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Inflammatorybreastcancer · Inflammatory Breast Cancer

Group Information

  • Members: 13
  • Category: Breast Cancer
  • Founded: Mar 3, 2008
  • Language: English
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Description

This is a group for young women who have Inflammatory Breast Cancer or who have had Inflammatory Breast Cancer between the ages of 20-45.

I was diagnosed with inflammatory breast cancer on February 3rd, 2008. I thought I had the usual plugged duct from nursing my one year old son. It didn't go away for two months. Plugged ducts don't last that long...but I didn't realize that and because I didn't have fever the receptionists at my OB office assumed I didn't have mastitis and it never crossed their mind that I might have IBC because it is so rare. They didn't worry about getting me in very quickly. In fact, I finally had to insist they get me in for care. I am thankful to the doctor who looked at my breast and told me honestly that it was probably cancer.

I have been able to connect with lots of breast cancer survivors, but none with specifically Inflammatory Breast Cancer. My hopes are that this will become a place of support, education, sharing and maybe even advocacy.

It would seem that we are few and far between, but maybe if we come together we can make a difference and more women will become aware of the symptoms and diagnosis will come earlier and lives will be saved.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 5 8
2008 22 24 4 4
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