NOTE - Approval is necessary to join this list. If you neglect to include a brief statement about yourself, your request will be denied.
Welcome!
This list is for any parent or adult caring for a child or young adult with Juvenile Huntington's Disease. Here we meet and share the special needs, both emotional and physical, involved with raising and caring for a child [or children] with this devastating disease.
Due to the sensitivity of some of the issues discussed in our group, you need to submit a request to join before being permitted to post messages. This also helps to eliminate the spam messages all lists are subjected to.
If you are just seeking information on Juvenile Huntington's Disease you can contact the Huntington's Disease Society of America 1-800-345-4372 or www.hdsa.org and request information. There is also information available in the "files" section on this group.
When you send me an email requesting to join our list, please provide your name [first name is okay], where you are from and tell us a little bit about yourself and your child!