Phase II DIMOND Study [Dimebon] Results Are Very Encouraging HDSA Breaking News by Marsha Miller http://www.hdsa.org/research/news/815.html Not only is it safe...
Reminder from: HDMeetings Yahoo! Group http://groups.yahoo.com/group/HDMeetings/cal Caleb AtRish 13th bday Thursday July 10, 2008 All Day (This event repeats...
HDMeetings@yahoogroup...
Jul 9, 2008 11:46 pm
386
Another new update on HDSA's websites from Marsha Miller! As Marsha wrote me: We now have four Phase III clinical trials underway or planned - creatine, ...
The UK Huntington Disease Association has finally published is Huntington's Disease Standards of Care document, written for Social and Healthcare professionals...
I tried to send this with attachments I received, but it was rejected [too large]. State HD Conventions are always great to attend to the opportuntiy to meet...
CONGRATULATIONS to all of us for having Steve Ireland as a new Member of the HDSA Board of Trustee's!!! Steve, from the HDAC and HD Lighthouse, certainly...
Sending this out for a friend! HD Study at Indiana University, Indianapolis Identification of Novel Biomarkers in Huntington's Disease We are now in the...
Hi ALL, We just got back from a long vacation to Clearwater, FL. We took my nephew Austin (also atrisk) along so Caleb would have someone to do things with....
Rhonda Holscher
sawedoffrunt69@...
Jul 30, 2008 2:13 pm
393
Grrrrrrrrrrr! People can post comments on this article on the below link. I did and so have several others in the US. Huntington's disease leads to restaurant...
For those that didn't know the National HD Team Hope web page recently got its final approval from HDSA and is now live and running at http://www.walk4hd.org....
See links to both the AP & Reuters news coverage articles. The below are excerpts only and not the full article. Dr. George Daley and his colleagues at the...
Mike Brown wrote about the new HD support group and he said it was okay if I shared a little more information on this group. If you're receiving individual...
Ooops I sent out the old one with a bad email for Mike. The below & attached is correct, sorry about that! Mike Brown wrote about the new HD support group and...
H.R. 6259: Huntington's Disease Parity Act of 2008 On-line Petition http://www.petitiononline.com/HR6259/petition.html As of this morning, August 16, 2008,...
Almost everyone knows and loves Jimmy Pollard and everything he has done over the past 20+ years helping caregiver's and care facilities understand what having...
Vitamin B-12 deficiency should be checked for periodically in HD patients, especially in the mid to later stages when the person may not be consuming enough...
Nancy Fiore, Mark Smrtnik's Mom, asked me to share this with everyone, writing: This just shows what a wonderful community we live in! My son touches so many...
For those who are receiving individual messages, attached is the brochure for this event. Subject: Annual Ultimate Hollywood Experience drawing Open to: All...
Marsha Miller has published two new articles on HDSA's website. Thank you Marsha & HDSA for keeping us up-to-date! The Hereditary Disease Foundation's...
There are three new articles up on the HDDW website written by Dr. LaVonne Veatch Goodman. The first talks about what CHDI is up to and provides some insight...
Everyone, Mom has been very suicidal lately. She has been suicidal for years, but lately has become obsessed with it. But this latest attack against herself I...
Rhonda Holscher
sawedoffrunt69@...
Nov 17, 2008 7:53 am
415
LaVonne Goodman wrote the below article that explains what HD families must do in order to get a prescription for Xenazine filled. It's an excellent article,...
Besides the HDDW article you can also read the HDSA November 24, 2008 News Release on Xenazine Tablets Availabile in the U.S. here www.hdsa.org/xenazine where...
Thanks to Marsha Miller the HDL is reporting on two recent studies in HD! Weight loss in HD http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=609 HD...
Forgive me if I've sent this already........I've sent out so much stuff today am starting forget what I sent and who I sent it to! I know I sent something...
2009 HDSA National Convention in Phoenix starts 18 weeks from tomorrow and the National Youth Alliance [NYA] is gearing up for all their events! The below...
Re: Kick off of the 2009 HDSA NYA Convention Scholarship & Activities That's the trouble with copy/paste......the following had the wrong address for mailing...
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