Annual Members Meeting
IVPF 2005 Board of Directors Present:
· Amy Brown Gaghagen, President
· Debi Pederson, Vice President
· Cynthia Balota Paris, Secretary
· Victoria Goldstein, Treasurer
· Phil Millard
· Meredith Kirby
· Karen Peters
IVPF Participating Members Present:
· Jeannette Schwartz, Assistant Secretary
· Kristen Lewis
Location: 5250 Murdoch Avenue, Saint Louis , Missouri 63109 , USA
http://IVPF.org/chat
All present were confirmed by video webcam and/or telephone. The President called the meeting to order at
Agenda:
· Officer Reports
· President’s address to members
· Annual Secretary Report on vote for 2006 Directors
· Annual Treasury Report
· Membership Committee Report
· Public Relations Committee Report
· Research Committee Report
· Fundraising Committee Report
· Education Committee Report
· Nominating Committee Report
· Support Committee Report
· Open questions from participating members
Amy Brown Gaghagen made the following statement: Greetings and welcome to the 5th Annual Members Meeting of the International Vasa Previa Foundation.
President Report 2005:
The International Vasa Previa Foundation, Inc. (IVPF) has remained active in raising vasa previa awareness in the general public as well as the medical community throughout 2005. In fact, the IVPF has become known as an authority on vasa previa and physicians and patients alike have contacted the foundation regarding research and information. As the foundation had an integral involvement in the study, "Vasa Previa: The Impact of Prenatal Diagnosis on Outcomes", The American College of Obstetricians and Gynecologists (May 2004), this document proved essential for encouraging the awareness of both the IVPF and vasa previa.
The IVPF attended multiple medical conferences in 2005 and intends to continue attending these important types of events, with multiple conferences worldwide up for consideration in 2006. The IVPF, along with Philips, sponsored the Fetal Medicine Foundation of America Meeting in December in
Work in the IVPF committees has been impressive. IVPF members working through our committees continue to address local changes in a number of countries, and substantial momentum has been achieved by members in the
The International Vasa Previa Foundation’s presence is becoming well known worldwide, and respect for this foundation is blossoming.
Dated:
Amy Brown Gaghagen
President
Secretary Proxy Report:
Accordingly registered by the IVPF Secretary, 56 of 92 written proxies were submitted in total by IVPF participating members. Each nominee received 56 votes registering the election of Amy Brown Gaghagen, Debi Pederson, Cynthia Balota Paris, Victoria Patricia Goldstein, Karen Peters, Phil Millard, and Meredith Kirby to serve as IVPF Directors for the calendar year 2006.
Proxies returned to the IVPF Secretary constitute more than 61 percent of the IVPF participating membership, all of whom are entitled by the IVPF Bylaws to vote in this election.
There being no other proxies submitted or votes registered for any other candidate, Amy Brown Gaghagen, Debi Pederson, Cynthia Balota Paris, Victoria Patricia Goldstein, Karen Peters, Phil Millard, and Meredith Kirby are hereby elected, in accordance with IVPF Bylaws, to serve as IVPF Directors for the year 2006 by an affirmative vote of more than 61% of the IVPF participating membership.
Dated:
So certified by:
Cynthia Balota Paris, Secretary
Treasury Report 2005:
Total Income $31,280.21, Total Expense $17,336.36, Net Income $13,944.22
The full IVPF 2005 Treasury report was contained in documentation IVPF Directors received before this meeting, is included at the end of these minutes, and may be obtained from the Secretary upon request.
Membership Committee Report 2005:
Participating Members: Jan 2006: 92 Jan 2005: 79
Email Group Subscribers:
IVPF (newsletter) - Jan 2006: 227 Jan 2005: 252
Vasa_Previa - Jan 2005: 198 Jan 2005: 179
A new member and research database is in development. Data entry has begun. The Vasa Previa Chat Café was hacked and subsequently replaced with a new chat service.
The Vasa_Previa birthday calendar was accidentally deleted by a subscriber. Measures have been taken to prevent this from happening again. The calendar was rebuilt.
Dated:
Cynthia Balota Paris
Membership Committee Chairperson
Public Relations Committee Report 2005:
o Additional materials for Sophie’s Walk 2005, including a comprehensive Sophie’s Walk Manual
o Revised IVPF bookmark (Risk, testing, management)
· Coverage obtained:
o Various articles and information about Sophie’s Walk in websites and media in the
o Prevention Magazine published an article on vasa previa in their January 2005 issue.
o Pieces on Rebecca Prentice of
· Events:
o Sophie’s Walk for Vasa Previa - on August 20-21st, the fourth birthday of VP angel Sophie Isabelle, Sophie’s Walk took place in 50 cities around the world raising almost $20,000.
o International Society of Ultrasound in Obstetrics and Gynecology (ISUOG), September 2005,
o Annual Conference of Nursing and Midwifery
o Friends of
o Fetal Medicine Foundation of America (FMFA) (co-sponsored by IVPF and Philips), December 2005,
o IVPF has been invited to attend several other events scheduled for the coming year.
Dated:
Victoria Goldstein
Public Relations Committee Chairperson
Research Committee Report 2005:
· Data was compiled from internet statistics on demographics of visitors to the IVPF website and questionnaire submissions. The data showed website hits to originate from at least a dozen countries, specifically 67% from
· Data was compiled on statistics regarding prenatally diagnosed survivors vs. undiagnosed survivors showing that 66% of people contacting the IVPF have vasa previa survivors, only half of whom were prenatally diagnosed. This data also showed that the survival rate observed by the IVPF has increased 20% in the last 4 years.
· Website stats show that the press kit is the most downloaded item from the IVPF site. The IVPF statement on risk factors, testing and management was next, followed by the IVPF brochure.
Dated:
Victoria Goldstein
Research Committee Chairperson
Fundraising Committee Report 2005:
· Events:
o Sophie’s Walk for Vasa Previa - on August 20-21st, the fourth birthday of VP angel Sophie Isabelle, Sophie’s Walk took place in 50 cities around the world raising almost $20,000.
o Several private fundraisers were completed by IVPF members.
· IVPF Store:
o
o IVPF denim shirts and IVPF awareness wristbands went on sale in the store this year.
o IVPF purchased a postal scale to aid in the shipping of items purchased through the store.
· Programs:
o Affiliate program was started with storkavenue.com
o Car donation program through Car Donation LLC
Dated:
Victoria Goldstein
Fundraising Committee Chairperson
Education Committee Report 2005:
During 2005 the Education Committee continued to focus on projects started in 2004.
The medical inservice program made some progress with 2 IVPF sponsored grand round presentations given in hospitals in
The awareness program targeting hospitals has made progress. Mailing lists have been procured for 2 countries, materials have been finalized, and bids have been obtained. Phase one of this project is expected to be completed early this year. It is hoped to continue this project in additional countries in the future.
IVPF attended several medical conferences and local events including the International Society of Ultrasound in Obstetrics and Gynecology (ISUOG), the American Institute of Ultrasound in Medicine (AIUM), the Annual Conference of Nursing and Midwifery Council in the
The IVPF provided content consulting to the author of vasa previa pages in French and Arabic.
IVPF information has been posted on multiple websites, members’ stories continue to be published on the IVPF site, and an IVPF web banner has been created
IVPF has been in communication with numerous medical and ultrasound organizations and clinics in
A special web page was created for Sophie Isabelle Macadar (of Sophie’s Walk fame) and is located in the walk section of the IVPF website.
Dated:
Cynthia Balota Paris
Acting Education Committee Chairperson
Nominating Committee Report 2005:
The Nominating Committee continues meet each fall to nominate IVPF Board of Directors for the upcoming year. In 2006 this committee will seek to enlarge this committee by seeking additional members for this task.
Dated:
Cynthia Balota Paris
Nominating Committee Chairperson
Support Committee Report 2005:
Dated:
Kathy Blades
Support Committee Chairperson
MEMBER QUESTIONS, COMMENTS AND ADDITIONAL ACTIONS:
· Victoria Goldstein made the following comments: “I'd like to comment that as usual we are sorely short of members for the committees. Anyone with ideas on how to recruit members for the committees, ideas are welcome! I’d like to see some of the other participating members who are so gung ho lately working in the committees! Education, research and fundraising need the most help”
· Karen Peters made the following comment: “If we list specific tasks, perhaps we could get people to do one or 2 tasks rather than "heading something up" which may scare them off at first.”
· Jeannette Schwartz made the following comment: “I like the idea about listing specific tasks. Perhaps in an email appeal we could list the tasks.”
· Cindy Paris made the following comments: “It’s pretty simple actually. Call meetings, report and gain approval for proposed projects from EXEC and write up minutes. As long as there are active volunteers in each committee, the work load shouldn't be any more than that.” She added: “I'd like to personally thank Jeannette for all her hard work and initiative and patience! She's been a huge help to me and has helped the organization along in tax and grant issues, plus other administrative duties'.”
· Jeannette Schwartz was awarded the coveted IVPF Humanitarian Service Award.
· Amy Gaghagen made the following announcement: “Jeannette, you have been awarded the coveted Humanitarian Award by the Executive Committee. Congratulations and thank you so much for your continued hard work for the International Vasa Previa Foundation! We are honored and especially blessed to have your help within the IVPF.”
· Deb Pederson added: “Especially considering what Cindy has on her plate, the help you have been to her is invaluable!!!!!
· Jeannette Schwartz made the following closing comment: “Thank you sooo much! I am very honored! I wish the IVPF continued success in all its efforts and applaud all that you guys have accomplished thus far.”
There being no further questions, comments, or business to come before this Annual Members Meeting of the International Vasa Previa Foundation, the President adjourned the meeting at
The next regular IVPF Annual Members Meeting is tentatively scheduled take place on Monday, 24 January 2007. The exact time and location will be announced at a later date.
International Vasa Previa Foundation, Inc.
Profit and Loss
January through December 2005
Ordinary Income/Expense
Income
Contributions Income
 
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