Thanks,
Keirsten is on 50 mcg of levothyroixne, 2.5, 1.25, 2.5 mg of cortef and she is
on 0.6 of the GH.  She has had so many test done on her I don't even know the
half of them.  She has been tested for things like glycogen storage disease,
celiac, CF and on and on.  She was in and out of the hospital parts March, April
and all of May due to extremely low blood sugars
which they said at the time should be controlled with the cortef and GH, but
then that is when we found out she was not getting all the GH.  I can try to
send you a copy of her Chart.  I have all of the Chart from the Endo, but I
don't have a way of loading it on the computer.  I can had put in the Labs,
which ones do you want? and how far back.  She was dx at about 1 yr old. She has
been on GH for about 2yrs She is 34inc tall and 23lbs.  Still very small for her
age.  Especially her height.
 
Thanks Carolyn 

--- On Wed, 10/1/08, Chris Jackson <chrisgj@...> wrote:

From: Chris Jackson <chrisgj@...>
Subject: [Hypopituitary_Support] Re: question about GH???
To: Hypopituitary_Support@yahoogroups.com
Date: Wednesday, October 1, 2008, 11:46 AM






Sounds like she got enough to suppress her natural. You can't treat
with a low dose for the same reasons you can't treat thyroid and
adrenals with low doses.

Other hormone deficincies can cause growth retardation such as low
thyroid and low insulin. There are other causes such as kidney
disease (Gary Coleman). She may have more than one cause.

I'd like to see all her tests and what other treatments she's on, but
know that I am not that up on kids hormones. Has she had vasopresin,
prolactin, aldosterone, renin, DHEA-S tested?

Have you checked out this site?
http://health. groups.yahoo. com/group/ panhypopituitari sm/

For her sleep check with her doc about trying her on very low dose
melatonin (can cause early puberty). If were my daughter I wouldn't
put her on more than 1/16 mg to start (cut with razor blade). Do
discuss this with her doc, even though is OTC, melatonin is very
strong stuff and not usually given to young children, but I think is a
better alternative than a psych drug like Elavil.

Keep in mind, that low thyroid, low adrenal and undertreated thyroid
and adrenals will can cause sleep problems.

Hang in there,
Chris

--- In Hypopituitary_ Support@yahoogro ups.com, "mcgowan2002"
<c.mcgowan1@ ...> wrote:
>
> Hello,
>
> Just wondering if anyone has had this or has this as a problem.
> Keirsten who is 3 1/2 cpan has not grown more than 1 centimeter sense
> March. I am getting concerned that the GH is just not working. She
> goes back to the endo in a couple of weeks and maybe we will see some
> growth, but it would not be very noticeable. The GH is doing every
> thing else that is should like keeping her sugars from dropping (most
> of the time). She has good muscle tone and seams pretty healthy
> other wise. There was a short period of time were her growth hormone
> devise was not working and we did not know it, but we have sense
> fixed that problem. So she did go with out the right amount of GH
> from about May through June. But March, April, July August and
> September she has gotten the GH. So I feel she should of grown more
> than a centimeter?? ?
>
> One more question. I am struggling to get her to sleep. Do any of
> you have that problem?
>
> Sorry so long
>
> Carolyn mom to Keirsten 3 1/2 cpan
>















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