adults with LLDs are also welcome to join, however at this time we are not going to be discussing cosmetic lengthening.

Since this list appears in the groups directory and involves children, we will be very strict about who can join. People wishing to join will need to explain why - just a description of the diagnosis, treatments etc. We want to make sure no one "bad" gets in. However because we cannot always control who joins, please be careful about giving out too much personal information