For those that didn't know the National HD Team Hope web page recently got its final approval from HDSA and is now live and running at http://www.walk4hd.org....
See links to both the AP & Reuters news coverage articles. The below are excerpts only and not the full article. Dr. George Daley and his colleagues at the...
Mike Brown wrote about the new HD support group and he said it was okay if I shared a little more information on this group. If you're receiving individual...
Ooops I sent out the old one with a bad email for Mike. The below & attached is correct, sorry about that! Mike Brown wrote about the new HD support group and...
H.R. 6259: Huntington's Disease Parity Act of 2008 On-line Petition http://www.petitiononline.com/HR6259/petition.html As of this morning, August 16, 2008,...
Almost everyone knows and loves Jimmy Pollard and everything he has done over the past 20+ years helping caregiver's and care facilities understand what having...
Vitamin B-12 deficiency should be checked for periodically in HD patients, especially in the mid to later stages when the person may not be consuming enough...
Nancy Fiore, Mark Smrtnik's Mom, asked me to share this with everyone, writing: This just shows what a wonderful community we live in! My son touches so many...
For those who are receiving individual messages, attached is the brochure for this event. Subject: Annual Ultimate Hollywood Experience drawing Open to: All...
Marsha Miller has published two new articles on HDSA's website. Thank you Marsha & HDSA for keeping us up-to-date! The Hereditary Disease Foundation's...
There are three new articles up on the HDDW website written by Dr. LaVonne Veatch Goodman. The first talks about what CHDI is up to and provides some insight...
Everyone, Mom has been very suicidal lately. She has been suicidal for years, but lately has become obsessed with it. But this latest attack against herself I...
Rhonda Holscher
sawedoffrunt69@...
Nov 17, 2008 7:53 am
415
LaVonne Goodman wrote the below article that explains what HD families must do in order to get a prescription for Xenazine filled. It's an excellent article,...
Besides the HDDW article you can also read the HDSA November 24, 2008 News Release on Xenazine Tablets Availabile in the U.S. here www.hdsa.org/xenazine where...
Thanks to Marsha Miller the HDL is reporting on two recent studies in HD! Weight loss in HD http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=609 HD...
Forgive me if I've sent this already........I've sent out so much stuff today am starting forget what I sent and who I sent it to! I know I sent something...
2009 HDSA National Convention in Phoenix starts 18 weeks from tomorrow and the National Youth Alliance [NYA] is gearing up for all their events! The below...
Re: Kick off of the 2009 HDSA NYA Convention Scholarship & Activities That's the trouble with copy/paste......the following had the wrong address for mailing...
Reminder from: HDMeetings Yahoo! Group http://groups.yahoo.com/group/HDMeetings/cal JoAnn Curington pHD Sunday February 1, 2009 All Day (This event repeats...
HDMeetings@yahoogroup...
Jan 31, 2009 11:47 pm
423
Heather Alimossy from Oregon and Ashlee Duffy from the UK, both 20 year old's who tested positive for HD, both set off to accomplish major HD awareness events...
Jacey Mukka, the NYA's Video Director Extraordinaire, found a very cool video on YouTube discovering something new:: Video - World Rare Disease Day is being...
Am sure many of you may have seen yesterday's business news on the sale of Ovation Pharmaceuticals, Inc. to H. Lundbeck A/S (Lundbeck) of Denmark. Ovation is...
Below is a letter from HDSA's National Youth Alliance 2009 Silent Auction Chairperson, Staci Nicholas requesting NYA members, HD families, HDSA Chapters and...
To HDMeetings Group: There are some changes to the group. Sign in and check out Applications under Group Labs. If you have any suggestions please let me know. ...
I'm on digest so I dont' know if anyone has shared this. How these wonderful ladies have the endurance to do this for HD awareness year after year amazes me,...
Just wanted to let everyone know that mom (pHD) passed away yesterday morning (Thursday, April 23) at 5:25 am. I know some of you had no idea she was even in...
Rhonda Holscher
sawedoffrunt69@...
Apr 24, 2009 1:05 pm
431
 Rhonda, I am very sorry about your mother. Such a terrible thing, I swear.  The best to you and yours.  George ... From: Rhonda Holscher...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
