For anyone in the Connecticut or New England area....... Save the Date.. May 31,2008 to support HDSA National Youth Member Mindy Maher's 3rd Annual HD Benefits...
I don't know if anyone posted the below message from Marie, however they're looking for families in Southern Illinois and Indiana to put them up for a night...
Below is the HDSA announcement on the eBay auction for a signed lithograph by Tony Bennett, also known as Anthony Benedetto in the world of art collectors!...
I just got through watching this video and am so PROUD of NYA member Mind !! You and Susan covered a LOT in 3 short minutes and I hope that coverage brings...
There is an excellent article published in the June issue of the New York Magazine written by author Kevin Baker who has Huntington's Disease in his family....
Phase II DIMOND Study [Dimebon] Results Are Very Encouraging HDSA Breaking News by Marsha Miller http://www.hdsa.org/research/news/815.html Not only is it safe...
Reminder from: HDMeetings Yahoo! Group http://groups.yahoo.com/group/HDMeetings/cal Caleb AtRish 13th bday Thursday July 10, 2008 All Day (This event repeats...
HDMeetings@yahoogroup...
Jul 9, 2008 11:46 pm
386
Another new update on HDSA's websites from Marsha Miller! As Marsha wrote me: We now have four Phase III clinical trials underway or planned - creatine, ...
The UK Huntington Disease Association has finally published is Huntington's Disease Standards of Care document, written for Social and Healthcare professionals...
I tried to send this with attachments I received, but it was rejected [too large]. State HD Conventions are always great to attend to the opportuntiy to meet...
CONGRATULATIONS to all of us for having Steve Ireland as a new Member of the HDSA Board of Trustee's!!! Steve, from the HDAC and HD Lighthouse, certainly...
Sending this out for a friend! HD Study at Indiana University, Indianapolis Identification of Novel Biomarkers in Huntington's Disease We are now in the...
Hi ALL, We just got back from a long vacation to Clearwater, FL. We took my nephew Austin (also atrisk) along so Caleb would have someone to do things with....
Rhonda Holscher
sawedoffrunt69@...
Jul 30, 2008 2:13 pm
393
Grrrrrrrrrrr! People can post comments on this article on the below link. I did and so have several others in the US. Huntington's disease leads to restaurant...
For those that didn't know the National HD Team Hope web page recently got its final approval from HDSA and is now live and running at http://www.walk4hd.org....
See links to both the AP & Reuters news coverage articles. The below are excerpts only and not the full article. Dr. George Daley and his colleagues at the...
Mike Brown wrote about the new HD support group and he said it was okay if I shared a little more information on this group. If you're receiving individual...
Ooops I sent out the old one with a bad email for Mike. The below & attached is correct, sorry about that! Mike Brown wrote about the new HD support group and...
H.R. 6259: Huntington's Disease Parity Act of 2008 On-line Petition http://www.petitiononline.com/HR6259/petition.html As of this morning, August 16, 2008,...
Almost everyone knows and loves Jimmy Pollard and everything he has done over the past 20+ years helping caregiver's and care facilities understand what having...
Vitamin B-12 deficiency should be checked for periodically in HD patients, especially in the mid to later stages when the person may not be consuming enough...
Nancy Fiore, Mark Smrtnik's Mom, asked me to share this with everyone, writing: This just shows what a wonderful community we live in! My son touches so many...
For those who are receiving individual messages, attached is the brochure for this event. Subject: Annual Ultimate Hollywood Experience drawing Open to: All...
Marsha Miller has published two new articles on HDSA's website. Thank you Marsha & HDSA for keeping us up-to-date! The Hereditary Disease Foundation's...
There are three new articles up on the HDDW website written by Dr. LaVonne Veatch Goodman. The first talks about what CHDI is up to and provides some insight...
Everyone, Mom has been very suicidal lately. She has been suicidal for years, but lately has become obsessed with it. But this latest attack against herself I...
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