Huntington's Disease Support Club Online Store all the proceeds from this store go to hdsa and hda I have stocked the shop with 33 items so far ranging in...
COooooool! There are places for "General Discussions", "Asymptomatic & Tested Positive", "At-Risk", "Caregivers" and "Symptomatic". Anyone can read messages,...
Going To Bat For Huntington's Disease http://www.curehd2006.com/ I'm writing to let everyone know about this awareness and fund raising effort that one of our...
Reminder from the Calendar of HDMeetings http://groups.yahoo.com/group/HDMeetings/cal JoAnn Curington pHD Wednesday February 1, 2006 All Day (This event...
HDMeetings@yahoogroup...
Jan 31, 2006 11:45 pm
63
Two Special Topics! 1. HDSA's The Juvenile HD Primer - Guide To Best Practices is almost completed 2. 2006 HDSA Convention to hold "JHD Track" sessions for...
The Huntington's Disease Lighthouse has several new reports on HD Research. If you haven't checked it out lately http://www.hdlighthouse.org/ you might want...
attached for sharing Study Published in Neurology Shows Tetrabenazine Significantly Improves Debilitating Movement Disorder Caused by Huntington's Disease ...
Please share this information with your HDSA Chapters, HD Support Groups and HD Centers of Excellence. Anyone applying for this scholarship must be a current,...
I mean to send this out the other day. I also put the below into the attached. My relatives are still visiting, and too many other things going on and...
In need of a health care worker, caregiver with knowledge of the inherited disease HUNTINGTON`S CHOREA. You do not need to be a doctor, just a person that has...
Jamie knows
jeffybabygorden@...
Mar 4, 2006 5:40 pm
72
....but I did not expect it to come so soon. Caleb wants to get tested! He will be 13 this summer. We talked about it. I asked him why? He said because he...
Rhonda Holscher
sawedoffrunt69@...
Mar 14, 2006 7:53 am
73
Thanks to Leslie for the heads up! Also attached in Word for sharing. Coenzyme Q10 in Huntington's Disease (2CARE) - March 10, 2006 ...
Also attached, 3 Pages in PDF format for printing & sharing March 2006 Huntington's Disease Society of America's (HDSA) National Advocacy Online Newsletter. ...
This is what I have decided. When Caleb and finished our conversation the other day I told him that I had to put some things in order first, and then I would...
Rhonda Holscher
sawedoffrunt69@...
Mar 15, 2006 5:36 am
76
In case anyone else hasn't seen this. I didn't know it!! During the convention planning teleconference today, HDSA mentioned that Midwest Airlines has really...
Today's Caregiver online magazine lists Family Caregiver resources for the entire US and some international countries! If you had your group listed on Today's...
What Is HDSF? The Huntington's Disease Scholarship Fund. What Is The Scholarship? A full scholarship for one person to attend the HDSA National Convention Who...
It's that time! Those of you planning on attending the 2006 HDSA national conference in Milwaukee, I need to get you signed up for the talent show! If you...
This was posted on another list. Please share with any HD families living in that area. Thank you! Jean HDSA Orange County Affiliate Frances Saldana, HDSA-OC...
Sorry, apparently a lot of people couldn't access the files on the JHD Caregiver's site unless they are members! So I uploaded the stuff to my HD Helpful Forms...
2006 Huntington's Hero of the Year Award Nominations Requested! It's that time of the year again, where the Huntington's Disease Convention Scholarship Fund...
The HDSA website now has secure on-line booking [credit card] to make your 2006 HDSA National Convention Registration! Just go to www.hdsa.org and on the home...
Prestwick Pharmaceuticals Receives FDA Approvable Letter for XENAZINE(R) (Tetrabenazine) for Treatment of Chorea Associated with Huntington's Disease ...
.......to submit the name[s] of your candidate for the prestigious 2006 Huntington's Hero of the Year Award! The deadline is April 10th. Why? Because the...
Hey ALL, I'M COMING TO MILWAUKEE!!! YEAH!!! I guess most of you know by now that I WON a full scholarship, and I am so utterly excited I just can't contain...
Rhonda Holscher
sawedoffrunt69@...
Apr 5, 2006 6:33 pm
87
The Huntington's Disease Scholarship Fund [HDSF] is pleased to announce that we received four applications for a chance to attend the 2006 HDSA National ...
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