Dear Friends & Family I would like your help in signing a petition to get the Social Security Administration [SSA] to update their Disability Evaluation Under...
With the exception of the Cambridge Brain Repair Centre in the United Kingdom, all DIMOND study locations are in the USA. Please read more about this clinical...
For anyone who has attended an HDSA National Convention you have witnessed, first hand, how important peer support is for all of our young people living with...
If you live in New Hampshire you might want to read this! It's a wonderful article about a lady with HD finding the right home services to help her maintain...
As almost everyone knows by now, the HDSA 2008 National Convention is June 6-8th in Pittsburgh, PA. That's only a little over 16 weeks away. That may seem...
Anyone associated with the New England Chapter of the HDSA knows they've done an outstanding job of advocating for HD families in the New England states!...
How many times have you gone to www.google.com websearch and just put in the words you needed to search for something, never paying attention to what else the...
Don't miss Charles Sabine's, the NBC world news correspondent who was diagnosed with HD, presentation on video that he gave at the CHDI conference last month:...
For everyone who was overwhelmed and impressed by NBC world news correspondent Charles Sabine presentation [and video] given to the HD researchers in...
Found a good video of a Nancy Wexler lecture uploaded to YouTube January 23, 2008 talking on her passion - genetic testing for any disease including HD of...
The HD Lighthouse has put up Jim Thretheway's article: 2008 CHDI HD Therapeutics Conference: A Report from an HD Family Perspective February 4-7, 2008 in Palm...
In case anyone hasn't seen this...........there's one week left for your application for the 2008 NYA Convention Scholarship to be postmarked!! Remember, if...
The kids and young adults in the National Youth Alliance will be kicking off their annual search for donated items to support their Silent Auction at HDSA's...
The HD Lighthouse had an article up on Avicena's HD-02 Phase III HD Trial before I sent out the release a few minutes ago! Phase III Creatine Trial: ...
Anyone living near the Indiana/Michigan state line please plan to attend this event and support theses two wonderful HDSA National Youth Alliance members as...
For anyone living in this area of California, try to attend. You can learn a lot at the state held HD conferences & convention plus you get to meet others...
Marsha has a new HDL article online covering the exciting press release this past weekend on Novel targets for HD. It's a pretty detailed study and article. I...
For anyone planning on attending the HDSA convention in Pittsburgh, this is a good site to estimate the cost of round-trip airfare anywhere in the US. After...
For some reason, without the http:/ that site isn't working. This one does: http://www.farereport.com/ Fare Report is a free tool that provides travelers with...
First, the HDSA and the NYA Adult Advisors are ELATED to announce that the National Youth Alliance [NYA] 2008 Convention Scholarship Fund will be sending...
My Aunt Lisa died today. As I just told some of you my dad's death was just a year ago April 11th and we just lost our April 7th this year, and my mom...
Rhonda Holscher
sawedoffrunt69@...
Apr 15, 2008 1:25 am
366
Thank you everyone for all your kind words. You have ALL become a great source of comfort for me. Just know you are there if I ever need someone I know someone...
Rhonda Holscher
sawedoffrunt69@...
Apr 16, 2008 1:30 am
367
Below is information on the upcoming upstate New York area HD conference May 3rd. As always, I encourage anyone who can attend their state HD conferences...
The Northern California HDSA Chapter recently held their 2nd Youth Support Group event, with a Bowlathon, on May 31 in Fresno. Another JHD Mom just wrote me...
Resources for anyone driving to Pittsburgh Below are a lot of good resources for anyone who is planning on driving to Pittsburgh for the first annual HDSA NYA...
We're trying to find a good place in downtown Pittsburgh, near the HDSA Convention hotel the Omni William Penn, to hold the 8th Annual On-Line HD Family Get...
Below is a message from Jim Pollard on the May 18, 2008 Annual Garbage Trail Walk to Massacree HD. The flyer on their website was too big to attach to Yahoo...
The place for the 8th annual event where all the HD on-line groups, or everyone arriving in Pittsburgh on Thursday, are invited to get together to meet old...
For anyone in the Connecticut or New England area....... Save the Date.. May 31,2008 to support HDSA National Youth Member Mindy Maher's 3rd Annual HD Benefits...
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