Does a secondary need to worry about ramping up on HC or can they go

straight to 20?



Thanks.

I personally have only been diagnosed a couple months ago with

secondary shown via an insulin tolerance test. I got a severely blunted

cortisol response.



They told me to go straight onto 20mg, but being cautious and drug

sensitive, I decided to try starting VERY low, like 5mg a day. I paid

for it, as within about 4 days, my own production must have stopped,

because I ended up with a crash and in ER one morning. I knew that

morning i didnt have enough cortisol in me, and took another 10mg

straight away. I was taken to ER, but i gradually got better as i was

there from the increase in HC. I took another 2.5 every few hours too,

and by the time i went home i was alot better. From then on i started

20mg a day.



I would suggest starting at at least 10mg, even 15mg. either of those

are very low, and depending on the severity of your secondary, may not

be enough. Im now on 35-40mg as it seems to be the only dose that works

for me so far. Hoping to be able to lower it or change to a longer

acting steroid in the near future.



Good luck with finding your dose!



--- In Hypopituitary_Support@yahoogroups.com, "birrdyy" <birrdyy@...>

wrote:

>

> Does a secondary need to worry about ramping up on HC or can they go

> straight to 20?

>

> Thanks.

>

Thanks for the info.  This confuses me so much.  It's for my sister and I

don't know what to tell her to do.  I thought maybe if she goes to slow

she'll have some real problems.  Her ACTH is only 22 and if she lowers that

with taking some HC yet doesn't take enough there could be problems.



I know the worry with taking to much to soon is a thryoid dump.  I don't

know.



On Fri, Nov 14, 2008 at 7:22 PM, Chris <csharpham@...> wrote:



>   I personally have only been diagnosed a couple months ago with

> secondary shown via an insulin tolerance test. I got a severely blunted

> cortisol response.

>

> They told me to go straight onto 20mg, but being cautious and drug

> sensitive, I decided to try starting VERY low, like 5mg a day. I paid

> for it, as within about 4 days, my own production must have stopped,

> because I ended up with a crash and in ER one morning. I knew that

> morning i didnt have enough cortisol in me, and took another 10mg

> straight away. I was taken to ER, but i gradually got better as i was

> there from the increase in HC. I took another 2.5 every few hours too,

> and by the time i went home i was alot better. From then on i started

> 20mg a day.

>

> I would suggest starting at at least 10mg, even 15mg. either of those

> are very low, and depending on the severity of your secondary, may not

> be enough. Im now on 35-40mg as it seems to be the only dose that works

> for me so far. Hoping to be able to lower it or change to a longer

> acting steroid in the near future.

>

> Good luck with finding your dose!

>

> --- In

Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,

> "birrdyy" <birrdyy@...>

> wrote:

> >

> > Does a secondary need to worry about ramping up on HC or can they go

> > straight to 20?

> >

> > Thanks.

> >

>

>

>





[Non-text portions of this message have been removed]

Chris ~ may I ask what your ACTH Stim test looked like so I can compare?

Thanks.



On Fri, Nov 14, 2008 at 7:22 PM, Chris <csharpham@...> wrote:



>   I personally have only been diagnosed a couple months ago with

> secondary shown via an insulin tolerance test. I got a severely blunted

> cortisol response.

>

> They told me to go straight onto 20mg, but being cautious and drug

> sensitive, I decided to try starting VERY low, like 5mg a day. I paid

> for it, as within about 4 days, my own production must have stopped,

> because I ended up with a crash and in ER one morning. I knew that

> morning i didnt have enough cortisol in me, and took another 10mg

> straight away. I was taken to ER, but i gradually got better as i was

> there from the increase in HC. I took another 2.5 every few hours too,

> and by the time i went home i was alot better. From then on i started

> 20mg a day.

>

> I would suggest starting at at least 10mg, even 15mg. either of those

> are very low, and depending on the severity of your secondary, may not

> be enough. Im now on 35-40mg as it seems to be the only dose that works

> for me so far. Hoping to be able to lower it or change to a longer

> acting steroid in the near future.

>

> Good luck with finding your dose!

>

> --- In

Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,

> "birrdyy" <birrdyy@...>

> wrote:

> >

> > Does a secondary need to worry about ramping up on HC or can they go

> > straight to 20?

> >

> > Thanks.

> >

>

>

>





[Non-text portions of this message have been removed]

Is best to ramp up.  Most can't go straight to 20 or 30 mg.



You're welcome,

Chris



--- In Hypopituitary_Support@yahoogroups.com, "birrdyy" <birrdyy@...>

wrote:

>

> Does a secondary need to worry about ramping up on HC or can they go

> straight to 20?

>

> Thanks.

>

What happens if they do.  My sister just started 3 days ago on 20.  She

secondary and is NOT taking any thyroid meds and is actually feeling a tiny

bit better already.  Thanks.



On Thu, Nov 20, 2008 at 5:45 PM, Chris Jackson <chrisgj@...>wrote:



>   Is best to ramp up. Most can't go straight to 20 or 30 mg.

>

> You're welcome,

> Chris

>

> --- In

Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,

> "birrdyy" <birrdyy@...>

> wrote:

> >

> > Does a secondary need to worry about ramping up on HC or can they go

> > straight to 20?

> >

> > Thanks.

> >

>

>

>





[Non-text portions of this message have been removed]

Anxiety, racing heart, can't sleep.  This is because of the bodys

cortisol being added to the full dose HC.



You're welcome,

Chris





--- In Hypopituitary_Support@yahoogroups.com, "birrdyy" <birrdyy@...>

wrote:

>

> Does a secondary need to worry about ramping up on HC or can they go

> straight to 20?

>

> Thanks.

>

If she's not having any of these things after 3 days can we assume she's

fine.  If she's secondary and not making much cortisol to begin with this

shouldn't be a problem, right?



On Thu, Nov 20, 2008 at 6:23 PM, Chris Jackson <chrisgj@...>wrote:



>   Anxiety, racing heart, can't sleep. This is because of the bodys

> cortisol being added to the full dose HC.

>

> You're welcome,

> Chris

>

> --- In

Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,

> "birrdyy" <birrdyy@...>

> wrote:

> >

> > Does a secondary need to worry about ramping up on HC or can they go

> > straight to 20?

> >

> > Thanks.

> >

>

>

>





[Non-text portions of this message have been removed]

She probably will be.  It tends to be the lower the cortisol the less

likely a problem with getting the steroid going.  If cortisol is in

the teens, it can be a problem to take all at once.



Chris







--- In Hypopituitary_Support@yahoogroups.com, birrdyy <birrdyy@...> wrote:

>

> If she's not having any of these things after 3 days can we assume she's

> fine.  If she's secondary and not making much cortisol to begin with

this

> shouldn't be a problem, right?

>

> On Thu, Nov 20, 2008 at 6:23 PM, Chris Jackson <chrisgj@...>wrote:

>

> >   Anxiety, racing heart, can't sleep. This is because of the bodys

> > cortisol being added to the full dose HC.

> >

> > You're welcome,

> > Chris

> >

> > --- In

Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,

> > "birrdyy" <birrdyy@>

> > wrote:

> > >

> > > Does a secondary need to worry about ramping up on HC or can they go

> > > straight to 20?

> > >

> > > Thanks.

> > >

> >

> >

> >

>

>

> [Non-text portions of this message have been removed]

>

Thanks Chris.  She's on day 5 and doing fine.  If anything it's time for her

to raise.  Her baseline cortisol was 14.  I know you don't go by temps only

by how someone feels, right?  She has actually felt better after only a

couple of days and now today on day 5 is dragging again and couldn't get out

of bed this morning. The last few morning she's been able to get up.  I

guess it's time to raise, right?



On Sat, Nov 22, 2008 at 10:09 PM, Chris Jackson <chrisgj@...>wrote:



>   She probably will be. It tends to be the lower the cortisol the less

> likely a problem with getting the steroid going. If cortisol is in

> the teens, it can be a problem to take all at once.

>

> Chris

>

> --- In

Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,

> birrdyy <birrdyy@...> wrote:

> >

> > If she's not having any of these things after 3 days can we assume she's

> > fine. If she's secondary and not making much cortisol to begin with

> this

> > shouldn't be a problem, right?

> >

> > On Thu, Nov 20, 2008 at 6:23 PM, Chris Jackson <chrisgj@...>wrote:

> >

> > > Anxiety, racing heart, can't sleep. This is because of the bodys

> > > cortisol being added to the full dose HC.

> > >

> > > You're welcome,

> > > Chris

> > >

> > > --- In

> Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>

> <Hypopituitary_Support%40yahoogroups.com>,

> > > "birrdyy" <birrdyy@>

> > > wrote:

> > > >

> > > > Does a secondary need to worry about ramping up on HC or can they go

> > > > straight to 20?

> > > >

> > > > Thanks.

> > > >

> > >

> > >

> > >

> >

> >

> > [Non-text portions of this message have been removed]

> >

>

>

>





[Non-text portions of this message have been removed]

Sounds like it responded to you on Hormone Support Group.



Chris





--- In Hypopituitary_Support@yahoogroups.com, birrdyy <birrdyy@...> wrote:

>

> Thanks Chris.  She's on day 5 and doing fine.  If anything it's time

for her

> to raise.  Her baseline cortisol was 14.  I know you don't go by

temps only

> by how someone feels, right?  She has actually felt better after only a

> couple of days and now today on day 5 is dragging again and couldn't

get out

> of bed this morning. The last few morning she's been able to get up.  I

> guess it's time to raise, right?

>

> On Sat, Nov 22, 2008 at 10:09 PM, Chris Jackson <chrisgj@...>wrote:

>

> >   She probably will be. It tends to be the lower the cortisol the less

> > likely a problem with getting the steroid going. If cortisol is in

> > the teens, it can be a problem to take all at once.

> >

> > Chris

> >

> > --- In

Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,

> > birrdyy <birrdyy@> wrote:

> > >

> > > If she's not having any of these things after 3 days can we

assume she's

> > > fine. If she's secondary and not making much cortisol to begin with

> > this

> > > shouldn't be a problem, right?

> > >

> > > On Thu, Nov 20, 2008 at 6:23 PM, Chris Jackson <chrisgj@>wrote:

> > >

> > > > Anxiety, racing heart, can't sleep. This is because of the bodys

> > > > cortisol being added to the full dose HC.

> > > >

> > > > You're welcome,

> > > > Chris

> > > >

> > > > --- In

> >

Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>

> > <Hypopituitary_Support%40yahoogroups.com>,

> > > > "birrdyy" <birrdyy@>

> > > > wrote:

> > > > >

> > > > > Does a secondary need to worry about ramping up on HC or can

they go

> > > > > straight to 20?

> > > > >

> > > > > Thanks.

> > > > >

> > > >

> > > >

> > > >

> > >

> > >

> > > [Non-text portions of this message have been removed]

> > >

> >

> >

> >

>

>

> [Non-text portions of this message have been removed]

>