Sounds like she got enough to suppress her natural. You can't treat
with a low dose for the same reasons you can't treat thyroid and
adrenals with low doses.

Other hormone deficincies can cause growth retardation such as low
thyroid and low insulin. There are other causes such as kidney
disease (Gary Coleman). She may have more than one cause.

I'd like to see all her tests and what other treatments she's on, but
know that I am not that up on kids hormones. Has she had vasopresin,
prolactin, aldosterone, renin, DHEA-S tested?

Have you checked out this site?
http://health.groups.yahoo.com/group/panhypopituitarism/

For her sleep check with her doc about trying her on very low dose
melatonin (can cause early puberty). If were my daughter I wouldn't
put her on more than 1/16 mg to start (cut with razor blade). Do
discuss this with her doc, even though is OTC, melatonin is very
strong stuff and not usually given to young children, but I think is a
better alternative than a psych drug like Elavil.

Keep in mind, that low thyroid, low adrenal and undertreated thyroid
and adrenals will can cause sleep problems.

Hang in there,
Chris



--- In Hypopituitary_Support@yahoogroups.com, "mcgowan2002"
<c.mcgowan1@...> wrote:
>
> Hello,
>
> Just wondering if anyone has had this or has this as a problem.
> Keirsten who is 3 1/2 cpan has not grown more than 1 centimeter sense
> March. I am getting concerned that the GH is just not working. She
> goes back to the endo in a couple of weeks and maybe we will see some
> growth, but it would not be very noticeable. The GH is doing every
> thing else that is should like keeping her sugars from dropping (most
> of the time). She has good muscle tone and seams pretty healthy
> other wise. There was a short period of time were her growth hormone
> devise was not working and we did not know it, but we have sense
> fixed that problem. So she did go with out the right amount of GH
> from about May through June. But March, April, July August and
> September she has gotten the GH. So I feel she should of grown more
> than a centimeter???
>
> One more question. I am struggling to get her to sleep. Do any of
> you have that problem?
>
> Sorry so long
>
> Carolyn mom to Keirsten 3 1/2 cpan
>