Sounds like it responded to you on Hormone Support Group.

Chris


--- In Hypopituitary_Support@yahoogroups.com, birrdyy <birrdyy@...> wrote:
>
> Thanks Chris.  She's on day 5 and doing fine.  If anything it's time
for her
> to raise.  Her baseline cortisol was 14.  I know you don't go by
temps only
> by how someone feels, right?  She has actually felt better after only a
> couple of days and now today on day 5 is dragging again and couldn't
get out
> of bed this morning. The last few morning she's been able to get up.  I
> guess it's time to raise, right?
>
> On Sat, Nov 22, 2008 at 10:09 PM, Chris Jackson <chrisgj@...>wrote:
>
> >   She probably will be. It tends to be the lower the cortisol the less
> > likely a problem with getting the steroid going. If cortisol is in
> > the teens, it can be a problem to take all at once.
> >
> > Chris
> >
> > --- In
Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,
> > birrdyy <birrdyy@> wrote:
> > >
> > > If she's not having any of these things after 3 days can we
assume she's
> > > fine. If she's secondary and not making much cortisol to begin with
> > this
> > > shouldn't be a problem, right?
> > >
> > > On Thu, Nov 20, 2008 at 6:23 PM, Chris Jackson <chrisgj@>wrote:
> > >
> > > > Anxiety, racing heart, can't sleep. This is because of the bodys
> > > > cortisol being added to the full dose HC.
> > > >
> > > > You're welcome,
> > > > Chris
> > > >
> > > > --- In
> >
Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>
> > <Hypopituitary_Support%40yahoogroups.com>,
> > > > "birrdyy" <birrdyy@>
> > > > wrote:
> > > > >
> > > > > Does a secondary need to worry about ramping up on HC or can
they go
> > > > > straight to 20?
> > > > >
> > > > > Thanks.
> > > > >
> > > >
> > > >
> > > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>

to http://hormonesupportgroup.proboards.com/

  All new threads are to start at Hormone Support Group.

  Discussions on this Yahoo group will close by the end of the weekend
  to allow for some time for existing threads to
  wrap up.  No new threads will be accepted.  They will be deleted.
  Adrenal Help is also moving to Hormone Support Group.

  The software for Hormone Support Group is almost identical to the
  Real Thyroid Help software, but Proboards is free.  It's been a around
  for a while, I just which I'd found it earlier.  Proboards will make
  it much easier for Lee and me to keep up with topics.  I'm still
  looking for another person to help moderate with Lee and me.
  See you all at Hormone Support Group.

  Chris

Thanks Chris.  She's on day 5 and doing fine.  If anything it's time for her
to raise.  Her baseline cortisol was 14.  I know you don't go by temps only
by how someone feels, right?  She has actually felt better after only a
couple of days and now today on day 5 is dragging again and couldn't get out
of bed this morning. The last few morning she's been able to get up.  I
guess it's time to raise, right?

On Sat, Nov 22, 2008 at 10:09 PM, Chris Jackson <chrisgj@...>wrote:

>   She probably will be. It tends to be the lower the cortisol the less
> likely a problem with getting the steroid going. If cortisol is in
> the teens, it can be a problem to take all at once.
>
> Chris
>
> --- In
Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,
> birrdyy <birrdyy@...> wrote:
> >
> > If she's not having any of these things after 3 days can we assume she's
> > fine. If she's secondary and not making much cortisol to begin with
> this
> > shouldn't be a problem, right?
> >
> > On Thu, Nov 20, 2008 at 6:23 PM, Chris Jackson <chrisgj@...>wrote:
> >
> > > Anxiety, racing heart, can't sleep. This is because of the bodys
> > > cortisol being added to the full dose HC.
> > >
> > > You're welcome,
> > > Chris
> > >
> > > --- In
> Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>
> <Hypopituitary_Support%40yahoogroups.com>,
> > > "birrdyy" <birrdyy@>
> > > wrote:
> > > >
> > > > Does a secondary need to worry about ramping up on HC or can they go
> > > > straight to 20?
> > > >
> > > > Thanks.
> > > >
> > >
> > >
> > >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>


[Non-text portions of this message have been removed]

She probably will be.  It tends to be the lower the cortisol the less
likely a problem with getting the steroid going.  If cortisol is in
the teens, it can be a problem to take all at once.

Chris



--- In Hypopituitary_Support@yahoogroups.com, birrdyy <birrdyy@...> wrote:
>
> If she's not having any of these things after 3 days can we assume she's
> fine.  If she's secondary and not making much cortisol to begin with
this
> shouldn't be a problem, right?
>
> On Thu, Nov 20, 2008 at 6:23 PM, Chris Jackson <chrisgj@...>wrote:
>
> >   Anxiety, racing heart, can't sleep. This is because of the bodys
> > cortisol being added to the full dose HC.
> >
> > You're welcome,
> > Chris
> >
> > --- In
Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,
> > "birrdyy" <birrdyy@>
> > wrote:
> > >
> > > Does a secondary need to worry about ramping up on HC or can they go
> > > straight to 20?
> > >
> > > Thanks.
> > >
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>

Your stim result indicates secondary AI.  You started low and doubled,
that is what secondaries do.  To bad you had to deal with screaming
toddlers that likely affected the results.  Did they take ACTH too?  I
bet they didn't.  If you've had ACTH done and it was below 40, that
matches with secondary.  There is no fixing only treating adrenals in
secondary AI.  If HC is what you need, you can start Armour in a
month.  If you need Medrol, it will take up to another month.
Figuring out the dosage of Armour then can take up to a year if done
right (See my sticky about how to increase chance of success with your
HRT on the Proboards-Hormone Support Group forums.

Hang in there,
Chris



--- In Hypopituitary_Support@yahoogroups.com, "Mia Harrod"
<miaharrod@...> wrote:
>
> So I hear that fixing the adrenals in order
> to be well enough to take Armour can take
> quite a while, and then once you do take the
> Armour that can take another good deal of
> time. So maybe in a about a year or longer I
> will be back to normal? - Wow, I cannot even
> imagine waiting that long to feel good again.
> (God, please curse me with a disease like
> hypothyroidism and adrenal insufficiency to
> test the very little bit of patience that I
> have left in me)...!@!!!!!!!@@#$#@$%@#$@%$@..
>
> ARGH !!
>
> MIA
>
>
>
>   _____
>
> From: Hypopituitary_Support@yahoogroups.com
> [mailto:Hypopituitary_Support@yahoogroups.com
> ] On Behalf Of Mia Harrod
> Sent: Thursday, November 13, 2008 7:44 PM
> To: Hypopituitary_Support@yahoogroups.com
> Subject: RE: [Hypopituitary_Support] Re:
> prepping for ACTH stim test
>
>
>
>
>
> Wow, my ACTH Stim Test was started at 9:40am
> ( I was starving and pissed off by that time)
> I got there at 8:20am. So I waited in the
> lobby for over an hour with 2 whiney
> screaming toddlers, who were also hungry and
> by the time they drew my blood at 9:40am I
> was about to punch somebody. Then they did
> the 2nd blood draw at 10:40 and my results
> are as follows: 14.4 (first draw) and after
> cortisol shot it was 29.3. The doctor said
> these were normal test results. I was shocked
> that they were normal since I felt so
> horrible. But I wonder if my cortisol was
> higher because I was sick, not feeling well,
> and my kids were driving me insane and I was
> starving??
>
> Mia
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

If she's not having any of these things after 3 days can we assume she's
fine.  If she's secondary and not making much cortisol to begin with this
shouldn't be a problem, right?

On Thu, Nov 20, 2008 at 6:23 PM, Chris Jackson <chrisgj@...>wrote:

>   Anxiety, racing heart, can't sleep. This is because of the bodys
> cortisol being added to the full dose HC.
>
> You're welcome,
> Chris
>
> --- In
Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,
> "birrdyy" <birrdyy@...>
> wrote:
> >
> > Does a secondary need to worry about ramping up on HC or can they go
> > straight to 20?
> >
> > Thanks.
> >
>
>
>


[Non-text portions of this message have been removed]

A reminder. No new threads are to be started here. New threads go here.

http://hormonesupportgroup.proboards.com/

Existing threads only can be posted to.

Sunday night this forum will be locked to posting, but will remain up
for searching the posts and also in case the Proboards site goes down,
we can come back here.

Thanks,
Chris



--- In Hypopituitary_Support@yahoogroups.com, "Chris Jackson"
<chrisgj@...> wrote:
>
> to http://hormonesupportgroup.proboards.com/  All discussions are to
> be posted over there.  Discussions on this Yahoo group will close by
> the end of the weekend to allow for some time for existing threads to
> wrap up.  No new threads will be accepted.  They will be deleted.  All
> new threads are to start at Hormone Support Group.
>
> Adrenal Help is also moving here.
>
> The Yahoo groups will be remain open to read the topics, LINKS and
FILEs.
>
> The software for Hormone Support Group is virtually identical to the
> Real Thyroid Help software, but Proboards is free.  It's been a around
> for a while, I just which I'd found it earlier.  Proboards will make
> it much easier for Lee and me to keep up with topics.  I'm still
> looking for another person to help moderate with Lee and me.
>
> See you all at Hormone Support Group.
>
> Chris
>

Anxiety, racing heart, can't sleep.  This is because of the bodys
cortisol being added to the full dose HC.

You're welcome,
Chris


--- In Hypopituitary_Support@yahoogroups.com, "birrdyy" <birrdyy@...>
wrote:
>
> Does a secondary need to worry about ramping up on HC or can they go
> straight to 20?
>
> Thanks.
>

Your thyroid labs show undertreatment in that your frees not keeping
at the tops of the ranges.  Vitals and how you feel matter more
though.  I've seen people suppress TSH that much on less than 1 grain,
so TSH isn't helpful in determining dosage.  Most people feel worse on
low dose HC.  Your Dhea-s being low suggests secondary AI.  Get that
ACTH result.  The range for it is very flawed anymore.  98% of
secondaries are low in range,  rarely do I see them below range.

Chris





--- In Hypopituitary_Support@yahoogroups.com, "free2ridejones"
<blairs3@...> wrote:
>
> Here are some results in the begining, nothing in between and some
> just recent.  It was my idea to try NT but the doctor was not really
> keen.  However I had some good results with it, alot of my symptoms
> disappeared.
>
> I don't feel great when I take NT now.  Maybe because of RT3?  I am
> down to 65mg.  I have slowly needed to decrease and when I do
> symptoms get better.   I have times when I need it to correct hyp
> symptoms, kind of odd how it is working for me.  I take 32.5 later am
> and 32.5 before bed.  This later dose helps me in the mornings, I am
> not so tired.  When I feel NT is too much I get this odd wave feeling
> in my head, slightly raised pulse and mild air hunger and headaches.
> This disappears with NT reduction.
>
> Doctors are lab obsessed and I'm banging my head against a wall.
> They are so stuck on the text book.  I've had about 9 doctors and
> they are all the same.  Endo recently said I should never have been
> on NT but could off no soultion to my problems.  T3 can't be
> prescribed.  Only for cancer patients in this country.
>
> My temps have been around 36.3-36.7 degress (not sure what that is in
> F/height) since reduction of NT.  If I don't have my electric blanket
> on I will wake cold.  I have the odd time where I will drop to 35.5
> ish.
>
> Anyway, if you would be so kind to look at my results and give me
> some feed back would be great.
>
> Thanks Margo
>
> Here are some results in the begining, nothing in between and some
> just recent.  It was my idea to try NT but the doctor was not really
> keen.  However I had some good results with it, slot of my symptoms
> disappeared.
>
>
> FT4 (10-23)  TSH (0.30-4.0)  FT3 (3.5-6.5)
>
> 				 11.04.05
> FT4
> TSH 					 .47
> FT3
>
> 28.11.03 TSH 0.87
> 23.09.04 FT4 16.5  TSH 1.1  FT3 4.6
> 15.10.04 FT4 13.1
> 11.04.05 TSH .47
> 08.12.05 FT4 12.5  TSH 0.14  FT3 4
> 8.05.06 FT4 16.31  TSH  1.03
> 16.10.06 FT4 14.5  TSH  0.75  FT3 4.7
> 15.12.06 FT4 16.88 TSH  0.55 FT3 4.6
> 15.01.07 FT4 16.7 TSH  0.02 FT3 4.9
> 20.02.07 FT4 14.2 TSH  <0.02 FT3 5.8
> 01.05.08 FT4 17   TSH  <0.02 FT3 6.6
> 14.06.08 FT4 16.9 TSH  <0.02 FT3 5.5
> 18.08.08 FT4 17.6 TSH  <0.02 FT3 5.9
> 21.10.08 FT4 13.7 TSH  <0.02 FT3 4.7
>
> TSH from 20.02.07 are less than 0.02.  Not sure the less than sign
> appears.
>
> RT3 Sept 08  449 (230-540)
> I didn't have FT3 done at the same time but I was on the same dose on
> the 21.10.08.  Ratio works out to be 10 if I have that right.
>
> Microsomal Anti b's 23.9.04 Positive 400 (less than 100)
>    "                  "      22.08.08      "    1600    "      "
> November 07 was the last time they were at 400
>
>
> Epstein Barr Virus  EBNA IgG  Positive as of 28.02.00
> Cytomeglovirus      CMV IgG 124 (less than 6)
>
>
> Iron Studies  22.08.08 18.03.08
> Serum Iron  23  20 (10-30)
> Ferritin  67  93 (20-200)
> Transferrin  2.5  2.2 (2.0-3.5)
> Transferrin Saturation 40  40 (16-50)
>
> I have more previous results if needed
>
> Adrenal Anti B's  Aug 08  Negative
>
> 25 Hydroxycholecalciferol (vit d)
> 5.11.07   47 nmol/L (50-150)
> 17.11.06  48 nmol/L same range
>
>
> Serum B12 & Folate 22.08.08    18.03.08 05.11.07
> Serum B12  456     806  700 (170-600)
> Serum Folate  32     38.3 36.3 (less than
> 10) normal,  7.-10.Indeterminate,  less than 7 Deficient
>
> Mercury  5.11.07  57 (0-20)
> Have had amalgams removed since July 08 done a couple of light detoxes
>
> Urine Iodine 23.11.06   0.74  (0.40-0.80)  mild deficiency
>
> Coelic Antibodies   10.04.06 Anti gliadin IgG  33  (0-20)
> I don't have coeliacs but am gluten free
>
>
> Blood Cortisol  22.08.08 18.03.08
> Cortisol  187  281 AM range (171-536)
>
> Urine Cortisol  15.11.04
> Urine Cortisol  203 Concentration   171 Excretion  (100-400)
> Creatinine  14.7    "                  12.3   "    (7.0-
> 12.5)
>
> I have mild candida.
>
> I took HC for about a year and a half but could only tolerate 5-10mg
> per day.  Not sure why
>
> Blood DHEA Sulphate     05.11.07   4.1  (0.5-12)
> AoS/epiAos                         0.5  (less than 6)
>
> SHGB  (day 15)   05.11.07    95   (20-90)
>
> Saliva Cortisol  31.08.08  8am 15  (10-28)  12pm 6  (3-15)  4pm   6
> (3-15)  10pm 3 (1-5)
>
>
> ACTH - I don't have results but the doctor said all was good.
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> --- In Hypopituitary_Support@yahoogroups.com, "Chris Jackson"
> <chrisgj@> wrote:
> >
> > If you can't copy paste, then you'll have to type in your lab
> results.
> >  If you weren't feeling hyper, you probably weren't.  They were
> > probably seeing the low TSH while you were on NT and freaking.
> Proper
> > dosing will lower TSH to about zero you probably know.  YOu do have
> to
> > treat adrenals well before starting NT to be successful treating
> your
> > thyroid.
> >
> > You're welcome,
> > Chris
> >
> >
> > --- In Hypopituitary_Support@yahoogroups.com, "free2ridejones"
> > <blairs3@> wrote:
> > >
> > > Hello
> > >
> > > I am new to the group and in need of advice. Its been suggested
> that I
> > > post my results for you guys to look at for a pituitary issue but
> I
> > > have so many that I don't think they'd fit on this page.
> > >
> > > How can I get my spreadsheet in here for someone to look at or do
> I
> > > just email it to someone. I am not sure which results are the most
> > > important.
> > >
> > > I am at present on 120mg NT and decreasing. I have high RT3. I
> can't
> > > get treatment here in NZ for this condition and the hospital want
> me
> > > off NT and never to take it again. That's ok while RT3 is
> clearing but
> > > I'm in poop later.
> > >
> > > It was my suggestion that I try NT for hypo symptoms and had some
> very
> > > good results with it but the hospital thinks at the time I
> started I
> > > was hyper. Sure didn't feel like it.
> > >
> > > Thanks Margo
> > >
> >
>

Isocort would be preferable except it's not strong enough.  I see no
one stay on it for long.  So really HC is the preferable choice.
Replacement doses are not associated with weight gain except in some
cases, the mineralcorticoid of HC can hit hard and cause excess water
retention.  Glucocorticoids have the bad name (ie weight gain) because
of it's overuse.

You're welcome,
Chris


--- In Hypopituitary_Support@yahoogroups.com, "slehr05" <slehr05@...>
wrote:
>
> I recently received lab results which indicate I'm suffering from
> adrenal fatigue (It looks like stage 5-6.)...In addition, although my
> blood work was "normal", I'm quite sure that I have hypothyroidism (I
> have many symptoms, and I feel so much better since I started taking 30
> mg of Armour Thyroid almost 2 weeks ago). I'm also very likely
> hypopituitary...I was recently advised to re-test my morning cortisol
> and ACTH at the same time in order to confirm this.
>
> I haven't had time to do much research yet, but I was wondering if
> anyone has any suggestions on medication for adrenal fatigue...Are
> there any particular ones that are preferable? Also, I'm extremely
> concerned about avoiding weight gain...Is there anything I can take
> that is effective, yet not associated with weight gain?
>
> Thank you!
>

What happens if they do.  My sister just started 3 days ago on 20.  She
secondary and is NOT taking any thyroid meds and is actually feeling a tiny
bit better already.  Thanks.

On Thu, Nov 20, 2008 at 5:45 PM, Chris Jackson <chrisgj@...>wrote:

>   Is best to ramp up. Most can't go straight to 20 or 30 mg.
>
> You're welcome,
> Chris
>
> --- In
Hypopituitary_Support@yahoogroups.com<Hypopituitary_Support%40yahoogroups.com>,
> "birrdyy" <birrdyy@...>
> wrote:
> >
> > Does a secondary need to worry about ramping up on HC or can they go
> > straight to 20?
> >
> > Thanks.
> >
>
>
>


[Non-text portions of this message have been removed]

Is best to ramp up.  Most can't go straight to 20 or 30 mg.

You're welcome,
Chris

--- In Hypopituitary_Support@yahoogroups.com, "birrdyy" <birrdyy@...>
wrote:
>
> Does a secondary need to worry about ramping up on HC or can they go
> straight to 20?
>
> Thanks.
>

Good you're doing better. Hang in there.

Chris

  --- In Hypopituitary_Support@yahoogroups.com, "Karen" <kleeali@...>
wrote:
>
> I am new to this group but have been reading messages and just
lurking.  I
> have been dealing with adrenal and thyroid issues for a very long
time now.
> I was started on synthroid back in about 1980, and was kept on it
until I
> saw a very good doctor in 2000 that prescribed Armour for me, and
then added
> the HC.  One of the things that I found to help me more than
anything was to
> use an extra calendar (one of those that are given out by banks,
insurance
> companies, etc).  A wall calendar that had big enough blocks for
each day.
> I would note what dosages I was taking of the HC and Armour, plus some
> supplements, and also note if there was anything out of the ordinary
(extra
> work, different stressors, whatever I did that might have brought on a
> difficult day) and also note how I felt on a given day; good, fair,
bad, or
> horrible.  You get the idea.  I would take the calendar with me to
my office
> visits with my new doc, and give him the calendar.  He would review
it for a
> few minutes and then he had an idea of how we were progressing to
get meds
> in proper proportions.  I didn't have to do this forever, but I did
it for
> about 6 months or so.  My doc was pleased with the arrangement.  He was
> always available by phone or by e-mail.  I only made one trip to the
ER and
> that was about 3-4 months into the journey.
>
>
>
> Now, I function pretty well but still have days when I have to
retrench and
> take it easy, but I don't fall apart now as much as I used to do when I
> started treating with the HC.  In between all of this, I received two
> separate cancer diagnoses and had some very major surgeries, but I
am still
> here and still working almost full time.
>
>
>
> Hang in there, it will get better.
>
>
>
> Karen in WV
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

--- In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
<pricklefoot3@...> wrote:
>
> Hi There,
>
> Do  any of these look like I may have a hypoP problem?
> I am trying to figure out why my TSH is always so low and my TH
> levels arent even at mid range.
>
> I am postmenoP. if that helps.
>
> I did have a bump on the head about 20 yrs ago)
>
> ACTH plasma 18  (5-27)
> Comment: This is very low. Optimal is mid to high 40's. We use OLD
> range which was up to 60. What is your Cortisol like? Have you
tested
> 8am Cortisol at same time as serum ACTH? What about Saliva 4 x
> Cortisol did you have ACTH Stim done?
>
> Cant make any statement/judgement re AI or Hypopit without Cortisol
> AND Serum ACTH testing. If low ACTH AND low Cortisol then may be
> Hypopit for ACTH.
>
> You dont mention being on any steroids (HC, Pred, Medrol) just
> Armour???
>
> Prolactin  2.9  (2.0-20.0)
> Comment: THis is low & pretty well is what is expected for PostMeno.
>
> DHEAS  38   (<OR=185  mcg/dL) *Very low only 20% in range
> Testosterone total 49 (20-76) *70% in range
> Progesterone 1.2 (<0.7) *over range
> FSH 30.8  (23.0-116.3-postMeno)
> LH  16.4 (5.0-52.3 postMeno)
> Comment: DHEAS & Testosterone are far from optimal. Optimal is top
> 25% of YOUTHFUL range. I bet the Lab Ranges are Postsmenopausal?
> No Estrogen results? Progesterone is over Lab Range but I bet thats
> Postmenopausal Range? So I dont think thats really high at all. You
> may have Estrogen Dominance who knows without testing?
> Low DHEAS & Testosterone is suggestive of AI & possibly Hypopit
(due
> to low ACTH).
> Are you on any HRT for these Hormones?
> You need to have ALL Androgens & Sex Hormones tested at same time
>
> •Androgens Panel (early 8am) includes
>  Testosterone
>  SHGB
>  FAI
>  DHEAS
>  Androstenedione
>  Free Testosterone *USA Free&loosely bound Bioavailable Testosterone
>  Dehydrotestosterone (DHT) *for males only
>
> •Hormonal  Panel includes
>  FSH
>  LH
>  Estradiol (E2) *Men ask for `extra sensitive' test for Males
>  Estrone        *available USA
>  Estriol        *available USA
>  Progesterone
>  LH/FSH Ratio
>
>
> Sodium  140 (135-146)
> Potassium 3.8  (3.5-5.3)
> RENIN 3.5-ng/ML (nonhypertensive adults-upright)0.65-5.0 ng/mL
> Comment: Sodium is too low may be showing Salt wasting from low
> Aldosterone. Where is Aldosterone result?
> Potassium is VERY LOW I hope you are supping that? Low Potassium
may
> be supporting Hypopit DX.
> You should be supping Sea Salt at least twice daily too.
>
> Thyroid Tests
> I AM USING 90mg Armour & 25mcg T4
> I still have all classic Hypoth symptoms
> TSH 0.03  (0.40-2.70)
> FreeT3 304 (230-420)
> Free Thyroxine 1.38 (0.8-1.8)
> Comment: Low TSH while on Thyroid meds means nothing. It SHOULD be
> suppressed. Need Thyroid tests from BEFORE on any Thyroid meds to
see
> if possibly Hypopit in this area.
>
> Why are you on Synthetic T4 and Armour? You are far too low a dose
of
> Armour to be optimised as yet. Most optimise 3-5 grains. Free T3 is
> still far too low top or over range (used to go up to ~620) showing
> under-treatment.
>
> You havent provided enough info to say whether possibly Hypopit or
> not. Low TSH while on Thyroid meds doesnt mean Hypopit its the
Before
> Thyroid med results that may.
>
> Need Aldosterone as well as Renin, need Cortisol as well as ACTH.
> Need Thyroid before meds.
>
> Lethal  Lee
> -----------------------------------------------------------------
Thank you for sharing your knowledge and time.

I do not have all of my results back yet. Waiting for Cortisol and
Aldosterone and Renin. I don't have any records of my TH. levels
before meds. I have been Hashi's for more than 10 yrs. (probably
longer) No are no good Drs here for this stuff. I will look for a DO
like Chris J. suggested. I would never have thought a DO would know
hormones though.

I found out my Reverse T3 is too high. Ratio is 11. I dont really
know why i am using the extra T4. I guess that is converting to more
RT3? I need to know how to lower that reverse T3. I was told to go on
T3 only for a few months. I am wondering if the Dr. will go along
with that.

Should I just buy potassium at the vitamin shop, or get a Dr's RX? My
sodium and potassium have always been low. Dr's never mentioned it. I
Do we as patients need to micromanage our medical care? I guess so.

I am using RX Bioidentical hormones. I will be getting this retested.
At the time of my last saliva test I was low on progesterone, and my
estradiol and prog. ratio was not good. I will be getting a new test
soon.

Here are serum tests: 8/18/08 this is most recent ones--

Estradiol--<20   less than <40 post meno.
FSH--46.8  (16.74-113.59) post meno.
LH-- 18.3  (10.87-58.64)
Progesterone--0.5  (0.08-0.78)
free testosterone--22.9  (10-70)

IGF-1 97.8  (69-200)
I have scheduled an ACTH stim. test and also Arginine stim test.
Will these help? Can you think of any others ?

Sorry for this lengthy post..and thanks again

Hi, Lethal Lee,

The PCP that I see is affiliated with a large hospital group, and I
have to get referrals through her to see other doctors in that
group.  She referred me to the Nephrologist for the BP issues (no
idea why), as well as to their Endocrinology group (I have not heard
from them yet, and don't truly care to, as I already know their
response to the use of Armour and their viewpoint on lab ranges).
The entire group appears to go by labs only, not symptoms ... if you
are "in range", no matter where in that range, you are "normal",
lol.  The only reason I have stuck with them so far is to try to get
proper testing, images, etc, until I know what the cyst is on my
adrenal and, hopefully, the brain MRI. Otherwise, I would drop them
so fast, and will do so after I can get the tests!

I have had cardiac testing in the past, including a medicine-induced
stress test about 18 months ago (nasty test!), EKG's, etc, and all
have been fine.

The ENT that I see is great for the thyroid, allergies and sex
hormones, but I do not believe will work out for much of anything
else.  I have searched within a several hour drive for a better all-
around doc, and have had no luck.

I have stopped the Benicar (again, not told the doc) but continue to
take the Clonidine 0.1 mg at night.  I am scheduled for more labs on
Dec 9 where they will also run the renin/aldosterone ratios.
Hopefully, there will be a difference in them since stopping the
Benicar, as well as continuing the sea salt.  I try to eat high
potassium foods, also.

I noticed in another thread where you said that people could "copy &
paste" their existing threads/info to the new forum.  Is there an
easy, uncomplicated way to do so?

Thanks for your insight!

Barbara


--- In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
<pricklefoot3@...> wrote:
>
> Hi Barbara,
>
> I looked up your BP med Benicar. It certainly DOES affect the
Renin/
> Angiotensin system  so would also affect
Sodium/Potassium/Aldosterone
> levels too.
>
> I had very high BP & was tachycardic too. It was caused by low Aldo
&
> high Renin. I was deficient (not just low) in Potassium &
suboptimal
> in Sodium. I never had any BP meds although I did checkout heart
> function thoroughly. I had 24 hour BP monitor 3 times as well. I
did
> see a pretty on the ball Cardiologist though. I had insisted on
> testing & 24 hour BP monitoring before I got referral to him. When
he
> saw results he told me BP meds WERE NOT NEEDED. Despite having BP
up
> to 210/115 my BP went down at night so 24 AVERAGE BP was much lower.
>
> By the way why are you seeing a Nephrologist? Isnt that for Kidney
> problems rather than BP problems???
>
> Eventually I started Florinef, RX Potassium and Alkala N (has
Sodium
> Bicarb) and my BP dropped at least 30 points at its peak, I get
> more 'good' BP readings and mr fast HR dropped too. My BP now rises
> consistently from sitting to standing as well (which it didnt do
for
> the previous 7 years when BP issues started).
>
> So I think you have Aldo/Renin Sodium/Potassium issues. And instead
> of recognising that your Doc is doing the ignorant typical approach
> for high BP.
>
> Lethal Lee
> --------------------------------------------------------------

Hi Mia,

Those ACTH results suggest Secondary AI (hypopit) but need Serum ACTH
results to say with anymore certainty. Please post Saliva results
when you have them. Have you tested Serum ACTH & 8am Cortisol???
Certainly the base Cortisol level was far too low.

With that TSH you are NOT Hypopit for Thyroid at least. Need Frees,
Thyroid Antibodies, RT3 tested. TSH of that level certainly is
Hypothyroid. Your reaction to Armour may be due to low Cortisol. With
correct Adrenal support (HC, Vit C, B vits, Sea Salt) you should be
able to handle the Armour.

Funny you mention ADD I was Dx'ed with that along with CFS, Fibro,
Hypertension, Tachycardia etc etc before AI & HypoT recognised. Dont
need painkillers or ADD meds now I'm on steroids & Thyroid meds. Dont
need BP meds either I got my BP down with Sea Salt, Potassium &
Florinef.

I know its hard to be sick & have to find ino on what to test then
struggle to find Doc to DX & RX. All I can say is its the only way to
get to a better place health wise. Unfortunately there a lot of
ignorance, incompetence & arrogance out there.

Have you bought the STTM book? Thats a good reference & has most of
STTM info in one easy place. I also recommend Durrant-
Peatfields "Your Thyroid & How to Keep it Healthy". Its very clear &
simply explained   it helped me a lot at the stsrt. I have
Wilsons "Adrenal Fatigue the 21st Century Stress Syndrome". Hes not
good on Secondary AI so much but its not bad. Jefferies "The Safe
Uses of Cortisol" helped me persuade my Doc to DX & RX the steroids.
Its a lot more Technical & not an easy read at all though.

It took me 8 years and many Docs to get my problems recognised. It
was only my own persistence & educating myselfd that made that
possible. I was motivated too becuase my children have the SAME
problems. They are Dx'ed now too & about to start treatment. Even my
DH has issues. We are halfway through the testing process for him.

So what you learn now in getting your health issues sorted will no
doubt help you with your own children & family. They will be much
better off with what you learn about vits, minerals, hormones,
stress, diet, toxins etc.

Thats what I tell myself anyway. Plus you no longer take health for
granted & start to appreciate a lot of things more. You learn
patience because healing takes time and you will have a much better
quality of life in the long term.

Hope that helps some.

Lethal Lee
------------------------------------------------------------
--- In Hypopituitary_Support@yahoogroups.com, "mia2amazeu"
<miaharrod@...> wrote:
>
> I have a question for you. I have read a lot of your files and
posts  and messages from the other board, and even your own personal
story.
> I am really very depressed lately and have no energy. I am new to
the  group, but sometimes I am so damn tired, fatigued and depressed
to   get online and read, plus my focus and concentration is all
gone, so   It's hard for me to focus on much, almost like having
A.D.D.

  I don't know if I am hypothyroid or not, my doctor said he thought
I  was, then we did testing and then he said that I wasn't because
the  Armour made me so sick (it mainly gave me a feeling of trapped
gas  and bloating and made it hurt for me to breathe in). So I quit
the Armour.
>
>My TSH was 3.28. I did the ACTH Stim test 2 weeks ago and the
results  were: 14.4 before the shot, and 29.3 after the shot. My ENDO
doctor  said that was a normal response and that my adrenals are
fine, and he  suggested that I not come back, because I have no
endocrine, or  metabolic problems.
>
> However, I am soooo tired. I can't even cook, clean, take care of
my  kids or anything. I am also depressed too.
>
> I don't know what else to do. I am just sick and tired of being
sick  and tired.
>
> I have a saliva 4X cortisol test I will be doing tomorrow, and I
plan  to overnight it on Monday morning to ZRT Labs. So hopefully
this time  next week I will be close to get the results of that.
>
> I just need some glimmer of hope, hope is fading fast for me.......
>

Hi There,

Do  any of these look like I may have a hypoP problem?
I am trying to figure out why my TSH is always so low and my TH
levels arent even at mid range.

I am postmenoP. if that helps.

I did have a bump on the head about 20 yrs ago)

ACTH plasma 18  (5-27)
Comment: This is very low. Optimal is mid to high 40's. We use OLD
range which was up to 60. What is your Cortisol like? Have you tested
8am Cortisol at same time as serum ACTH? What about Saliva 4 x
Cortisol did you have ACTH Stim done?

Cant make any statement/judgement re AI or Hypopit without Cortisol
AND Serum ACTH testing. If low ACTH AND low Cortisol then may be
Hypopit for ACTH.

You dont mention being on any steroids (HC, Pred, Medrol) just
Armour???

Prolactin  2.9  (2.0-20.0)
Comment: THis is low & pretty well is what is expected for PostMeno.

DHEAS  38   (<OR=185  mcg/dL) *Very low only 20% in range
Testosterone total 49 (20-76) *70% in range
Progesterone 1.2 (<0.7) *over range
FSH 30.8  (23.0-116.3-postMeno)
LH  16.4 (5.0-52.3 postMeno)
Comment: DHEAS & Testosterone are far from optimal. Optimal is top
25% of YOUTHFUL range. I bet the Lab Ranges are Postsmenopausal?
No Estrogen results? Progesterone is over Lab Range but I bet thats
Postmenopausal Range? So I dont think thats really high at all. You
may have Estrogen Dominance who knows without testing?
Low DHEAS & Testosterone is suggestive of AI & possibly Hypopit (due
to low ACTH).
Are you on any HRT for these Hormones?
You need to have ALL Androgens & Sex Hormones tested at same time

•Androgens Panel (early 8am) includes
  Testosterone
  SHGB
  FAI
  DHEAS
  Androstenedione
  Free Testosterone *USA Free&loosely bound Bioavailable Testosterone
  Dehydrotestosterone (DHT) *for males only

•Hormonal  Panel includes
  FSH
  LH
  Estradiol (E2) *Men ask for `extra sensitive' test for Males
  Estrone        *available USA
  Estriol        *available USA
  Progesterone
  LH/FSH Ratio


Sodium  140 (135-146)
Potassium 3.8  (3.5-5.3)
RENIN 3.5-ng/ML (nonhypertensive adults-upright)0.65-5.0 ng/mL
Comment: Sodium is too low may be showing Salt wasting from low
Aldosterone. Where is Aldosterone result?
Potassium is VERY LOW I hope you are supping that? Low Potassium may
be supporting Hypopit DX.
You should be supping Sea Salt at least twice daily too.

Thyroid Tests
I AM USING 90mg Armour & 25mcg T4
I still have all classic Hypoth symptoms
TSH 0.03  (0.40-2.70)
FreeT3 304 (230-420)
Free Thyroxine 1.38 (0.8-1.8)
Comment: Low TSH while on Thyroid meds means nothing. It SHOULD be
suppressed. Need Thyroid tests from BEFORE on any Thyroid meds to see
if possibly Hypopit in this area.

Why are you on Synthetic T4 and Armour? You are far too low a dose of
Armour to be optimised as yet. Most optimise 3-5 grains. Free T3 is
still far too low top or over range (used to go up to ~620) showing
under-treatment.

You havent provided enough info to say whether possibly Hypopit or
not. Low TSH while on Thyroid meds doesnt mean Hypopit its the Before
Thyroid med results that may.

Need Aldosterone as well as Renin, need Cortisol as well as ACTH.
Need Thyroid before meds.

Lethal  Lee
-----------------------------------------------------------------

Hi Lynn,

If your friend is Hypopit what Pituitary Hormones was she low in? If
her TSH was high obviously she wasnt Hypoipt for Thyroid at least.
Therefore she must have been Primary Hypothyroid. Did she have Thyroid
Antibodies checked out?

AS far as Fertility & Sex Hormones if the FSH & LH were low as well as
Sex Hormones/Androgens then she probably has at least some degree of
AI. And of course she would be Secondary Hypogonadal as well (low Sex
Hormones due to lack of FSH/LH stimulus.

No amount of diet changes are going to correct her AI & infertility
issues. And until her AI (Cortisol maybe Aldosterone), Sex Hormones,
Androgens are all tested & optimised I doubt her infertility issues
will be solved.

I would think untreated AI would also eventually affect her Thyroid too.

What was her Cortisol, Serum ACTH like? Recent Androgens, Sex Hormones,
Thyroid test results?

Note please copy my post & reply on the new Forum
http://hormonesupportgroup.proboards.com/index.cgi

Lethal Lee
-----------------------------------------------------------------

for --- In Hypopituitary_Support@yahoogroups.com, "lynnhopes"
<lynndunning@...> wrote:
>
> Hi Chris and everyone
>
> I have a friend who was previously diagnosed with hypopituitarism.
She
> had a high TSH and low FSH. She has changed her lifestyle completely,
> eats low carb and no longer has to take any thyoid meds. However she
> still battles with infertility. She menstruates very irregularly,
> sometimes only once every six months.
>
> Are there any websites you can reccoemend for her? Are there any meds
> that would help her fertility? Her infertility is the only symptom
that
> she has really.
>
> Any good doctors list?
>

I forgot, when you join, I'd appreciate if you could use the member
name you use on RTH.

Thanks,
Chris



--- In Hypopituitary_Support@yahoogroups.com, "Chris Jackson"
<chrisgj@...> wrote:
>
> to http://hormonesupportgroup.proboards.com/  All discussions are to
> be posted over there.  Discussions on this Yahoo group will close by
> the end of the weekend to allow for some time for existing threads to
> wrap up.  No new threads will be accepted.  They will be deleted.  All
> new threads are to start at Hormone Support Group.
>
> Adrenal Help is also moving here.
>
> The Yahoo groups will be remain open to read the topics, LINKS and
FILEs.
>
> The software for Hormone Support Group is virtually identical to the
> Real Thyroid Help software, but Proboards is free.  It's been a around
> for a while, I just which I'd found it earlier.  Proboards will make
> it much easier for Lee and me to keep up with topics.  I'm still
> looking for another person to help moderate with Lee and me.
>
> See you all at Hormone Support Group.
>
> Chris
>

Hi Lori,

Sorry I dont have any info/help on infertility issues.

Except to make sure AI,Thyroid and Sex Hormones are optimised.

I am aware of several ladies on RTH who are trying to optimise in
order to get pregnant. Their names are Bree & Barbie & they are
members & post often on RTH Forums. Possibly try posting to them?

http://forums.realthyroidhelp.com/index.php

Lethal Lee
--------------------------------------------------------------
In Hypopituitary_Support@yahoogroups.com, "mrsalverson"
<greedo5150@...> wrote:
>
> Has anyone had sucess with increasing fertility?  I am trying to
get
> pregnant and need some ideas.
>
>
> Lori
>

Hi Barbara,

I looked up your BP med Benicar. It certainly DOES affect the Renin/
Angiotensin system  so would also affect Sodium/Potassium/Aldosterone
levels too.

I had very high BP & was tachycardic too. It was caused by low Aldo &
high Renin. I was deficient (not just low) in Potassium & suboptimal
in Sodium. I never had any BP meds although I did checkout heart
function thoroughly. I had 24 hour BP monitor 3 times as well. I did
see a pretty on the ball Cardiologist though. I had insisted on
testing & 24 hour BP monitoring before I got referral to him. When he
saw results he told me BP meds WERE NOT NEEDED. Despite having BP up
to 210/115 my BP went down at night so 24 AVERAGE BP was much lower.

By the way why are you seeing a Nephrologist? Isnt that for Kidney
problems rather than BP problems???

Eventually I started Florinef, RX Potassium and Alkala N (has Sodium
Bicarb) and my BP dropped at least 30 points at its peak, I get
more 'good' BP readings and mr fast HR dropped too. My BP now rises
consistently from sitting to standing as well (which it didnt do for
the previous 7 years when BP issues started).

So I think you have Aldo/Renin Sodium/Potassium issues. And instead
of recognising that your Doc is doing the ignorant typical approach
for high BP.

Lethal Lee
--------------------------------------------------------------

-- In Hypopituitary_Support@yahoogroups.com, "Barbara" <blane636@...>
wrote:
>
> Hi, Lethal Lee, thanks for replying!
>
> My sodium and potassium always run towards the bottom of the scale,
> although "in range" (labs are earlier in this thread).  Yes, I supp
> with the sea salt, at least 1/2 to 3/4 tsp per day, sometimes more
(I
> just don't tell my Nephrologist!).  If this is "normal" (I detest
> that word!), I'll just throw on an extra sweater for now 'til it's
> sorted out, lol.  Any ideas on the highish resting pulse?  It's
been
> this way since before starting the HC.
>
> Thanks again,
> Barbara
>
>
> --- In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
> <pricklefoot3@> wrote:
> >
> > Hi Barbara,
> >
> > Your ACTH Stim & Serum ACTH does support Secondary AI.
> >
> > AS you are on Armour already then gradually increasing HC as per
> STTM
> > is the best way to go.
> >
> > Also is best to leave Armour where it is (may even need to drop
it
> > some) while steroids are sorted.
> >
> > About dropping temps things wil be all over the place for a bit
> while
> > you introduce HC & find your right dose & timing. Possibly as the
> HC
> > is taken it is getting more FT3 to your cells  & leaving you
> feeling
> > more HYpoT?
> >
> > The fact that your BP is dropping on standing shows
> Sodium/Potassium
> > is not right. Are you Sea Salt supping at least twice daily?
> >
> > Lethal Lee
> > ------------------------------------------------------------------
--
> --
> > ---- In Hypopituitary_Support@yahoogroups.com, "Barbara"
> > <blane636@> wrote:
> > >
> > > I left my Armour at 2 grains and started HC 2.5 mgs on Sunday
> > > morning.  After taking the HC Monday am, my temps began to
fall,
> > from
> > > 96.4 to 96.1 to 95.9.  Today I got up at 6 am; at 8 my temp was
> > 97.0,
> > > at 10 it was 96.4 and by 11:15 it was 95.9.  My BP is 146/94
> pulse
> > > 101 sitting; standing was 133/94 pulse 114.  I am supposed to
> > > increase the HC to 5 mg today for the next three days, then up
> > again
> > > by 2.5 mg.  Is it "normal" for the temps to fall during the day
> > when
> > > starting HC?  I am freezing!!
> > >
> > > Thanks,
> > > Barbara
> > >
> > > --- In Hypopituitary_Support@yahoogroups.com, "Barbara"
> > > <blane636@> wrote:
> > > >
> > > > Chris, thank you for your comments!  Just for the benefit of
my
> > > mushy
> > > > brain, do these levels confirm hypopit, AI or ... ?  And do
you
> > > think
> > > > an MRI would be warranted, if I can convince the doc?
> > > >
> > > > I was going to increase to the 2 1/2 grains tomorrow; do you
> > think
> > > I
> > > > should go ahead and do so, or would I be wise to stick with
the
> 2
> > > > grains and start the HC before raising the Armour?  I have
been
> > > reading
> > > > about how to start the HC, 2.5 mg for 3 days then titrate up
> > > slowly; is
> > > > that the best method?  I will be on my own with the HC
dosing,
> so
> > I
> > > > value your opinions.
> > > >
> > > > When I get my next labs done, I will also have them add the
21
> OH
> > > > adrenal ab's.
> > > >
> > > > Any and all advice is greatly appreciated!
> > > >
> > > > Barbara
> > > >
> > >
> >
>

Hiya Deb,

Let me know how it goes.

You might try taking the Vit D at night. I take all mine at same
time  1-2 hours before bed. I havent had any issues with doing that.

Note this group is moving to Forum format by end of week & is closed
to new threads. Please make a copy of your threads for future
refernce before then.

Please post on the new Forum from now on. You can copy & paste the
content of posts there if you wish so all info is together.

http://hormonesupportgroup.proboards.com/index.cgi

Lethal Lee
-----------------------------------------------------------

--- In Hypopituitary_Support@yahoogroups.com, "dseezs" <dlang41@...>
wrote:
>
> --Hiya Lee,
>  Forgot to  lessen my salt this AM. Duh! Hopefully will remember
> tomorrow. Just had baby dropped off so forgot and did regular
routine.
> Will be adding 1/4 Tab Florinef for 1/2 Tab this afternoon. I do
feel
> better but not. Know what I mean!
>  I do my Vit.D, 2000 at 12:30 PM and again 2000 at 4:3O PM.
>  I'll be checking back in with you soon. Hope you are doing well.
>  Bye for now
>  Deb
>
>
> - In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
> <pricklefoot3@> wrote:
> >
> > Hi Deb,
> >
> > Sounds promising that you felt better after adjusting Florinef &
> > Potassium.
> >
> > Please let me know how the further 1/4 tab Florinef & increased
> > Potassium goes.
> >
> > You may need to adjust down the Sea Salt supping in the am in
> > particular if you are getting bowel symptoms.
> >
> > BP's although rising slightly on occassion are still dropping for
> the
> > most part. Occassional highish temp & HR too. So keep an eye on
> those
> > & see if they improve.
> >
> > When do you have your Vit D? In am or pm?
> >
> > Lethal Lee
> > ------------------------------------------------------------------
-
> > In Hypopituitary_Support@yahoogroups.com, "dseezs" <dlang41@>
> > wrote:
> > >
> > > -Hi Lee,
> > >  Finaly back again. Whew! Computer took a dive! Had to get it
> > fixed.
> > > Working with a dinosaur here so I'm told by many.
> > >  Any ways to update so far. I started another 1/4 tab of
Florinef
> > on
> > > Nov. 13. Upped my potassium as suggested and started feeling
> > better.
> > > Today is day 5 for me at 1 1/4 Tab. Starting to get the same
> > symptoms
> > > back again so I'll be upping Florinef and potassium again
> tomorrow.
> > >  My B/P's Nov.13 122/76 HR 66 to 127/82 HR 79--120/75 HR 72 to
> > 124/77
> > > HR 83--126/77 HR 74 to 124/77 HR 97 Temp. 98.8
> > >           Nov. 14 134/81 HR 66 to 127/80 HR 79--115/70 HR 74 to
> > > 113/73 HR 92--112/65 HR 79 to 109/71 HR 93 Temp.98.5
> > >           Nov.15 Had grandbaby all day so didn't get either
done.
> > >           Nov. 16 135/79 HR 66 to 127/82 HR 79--113/78 HR 78 to
> > > 114/77 HR 92--117/81 HR 74 to 111/74 HR 87 Temp 98.4
> > >           Nov. 17 119/69 HR 77 to 118/76 HR 92--113/73 HR 83 to
> > > 113/76 HR 95--122/74 HR 82 to 112/74 HR 94 Temp 98.8
> > >  Im at 2 1/4 tsp salt daily. I've kinda had the (poops) a bit
in
> > the
> > > AM for the last few days. (Sorry!) Didn't know if I should
> > attribute
> > > that to the salt or not so I've left it alone. The only other
> thing
> > > I've done in the past day has been to up my Vit.D.
> > >  I'm starting to get sweaty again and feeling warm along with a
> > > little bit of nausea in the afternoon. Am I on the right track
do
> > you
> > > think?
> > >  I did notice that since my last post you and Chris have been
> > > incredibly busy. So I'm trying to keep this short.
> > >  Thanks so much for all the time and effort you all put in.
It's
> > very
> > > much appreciated!!!!!
> > >  Will check back soon
> > >  Deb
> > >
> > >
> > >
> > > -- In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
> > > <pricklefoot3@> wrote:
> > > >
> > > > Hi Deb,
> > > >
> > > > Sorry you are feeling bad. Sorry too I missed this post  I
> > thought
> > > > Chris had caught up all outstanding posts so my bad!!!!
Please
> > > email
> > > > me on Yahoo or PM me on RTH Forums if that happens again!!!!
> > > >
> > > > I think we need to address Florinef & Electrolytes as a
> priority.
> > > >
> > > > --------------------------------------------------------------
--
> --
> > -
> > > > Florinef/Potassium/Salt
> > > >
> > > > Based on your symptoms (hot and sweaty, dizzy, nauseated) &
BP
> > > > dropping in avos looks like you need to add second Florinef
> dose.
> > > You
> > > > are presently on 1 tab in am? I would add 1/4 tab in early
> > evening.
> > > > Then if that helps add another 1/4 tab 3-5 days later.
> > > >
> > > > Your last Sodium & Potassium Labs were low. Hopefully another
> 1/4
> > > to
> > > > 1/2 tab Florinef will help the Sodium levels. You are still
> > keeping
> > > > up the Sea Salt supping?
> > > >
> > > > I think you need to up your Potassium as well. Try 4 x 99 mg
in
> > am
> > > > with 1 tab Florinef and 2 x 99mg in evening with second dose
of
> > > > Florinef.
> > > >
> > > > When you get to 1/2 tab second Florinef dose you may find you
> > will
> > > > need less Sea Salt. Watch your BP & HR & symptoms to judge
that.
> > > >
> > > > --------------------------------------------------------------
-
> > > > Medrol/HC
> > > >
> > > > So now I'm confused how much Medrol & HC  are you on now?
> > > > Is it back to 2 mg Medrol + 25mg HC?
> > > > How long have you been back on 2 mg Medrol?
> > > >
> > > > I think just stay there until we get Florinef Salt &
Potassium
> > > > sorted. Then continue with switching. Got to get rid of those
> low
> > > > Aldo symptoms first I think.
> > > >
> > > > --------------------------------------------------------------
--
> --
> > > > Vit D
> > > >
> > > > Glad you checked the Vit D you need to be at least DOUBLE
that
> > > level.
> > > > I am on 2000mg daily myself. I got optimised once backed down
> to
> > > > 1000mg & when retested had dropped 40%. Maybe you may need to
> > stay
> > > 0n
> > > > maintenance dose 1000-2000 as well???
> > > >  -------------------------------------------------------------
--
> -
> > > > Calcium
> > > >
> > > > Note optimal Calcium is MIDRANGE not low or high in range.
Dont
> > > > overdue the Calcium
> > > > --------------------------------------------------------------
--
> --
> > > > Ferritin
> > > >
> > > > optimal is 70-90 so you are pretty good there actually. If
you
> do
> > > > supp any make it a small dose only. Too high is just as bad
as
> > too
> > > > low.
> > > > --------------------------------------------------------------
--
> --
> > --
> > > > Magnesium
> > > >
> > > > Again not too bad at all. Basic Mag supping of 750mg looks
> right
> > > there
> > > >
> > > > --------------------------------------------------------------
--
> --
> > -
> > > >
> > > > Glad you added back 1 grain Thyroid.
> > > > I think you need to stay there though until Medrol switch &
> > > Florinef
> > > > is sorted out.
> > > >
> > > > --------------------------------------------------------------
--
> --
> > -
> > > >
> > > > Temps
> > > > My period is due this week.
> > > >
> > > > Your period may be affecting temps.
> > > >
> > > > Not to mention all the recent changes.
> > > > Hc to Medrol will make some differences to Electrolytes too.
> > > > Florinef adjustment should help with that I hope!!
> > > >
> > > > --------------------------------------------------------------
--
> --
> > -
> > > >
> > > > Let me know how you are now. Also let me know too how extra
> > > Florinef
> > > > makes you feel.
> > > >
> > > > So glad you feel less depressed & are seeing your Grandson
> again
> > > too.
> > > >
> > > >
> > > > Lethal Lee
> > > > --------------------------------------------------------------
--
> --
> > --
> > > > Hello Lee,
> > > > Finally back with some test results and a mess up (AGAIN)
along
> > > > the  way. Please bear with me might be long! OK
> > > >
> > > > Test Results from 10/27/08            Results from 8/18/08
> > > >
> > > > Sodium Serum 136  (135-145)           Sodium Serum  134  (135-
> 145)
> > > > Potassium Serum  4.2  (3.5-5.2)       Potassium Serum  4.2
> > > > 1 Tab Florinef 99 days                1 Tab Florinef 27 days
> > > > 2 1/4 tsp salt daily                  2 1/4 tsp salt daily
> > > > 99mg Potassium 4x daily               99mg Potassium 4x daily
> > > >
> > > > Vit D 31.9   (32.0-100.0)             Last tested 7/14/08
23.4
> > > > Increased from 2000 Daily to 3000 Daily starting today.
> > > > Will go up in 1 wks. time.
> > > >
> > > > Calcium, Serum 9.1   (8.5-10.6)       Calcium Serum 9.3
> > > > Went down on Calcium since last tested will go back up to
1800
> > daily
> > > >
> > > > Magnesium, Serum 2.3 (1.6-2.6)        Last tested 7/14/08  2.2
> > > > Stayed same since last tested will up 750 Daily
> > > >
> > > > Ferritin, Serum  81  (10-291)          Last tested 5/14/08 94
> > > > Will add small amt in AM  away from Calcium.
> > > >
> > > > On Oct. 22 dropped 1 mg Medrol. Not on Purpose!
> > > > On Oct 23 started 1  Gr. of Westhroid 15mg 4x Daily.
> > > >
> > > > Temps had been steady from Oct 15- 22.
> > > > On Oct 23 they went up to 99.1, thought what the heck must be
> > from
> > > >  adding 1 Gr. Westhroid so I thought just leave things alone
> and
> > > see
> > > > where you're at. Not realizing that I hadn't been putting or
> > taking
> > > >  my afternoon 1 mg Medrol since Oct.22. DUH!!!! I started
being
> > > able
> > > >  to  see and babysit my Grandson on exactly the same day all
> this
> > > >  started! So I guess in my excitement I forgot all about the
> > Medrol
> > > > and have  been siting at 25HC and 1 mg Medrol now since Oct
22.
> > My
> > > > temps have  been at 99 and 99.1 for the past week to 10 days
> when
> > I
> > > > could  manage  to get them cause I've had my grandbaby alot.
> > > >
> > > > My B/P is low in the  AM and does rise a bit in the AM, but
> > always
> > > > drops from sitting to  standing by the afternoons. Yesterday
AM
> > > > 115/77 to 119/77 afternoon,  111/72 to 108/72 later 114/72 to
> > > 111/72.
> > > > This AM 105/63 to 113/76.
> > > >
> > > > So things got mucked up. I figured it was just best to leave
> > > >  everything alone since adding the Thyroid and wait to see
what
> > the
> > > >  test results were and go from there. That took forever (it
> > > seemed)
> > > > too.
> > > >
> > > >  What do you think my game plan should be at this point? Oh
and
> I
> > > >  also started taking my Basal temps and they are high also.
> > > >
> > > > Oct 23  to  date: 98.2, 98.4, 98.3, none, 98.5,98.6,
none,98.1,
> > > 98.3,
> > > >  98.5 98.3  and 98 for this AM.
> > > >
> > > > My period is due this week. ARGH!!! Seems a  mess!
> > > >
> > > > Not so depressed since starting the Thyroid. Its helped in
> that
> > > > department but I'm not so sure about the temps.
> > > >
> > > > What to do now?  Thanks for your time and patience
> > > >
> > > > Will check back again soon  Deb
> > > > ------------------------------------------------------------
> > > >
> > > > Did I post this in the wrong place? I'm really having
problems
> > last
> > > >  nite and starting again today. Hot and sweaty, dizzy,
> nauseated.
> > > >  Started yesterday afternoon and continued til 3:30 this AM
> when
> > I
> > > >  could finally go back to sleep. It's starting to happen
again
> > now.
> > > >  Feels like I'm running out of Florinef. Is it safe to add
> > another
> > > > 1/4  tab in the afternoon.
> > > >
> > > > I remembered to add 1mg Medrol today at 3 PM.  Can I do both
at
> > the
> > > > same time? Help someone! I'm starting to feel  crappy again!
> > > >
> > > > Deb
> > > >
> > >
> >
>

Hi, Lethal Lee, thanks for replying!

My sodium and potassium always run towards the bottom of the scale,
although "in range" (labs are earlier in this thread).  Yes, I supp
with the sea salt, at least 1/2 to 3/4 tsp per day, sometimes more (I
just don't tell my Nephrologist!).  If this is "normal" (I detest
that word!), I'll just throw on an extra sweater for now 'til it's
sorted out, lol.  Any ideas on the highish resting pulse?  It's been
this way since before starting the HC.

Thanks again,
Barbara


--- In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
<pricklefoot3@...> wrote:
>
> Hi Barbara,
>
> Your ACTH Stim & Serum ACTH does support Secondary AI.
>
> AS you are on Armour already then gradually increasing HC as per
STTM
> is the best way to go.
>
> Also is best to leave Armour where it is (may even need to drop it
> some) while steroids are sorted.
>
> About dropping temps things wil be all over the place for a bit
while
> you introduce HC & find your right dose & timing. Possibly as the
HC
> is taken it is getting more FT3 to your cells  & leaving you
feeling
> more HYpoT?
>
> The fact that your BP is dropping on standing shows
Sodium/Potassium
> is not right. Are you Sea Salt supping at least twice daily?
>
> Lethal Lee
> --------------------------------------------------------------------
--
> ---- In Hypopituitary_Support@yahoogroups.com, "Barbara"
> <blane636@> wrote:
> >
> > I left my Armour at 2 grains and started HC 2.5 mgs on Sunday
> > morning.  After taking the HC Monday am, my temps began to fall,
> from
> > 96.4 to 96.1 to 95.9.  Today I got up at 6 am; at 8 my temp was
> 97.0,
> > at 10 it was 96.4 and by 11:15 it was 95.9.  My BP is 146/94
pulse
> > 101 sitting; standing was 133/94 pulse 114.  I am supposed to
> > increase the HC to 5 mg today for the next three days, then up
> again
> > by 2.5 mg.  Is it "normal" for the temps to fall during the day
> when
> > starting HC?  I am freezing!!
> >
> > Thanks,
> > Barbara
> >
> > --- In Hypopituitary_Support@yahoogroups.com, "Barbara"
> > <blane636@> wrote:
> > >
> > > Chris, thank you for your comments!  Just for the benefit of my
> > mushy
> > > brain, do these levels confirm hypopit, AI or ... ?  And do you
> > think
> > > an MRI would be warranted, if I can convince the doc?
> > >
> > > I was going to increase to the 2 1/2 grains tomorrow; do you
> think
> > I
> > > should go ahead and do so, or would I be wise to stick with the
2
> > > grains and start the HC before raising the Armour?  I have been
> > reading
> > > about how to start the HC, 2.5 mg for 3 days then titrate up
> > slowly; is
> > > that the best method?  I will be on my own with the HC dosing,
so
> I
> > > value your opinions.
> > >
> > > When I get my next labs done, I will also have them add the 21
OH
> > > adrenal ab's.
> > >
> > > Any and all advice is greatly appreciated!
> > >
> > > Barbara
> > >
> >
>

Hi Barbara,

Your ACTH Stim & Serum ACTH does support Secondary AI.

AS you are on Armour already then gradually increasing HC as per STTM
is the best way to go.

Also is best to leave Armour where it is (may even need to drop it
some) while steroids are sorted.

About dropping temps things wil be all over the place for a bit while
you introduce HC & find your right dose & timing. Possibly as the HC
is taken it is getting more FT3 to your cells  & leaving you feeling
more HYpoT?

The fact that your BP is dropping on standing shows Sodium/Potassium
is not right. Are you Sea Salt supping at least twice daily?

Lethal Lee
----------------------------------------------------------------------
---- In Hypopituitary_Support@yahoogroups.com, "Barbara"
<blane636@...> wrote:
>
> I left my Armour at 2 grains and started HC 2.5 mgs on Sunday
> morning.  After taking the HC Monday am, my temps began to fall,
from
> 96.4 to 96.1 to 95.9.  Today I got up at 6 am; at 8 my temp was
97.0,
> at 10 it was 96.4 and by 11:15 it was 95.9.  My BP is 146/94 pulse
> 101 sitting; standing was 133/94 pulse 114.  I am supposed to
> increase the HC to 5 mg today for the next three days, then up
again
> by 2.5 mg.  Is it "normal" for the temps to fall during the day
when
> starting HC?  I am freezing!!
>
> Thanks,
> Barbara
>
> --- In Hypopituitary_Support@yahoogroups.com, "Barbara"
> <blane636@> wrote:
> >
> > Chris, thank you for your comments!  Just for the benefit of my
> mushy
> > brain, do these levels confirm hypopit, AI or ... ?  And do you
> think
> > an MRI would be warranted, if I can convince the doc?
> >
> > I was going to increase to the 2 1/2 grains tomorrow; do you
think
> I
> > should go ahead and do so, or would I be wise to stick with the 2
> > grains and start the HC before raising the Armour?  I have been
> reading
> > about how to start the HC, 2.5 mg for 3 days then titrate up
> slowly; is
> > that the best method?  I will be on my own with the HC dosing, so
I
> > value your opinions.
> >
> > When I get my next labs done, I will also have them add the 21 OH
> > adrenal ab's.
> >
> > Any and all advice is greatly appreciated!
> >
> > Barbara
> >
>

to http://hormonesupportgroup.proboards.com/  All discussions are to
be posted over there.  Discussions on this Yahoo group will close by
the end of the weekend to allow for some time for existing threads to
wrap up.  No new threads will be accepted.  They will be deleted.  All
new threads are to start at Hormone Support Group.

Adrenal Help is also moving here.

The Yahoo groups will be remain open to read the topics, LINKS and FILEs.

The software for Hormone Support Group is virtually identical to the
Real Thyroid Help software, but Proboards is free.  It's been a around
for a while, I just which I'd found it earlier.  Proboards will make
it much easier for Lee and me to keep up with topics.  I'm still
looking for another person to help moderate with Lee and me.

See you all at Hormone Support Group.

Chris

I left my Armour at 2 grains and started HC 2.5 mgs on Sunday
morning.  After taking the HC Monday am, my temps began to fall, from
96.4 to 96.1 to 95.9.  Today I got up at 6 am; at 8 my temp was 97.0,
at 10 it was 96.4 and by 11:15 it was 95.9.  My BP is 146/94 pulse
101 sitting; standing was 133/94 pulse 114.  I am supposed to
increase the HC to 5 mg today for the next three days, then up again
by 2.5 mg.  Is it "normal" for the temps to fall during the day when
starting HC?  I am freezing!!

Thanks,
Barbara

--- In Hypopituitary_Support@yahoogroups.com, "Barbara"
<blane636@...> wrote:
>
> Chris, thank you for your comments!  Just for the benefit of my
mushy
> brain, do these levels confirm hypopit, AI or ... ?  And do you
think
> an MRI would be warranted, if I can convince the doc?
>
> I was going to increase to the 2 1/2 grains tomorrow; do you think
I
> should go ahead and do so, or would I be wise to stick with the 2
> grains and start the HC before raising the Armour?  I have been
reading
> about how to start the HC, 2.5 mg for 3 days then titrate up
slowly; is
> that the best method?  I will be on my own with the HC dosing, so I
> value your opinions.
>
> When I get my next labs done, I will also have them add the 21 OH
> adrenal ab's.
>
> Any and all advice is greatly appreciated!
>
> Barbara
>

--Hiya Lee,
  Forgot to  lessen my salt this AM. Duh! Hopefully will remember
tomorrow. Just had baby dropped off so forgot and did regular routine.
Will be adding 1/4 Tab Florinef for 1/2 Tab this afternoon. I do feel
better but not. Know what I mean!
  I do my Vit.D, 2000 at 12:30 PM and again 2000 at 4:3O PM.
  I'll be checking back in with you soon. Hope you are doing well.
  Bye for now
  Deb


- In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
<pricklefoot3@...> wrote:
>
> Hi Deb,
>
> Sounds promising that you felt better after adjusting Florinef &
> Potassium.
>
> Please let me know how the further 1/4 tab Florinef & increased
> Potassium goes.
>
> You may need to adjust down the Sea Salt supping in the am in
> particular if you are getting bowel symptoms.
>
> BP's although rising slightly on occassion are still dropping for
the
> most part. Occassional highish temp & HR too. So keep an eye on
those
> & see if they improve.
>
> When do you have your Vit D? In am or pm?
>
> Lethal Lee
> -------------------------------------------------------------------
> In Hypopituitary_Support@yahoogroups.com, "dseezs" <dlang41@>
> wrote:
> >
> > -Hi Lee,
> >  Finaly back again. Whew! Computer took a dive! Had to get it
> fixed.
> > Working with a dinosaur here so I'm told by many.
> >  Any ways to update so far. I started another 1/4 tab of Florinef
> on
> > Nov. 13. Upped my potassium as suggested and started feeling
> better.
> > Today is day 5 for me at 1 1/4 Tab. Starting to get the same
> symptoms
> > back again so I'll be upping Florinef and potassium again
tomorrow.
> >  My B/P's Nov.13 122/76 HR 66 to 127/82 HR 79--120/75 HR 72 to
> 124/77
> > HR 83--126/77 HR 74 to 124/77 HR 97 Temp. 98.8
> >           Nov. 14 134/81 HR 66 to 127/80 HR 79--115/70 HR 74 to
> > 113/73 HR 92--112/65 HR 79 to 109/71 HR 93 Temp.98.5
> >           Nov.15 Had grandbaby all day so didn't get either done.
> >           Nov. 16 135/79 HR 66 to 127/82 HR 79--113/78 HR 78 to
> > 114/77 HR 92--117/81 HR 74 to 111/74 HR 87 Temp 98.4
> >           Nov. 17 119/69 HR 77 to 118/76 HR 92--113/73 HR 83 to
> > 113/76 HR 95--122/74 HR 82 to 112/74 HR 94 Temp 98.8
> >  Im at 2 1/4 tsp salt daily. I've kinda had the (poops) a bit in
> the
> > AM for the last few days. (Sorry!) Didn't know if I should
> attribute
> > that to the salt or not so I've left it alone. The only other
thing
> > I've done in the past day has been to up my Vit.D.
> >  I'm starting to get sweaty again and feeling warm along with a
> > little bit of nausea in the afternoon. Am I on the right track do
> you
> > think?
> >  I did notice that since my last post you and Chris have been
> > incredibly busy. So I'm trying to keep this short.
> >  Thanks so much for all the time and effort you all put in. It's
> very
> > much appreciated!!!!!
> >  Will check back soon
> >  Deb
> >
> >
> >
> > -- In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
> > <pricklefoot3@> wrote:
> > >
> > > Hi Deb,
> > >
> > > Sorry you are feeling bad. Sorry too I missed this post  I
> thought
> > > Chris had caught up all outstanding posts so my bad!!!! Please
> > email
> > > me on Yahoo or PM me on RTH Forums if that happens again!!!!
> > >
> > > I think we need to address Florinef & Electrolytes as a
priority.
> > >
> > > ----------------------------------------------------------------
--
> -
> > > Florinef/Potassium/Salt
> > >
> > > Based on your symptoms (hot and sweaty, dizzy, nauseated) & BP
> > > dropping in avos looks like you need to add second Florinef
dose.
> > You
> > > are presently on 1 tab in am? I would add 1/4 tab in early
> evening.
> > > Then if that helps add another 1/4 tab 3-5 days later.
> > >
> > > Your last Sodium & Potassium Labs were low. Hopefully another
1/4
> > to
> > > 1/2 tab Florinef will help the Sodium levels. You are still
> keeping
> > > up the Sea Salt supping?
> > >
> > > I think you need to up your Potassium as well. Try 4 x 99 mg in
> am
> > > with 1 tab Florinef and 2 x 99mg in evening with second dose of
> > > Florinef.
> > >
> > > When you get to 1/2 tab second Florinef dose you may find you
> will
> > > need less Sea Salt. Watch your BP & HR & symptoms to judge that.
> > >
> > > ---------------------------------------------------------------
> > > Medrol/HC
> > >
> > > So now I'm confused how much Medrol & HC  are you on now?
> > > Is it back to 2 mg Medrol + 25mg HC?
> > > How long have you been back on 2 mg Medrol?
> > >
> > > I think just stay there until we get Florinef Salt & Potassium
> > > sorted. Then continue with switching. Got to get rid of those
low
> > > Aldo symptoms first I think.
> > >
> > > ----------------------------------------------------------------
--
> > > Vit D
> > >
> > > Glad you checked the Vit D you need to be at least DOUBLE that
> > level.
> > > I am on 2000mg daily myself. I got optimised once backed down
to
> > > 1000mg & when retested had dropped 40%. Maybe you may need to
> stay
> > 0n
> > > maintenance dose 1000-2000 as well???
> > >  ---------------------------------------------------------------
-
> > > Calcium
> > >
> > > Note optimal Calcium is MIDRANGE not low or high in range. Dont
> > > overdue the Calcium
> > > ----------------------------------------------------------------
--
> > > Ferritin
> > >
> > > optimal is 70-90 so you are pretty good there actually. If you
do
> > > supp any make it a small dose only. Too high is just as bad as
> too
> > > low.
> > > ----------------------------------------------------------------
--
> --
> > > Magnesium
> > >
> > > Again not too bad at all. Basic Mag supping of 750mg looks
right
> > there
> > >
> > > ----------------------------------------------------------------
--
> -
> > >
> > > Glad you added back 1 grain Thyroid.
> > > I think you need to stay there though until Medrol switch &
> > Florinef
> > > is sorted out.
> > >
> > > ----------------------------------------------------------------
--
> -
> > >
> > > Temps
> > > My period is due this week.
> > >
> > > Your period may be affecting temps.
> > >
> > > Not to mention all the recent changes.
> > > Hc to Medrol will make some differences to Electrolytes too.
> > > Florinef adjustment should help with that I hope!!
> > >
> > > ----------------------------------------------------------------
--
> -
> > >
> > > Let me know how you are now. Also let me know too how extra
> > Florinef
> > > makes you feel.
> > >
> > > So glad you feel less depressed & are seeing your Grandson
again
> > too.
> > >
> > >
> > > Lethal Lee
> > > ----------------------------------------------------------------
--
> --
> > > Hello Lee,
> > > Finally back with some test results and a mess up (AGAIN) along
> > > the  way. Please bear with me might be long! OK
> > >
> > > Test Results from 10/27/08            Results from 8/18/08
> > >
> > > Sodium Serum 136  (135-145)           Sodium Serum  134  (135-
145)
> > > Potassium Serum  4.2  (3.5-5.2)       Potassium Serum  4.2
> > > 1 Tab Florinef 99 days                1 Tab Florinef 27 days
> > > 2 1/4 tsp salt daily                  2 1/4 tsp salt daily
> > > 99mg Potassium 4x daily               99mg Potassium 4x daily
> > >
> > > Vit D 31.9   (32.0-100.0)             Last tested 7/14/08  23.4
> > > Increased from 2000 Daily to 3000 Daily starting today.
> > > Will go up in 1 wks. time.
> > >
> > > Calcium, Serum 9.1   (8.5-10.6)       Calcium Serum 9.3
> > > Went down on Calcium since last tested will go back up to 1800
> daily
> > >
> > > Magnesium, Serum 2.3 (1.6-2.6)        Last tested 7/14/08  2.2
> > > Stayed same since last tested will up 750 Daily
> > >
> > > Ferritin, Serum  81  (10-291)          Last tested 5/14/08 94
> > > Will add small amt in AM  away from Calcium.
> > >
> > > On Oct. 22 dropped 1 mg Medrol. Not on Purpose!
> > > On Oct 23 started 1  Gr. of Westhroid 15mg 4x Daily.
> > >
> > > Temps had been steady from Oct 15- 22.
> > > On Oct 23 they went up to 99.1, thought what the heck must be
> from
> > >  adding 1 Gr. Westhroid so I thought just leave things alone
and
> > see
> > > where you're at. Not realizing that I hadn't been putting or
> taking
> > >  my afternoon 1 mg Medrol since Oct.22. DUH!!!! I started being
> > able
> > >  to  see and babysit my Grandson on exactly the same day all
this
> > >  started! So I guess in my excitement I forgot all about the
> Medrol
> > > and have  been siting at 25HC and 1 mg Medrol now since Oct 22.
> My
> > > temps have  been at 99 and 99.1 for the past week to 10 days
when
> I
> > > could  manage  to get them cause I've had my grandbaby alot.
> > >
> > > My B/P is low in the  AM and does rise a bit in the AM, but
> always
> > > drops from sitting to  standing by the afternoons. Yesterday AM
> > > 115/77 to 119/77 afternoon,  111/72 to 108/72 later 114/72 to
> > 111/72.
> > > This AM 105/63 to 113/76.
> > >
> > > So things got mucked up. I figured it was just best to leave
> > >  everything alone since adding the Thyroid and wait to see what
> the
> > >  test results were and go from there. That took forever (it
> > seemed)
> > > too.
> > >
> > >  What do you think my game plan should be at this point? Oh and
I
> > >  also started taking my Basal temps and they are high also.
> > >
> > > Oct 23  to  date: 98.2, 98.4, 98.3, none, 98.5,98.6, none,98.1,
> > 98.3,
> > >  98.5 98.3  and 98 for this AM.
> > >
> > > My period is due this week. ARGH!!! Seems a  mess!
> > >
> > > Not so depressed since starting the Thyroid. Its helped in
that
> > > department but I'm not so sure about the temps.
> > >
> > > What to do now?  Thanks for your time and patience
> > >
> > > Will check back again soon  Deb
> > > ------------------------------------------------------------
> > >
> > > Did I post this in the wrong place? I'm really having problems
> last
> > >  nite and starting again today. Hot and sweaty, dizzy,
nauseated.
> > >  Started yesterday afternoon and continued til 3:30 this AM
when
> I
> > >  could finally go back to sleep. It's starting to happen again
> now.
> > >  Feels like I'm running out of Florinef. Is it safe to add
> another
> > > 1/4  tab in the afternoon.
> > >
> > > I remembered to add 1mg Medrol today at 3 PM.  Can I do both at
> the
> > > same time? Help someone! I'm starting to feel  crappy again!
> > >
> > > Deb
> > >
> >
>

Hi Deb,

Sounds promising that you felt better after adjusting Florinef &
Potassium.

Please let me know how the further 1/4 tab Florinef & increased
Potassium goes.

You may need to adjust down the Sea Salt supping in the am in
particular if you are getting bowel symptoms.

BP's although rising slightly on occassion are still dropping for the
most part. Occassional highish temp & HR too. So keep an eye on those
& see if they improve.

When do you have your Vit D? In am or pm?

Lethal Lee
-------------------------------------------------------------------
In Hypopituitary_Support@yahoogroups.com, "dseezs" <dlang41@...>
wrote:
>
> -Hi Lee,
>  Finaly back again. Whew! Computer took a dive! Had to get it
fixed.
> Working with a dinosaur here so I'm told by many.
>  Any ways to update so far. I started another 1/4 tab of Florinef
on
> Nov. 13. Upped my potassium as suggested and started feeling
better.
> Today is day 5 for me at 1 1/4 Tab. Starting to get the same
symptoms
> back again so I'll be upping Florinef and potassium again tomorrow.
>  My B/P's Nov.13 122/76 HR 66 to 127/82 HR 79--120/75 HR 72 to
124/77
> HR 83--126/77 HR 74 to 124/77 HR 97 Temp. 98.8
>           Nov. 14 134/81 HR 66 to 127/80 HR 79--115/70 HR 74 to
> 113/73 HR 92--112/65 HR 79 to 109/71 HR 93 Temp.98.5
>           Nov.15 Had grandbaby all day so didn't get either done.
>           Nov. 16 135/79 HR 66 to 127/82 HR 79--113/78 HR 78 to
> 114/77 HR 92--117/81 HR 74 to 111/74 HR 87 Temp 98.4
>           Nov. 17 119/69 HR 77 to 118/76 HR 92--113/73 HR 83 to
> 113/76 HR 95--122/74 HR 82 to 112/74 HR 94 Temp 98.8
>  Im at 2 1/4 tsp salt daily. I've kinda had the (poops) a bit in
the
> AM for the last few days. (Sorry!) Didn't know if I should
attribute
> that to the salt or not so I've left it alone. The only other thing
> I've done in the past day has been to up my Vit.D.
>  I'm starting to get sweaty again and feeling warm along with a
> little bit of nausea in the afternoon. Am I on the right track do
you
> think?
>  I did notice that since my last post you and Chris have been
> incredibly busy. So I'm trying to keep this short.
>  Thanks so much for all the time and effort you all put in. It's
very
> much appreciated!!!!!
>  Will check back soon
>  Deb
>
>
>
> -- In Hypopituitary_Support@yahoogroups.com, "Lethal Lee"
> <pricklefoot3@> wrote:
> >
> > Hi Deb,
> >
> > Sorry you are feeling bad. Sorry too I missed this post  I
thought
> > Chris had caught up all outstanding posts so my bad!!!! Please
> email
> > me on Yahoo or PM me on RTH Forums if that happens again!!!!
> >
> > I think we need to address Florinef & Electrolytes as a priority.
> >
> > ------------------------------------------------------------------
-
> > Florinef/Potassium/Salt
> >
> > Based on your symptoms (hot and sweaty, dizzy, nauseated) & BP
> > dropping in avos looks like you need to add second Florinef dose.
> You
> > are presently on 1 tab in am? I would add 1/4 tab in early
evening.
> > Then if that helps add another 1/4 tab 3-5 days later.
> >
> > Your last Sodium & Potassium Labs were low. Hopefully another 1/4
> to
> > 1/2 tab Florinef will help the Sodium levels. You are still
keeping
> > up the Sea Salt supping?
> >
> > I think you need to up your Potassium as well. Try 4 x 99 mg in
am
> > with 1 tab Florinef and 2 x 99mg in evening with second dose of
> > Florinef.
> >
> > When you get to 1/2 tab second Florinef dose you may find you
will
> > need less Sea Salt. Watch your BP & HR & symptoms to judge that.
> >
> > ---------------------------------------------------------------
> > Medrol/HC
> >
> > So now I'm confused how much Medrol & HC  are you on now?
> > Is it back to 2 mg Medrol + 25mg HC?
> > How long have you been back on 2 mg Medrol?
> >
> > I think just stay there until we get Florinef Salt & Potassium
> > sorted. Then continue with switching. Got to get rid of those low
> > Aldo symptoms first I think.
> >
> > ------------------------------------------------------------------
> > Vit D
> >
> > Glad you checked the Vit D you need to be at least DOUBLE that
> level.
> > I am on 2000mg daily myself. I got optimised once backed down to
> > 1000mg & when retested had dropped 40%. Maybe you may need to
stay
> 0n
> > maintenance dose 1000-2000 as well???
> >  ----------------------------------------------------------------
> > Calcium
> >
> > Note optimal Calcium is MIDRANGE not low or high in range. Dont
> > overdue the Calcium
> > ------------------------------------------------------------------
> > Ferritin
> >
> > optimal is 70-90 so you are pretty good there actually. If you do
> > supp any make it a small dose only. Too high is just as bad as
too
> > low.
> > ------------------------------------------------------------------
--
> > Magnesium
> >
> > Again not too bad at all. Basic Mag supping of 750mg looks right
> there
> >
> > ------------------------------------------------------------------
-
> >
> > Glad you added back 1 grain Thyroid.
> > I think you need to stay there though until Medrol switch &
> Florinef
> > is sorted out.
> >
> > ------------------------------------------------------------------
-
> >
> > Temps
> > My period is due this week.
> >
> > Your period may be affecting temps.
> >
> > Not to mention all the recent changes.
> > Hc to Medrol will make some differences to Electrolytes too.
> > Florinef adjustment should help with that I hope!!
> >
> > ------------------------------------------------------------------
-
> >
> > Let me know how you are now. Also let me know too how extra
> Florinef
> > makes you feel.
> >
> > So glad you feel less depressed & are seeing your Grandson again
> too.
> >
> >
> > Lethal Lee
> > ------------------------------------------------------------------
--
> > Hello Lee,
> > Finally back with some test results and a mess up (AGAIN) along
> > the  way. Please bear with me might be long! OK
> >
> > Test Results from 10/27/08            Results from 8/18/08
> >
> > Sodium Serum 136  (135-145)           Sodium Serum  134  (135-145)
> > Potassium Serum  4.2  (3.5-5.2)       Potassium Serum  4.2
> > 1 Tab Florinef 99 days                1 Tab Florinef 27 days
> > 2 1/4 tsp salt daily                  2 1/4 tsp salt daily
> > 99mg Potassium 4x daily               99mg Potassium 4x daily
> >
> > Vit D 31.9   (32.0-100.0)             Last tested 7/14/08  23.4
> > Increased from 2000 Daily to 3000 Daily starting today.
> > Will go up in 1 wks. time.
> >
> > Calcium, Serum 9.1   (8.5-10.6)       Calcium Serum 9.3
> > Went down on Calcium since last tested will go back up to 1800
daily
> >
> > Magnesium, Serum 2.3 (1.6-2.6)        Last tested 7/14/08  2.2
> > Stayed same since last tested will up 750 Daily
> >
> > Ferritin, Serum  81  (10-291)          Last tested 5/14/08 94
> > Will add small amt in AM  away from Calcium.
> >
> > On Oct. 22 dropped 1 mg Medrol. Not on Purpose!
> > On Oct 23 started 1  Gr. of Westhroid 15mg 4x Daily.
> >
> > Temps had been steady from Oct 15- 22.
> > On Oct 23 they went up to 99.1, thought what the heck must be
from
> >  adding 1 Gr. Westhroid so I thought just leave things alone and
> see
> > where you're at. Not realizing that I hadn't been putting or
taking
> >  my afternoon 1 mg Medrol since Oct.22. DUH!!!! I started being
> able
> >  to  see and babysit my Grandson on exactly the same day all this
> >  started! So I guess in my excitement I forgot all about the
Medrol
> > and have  been siting at 25HC and 1 mg Medrol now since Oct 22.
My
> > temps have  been at 99 and 99.1 for the past week to 10 days when
I
> > could  manage  to get them cause I've had my grandbaby alot.
> >
> > My B/P is low in the  AM and does rise a bit in the AM, but
always
> > drops from sitting to  standing by the afternoons. Yesterday AM
> > 115/77 to 119/77 afternoon,  111/72 to 108/72 later 114/72 to
> 111/72.
> > This AM 105/63 to 113/76.
> >
> > So things got mucked up. I figured it was just best to leave
> >  everything alone since adding the Thyroid and wait to see what
the
> >  test results were and go from there. That took forever (it
> seemed)
> > too.
> >
> >  What do you think my game plan should be at this point? Oh and I
> >  also started taking my Basal temps and they are high also.
> >
> > Oct 23  to  date: 98.2, 98.4, 98.3, none, 98.5,98.6, none,98.1,
> 98.3,
> >  98.5 98.3  and 98 for this AM.
> >
> > My period is due this week. ARGH!!! Seems a  mess!
> >
> > Not so depressed since starting the Thyroid. Its helped in that
> > department but I'm not so sure about the temps.
> >
> > What to do now?  Thanks for your time and patience
> >
> > Will check back again soon  Deb
> > ------------------------------------------------------------
> >
> > Did I post this in the wrong place? I'm really having problems
last
> >  nite and starting again today. Hot and sweaty, dizzy, nauseated.
> >  Started yesterday afternoon and continued til 3:30 this AM when
I
> >  could finally go back to sleep. It's starting to happen again
now.
> >  Feels like I'm running out of Florinef. Is it safe to add
another
> > 1/4  tab in the afternoon.
> >
> > I remembered to add 1mg Medrol today at 3 PM.  Can I do both at
the
> > same time? Help someone! I'm starting to feel  crappy again!
> >
> > Deb
> >
>

Thanks Chris. Yeah it definitely felt like the beggning of a crisis,
hence the need for nearly 20mg in one hour. I hate feeling that
scared, and even when the HC started slowing my heart and so on, i
was still very anxious and felt like crying for almost the whole rest
of the day. It wasnt till i dosed again a couple times that i felt ok
later that night.

I'm still on 35mg min per day, thats the lowest i can keep it at, and
it has to be a really good day for that. Other days when i'm lower
its 40mg. Today for instance not sure why i've felt awfully sick all
over, headaches, weaker etc, and i've needed 45mg just to make it
through the day in bed. Not ideal i know. I don't see my endo's for
another month which is frustrating. I have the pituitary MRI in 2
weeks. I have compounded HC 10mg caps, not sure how well they'll
work, but i want to give it a try before switching to Pred. Im in Aus
like Lee so we can't get medrol. I understand Prednisolone it pretty
similar though.

I've had aldosterone, electrolytes etc checked a few times in the
last couple months, they tell me the're "Normal". However I'm going
to try and get the results to post here for you guys to see if they
really are 'normal'. There's got to be something else to help me if
feeling this awful on 40mg HC.

Thanks again. ~C.S.


--- In Hypopituitary_Support@yahoogroups.com, "Chris Jackson"
<chrisgj@...> wrote:
>
> Sounds like you had some degree of adrenal crisis.  How much HC are
> you taking?  If you are up to 30mg it sounds like you need to try
> medrol.  Read my sticky "My explanation of when to switch from HC to
> Medrol.
>
> Have you had aldosterone and renin tested?
>
> Chris
>
>
>
> --- In Hypopituitary_Support@yahoogroups.com, "Chris" <csharpham@>
> wrote:
> >
> > Hi all. Recently starting HC after my secondary diagnosis has
been
> > difficult. Working out dosing and timing etc.
> >
> > Today, I woke up feeling ok, had my usual doses (in between
falling
> > back to sleep till about 11am as usual). I felt ok for a while.
What
> > i usually do is take 5mg at midday, eat, then 5mg right after
that. I
> > felt quite good (for me) today, and had my 5mg at midday (making
20mg
> > so far). Got up walked round a bit, then back to bed. I ate
something
> > (it was fine), then started feeling very strange.. all of a
sudden
> > got shaky, weak, trembling, weak rapid pulse, and had to suddenly
do
> > diahrrea (all the symptoms of low cortisol).
> >
> > I had another 5mg, then when that did nothing and i was getting
> > worse, another 5, then another 5 not long after that. Between 12
and
> > 1pm, i had 17.5mg of HC, and was laying there trying not to go to
the
> > toilet in my pants I was so weak. All the while was very shaky
and
> > even a bit cold (and it's a HOT day), with very rapid
palpitations.
> > It slowly eased up after the cortisone over the following hour,
but
> > I'm left absolutely drained now. I was almost ready to call an
> > ambulance i was getting so weak. Does this sound like the
starting of
> > a crisis? From what i've read thats about the way it goes but
just
> > gets worse until HC injection. I don't even have an emergency
> > injection, and the endo's told me nothing about it either, i've
only
> > learned from others that we're sposed to carry one.
> >
> > I don't have many episodes bad as this lately, but i do now and
then,
> > and it scares the hell out of me. I had one of those eps per week
for
> > 6 weeks before diagnosis, all leading to ER and IV saline. Taking
the
> > extra cort brings me out of it though now that i take it.
> >
> > Im not sure if this has something to do with it, but i've had a
> > strange dizziness and loud ringing in my left ear, and sometimes
> > right aswell, which has gradually been getting worse over the
last
> > few months. I was scheduled for an MRI today of the pituitary,
which
> > I could not attend because i've been so weak today after the
crash.
> > (Mind you I've barely left the house since diagnosis and
commencing
> > HC as i've still been so weak). Does anyone think it's possible
that
> > a pituitary tumour could be causing the dizziness and ear
ringing?
> > It's so strange and has been there for months. Im going to have
to
> > reschedule this MRI, which may take a further month or so, I hope
> > not, want to get it ruled out at least. This buzzing, ringing
> > dizziness in my head is getting unbearable.
> >
> > Thanks. ~Chris.
> >
>

Hi there. I've been through hell in the last few months. I was in ER
6 times in 6 weeks, and they always found my blood tests 'normal'.
UNTIL they did an insulin tolerance test, which tests if the
pituitary is signaling to raise cortisol. My cortisol did not raise,
barely at all, it should have, alot.

Therefore was diagnosed with secondary adrenal insufficiency. Normal
blood tests prove NOTHING alot of the time, unless you're almost at
addisons disease.

I would get an ACTH stim test, or an ITT (insulin tolerance), which
will definitely show if you are adrenal insufficent, and the ITT can
show if hypopituitary.

If you are still functioning even at a low level, without
corticosteroids, you should definitely try Dr Lam's adrenal protocol,
one of the most reffered to sites on the web about adrenal fatigue.

www.drlam.com/a3r_brief_in_doc_format/adrenal_fatigue.cfm

Excellent info.

~Chris.


--- In Hypopituitary_Support@yahoogroups.com, "slehr05" <slehr05@...>
wrote:
>
> I recently received lab results which indicate I'm suffering from
> adrenal fatigue (It looks like stage 5-6.)...In addition, although
my
> blood work was "normal", I'm quite sure that I have hypothyroidism
(I
> have many symptoms, and I feel so much better since I started
taking 30
> mg of Armour Thyroid almost 2 weeks ago). I'm also very likely
> hypopituitary...I was recently advised to re-test my morning
cortisol
> and ACTH at the same time in order to confirm this.
>
> I haven't had time to do much research yet, but I was wondering if
> anyone has any suggestions on medication for adrenal fatigue...Are
> there any particular ones that are preferable? Also, I'm extremely
> concerned about avoiding weight gain...Is there anything I can take
> that is effective, yet not associated with weight gain?
>
> Thank you!
>