I think your daughter may not be on enough cortef. I've read 10 to 15
mg is replacement for young children depending on age. So this may be
why she still have problems with hypoglycemia.

I primarily look at just hormone tests, but do look at renin,
potassium and sodium. All you got.

You're welcome,
Chris



--- In Hypopituitary_Support@yahoogroups.com, CAROLYN MCGOWAN
<c.mcgowan1@...> wrote:
>
> Thanks,
> Keirsten is on 50 mcg of levothyroixne, 2.5, 1.25, 2.5 mg of cortef
and she is on 0.6 of the GH.  She has had so many test done on her I
don't even know the half of them.  She has been tested for things like
glycogen storage disease, celiac, CF and on and on.  She was in and
out of the hospital parts March, April and all of May due to extremely
low blood sugars
> which they said at the time should be controlled with the cortef and
GH, but then that is when we found out she was not getting all the
GH.  I can try to send you a copy of her Chart.  I have all of the
Chart from the Endo, but I don't have a way of loading it on the
computer.  I can had put in the Labs, which ones do you want? and how
far back.  She was dx at about 1 yr old. She has been on GH for about
2yrs She is 34inc tall and 23lbs.  Still very small for her age. 
Especially her height.
>  
> Thanks Carolyn 
>
> --- On Wed, 10/1/08, Chris Jackson <chrisgj@...> wrote:
>
> From: Chris Jackson <chrisgj@...>
> Subject: [Hypopituitary_Support] Re: question about GH???
> To: Hypopituitary_Support@yahoogroups.com
> Date: Wednesday, October 1, 2008, 11:46 AM
>
>
>
>
>
>
> Sounds like she got enough to suppress her natural. You can't treat
> with a low dose for the same reasons you can't treat thyroid and
> adrenals with low doses.
>
> Other hormone deficincies can cause growth retardation such as low
> thyroid and low insulin. There are other causes such as kidney
> disease (Gary Coleman). She may have more than one cause.
>
> I'd like to see all her tests and what other treatments she's on, but
> know that I am not that up on kids hormones. Has she had vasopresin,
> prolactin, aldosterone, renin, DHEA-S tested?
>
> Have you checked out this site?
> http://health. groups.yahoo. com/group/ panhypopituitari sm/
>
> For her sleep check with her doc about trying her on very low dose
> melatonin (can cause early puberty). If were my daughter I wouldn't
> put her on more than 1/16 mg to start (cut with razor blade). Do
> discuss this with her doc, even though is OTC, melatonin is very
> strong stuff and not usually given to young children, but I think is a
> better alternative than a psych drug like Elavil.
>
> Keep in mind, that low thyroid, low adrenal and undertreated thyroid
> and adrenals will can cause sleep problems.
>
> Hang in there,
> Chris
>
> --- In Hypopituitary_ Support@yahoogro ups.com, "mcgowan2002"
> <c.mcgowan1@ ...> wrote:
> >
> > Hello,
> >
> > Just wondering if anyone has had this or has this as a problem.
> > Keirsten who is 3 1/2 cpan has not grown more than 1 centimeter sense
> > March. I am getting concerned that the GH is just not working. She
> > goes back to the endo in a couple of weeks and maybe we will see some
> > growth, but it would not be very noticeable. The GH is doing every
> > thing else that is should like keeping her sugars from dropping (most
> > of the time). She has good muscle tone and seams pretty healthy
> > other wise. There was a short period of time were her growth hormone
> > devise was not working and we did not know it, but we have sense
> > fixed that problem. So she did go with out the right amount of GH
> > from about May through June. But March, April, July August and
> > September she has gotten the GH. So I feel she should of grown more
> > than a centimeter?? ?
> >
> > One more question. I am struggling to get her to sleep. Do any of
> > you have that problem?
> >
> > Sorry so long
> >
> > Carolyn mom to Keirsten 3 1/2 cpan
> >
>
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