Anyone who attended the first HDSA National Youth Alliance Friday night Talent Show in St. Louis in 2004 will remember giving a standing ovation to a young...
Most of you probably already know that the HDSA has uploaded the presentations from the 2007 HDSA National Convention in Oklahoma on their website, available...
Way to go Eric!!! From: Melissa Worthington Sent: Friday, August 03, 2007 2:36 PM Subject: Eric Licht Climbs Mt. Rainier to Raise Money for HD Dear Friends - ...
They restarted the votes so please VOTE TODAY! VOTE HERE: http://www.q1043.com/pages/ltd.html For HDSA NYA Member Stephanie Curnow! Right now she is in 2nd...
Sure, now that my pneumonia and bronchitis is 95% healed! Be better if they include drugs people use EVERY day...but we'll all take what we can get for free...
Please see update from Leo below for links to his presentations! Thanks Leo, Susie & and I weren't aware of the brainstorming session in OKC - these notes...
Thanks to everyone for voting for NYA member Stephanie Cournow in the NYC Rock 'N Roll contest!! The following was posted on the HD Caregivers this morning: ...
For anyone living in the New England area there are a lot of upcoming events and opportunities to meet other HD families living in your area, while having some...
I heard back from Virginia Goolkasian the New England HDSA Regional Development director. The following event had to be cancelled due to a family crisis....
I found some more stuff on YouTube the other day if anyone's interested. Some we've seen before like the favorite Helping Hands or Huntington's Dance, some...
THANK YOU HD Lighthouse, both Steve and Marsha, for these most current updates! You've given us history-making HD research [first one] that can give us all so...
Recently the Huntington's Disease Advocacy Center [HDSA] was contacted by a parent looking for any available resources to help their JHD child during this...
I apologize if this is a duplicate message, but it's an important one! Katie Moser, who we all know and love as the young lady from the NY Times article ...
For those living in or near Wisconsin these State HD Conventions/Conferences offer those living with HD the opportunity to learn more about the resources in...
Another good HD State Conference for all of those of you living in the Rocky Mountain area of the country! RMC Family & Caregiver Symposium Help for Today ~...
WOW it looks like most of the HD Chapers and/or CoE have State HD Conferences this month or coming up soon! Barb Heiman sent me a notice on this Ohio...
I'd love to see more retreats for people with HD!! The below is from the HDSA Events Calendar. The Mid-Atlantic website indicates this is an Overnight...
This was posted on the HDAC forum HDSA Mid-Atlantic Region Website: http://www.hdsamidatlantic.org/ Serving Delaware Valley, Delaware, D.C., Maryland and...
Many of you met a dynamic young lady, Lauren Holder [a member of the HDSA NYA] at the convention in OKC this year. Shortly after the convention Lauren moved...
Brief SSDI questionnaireThis message was forwarded to me. It was sent to the HDSA Chapters Presidents by Sean Luis, the new Advocacy & Family Service Manager...
I remembered to follow up! The second article about the Jackowski family from Illoinois is published on the Daily Herald news today! Another fantastic...
Thanks to the hard work of the Northwest Chapter of HDSA President, Liz Weber and their board, a Tribute Concert to Celebrate the lives of Woody and Marjorie...
Herb, I'm very sorry for your loss. You and your family will be kept my prayers. ALL, As you may or may not remember my dad (not a pHD) died this past April....
Rhonda Holscher
sawedoffrunt69@...
Oct 8, 2007 9:02 am
292
Wanted to say thank you to everyone for your support, prayers, and shared stories. I don't remember who asked, but yes Caleb does know his doc. wants him...
Rhonda Holscher
sawedoffrunt69@...
Oct 9, 2007 1:50 pm
293
Hi. My mom died in December of 2004. Her chorea became quite severe before her died. My question is, before the movements start, do patients experience any,...
If you have a few minutes, please check the messages out on the HD Map Where We Live. There might be someone you can related to who even lives in the same...
If you were a member of Hunt-Dis, or even a little further back the AOL HD Chats, you'll remember our friend, Julie Sando, who was a member for many, many...
For those living in the CT or NY area's, MRSA is not something to mess with and to have it found in the public schools is outright scary! If you have family...
The 2007 World Congress on Huntington's Disease was held in Dresden, Germany in September. I learned this morning on the HDAC forum that they have the entire...
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