Welcome back Pam. I'm sorry for all that you've had to go through.
In my experience in dealing with countless pit tumor patients that no
matter what physical condition the pituitary is and whether or not
surgery removed a tumor, the hormones the injured pit produces will be
low, but usually in range similar to a non pit tumor patient.

It sound like your pituitary could have increased some production
after the tumor was removed, but very likely has very impaired
production. Do you have before and after labs? What hormones are you
taking and how much? As you've found, most docs, especially endos,
are terrible with this. It may be you will have to seek treatment
from an osteopath (see "More Stickies" in the supplement site for info
on osteopaths) which as a group has been found to be the best at it.

You're welcome,
Chris




--- In Hypopituitary_Support@yahoogroups.com, "pamdressel"
<pamdressel@...> wrote:
>
>
> [:x] Yea! Chris! Thanks for opening up this group. How did ya
know
> I needed to talk to all of you about my hypo-pituitary? [Chris, This
> post replaces my post #7712.]
>
> I'm disabled with hypo-pituitary symptoms and have been for 10+ years.
> I'm hoping to find a doctor, finally after looking all this time, who
> really understands a physically damaged pituitary (i.e., spots that are
> bleeding or dead & whole gland is misshaped).
>
> The dozens of Endos, Pit. Specialists, etc., I've seen were confused by
> my situation and could not be of a help. The dilemma that confuses
> doctors is that it still produces the normal amount of it's hormones and
> yet is quite damaged.
>
> (My pituitary seems to be acting just like me -- no matter how sick I
> am, I still take care of my responsibilities. Even though that in turn
> makes me even weaker and sicker. Which I think may have caused me now
> to have exhausted adrenal glands, too.)
>
>
> My history's specifics, if you liked to know, are: The damage was
> observed in a 9/05 surgery to eliminate a 1.2 cm cyst growing out of my
> pituitary. Per the surgeon, the cyst hit the pituitary every time I
> moved my head and it caused small parts of the pituitary to die and
> other small parts to be damaged and bleeding.
>
> My surgeon predicted in '05 that my pituitary would only be able to heal
> to about 40% of normal now that the cyst was gone. After 3 years of
> healing, I am at about 50-60% in better health and need to improve more
> in order to return to working and supporting myself.
>
> I have seen dozens of specialists in my area (NJ/NYC) and only this
> surgeon would remove the cyst. All others said something else must be
> wrong with me because the pituitary was producing it's hormones.
>
> That assumption is wrong because just removing the cyst has improved my
> health so much & nothing else has been found wrong with me.
>
> My main symptom is my excessive need for sleep: before surgery I needed
> 18-20 hours/day and now, after surgery, I need only 8-12 hours/day of
> sleep. My energy level now is up & down, unpredictable, and short. But
> at least I can function normally off & on and have something of a life.
>
>
>
>
> [Non-text portions of this message have been removed]
>