For anyone planning on attending the HDSA convention in Pittsburgh, this is a good site to estimate the cost of round-trip airfare anywhere in the US. After...
For some reason, without the http:/ that site isn't working. This one does: http://www.farereport.com/ Fare Report is a free tool that provides travelers with...
First, the HDSA and the NYA Adult Advisors are ELATED to announce that the National Youth Alliance [NYA] 2008 Convention Scholarship Fund will be sending...
My Aunt Lisa died today. As I just told some of you my dad's death was just a year ago April 11th and we just lost our April 7th this year, and my mom...
Rhonda Holscher
sawedoffrunt69@...
Apr 15, 2008 1:25 am
366
Thank you everyone for all your kind words. You have ALL become a great source of comfort for me. Just know you are there if I ever need someone I know someone...
Rhonda Holscher
sawedoffrunt69@...
Apr 16, 2008 1:30 am
367
Below is information on the upcoming upstate New York area HD conference May 3rd. As always, I encourage anyone who can attend their state HD conferences...
The Northern California HDSA Chapter recently held their 2nd Youth Support Group event, with a Bowlathon, on May 31 in Fresno. Another JHD Mom just wrote me...
Resources for anyone driving to Pittsburgh Below are a lot of good resources for anyone who is planning on driving to Pittsburgh for the first annual HDSA NYA...
We're trying to find a good place in downtown Pittsburgh, near the HDSA Convention hotel the Omni William Penn, to hold the 8th Annual On-Line HD Family Get...
Below is a message from Jim Pollard on the May 18, 2008 Annual Garbage Trail Walk to Massacree HD. The flyer on their website was too big to attach to Yahoo...
The place for the 8th annual event where all the HD on-line groups, or everyone arriving in Pittsburgh on Thursday, are invited to get together to meet old...
For anyone in the Connecticut or New England area....... Save the Date.. May 31,2008 to support HDSA National Youth Member Mindy Maher's 3rd Annual HD Benefits...
I don't know if anyone posted the below message from Marie, however they're looking for families in Southern Illinois and Indiana to put them up for a night...
Below is the HDSA announcement on the eBay auction for a signed lithograph by Tony Bennett, also known as Anthony Benedetto in the world of art collectors!...
I just got through watching this video and am so PROUD of NYA member Mind !! You and Susan covered a LOT in 3 short minutes and I hope that coverage brings...
There is an excellent article published in the June issue of the New York Magazine written by author Kevin Baker who has Huntington's Disease in his family....
Phase II DIMOND Study [Dimebon] Results Are Very Encouraging HDSA Breaking News by Marsha Miller http://www.hdsa.org/research/news/815.html Not only is it safe...
Reminder from: HDMeetings Yahoo! Group http://groups.yahoo.com/group/HDMeetings/cal Caleb AtRish 13th bday Thursday July 10, 2008 All Day (This event repeats...
HDMeetings@yahoogroup...
Jul 9, 2008 11:46 pm
386
Another new update on HDSA's websites from Marsha Miller! As Marsha wrote me: We now have four Phase III clinical trials underway or planned - creatine, ...
The UK Huntington Disease Association has finally published is Huntington's Disease Standards of Care document, written for Social and Healthcare professionals...
I tried to send this with attachments I received, but it was rejected [too large]. State HD Conventions are always great to attend to the opportuntiy to meet...
CONGRATULATIONS to all of us for having Steve Ireland as a new Member of the HDSA Board of Trustee's!!! Steve, from the HDAC and HD Lighthouse, certainly...
Sending this out for a friend! HD Study at Indiana University, Indianapolis Identification of Novel Biomarkers in Huntington's Disease We are now in the...
Hi ALL, We just got back from a long vacation to Clearwater, FL. We took my nephew Austin (also atrisk) along so Caleb would have someone to do things with....
Rhonda Holscher
sawedoffrunt69@...
Jul 30, 2008 2:13 pm
393
Grrrrrrrrrrr! People can post comments on this article on the below link. I did and so have several others in the US. Huntington's disease leads to restaurant...
For those that didn't know the National HD Team Hope web page recently got its final approval from HDSA and is now live and running at http://www.walk4hd.org....
See links to both the AP & Reuters news coverage articles. The below are excerpts only and not the full article. Dr. George Daley and his colleagues at the...
Mike Brown wrote about the new HD support group and he said it was okay if I shared a little more information on this group. If you're receiving individual...
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