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question about GH???   Message List  
Reply | Forward Message #7717 of 8223 |
Hello,

Just wondering if anyone has had this or has this as a problem.
Keirsten who is 3 1/2 cpan has not grown more than 1 centimeter sense
March. I am getting concerned that the GH is just not working. She
goes back to the endo in a couple of weeks and maybe we will see some
growth, but it would not be very noticeable. The GH is doing every
thing else that is should like keeping her sugars from dropping (most
of the time). She has good muscle tone and seams pretty healthy
other wise. There was a short period of time were her growth hormone
devise was not working and we did not know it, but we have sense
fixed that problem. So she did go with out the right amount of GH
from about May through June. But March, April, July August and
September she has gotten the GH. So I feel she should of grown more
than a centimeter???

One more question. I am struggling to get her to sleep. Do any of
you have that problem?

Sorry so long

Carolyn mom to Keirsten 3 1/2 cpan





Wed Oct 1, 2008 4:30 am

mcgowan2002
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Message #7717 of 8223 |
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Hello, Just wondering if anyone has had this or has this as a problem. Keirsten who is 3 1/2 cpan has not grown more than 1 centimeter sense March. I am...
mcgowan2002
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Oct 1, 2008
4:30 am

Sounds like she got enough to suppress her natural. You can't treat with a low dose for the same reasons you can't treat thyroid and adrenals with low doses. ...
Chris Jackson
chrishollyja...
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Oct 1, 2008
6:47 pm

Thanks, Keirsten is on 50 mcg of levothyroixne, 2.5, 1.25, 2.5 mg of cortef and she is on 0.6 of the GH.  She has had so many test done on her I don't even...
CAROLYN MCGOWAN
mcgowan2002
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Oct 1, 2008
7:33 pm

I think your daughter may not be on enough cortef. I've read 10 to 15 mg is replacement for young children depending on age. So this may be why she still...
Chris Jackson
chrishollyja...
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Oct 1, 2008
7:49 pm

Hello, Here is some lab work before DX panpit   sodium  137  ... From: Chris Jackson <chrisgj@...> Subject: [Hypopituitary_Support] Re: question...
CAROLYN MCGOWAN
mcgowan2002
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Oct 2, 2008
7:19 pm

Hello, Here is some lab work before DX panpit   sodium  137 ... From: Chris Jackson <chrisgj@...> Subject: [Hypopituitary_Support] Re: question...
CAROLYN MCGOWAN
mcgowan2002
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Oct 2, 2008
7:19 pm

Hello, Here is some lab work before DX panpit Date 8-21-06  sodium  137  (135-146) Potassium 4.3  (4.1 5.3) Creatine  0.3 L  (.5-1.2) Glucose non fasting...
CAROLYN MCGOWAN
mcgowan2002
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Oct 2, 2008
7:37 pm

That is very low, I would expect her to have problems with salt wasting. Potassium between 4.0-4.3 is 75% chance of being secondary. She needs aldosterone and...
Chris Jackson
chrishollyja...
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Oct 2, 2008
11:17 pm

I am confused about what you mean when you say salt wasting and the low Potassium?  But every time she end up in the hospital she need potassium??  And what...
CAROLYN MCGOWAN
mcgowan2002
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Oct 3, 2008
12:05 am

Secondary adrenal insufficiency is what she has, that alone makes one hypopituitary. Yes, potassium is deficient in 99% of secondaries. I forgot to mention...
Chris Jackson
chrishollyja...
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Oct 3, 2008
12:30 am

OK I understand that she is secondary Adrenal insufficiency, that also makes her thyroid insufficiency secondary right??  I was thinking secondary like there...
CAROLYN MCGOWAN
mcgowan2002
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Oct 3, 2008
12:54 am

Sometimes I see (usually women) secondary AI with primary hypothyroid. Hashimotos always enters into this though. Her secondary AI didn't cause her secondary...
Chris Jackson
chrishollyja...
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Oct 3, 2008
1:28 am

Here is her page again I hope it works Thanks for all the info.  You can never have enough Carolyn http://www.caringbridge.org/visit/keirstenmcgowan ... From:...
CAROLYN MCGOWAN
mcgowan2002
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Oct 3, 2008
1:32 am

I figured out the misspelling. Pretty girls you have. From reading it, it sounds like the GH was more of a concern than cortisol, the doc should have been...
Chris Jackson
chrishollyja...
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Oct 3, 2008
1:39 am

Thank you.  Yes I have heard it can cause that and I think we are just very lucky to have Keirsten with us as I am sure she had lots of droops in her sugars...
CAROLYN MCGOWAN
mcgowan2002
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Oct 3, 2008
1:48 am

You're welcome, Chris ... lucky to have Keirsten with us as I am sure she had lots of droops in her sugars as a baby and crashes as I look back at the road we...
Chris Jackson
chrishollyja...
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Oct 4, 2008
8:16 pm
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