I wish I qualified, I could get a 3 month supply of Synthroid $20.00 vs what Medicare is costing! Income To use Rx Outreach, your income needs to be less than...
There are so many great video's on the Internet on HD that I tried finding as many as I could and linked them all to a new website: Huntington's Disease Video...
One of the HD Video Theater links I shared yesterday was this excellent resource video: The Gift of Caring http://www.youtube.com/watch?v=tUPs-Xr5nSw Time:...
Many people have told me that they didn't receive the most recent copy of the HDSA Marker magazine in the mail. Well HDSA now has the electronic version...
I found a bunch of new video's today that, although not HD specific, I'm hoping y'all find helpful. I don't know about some of you, but I'm a visual person....
For any young person at-risk 12 to 17 living in the St. Louis, Missouri area I'm happy to report that there is a teen group for you! St. Louis Chapter At-Risk...
If you have any young people living with HD, ages 9 to 29, please read the HDSA message below. First, any existing member of the NYA must fill out the new NYA...
This was posted on Hunt-Dis January 17th. The author, Ricki Lewis, is a geneticist who is also a science writer for CHDI. Inc. [http://www.chdi-inc.org/]....
I just ran across another forum where you can ask about HD, post your own story about living with HD, or try to help somone else looking for answers if you're...
Sorry according to the station's website the time is listed in Pacific Time http://www.patientpower.info/blog/Events/default.asp?Year=2008&Month=01&Day=23 So...
Hi hope everyone had a chance to listen to the PatientPower show on HD today with Dr. Jane Paulsen and Karen Milek, it was chock full of some great questions,...
I'd even recommend your friends or coworkers also listen to this to learn more about HD! Hopefully the 2nd interview on HD will be scheduled sometime soon! ...
For anyone interested I've add a couple things to the HD Video Awareness website, which has both video and media resources! Here's what's new: Drugs & Your...
Reminder from: HDMeetings Yahoo! Group http://groups.yahoo.com/group/HDMeetings/cal JoAnn Curington pHD Friday February 1, 2008 All Day (This event repeats...
HDMeetings@yahoogroup...
Jan 31, 2008 11:41 pm
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Dear Friends & Family I would like your help in signing a petition to get the Social Security Administration [SSA] to update their Disability Evaluation Under...
With the exception of the Cambridge Brain Repair Centre in the United Kingdom, all DIMOND study locations are in the USA. Please read more about this clinical...
For anyone who has attended an HDSA National Convention you have witnessed, first hand, how important peer support is for all of our young people living with...
If you live in New Hampshire you might want to read this! It's a wonderful article about a lady with HD finding the right home services to help her maintain...
As almost everyone knows by now, the HDSA 2008 National Convention is June 6-8th in Pittsburgh, PA. That's only a little over 16 weeks away. That may seem...
Anyone associated with the New England Chapter of the HDSA knows they've done an outstanding job of advocating for HD families in the New England states!...
How many times have you gone to www.google.com websearch and just put in the words you needed to search for something, never paying attention to what else the...
Don't miss Charles Sabine's, the NBC world news correspondent who was diagnosed with HD, presentation on video that he gave at the CHDI conference last month:...
For everyone who was overwhelmed and impressed by NBC world news correspondent Charles Sabine presentation [and video] given to the HD researchers in...
Found a good video of a Nancy Wexler lecture uploaded to YouTube January 23, 2008 talking on her passion - genetic testing for any disease including HD of...
The HD Lighthouse has put up Jim Thretheway's article: 2008 CHDI HD Therapeutics Conference: A Report from an HD Family Perspective February 4-7, 2008 in Palm...
In case anyone hasn't seen this...........there's one week left for your application for the 2008 NYA Convention Scholarship to be postmarked!! Remember, if...
The kids and young adults in the National Youth Alliance will be kicking off their annual search for donated items to support their Silent Auction at HDSA's...
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