As most of you know the FDA will have a hearing for Tetrabenazine [TBZ] on December 6, 2007. This hearing will be a Open Public Hearing which provides...
Sorry, I won't post anything else on this subject until after the meeting, I promise! The only reason I'm posting this one is because it gives the mailing...
Probably one of THE most important studies being done in Huntington's Disease [besides PREDICT HD] is the Huntington's Study Group's [HSG] COHORT Study. Why? ...
This was posted on-line yesterday. For anyone participating in the DOMINO study or taking Minocycline, it's important you read the below HDSA coverage. I'm...
What's a little more nuts to an HD family? Well it appears eating them can help! The Society for Neuroscience recently had its annual meeting and the HD...
If you belong to Hunt-Dis and you use the archive link to read messages [like me] or are on Digest and haven't received your digest from yesterday, there is a...
Can We Get There From Here? The Huntington's Disease Community's Strategic Plan for the Cure My computer's working again! Part II of the above series of...
Office Max has two sites where you can upload personal picture[s] of your face [or others in your family or friends] and create a Holiday video dance. I've...
This GREAT news was posted by Dr. LaVonne Veatch Goodman from the HD Drug Works on Hunt Dis last night. Check HDSA's website www.hdsa.org or the Hereditary...
For those have haven't received this exciting bulletin from HDSA, below is Barbara Boyle's update on the FDA Advisory Committee meeting as promised. WOW 1500...
For those that haven't read Dr. Marsha Miller's excellent article covering the 2007 HSG Clinical Research Symposium for HDSA's website, here's the link: The...
The Greenfield Millis in Indiana has some of THE BEST 100% natural pancake mix and other products and they are very reasonable too! How do I know? Well,...
"Old timers" will remember this song that was played, I believe, at the convention in San Diego. You can hear it sung on the HDSA Central Florida Affiliate...
Jane Mervar shared a link with me last night on the new video her daughter Jacey recently uploaded to YouTube. I wrote Jacey personally that her heart has the...
I wish I qualified, I could get a 3 month supply of Synthroid $20.00 vs what Medicare is costing! Income To use Rx Outreach, your income needs to be less than...
There are so many great video's on the Internet on HD that I tried finding as many as I could and linked them all to a new website: Huntington's Disease Video...
One of the HD Video Theater links I shared yesterday was this excellent resource video: The Gift of Caring http://www.youtube.com/watch?v=tUPs-Xr5nSw Time:...
Many people have told me that they didn't receive the most recent copy of the HDSA Marker magazine in the mail. Well HDSA now has the electronic version...
I found a bunch of new video's today that, although not HD specific, I'm hoping y'all find helpful. I don't know about some of you, but I'm a visual person....
For any young person at-risk 12 to 17 living in the St. Louis, Missouri area I'm happy to report that there is a teen group for you! St. Louis Chapter At-Risk...
If you have any young people living with HD, ages 9 to 29, please read the HDSA message below. First, any existing member of the NYA must fill out the new NYA...
This was posted on Hunt-Dis January 17th. The author, Ricki Lewis, is a geneticist who is also a science writer for CHDI. Inc. [http://www.chdi-inc.org/]....
I just ran across another forum where you can ask about HD, post your own story about living with HD, or try to help somone else looking for answers if you're...
Sorry according to the station's website the time is listed in Pacific Time http://www.patientpower.info/blog/Events/default.asp?Year=2008&Month=01&Day=23 So...
Hi hope everyone had a chance to listen to the PatientPower show on HD today with Dr. Jane Paulsen and Karen Milek, it was chock full of some great questions,...
I'd even recommend your friends or coworkers also listen to this to learn more about HD! Hopefully the 2nd interview on HD will be scheduled sometime soon! ...
For anyone interested I've add a couple things to the HD Video Awareness website, which has both video and media resources! Here's what's new: Drugs & Your...
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