[:x] Yea! Chris! Thanks for opening up this group. How did ya know
I needed to talk to all of you about my hypo-pituitary? [Chris, This
post replaces my post #7712.]

I'm disabled with hypo-pituitary symptoms and have been for 10+ years.
I'm hoping to find a doctor, finally after looking all this time, who
really understands a physically damaged pituitary (i.e., spots that are
bleeding or dead & whole gland is misshaped).

The dozens of Endos, Pit. Specialists, etc., I've seen were confused by
my situation and could not be of a help. The dilemma that confuses
doctors is that it still produces the normal amount of it's hormones and
yet is quite damaged.

(My pituitary seems to be acting just like me -- no matter how sick I
am, I still take care of my responsibilities. Even though that in turn
makes me even weaker and sicker. Which I think may have caused me now
to have exhausted adrenal glands, too.)


My history's specifics, if you liked to know, are: The damage was
observed in a 9/05 surgery to eliminate a 1.2 cm cyst growing out of my
pituitary. Per the surgeon, the cyst hit the pituitary every time I
moved my head and it caused small parts of the pituitary to die and
other small parts to be damaged and bleeding.

My surgeon predicted in '05 that my pituitary would only be able to heal
to about 40% of normal now that the cyst was gone. After 3 years of
healing, I am at about 50-60% in better health and need to improve more
in order to return to working and supporting myself.

I have seen dozens of specialists in my area (NJ/NYC) and only this
surgeon would remove the cyst. All others said something else must be
wrong with me because the pituitary was producing it's hormones.

That assumption is wrong because just removing the cyst has improved my
health so much & nothing else has been found wrong with me.

My main symptom is my excessive need for sleep: before surgery I needed
18-20 hours/day and now, after surgery, I need only 8-12 hours/day of
sleep. My energy level now is up & down, unpredictable, and short. But
at least I can function normally off & on and have something of a life.




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