Saturday I worked on replacing runners on a large chest of drawers
and fixing the drawers that fell to the ground because of broken
runners.  Took about 7 hours.  Sunday I cut down a tree in my front
yard with a chain saw.  It never sprouted leaves this year and bark
fell off and have been waiting for a day when I felt up to taking it
down.  I also used an axe for a half hour to chop the stump.  I
cheated, had kids clean up tree debris.

I fully expected to pay for it on monday as always happens, but
stayed up.  I still don't believe it!  I've been waiting over 3 years.

A week ago I upped armour from 2 and 1/2 to 2 and 3/4 grain.  I bet
that had something to do with it.  I notice every time it's raised I
find I handle stress better too.  I developed a colic in the back
right side of my head about 3 years ago.  My hair would stick out,
but last couple of months it started laying down.  Also hair is not
growing so much wavey and scraggly anymore.  I'm hoping my gray hair
will disapear too.  I'm blond and about 5% total gray around the ears
mainly.

Chris

I forgot about the dehydration thing.  I better reread those books,
it's been quite awhile anyway.  Tracy I'm so glad you son got all
that rest.  It really sounds like he needed it.  I hope he can
continue to get plenty of sleep from now on.

Chris


--- In Hypopituitary_Support@yahoogroups.com, "Tracy Keraly"
<lkeraly@c...> wrote:
> I think one worry might be that it is supposed to dehydrate us.  If
we have
> a condition or situation in which we may easily become dehydrated
anyway, I
> would think caffeine would not be very smart, unless we drank a lot
of water
> to counteract it?  Doesn't Addison's tend to dehydrate, especially
before
> it's been diagnosed?  The only thing I've read rather recently that
it helps
> is the liver, oddly enough, in those with cirosis (spelling is not
right).
> Interesting, and perhaps controversial.  Maybe it increases the
metabolism
> or blood flow to all tissues.  Just speculation.  I think there are
pros and
> cons to many substances.  And some of us react differently to them,
too.  I
> tend to get weak and shaky after drinking only a little caffeine,
or eating
> a dark chocolate candy bar, especially if it's on an empty or
nearly empty
> stomach.  I guess one man's cure is another's poison is what I'm
saying.  I
> know that for Travis it is probably not too good an idea, since he
has
> insomnia each night.  I would think caffeine would keep most people
awake.
> I know that both sugar and caffeine have had that effect on my
kiddos in the
> past.  Some of them seem more suseptable than the others to its
effects.  I
> can almost always tell if they've been drinking it.  Sometimes
they'll get
> home from a birthday party and several hours later they'll just be
so hyper
> I'll ask, "Did you by any chance have soda at the party?  Was it
Mountain
> Dew?".  If they answer in the affirmative, I know they will not be
able to
> go to bed at the regular hour.
>      Thank you both for your input.  We just have to experiment as
parents,
> trying only what we think is fairly sure to be safe.  But not all
> experiments will work with every child.  We're hoping Trav will
have his
> night and day turned back around a bit tonight.  He couldn't sleep
at all
> two nights ago, so stayed awake all night.  Then yesterday he went
to bed at
> 6:00 p.m. and stayed asleep all night until awakened at 9:00 a.m.
He then
> took a nap I was hoping he wouldn't take, but we're still hoping he
will be
> tired enough to be able to retire at a decent hour tonight.  Better
end, as
> is getting long and boring, I'm sure!  ~ Tracy
>
> ----- Original Message -----
> From: "Chris Jackson" <chrisgj@s...>
> To: <Hypopituitary_Support@yahoogroups.com>
> Sent: Wednesday, July 21, 2004 8:14 PM
> Subject: [Hypopituitary_Support] Re: "Caffeine a no-no"
>
>
> > I've been waiting patiently hoping you would post Jim.  I enjoy
our
> > debates and discussions.  On this subject I must respectfully
> > disagree.
> >
> > Books I've read say its not good.  They say caffeine makes the
> > adrenals work harder (health or not).  I have never heard anyone
say
> > their doc said not to ingest it.  Maybe they don't think to tell
the
> > patient.  I appreciate you thoughts and experiance with it.
Probably
> > some people with adrenal problems like yourself are not affected
by
> > caffeine.  Before I was treated I followed the books to the letter
> > and totally eliminated caffiene to be safe.  I tried to give
myself
> > every advantage.  With treatment I have let up some.  Remember
that
> > caffenine is bad for your health anyway.
> >
> > The info about this is in these books and of course can be found
on
> > the net.
> >
> > Adrenal Fatigue The 21st century Stress Syndrome James L. Wilson
> > N.D.,D.C.,Ph.D. (I consider this one the bible for the adrenals)
> >
> > page 170-171
> >
> > From Fatigued to Fantastic   Jacob Teitelbaum, M.D.
> >
> > pages 17, 18-23
> >
> > America Exhausted   Dr. Edward J. Conley
> >
> > I don't own this book, I got it from library.  I would bet its in
> > there.
> >
> > Alcohol is anything substance to stay away from, at least until
> > treatment fixes you up, then it would be wise to keep to just
> > occasionally small amounts since I've read that taking the steroid
> > and alcohol together is not the best thing to do anyway.
> >
> > Has anyone heard about the safeness of taking thyroid med with
> > alcohol?
> >
> > Chris
> >
> >
> >
> > --- In Hypopituitary_Support@yahoogroups.com, "janchup"
> > <jimchubb@c...> wrote:
> > > Caffein is not a no-no. I enjoy my coffee and tea and there is
no
> > recommendation that I
> > > have ever gotten or received or read anywhere that I -hypopit
> > ACTH/A.I- should not drink
> > > it. To make a statement, Chris, that caffein is a no-no is only
> > your bias and really,
> > > just disinformation. There is no truth to it.  Jim
> >
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >

I think one worry might be that it is supposed to dehydrate us.  If we have
a condition or situation in which we may easily become dehydrated anyway, I
would think caffeine would not be very smart, unless we drank a lot of water
to counteract it?  Doesn't Addison's tend to dehydrate, especially before
it's been diagnosed?  The only thing I've read rather recently that it helps
is the liver, oddly enough, in those with cirosis (spelling is not right).
Interesting, and perhaps controversial.  Maybe it increases the metabolism
or blood flow to all tissues.  Just speculation.  I think there are pros and
cons to many substances.  And some of us react differently to them, too.  I
tend to get weak and shaky after drinking only a little caffeine, or eating
a dark chocolate candy bar, especially if it's on an empty or nearly empty
stomach.  I guess one man's cure is another's poison is what I'm saying.  I
know that for Travis it is probably not too good an idea, since he has
insomnia each night.  I would think caffeine would keep most people awake.
I know that both sugar and caffeine have had that effect on my kiddos in the
past.  Some of them seem more suseptable than the others to its effects.  I
can almost always tell if they've been drinking it.  Sometimes they'll get
home from a birthday party and several hours later they'll just be so hyper
I'll ask, "Did you by any chance have soda at the party?  Was it Mountain
Dew?".  If they answer in the affirmative, I know they will not be able to
go to bed at the regular hour.
      Thank you both for your input.  We just have to experiment as parents,
trying only what we think is fairly sure to be safe.  But not all
experiments will work with every child.  We're hoping Trav will have his
night and day turned back around a bit tonight.  He couldn't sleep at all
two nights ago, so stayed awake all night.  Then yesterday he went to bed at
6:00 p.m. and stayed asleep all night until awakened at 9:00 a.m.  He then
took a nap I was hoping he wouldn't take, but we're still hoping he will be
tired enough to be able to retire at a decent hour tonight.  Better end, as
is getting long and boring, I'm sure!  ~ Tracy

----- Original Message -----
From: "Chris Jackson" <chrisgj@...>
To: <Hypopituitary_Support@yahoogroups.com>
Sent: Wednesday, July 21, 2004 8:14 PM
Subject: [Hypopituitary_Support] Re: "Caffeine a no-no"


> I've been waiting patiently hoping you would post Jim.  I enjoy our
> debates and discussions.  On this subject I must respectfully
> disagree.
>
> Books I've read say its not good.  They say caffeine makes the
> adrenals work harder (health or not).  I have never heard anyone say
> their doc said not to ingest it.  Maybe they don't think to tell the
> patient.  I appreciate you thoughts and experiance with it.  Probably
> some people with adrenal problems like yourself are not affected by
> caffeine.  Before I was treated I followed the books to the letter
> and totally eliminated caffiene to be safe.  I tried to give myself
> every advantage.  With treatment I have let up some.  Remember that
> caffenine is bad for your health anyway.
>
> The info about this is in these books and of course can be found on
> the net.
>
> Adrenal Fatigue The 21st century Stress Syndrome James L. Wilson
> N.D.,D.C.,Ph.D. (I consider this one the bible for the adrenals)
>
> page 170-171
>
> From Fatigued to Fantastic   Jacob Teitelbaum, M.D.
>
> pages 17, 18-23
>
> America Exhausted   Dr. Edward J. Conley
>
> I don't own this book, I got it from library.  I would bet its in
> there.
>
> Alcohol is anything substance to stay away from, at least until
> treatment fixes you up, then it would be wise to keep to just
> occasionally small amounts since I've read that taking the steroid
> and alcohol together is not the best thing to do anyway.
>
> Has anyone heard about the safeness of taking thyroid med with
> alcohol?
>
> Chris
>
>
>
> --- In Hypopituitary_Support@yahoogroups.com, "janchup"
> <jimchubb@c...> wrote:
> > Caffein is not a no-no. I enjoy my coffee and tea and there is no
> recommendation that I
> > have ever gotten or received or read anywhere that I -hypopit
> ACTH/A.I- should not drink
> > it. To make a statement, Chris, that caffein is a no-no is only
> your bias and really,
> > just disinformation. There is no truth to it.  Jim
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>

I've been waiting patiently hoping you would post Jim.  I enjoy our
debates and discussions.  On this subject I must respectfully
disagree.

Books I've read say its not good.  They say caffeine makes the
adrenals work harder (health or not).  I have never heard anyone say
their doc said not to ingest it.  Maybe they don't think to tell the
patient.  I appreciate you thoughts and experiance with it.  Probably
some people with adrenal problems like yourself are not affected by
caffeine.  Before I was treated I followed the books to the letter
and totally eliminated caffiene to be safe.  I tried to give myself
every advantage.  With treatment I have let up some.  Remember that
caffenine is bad for your health anyway.

The info about this is in these books and of course can be found on
the net.

Adrenal Fatigue The 21st century Stress Syndrome James L. Wilson
N.D.,D.C.,Ph.D. (I consider this one the bible for the adrenals)

page 170-171

From Fatigued to Fantastic   Jacob Teitelbaum, M.D.

pages 17, 18-23

America Exhausted   Dr. Edward J. Conley

I don't own this book, I got it from library.  I would bet its in
there.

Alcohol is anything substance to stay away from, at least until
treatment fixes you up, then it would be wise to keep to just
occasionally small amounts since I've read that taking the steroid
and alcohol together is not the best thing to do anyway.

Has anyone heard about the safeness of taking thyroid med with
alcohol?

Chris



--- In Hypopituitary_Support@yahoogroups.com, "janchup"
<jimchubb@c...> wrote:
> Caffein is not a no-no. I enjoy my coffee and tea and there is no
recommendation that I
> have ever gotten or received or read anywhere that I -hypopit
ACTH/A.I- should not drink
> it. To make a statement, Chris, that caffein is a no-no is only
your bias and really,
> just disinformation. There is no truth to it.  Jim

Caffein is not a no-no. I enjoy my coffee and tea and there is no recommendation
that I
have ever gotten or received or read anywhere that I -hypopit ACTH/A.I- should
not drink
it. To make a statement, Chris, that caffein is a no-no is only your bias and
really,
just disinformation. There is no truth to it.  Jim

I discovered that the board was not coming up in searches of Yahoo's
health boards so I added the underline in the middle of the title.
Please note you will have to go to this web address.

http://health.groups.yahoo.com/group/Hypopituitary_Support/

Please save it (add to favorites in MS explorer).  I'm sorry for any
inconvieniance I may have caused any of you.

Thanks,
Chris

Yeah, caffeine is a no no if you have adrenal fatigue or adrenal
insufficiency.  I bet that will help him sleep to have it withdrawn.
Make sure soda and what not is not availible to him, sounds like he
would be tempted.  I hope the doc visit went well.

Chris


--- In Hypopituitarysupport@yahoogroups.com, "Tracy Keraly"
<lkeraly@c...> wrote:
> Thanks again, Chris!  Trav didn't sleep at all last night. :o(
I'm going
> to MAKE him lay off any "energy" drinks, even though he doesn't
feel they
> keep him awake (they have caffeine in them).  He says he's drank
them and
> slept fine afterward.  But yesterday he had two (they were THERE --
in the
> frig, that is) and then for whatever reason could never fall
asleep.  I
> asked him if it was because he thought he wouldn't be able to rise
for his
> doctor's apt. once he went down.  He said, "No", he didn't know why
he
> couldn't sleep.  Is doing well and in good spirits, but I'm sure it
will
> catch up with him later on today!  Well, we're just about off to
the doctor.
> Will try your suggestions, and thanks for the sites.  I do actually
scratch
> his back and massage it each night, but while TV is on.  Not only
did I
> believe it might relax him, but he spends so much time away from
us, down in
> the basement playing guitar or just asleep when the rest of the
family fun
> is going on, I thought he needed "touch therapy" or some
connection.  He's
> never been one to like to be hugged a lot, even when a tot.
Massage is one
> of the few things he will tolerate for more than a few seconds.
It's like
> sneaking in some connection to others! :o)
>
> Have a great day.  I'm hoping I'm not mortified by anything the
doctor has
> to say today, like always.  I want some explanation, but am also
afraid to
> here it!   Go figure.
>
>                                                         Best
regards, Tracy
>
>
> ----- Original Message -----
> From: "Chris Jackson" <chrisgj@s...>
> To: <Hypopituitarysupport@yahoogroups.com>
> Sent: Monday, July 19, 2004 11:27 PM
> Subject: [Hypopituitarysupport] Added two links
>
>
> > The Pituitary Foundation and Gentle Giant.
> >
> > Chris
> >
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >

Thanks again, Chris!  Trav didn't sleep at all last night. :o(   I'm going
to MAKE him lay off any "energy" drinks, even though he doesn't feel they
keep him awake (they have caffeine in them).  He says he's drank them and
slept fine afterward.  But yesterday he had two (they were THERE -- in the
frig, that is) and then for whatever reason could never fall asleep.  I
asked him if it was because he thought he wouldn't be able to rise for his
doctor's apt. once he went down.  He said, "No", he didn't know why he
couldn't sleep.  Is doing well and in good spirits, but I'm sure it will
catch up with him later on today!  Well, we're just about off to the doctor.
Will try your suggestions, and thanks for the sites.  I do actually scratch
his back and massage it each night, but while TV is on.  Not only did I
believe it might relax him, but he spends so much time away from us, down in
the basement playing guitar or just asleep when the rest of the family fun
is going on, I thought he needed "touch therapy" or some connection.  He's
never been one to like to be hugged a lot, even when a tot.  Massage is one
of the few things he will tolerate for more than a few seconds.  It's like
sneaking in some connection to others! :o)

Have a great day.  I'm hoping I'm not mortified by anything the doctor has
to say today, like always.  I want some explanation, but am also afraid to
here it!   Go figure.

                                                         Best regards, Tracy


----- Original Message -----
From: "Chris Jackson" <chrisgj@...>
To: <Hypopituitarysupport@yahoogroups.com>
Sent: Monday, July 19, 2004 11:27 PM
Subject: [Hypopituitarysupport] Added two links


> The Pituitary Foundation and Gentle Giant.
>
> Chris
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>

The Pituitary Foundation and Gentle Giant.

Chris

Welcome aboard Tracy.

Tracy and I have been in email contact for several months.  It's been
a long road for her and her son finding a doc that can help him. I
sure hope this doc will be the one.

Chris



  Hypopituitarysupport@yahoogroups.com, "Tracy Keraly" <lkeraly@c...>
wrote:
> Just writing to make an introduction.  I'm Tracy, and my 15 year
old son has an undiagnosed malady which has been effecting him since
November, 03.  Many blood tests have been done, but to no
revelation.  Tomorros is his next appointment. There, we will be
exploring a high bilirubin, to see what is causing this, and whether
it ties in at all to his other major symptoms, which are fatigue,
muscle weakness, dizziness, lack of appetite, postural hypotension,
and "brain fog".  Trying to gain some info to help get his diagnosis
figured out and get him some treatment.  Will write more later.
Thanks!  ~ Tracy

To Addison's, hypothyroid and hypopituitary chat boards.

Chris

Just ask your doctor to test these hormones (GH, TSH, LH, FSH,
Prolactin).  I'm surprised he doesn't take some initiative, since
specialist are hard to find, and things are dragging along for you.
Press him to do it and post them with ranges.


Chris



--- In Hypopituitarysupport@yahoogroups.com, dpitt <dbora@i...> wrote:
> Hi Chris;
>
> Thanks for your support. Unfortunately, the whole point is I *have*
asked
> for other pituitary hormones to be checked, back in mid/late May.
The doc
> agreed, that is why he was going to call the endo, to find out
exactly
> which tests to run. Still nothing, other than the CT.
>
> No history of head injury in my case, so that can't be it.
>
> Unfortunately, moving to a big city would necessitate moving
thousands of
> kilometres away and is simply not possible. My job and partner are
here and
> he cannot move because of his businesses. The perils of living in
the
> wilderness, I guess! ;)
>
> Thanks,
> Deb
>
>
> >Message: 2
> >   Date: Thu, 15 Jul 2004 18:39:16 -0000
> >   From: "Chris Jackson" <chrisgj@s...>
> >Subject: Re: CT scan normal - now what?
> >
> >I'm sorry you have to go through being treated like that.  An MRI
> >probably would have been better.  Keep in mind that sometimes
> >hypopituitarism does not involve tumors, such is my case.
> >Unfortunately when nothing is found a lot of  times the docs don't
> >think to ask if any head injurys in your past.
> >
> >Keep pushing.  Don't let up.  My road took 18 months but I
eventually
> >got help.
> >
> >You ought to ask for your other pituitary hormones to be tested in
> >the mean time.
> >
> >Something else to consider is maybe moving to a big city so as
your
> >diagnosis and treatment will happen sooner.  After you are fixed
up
> >(might take 2 or more years)then maybe move back to where you
are.
> >Just a thought.
> >
> >
> >Hang in there,
> >Chris
> >
> >
> >--- In Hypopituitarysupport@yahoogroups.com, "dbora67"
<dbora@i...>
> >wrote:
> >> Took almost two weeks for the results to come back, and even
then
> >> they didn't even bother to call me to say "BTW, you can relax,
you
> >> don't have a big brain tumour!" I have read CT is too coarse to
> >pick
> >> up microadenomas, however, so I suspect this is not the end of
the
> >> investigation should the as-yet-unordered blood tests still lean
> >that
> >> way.
> >>
> >> I cannot see my doc until the end of the month to even ask a
> >> question, this now being about two months after he promised to
> >figure
> >> out what was going on. Still no blood tests have been ordered,
no
> >> endo has been consulted to my knowledge, and my phone calls to
ask
> >> questions about what is happening are not being returned. I
guess I
> >> have little choice but to sit an wait since I don't have a
choice
> >of
> >> another doctor.
> >>
> >> Frustratedly,
> >> D'b
> >
> >
> >
> >
>
>_____________________________________________________________________
___
>
>_____________________________________________________________________
___
> >
> >
> >
> >-------------------------------------------------------------------
-----
> >Yahoo! Groups Links
> >
> >
> >
> >
> >-------------------------------------------------------------------
-----
> >
> >
> >
> >

Hi Chris;

Thanks for your support. Unfortunately, the whole point is I *have* asked
for other pituitary hormones to be checked, back in mid/late May. The doc
agreed, that is why he was going to call the endo, to find out exactly
which tests to run. Still nothing, other than the CT.

No history of head injury in my case, so that can't be it.

Unfortunately, moving to a big city would necessitate moving thousands of
kilometres away and is simply not possible. My job and partner are here and
he cannot move because of his businesses. The perils of living in the
wilderness, I guess! ;)

Thanks,
Deb


>Message: 2
>   Date: Thu, 15 Jul 2004 18:39:16 -0000
>   From: "Chris Jackson" <chrisgj@...>
>Subject: Re: CT scan normal - now what?
>
>I'm sorry you have to go through being treated like that.  An MRI
>probably would have been better.  Keep in mind that sometimes
>hypopituitarism does not involve tumors, such is my case.
>Unfortunately when nothing is found a lot of  times the docs don't
>think to ask if any head injurys in your past.
>
>Keep pushing.  Don't let up.  My road took 18 months but I eventually
>got help.
>
>You ought to ask for your other pituitary hormones to be tested in
>the mean time.
>
>Something else to consider is maybe moving to a big city so as your
>diagnosis and treatment will happen sooner.  After you are fixed up
>(might take 2 or more years)then maybe move back to where you are.
>Just a thought.
>
>
>Hang in there,
>Chris
>
>
>--- In Hypopituitarysupport@yahoogroups.com, "dbora67" <dbora@i...>
>wrote:
>> Took almost two weeks for the results to come back, and even then
>> they didn't even bother to call me to say "BTW, you can relax, you
>> don't have a big brain tumour!" I have read CT is too coarse to
>pick
>> up microadenomas, however, so I suspect this is not the end of the
>> investigation should the as-yet-unordered blood tests still lean
>that
>> way.
>>
>> I cannot see my doc until the end of the month to even ask a
>> question, this now being about two months after he promised to
>figure
>> out what was going on. Still no blood tests have been ordered, no
>> endo has been consulted to my knowledge, and my phone calls to ask
>> questions about what is happening are not being returned. I guess I
>> have little choice but to sit an wait since I don't have a choice
>of
>> another doctor.
>>
>> Frustratedly,
>> D'b
>
>
>
>
>________________________________________________________________________
>________________________________________________________________________
>
>
>
>------------------------------------------------------------------------
>Yahoo! Groups Links
>
>
>
>
>------------------------------------------------------------------------
>
>
>
>

I'm sorry you have to go through being treated like that.  An MRI
probably would have been better.  Keep in mind that sometimes
hypopituitarism does not involve tumors, such is my case.
Unfortunately when nothing is found a lot of  times the docs don't
think to ask if any head injurys in your past.

Keep pushing.  Don't let up.  My road took 18 months but I eventually
got help.

You ought to ask for your other pituitary hormones to be tested in
the mean time.

Something else to consider is maybe moving to a big city so as your
diagnosis and treatment will happen sooner.  After you are fixed up
(might take 2 or more years)then maybe move back to where you are.
Just a thought.


Hang in there,
Chris


--- In Hypopituitarysupport@yahoogroups.com, "dbora67" <dbora@i...>
wrote:
> Took almost two weeks for the results to come back, and even then
> they didn't even bother to call me to say "BTW, you can relax, you
> don't have a big brain tumour!" I have read CT is too coarse to
pick
> up microadenomas, however, so I suspect this is not the end of the
> investigation should the as-yet-unordered blood tests still lean
that
> way.
>
> I cannot see my doc until the end of the month to even ask a
> question, this now being about two months after he promised to
figure
> out what was going on. Still no blood tests have been ordered, no
> endo has been consulted to my knowledge, and my phone calls to ask
> questions about what is happening are not being returned. I guess I
> have little choice but to sit an wait since I don't have a choice
of
> another doctor.
>
> Frustratedly,
> D'b

Took almost two weeks for the results to come back, and even then
they didn't even bother to call me to say "BTW, you can relax, you
don't have a big brain tumour!" I have read CT is too coarse to pick
up microadenomas, however, so I suspect this is not the end of the
investigation should the as-yet-unordered blood tests still lean that
way.

I cannot see my doc until the end of the month to even ask a
question, this now being about two months after he promised to figure
out what was going on. Still no blood tests have been ordered, no
endo has been consulted to my knowledge, and my phone calls to ask
questions about what is happening are not being returned. I guess I
have little choice but to sit an wait since I don't have a choice of
another doctor.

Frustratedly,
D'b

I hope it goes well,
Chris


--- In Hypopituitarysupport@yahoogroups.com, dpitt <dbora@i...> wrote:
> Doc's office just called, I have a CT scan scheduled for tommorrow
morning,
> less than 24 hrs notice. Oh well, I should just be happy that they
are
> doing something! I'll keep the "list" posted,
> D

Doc's office just called, I have a CT scan scheduled for tommorrow morning,
less than 24 hrs notice. Oh well, I should just be happy that they are
doing something! I'll keep the "list" posted,
D

It must be hard to be patient.

Chris




--- In Hypopituitarysupport@yahoogroups.com, dpitt <dbora@i...> wrote:
> The docs here can of course draw blood to send to Vancouver for
testing,
> and can run simple chemistry in town. If they decide on something
more
> exotic, like an MRI or even a TRH test, then it may involve a plane
ride.
> Just getting ahold of the specialists seems to be causing
difficulty for them.
>
> Otherwise, living here is great and I wouldn't trade it for
anything!
>
> Thanks,
> Deb
>
> >Message: 2
> >   Date: Fri, 25 Jun 2004 04:20:33 -0000
> >   From: "Chris Jackson" <chrisgj@s...>
> >Subject: Re: No news yet
> >
> >Wow, I can't imagine what living like that would be like.  Keep
> >pluggin and don't give up.  Any chance the doc you currently use
> >would be able to run the tests?
> >
> >Chris

The docs here can of course draw blood to send to Vancouver for testing,
and can run simple chemistry in town. If they decide on something more
exotic, like an MRI or even a TRH test, then it may involve a plane ride.
Just getting ahold of the specialists seems to be causing difficulty for them.

Otherwise, living here is great and I wouldn't trade it for anything!

Thanks,
Deb

>Message: 2
>   Date: Fri, 25 Jun 2004 04:20:33 -0000
>   From: "Chris Jackson" <chrisgj@...>
>Subject: Re: No news yet
>
>Wow, I can't imagine what living like that would be like.  Keep
>pluggin and don't give up.  Any chance the doc you currently use
>would be able to run the tests?
>
>Chris

Wow, I can't imagine what living like that would be like.  Keep
pluggin and don't give up.  Any chance the doc you currently use
would be able to run the tests?

Chris



--- In Hypopituitarysupport@yahoogroups.com, "dbora67" <dbora@i...>
wrote:
> Hi Chris - thanks for your interest. I did indeed check the search
> site but did not expect to find an "environmental doctor" in my
area.
> You see, I live in the Canadian sub-arctic, and the nearest city is
a
> 3-hour jet ride (or a 2-3 day drive) away! ;)
>
> Isn't the 'net great for bringing folks together in common
interests
> from far-flung places?
>
> My interim doc has been having trouble getting an endo, any endo,
> from Vancouver on the phone for the past two weeks, so we still
don't
> even know which tests they want to run yet. I'll keep the "list"
> posted when I find out. I do understand some of the issues docs
face
> here but admit my patience is wearing thin.
>
> Deb
>
> >I was wondering if that search site helped you find a doc near
you.
> Did you ever have an acth stim test or your acth measured?

Hi Chris - thanks for your interest. I did indeed check the search
site but did not expect to find an "environmental doctor" in my area.
You see, I live in the Canadian sub-arctic, and the nearest city is a
3-hour jet ride (or a 2-3 day drive) away! ;)

Isn't the 'net great for bringing folks together in common interests
from far-flung places?

My interim doc has been having trouble getting an endo, any endo,
from Vancouver on the phone for the past two weeks, so we still don't
even know which tests they want to run yet. I'll keep the "list"
posted when I find out. I do understand some of the issues docs face
here but admit my patience is wearing thin.

Deb

>I was wondering if that search site helped you find a doc near you.
Did you ever have an acth stim test or your acth measured?

See LINKS in the directory on the left.

Chris

I used to be heavily into astronomy years ago, but after I got
married (1990)that when by the way side, same as my coin collecting
that I only picked back up 4 years ago.  I'll be rotating in my astro
pics about once a week.  So be sure to hit Home on the left side of
your screen once in a while.

Chris

Opps, found the link won't work.  You will have to go to this link
and input your country and it will spit out about 6 environmental
doctors.

http://www.aaem.com/Referable_Physicians.asp

Chris




--- In Hypopituitarysupport@yahoogroups.com, "Chris Jackson"
<chrisgj@s...> wrote:
> Welcome D'bora, I'm on your side.  You are just starting to learn
how
> little most doctors know about the endocrin system.  This where you
> will have to educate yourself as much as you can on several
different
> subjects (thyroid, adrenals, sex hormones, GH).  There are symptoms
> to learn for all of these.  I have no doubt its your pituitary.
Once
> I figured mine out it took 6 months and three docs (first two were
> endos) before I was diagnosed and treated.  Forget about finding an
> endo unless you absolutely have to.
>
>
> The normal range for plasma prolactin is 1 to 25 ng/ml for women
and
> 1 to 20 ng/ml for men.  Just like adrenals and thyroid and pretty
> much every other test, its just a guide.  And just like adrenals
and
> thyroid probably that range is flawed, as they get their ranges
from
> sick people.
>
> I can't imagine not having easy access to a doctor.  Do you have
any
> osteopaths, homeopaths, environmental docs up there.  Look at this
> link and tell me if one of these are close to you.
>
> http://www.aaem.com/Referable_Physicians.asp
>
> These environmental docs are a lot like osteopaths.  I see one for
my
> hypopituitarism and he is awesome.
>
> Hang in there,
> Chris
>
>
>
>
>
> --- In Hypopituitarysupport@yahoogroups.com, "dbora67" <dbora@i...>
> wrote:
> > Hi - my name is D'bora and I was diagnosed with hypothyroidism
> about
> > 2 years ago. I had asked at the time about possible pituitary
> causes
> > (secondary hypothyroidism), since I have none of the common
> > indications of primary hypothyroidism such as positive antibody
> > tests, high TSH, enlarged thyroid or history of infection or
> surgery.
> > My concerns were unceremoniously dismissed.
> >
> > I am currently being treated with Synthroid and had been doing
> okay.
> > However, some symptoms have not improved, new ones are appearing,
> or
> > old ones recurring, and I am now more suspicious than ever. I am
> > experiencing visual disturbances and headaches that I understand
> are
> > symptoms of pituitary tumour, for example. BTW, I have no history
> of
> > migraines. Latest tests show mid-range T4 (so not over-
> supplemented),
> > low TSH (0.15 with 0.3 being low end of normal range) and
> potentially
> > low prolactin (4 - I'm unsure of the reference range).
> >
> > I'm looking to talk to other people who have had experience with
> > diagnosing/ruling out hypothyroidism secondary to pituitary
> problems,
> > how long it took to get properly diagnosed and what tests they
> asked
> > for.
> >
> > The especially complicating factor for me is that I live in the
> > Canadian subarctic and the GPs seem reluctant to order standard
> tests
> > like MRIs which involve long plane rides south. Similarly, the
> > nearest endocrinologist is literally thousands of kilometres away.
> >
> > Thanks,
> > D'bora

Welcome D'bora, I'm on your side.  You are just starting to learn how
little most doctors know about the endocrin system.  This where you
will have to educate yourself as much as you can on several different
subjects (thyroid, adrenals, sex hormones, GH).  There are symptoms
to learn for all of these.  I have no doubt its your pituitary. Once
I figured mine out it took 6 months and three docs (first two were
endos) before I was diagnosed and treated.  Forget about finding an
endo unless you absolutely have to.


The normal range for plasma prolactin is 1 to 25 ng/ml for women and
1 to 20 ng/ml for men.  Just like adrenals and thyroid and pretty
much every other test, its just a guide.  And just like adrenals and
thyroid probably that range is flawed, as they get their ranges from
sick people.

I can't imagine not having easy access to a doctor.  Do you have any
osteopaths, homeopaths, environmental docs up there.  Look at this
link and tell me if one of these are close to you.

http://www.aaem.com/Referable_Physicians.asp

These environmental docs are a lot like osteopaths.  I see one for my
hypopituitarism and he is awesome.

Hang in there,
Chris





--- In Hypopituitarysupport@yahoogroups.com, "dbora67" <dbora@i...>
wrote:
> Hi - my name is D'bora and I was diagnosed with hypothyroidism
about
> 2 years ago. I had asked at the time about possible pituitary
causes
> (secondary hypothyroidism), since I have none of the common
> indications of primary hypothyroidism such as positive antibody
> tests, high TSH, enlarged thyroid or history of infection or
surgery.
> My concerns were unceremoniously dismissed.
>
> I am currently being treated with Synthroid and had been doing
okay.
> However, some symptoms have not improved, new ones are appearing,
or
> old ones recurring, and I am now more suspicious than ever. I am
> experiencing visual disturbances and headaches that I understand
are
> symptoms of pituitary tumour, for example. BTW, I have no history
of
> migraines. Latest tests show mid-range T4 (so not over-
supplemented),
> low TSH (0.15 with 0.3 being low end of normal range) and
potentially
> low prolactin (4 - I'm unsure of the reference range).
>
> I'm looking to talk to other people who have had experience with
> diagnosing/ruling out hypothyroidism secondary to pituitary
problems,
> how long it took to get properly diagnosed and what tests they
asked
> for.
>
> The especially complicating factor for me is that I live in the
> Canadian subarctic and the GPs seem reluctant to order standard
tests
> like MRIs which involve long plane rides south. Similarly, the
> nearest endocrinologist is literally thousands of kilometres away.
>
> Thanks,
> D'bora

Hi - my name is D'bora and I was diagnosed with hypothyroidism about
2 years ago. I had asked at the time about possible pituitary causes
(secondary hypothyroidism), since I have none of the common
indications of primary hypothyroidism such as positive antibody
tests, high TSH, enlarged thyroid or history of infection or surgery.
My concerns were unceremoniously dismissed.

I am currently being treated with Synthroid and had been doing okay.
However, some symptoms have not improved, new ones are appearing, or
old ones recurring, and I am now more suspicious than ever. I am
experiencing visual disturbances and headaches that I understand are
symptoms of pituitary tumour, for example. BTW, I have no history of
migraines. Latest tests show mid-range T4 (so not over-supplemented),
low TSH (0.15 with 0.3 being low end of normal range) and potentially
low prolactin (4 - I'm unsure of the reference range).

I'm looking to talk to other people who have had experience with
diagnosing/ruling out hypothyroidism secondary to pituitary problems,
how long it took to get properly diagnosed and what tests they asked
for.

The especially complicating factor for me is that I live in the
Canadian subarctic and the GPs seem reluctant to order standard tests
like MRIs which involve long plane rides south. Similarly, the
nearest endocrinologist is literally thousands of kilometres away.

Thanks,
D'bora

I forgot to mention I am being treated for Addison's, Hypothyroid and
hypogonad (all secondary of course).  GH is probably deficient too,
but I'm waiting until after my best friends wedding, which I am best
man to look into it as I've heard GH can alter levels of other
hormones.

Chris



--- In Hypopituitarysupport@yahoogroups.com, Chris Holly Jackson
<chrisgj@s...> wrote:
> I should have mentioned in a head injury the brain can be thrown
against the pituitary or hypothalimus, pinching or squeezing it.  At
that moment they will never work right again.
>
> Chris
>
> Chris Jackson <chrisgj@s...> wrote:
> My name is Chris and my parents and I figure I have had
> hypopituitarism since I was two. In a car accident my face hit the
> dash board, pushing all my baby teeth up inside my upper gum. Before
> this happened I had my tonsils and adenoids removed and nothing
> happened to me, but anytime I had anesthesia after that I would be
> totally wrecked.
>
> So far my ACTH, TSH, FSH, and LH have been at the bottom of or below
> range. Will test GH later this year. These 5 hormones is what is
> needed to be deficiency to be called panhypopituitary.
>
> When docs check for pituitary cancer and find nothing, it doesn't
> occur to them that maybe that patient had a head injury sometime in
> their past.
>
> Of course my story is very long, but I didn't want to write a book.
> I may post pieces of it later.
>
> Chris
>
>
>
>
>
>
> Yahoo! Groups Links

My name is Chris and my parents and I figure I have had
hypopituitarism since I was two. In a car accident my face hit the
dash board, pushing all my baby teeth up inside my upper gum. Before
this happened I had my tonsils and adenoids removed and nothing
happened to me, but anytime I had anesthesia after that I would be
totally wrecked.

So far my ACTH, TSH, FSH, and LH have been at the bottom of or below
range. Will test GH later this year. These 5 hormones is what is
needed to be deficiency to be called panhypopituitary.

When docs check for pituitary cancer and find nothing, it doesn't
occur to them that maybe that patient had a head injury sometime in
their past.

Of course my story is very long, but I didn't want to write a book.
I may post pieces of it later.

Chris




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My name is Chris and my parents and I figure I have had
hypopituitarism since I was two. In a car accident my face hit the
dash board, pushing all my baby teeth up inside my upper gum. Before
this happened I had my tonsils and adenoids removed and nothing
happened to me, but anytime I had anesthesia after that I would be
totally wrecked.

So far my ACTH, TSH, FSH, and LH have been at the bottom of or below
range. Will test GH later this year. These 5 hormones is what is
needed to be deficiency to be called panhypopituitary.

When docs check for pituitary cancer and find nothing, it doesn't
occur to them that maybe that patient had a head injury sometime in
their past.

Of course my story is very long, but I didn't want to write a book.
I may post pieces of it later.

Chris