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JHDCargivers · Juvenile HD Caregivers Club

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NOTE - Approval is necessary to join this list. If you neglect to include a brief statement about yourself, your request will be denied.

Welcome!
This list is for any parent or adult caring for a child or young adult with Juvenile Huntington's Disease. Here we meet and share the special needs, both emotional and physical, involved with raising and caring for a child [or children] with this devastating disease.

Due to the sensitivity of some of the issues discussed in our group, you need to submit a request to join before being permitted to post messages. This also helps to eliminate the spam messages all lists are subjected to.

If you are just seeking information on Juvenile Huntington's Disease you can contact the Huntington's Disease Society of America 1-800-345-4372 or www.hdsa.org and request information. There is also information available in the "files" section on this group.

When you send me an email requesting to join our list, please provide your name [first name is okay], where you are from and tell us a little bit about yourself and your child!

Thank you!
Jean Miller

Message History

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2013 21 13 7 10 7
2012 69 17 14 1 8 10 5 1 5 1 15
2011 41 35 36 19 13 26 25 18 16 12 14 18
2010 67 35 45 70 61 69 53 47 17 67 46 35
2009 59 26 23 48 56 75 41 56 40 31 55 21
2008 109 92 114 36 45 30 59 50 73 39 49 18
2007 76 71 45 46 57 36 84 135 108 140 55 71
2006 155 116 183 88 80 98 169 70 138 208 91 64
2005 12 24 17 27 94 91 86 119 131 186 173 124
2004 14 14 19 15 16 9 10 44 31 18 15 6
2003 26 26 30 18 33 34 31 26 21 19 9 14
2002 41 3 6 34 54 31 16 7 12 24 24 13
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