This message is to make you aware of a new on-line support group, "HD-SOUL" [Significant Others United in Love], that is specifically for young-adults [18 to...
Marsha Miller's recent interview with Dr. Jan Nolta is available on HDSA's website: http://www.hdsa.org/research/news/nolta.html. See excerpts below. Marsha...
This could be great news for some HD families: Patients who have a completed PGD procedure at GIVF before December 31, 2009 may save up to $1,250. Patients...
I attended this event last year in St. Petersburg and it was a really informative day plus a great opportunity to meet other HD families from Florida. In a...
For those of you living in Texas, this FREE HD Educational Event looks to be a good one, plus its an opportunity for people from Huntington's Disease families...
Reminder from the Calendar of HDMeetings http://groups.yahoo.com/group/HDMeetings/cal JoAnn Curington pHD Wednesday February 1, 2006 All Day (This event...
This message is for anyone who will be arriving in Phoenix June 3rd for NYA Day. I was just asked why the NYA Day scheduled events for June 4th is not...
I was looking for some information on the convention and lo and behold......the tentative HDSA 2009 Convention Agenda is now available on line here:...
The below message was posted on the HDSA National Youth Alliance Yahoo message board by the NYA Chapter/Executive Committee's President. The NYA organization...
EVERYONE, Thank you so very much to everyone for all your kind words, thoughts, and prayers. It means a great deal to me. And yes I have been receiving a...
Just wanted to let everyone know that mom (pHD) passed away yesterday morning (Thursday, April 23) at 5:25 am. I know some of you had no idea she was even in...
I'm on digest so I dont' know if anyone has shared this. How these wonderful ladies have the endurance to do this for HD awareness year after year amazes me,...
To HDMeetings Group: There are some changes to the group. Sign in and check out Applications under Group Labs. If you have any suggestions please let me know. ...
Below is a letter from HDSA's National Youth Alliance 2009 Silent Auction Chairperson, Staci Nicholas requesting NYA members, HD families, HDSA Chapters and...
Am sure many of you may have seen yesterday's business news on the sale of Ovation Pharmaceuticals, Inc. to H. Lundbeck A/S (Lundbeck) of Denmark. Ovation is...
Jacey Mukka, the NYA's Video Director Extraordinaire, found a very cool video on YouTube discovering something new:: Video - World Rare Disease Day is being...
Heather Alimossy from Oregon and Ashlee Duffy from the UK, both 20 year old's who tested positive for HD, both set off to accomplish major HD awareness events...
Re: Kick off of the 2009 HDSA NYA Convention Scholarship & Activities That's the trouble with copy/paste......the following had the wrong address for mailing...
2009 HDSA National Convention in Phoenix starts 18 weeks from tomorrow and the National Youth Alliance [NYA] is gearing up for all their events! The below...
Forgive me if I've sent this already........I've sent out so much stuff today am starting forget what I sent and who I sent it to! I know I sent something...
Thanks to Marsha Miller the HDL is reporting on two recent studies in HD! Weight loss in HD http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=609 HD...
Besides the HDDW article you can also read the HDSA November 24, 2008 News Release on Xenazine Tablets Availabile in the U.S. here www.hdsa.org/xenazine where...
LaVonne Goodman wrote the below article that explains what HD families must do in order to get a prescription for Xenazine filled. It's an excellent article,...
Everyone, Mom has been very suicidal lately. She has been suicidal for years, but lately has become obsessed with it. But this latest attack against herself I...
There are three new articles up on the HDDW website written by Dr. LaVonne Veatch Goodman. The first talks about what CHDI is up to and provides some insight...
Marsha Miller has published two new articles on HDSA's website. Thank you Marsha & HDSA for keeping us up-to-date! The Hereditary Disease Foundation's...
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