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International Vasa Previa Foundation, Inc.

 

Executive Committee Meeting Minutes for 7 June 2004

 

Executive Committee members present: 

·        Amy Brown Gaghagen, President

·        Debi Pederson, Vice President

·        Victoria Goldstein, Treasurer / PR, and Research Committee Chairperson

·        Cindy Paris, Secretary / Membership, Nominating Committee Chairperson

 

IVPF Committee chairpersons present:

·        None

 

Kathy Blades, Support Committee chairperson was not in attendance

Marlou Van Dijck, Education Committee chairperson not in attendance

Sue Miller and Trina Perrone, Fundraising Committee co-chairpersons were not in attendance

 

Meeting began at 18:57 GMT (12:57 PM CST)

Executive Committee Minutes from 24 May 2004 were approved for archival and distribution.

Monthly Members' Meetings have been put on hold until the fall.

 

Agenda:

·        Officer Reports

·        Treasury Reports

·        Chapter Reports

·        Membership Committee Report

·        Public Relations Committee Report

·        Research Committee Report

·        Fundraising Committee Report

·        Education Committee Report

·        Support Committee Report

·        Nominating Committee Report

·        Budget

·        Old Business

·        New Business

 

Officer Reports:

·        President

o       No report given.

·        Vice President

o       Nor report given

·        Secretary

o       Tracy Noseworthy has requested information regarding the open Secretarial position.  Cindy has responded to her.  Tracy sent an email stating that she will get back to us.  Assistant Secretary is also a possibility.

·        Treasurer

o       UK:
Donations received: £ 0.00
In-kind donations:  £ 0.00 
Expenses: £ 0.00
Total cash on hand: £ 828.11
Thank-you notes sent to donors: 0

o       USA:
Donations and interest: $0.00
In-kind donations:  $ 0.00
Expenses: $0.00
Total cash on hand: $27,654.87
Thank-you notes sent to donors: 0

 

Membership:

·        There are 64 participating IVPF members (+2).

·        There are 261 IVPF email group subscribers (+1).

·        There are 160 subscribers in the Vasa_Previa email group (+5), 5 pending.

·        There have been 0 additions to the Vasa_Previa email group birthday calendar.

·        All 5 pending subscribers to the Vasa_Previa email group have been contacted more than once regarding their pending subscription.  Yahoo Groups new policy is to delete subscribers pending longer than 14 days. 

·        This committee continues to provide routine maintenance and screen / welcome new subscribers to the email groups.

·        This committee continues to respond to email requests for information sent to info@... as well as support requested via private emails.

 

Public Relations:

·        Working on Newsletter to be sent out end June.

·        Working on press release announcing research published in Green Journal.

·        Working on updating press package for website and AIUM Conference.

·        Several IVPF members have volunteered to help with this committee, training meeting will be set for early July. 

·        IVPF received a press release from the American College of Radiology. Title is “Dolores Pretorius MD is Inducted as an ACR Fellow”.  Dr. Pretorius is affiliated with the University of California, San Diego Thorton Hospital in La Jolla, Ca.  She is also active in medical societies, having served on the American Institute of Ultrasound in Medicine Board of Governors in Luarel, MD. She has also been a reviewer for the Journal of Ultrasound in OBGYN in Los Angeles and is a member of the International Vasa Previa Foundation Medical Advisory Board. 

·        IVPF needs to find a sponsor for the reprints from last November's article on vasa previa management because being 9 pages and full color the cost from this publication is too much for IVPF to absorb.  IVPF will have a copy available at the AIUM Conference, but will not distribute this particular article.

 

Research:

·        This committee needs a new chairperson.

·        IVPF has registered for AIUM Conference, and is working on putting together materials for Conference. Cindy and Victoria will be attending June 20-22, 2004. Will distribute IVPF brochures, abstracts and possibly reprints from Contemporary OBGYN Nov 2003 article and Green Journal May 2004 article.  Yinka Oyelese MD, of the IVPF Medical Advisory Board will be presenting the vasa previa study published by the Green Journal last month. 

·        Letter sent to Dr. Benacerraf requesting meeting to include checking for placental cord insertion as part of U/S standard of care.

·        Training meeting for new volunteers will be set for mid summer.

 

Fundraising:

·        Trina Perrone and Sue Miller have agreed to co-chair this committee and will take over after their current IVPF Fundraising project is completed next month.

·        4^th and 5th Walk meeting held in April and May.  Low attendance to meetings has created extra work for coordinators having to communicate individually with walk captains.

·        Walk area of IVPF website has been updated and new cities included.

·        Sue Miller and Trina Perrone are working on fundraising concert in June in Pittsburgh. 

Education Committee Report:

·        Graphic for the front cover and permission to use it has been obtained for the IVPF brochure and has been forwarded to the printers.  5000 will be printed and delivered prior to the AIUM Conference.

·        Walk brochures have been proofed and 1000 have been printed.

 

Support Committee Report:

·        Outline for the Support section of the website has been forwarded to Jackie Frith.  She will work on adding content.

·        Jackie Frith’s local support group has been officially recognized by SANDS due to the training they’ve completed.  Way to go, Jackie!

 

Nominating Committee Report:

·        No report given.

 

Budget:

·        No report given.

 

Tax Exempt Status:

·        USA federal IRS tax exempt status has been granted.

 

Old Business:

·        IVPF participation in the British Conference of OB/GYNAES (http://www.bcog2004.co.uk) July 7 - 9 in Glasgow.  Tabled pending information on IVPF attendees.

·        A Board meeting must be scheduled to appoint a replacement for the Director position vacated by Marlou van Dijck’s resignation.  Tabled.

·        Official letters from the IVPF thanking the Medical Advisory Board for accepting their positions have been drafted and approved by email and will be mailed this week. 

·        A Yahoo email group will be set up for the use of the IVPF Medical Advisory Board members and the IVPF Directors.  Tabled pending response from welcome letters to the Medical Board.

·        IVPF in-service presentations:  This item is tabled pending further development.

·        Film Committee will meet this week.

 

New Business:

·        None.

 

The next regular IVPF Executive Committee meeting will take place on Monday, 28 June at 18:30 GMT (12:30 PM CST, 1:30 PM EST) in the Board room of the Vasa Previa Chat Café. 

 

Meeting Adjourned at 19:52 GMT (1:52 PM CST)