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new to this/hypoplasia of the pituitary   Message List  
Reply | Forward Message #3920 of 8223 |
Re: new to this/hypoplasia of the pituitary

That endo doesn't seem very confident to me. Yes, you should
definately take your son another ped endo for a second opinion. I
would. Bring along his MRI film, not just the MRI report. Before
even thinking growth hormone therapy (he may or may not need), your
sons thyroid and cortisol level should be tested.

If you have any hormone tests, go ahead and post them. Always ask for
copies of lab sheets before you leave and keep it and a journal in a
folder.

We will try to help you, but you should also check out this site.
http://health.groups.yahoo.com/group/panhypopituitarism.

The people on this group are more familar with child hormone levels
(which are much different from adults) and how they go through hypopit.

I hope all is figured out very soon for you child.
Chris



--- In Hypopituitary_Support@yahoogroups.com, "practicingparenting"
<practicingparenting@y...> wrote:
> Hello everyone. I am new to the world of pituitary issues. My 4yr
> old son has been dropping down the growth chart for the last two
> years. When he was really little he was always in the 90th
> percentile for growth. Then his growth velocity really began to
> slow and our pediatrician referred us to a pediatric
> endocrinologist. Now Jackson is in the 5th percentile and has only
> grown about 2 inches in the last 2 years. About 6 months ago he had
> a growth hormone stimulation test that came back normal. When we
> went in for our 6mo. check the endocrinologist recommended having an
> MRI since Jackson also has speech issues. Our pediatrician had to
> order it though since the stim test was normal. We had the MRI this
> past Monday. The two main results were "significant hypoplasia of
> the pituitary and possible hypoplasticity of the infundibular
> stalk". At the conclusion of the report it mentioned the
> possibility of pituitary dwarfism. Our endo. just got back to me
> today. What she is telling me is confusing and worries me. On the
> one hand she tells me this is actually a normal MRI. On the other
> hand she also tells us we may want to start growth hormone therapy
> injections right away, or we can wait 6months to start. If it
> was "normal", I would think he dosen't need anything. I have so
> many questions! I think I should talk to another pediatric
> endocrinologist. What age do kids with hypolasia of the pituitary
> normally have to start injections? What financial assistance is out
> there? We are a family of 6 on a meager teacher's salary. Having
> dealt with a diagnosis of severe childhood apraxia of speech for the
> last 2-2.5yrs I know that other parents are probably going to be my
> greatest resource! Thanks in advance!
>
> Liza





Thu Oct 6, 2005 6:37 pm

chrishollyja...
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Message #3920 of 8223 |
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Hello everyone. I am new to the world of pituitary issues. My 4yr old son has been dropping down the growth chart for the last two years. When he was really...
practicingparenting
practicingpa...
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Oct 6, 2005
5:24 pm

Liza, It sounds as if the doctor is saying that although the MRI is not adnormal at this time, the results are not leaning in the right direction. You have...
Marilyn OHara
lovethatgirl...
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Oct 6, 2005
6:21 pm

That endo doesn't seem very confident to me. Yes, you should definately take your son another ped endo for a second opinion. I would. Bring along his MRI...
Chris Jackson
chrishollyja...
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Oct 6, 2005
6:38 pm

Check for a Scotish Rite clinic near you. Here in St. Louis, they helped my son with his speech. I highly recommend them. Chris...
Chris Jackson
chrishollyja...
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Oct 6, 2005
6:39 pm

Chris, I was unable to get to the support group you posted a link to. Could you double check that info for me? Thanks, Liza ... hypopit....
practicingparenting
practicingpa...
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Oct 7, 2005
1:31 am

Sorry, try this. http://health.groups.yahoo.com/group/panhypopituitarism/ Chris...
Chris Jackson
chrishollyja...
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Oct 7, 2005
1:35 am

Are there any current, good books on hypopituitary? I looked at Amazon.com and they seem horribly expensive, starting at $290.00 I would want to be assured...
Marilyn OHara
lovethatgirl...
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Oct 13, 2005
8:15 pm

I remember seeing a book called "post partum hypopituitarism", but really there are no books specific for hypopit otherwise. Youneed to look into medical...
Chris Jackson
chrishollyja...
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Oct 13, 2005
9:03 pm
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