The HDSA San Diego Chapter always offers excellent articles on their website http://hdsasandiego.org/ The one below on the existing Care deficits in HD...
There are so many exciting things happening in HD research in the world today! Thank heaven for the HD Lighthouse Editors for keeping up with them all and...
Reminder from: HDMeetings Yahoo! Group http://groups.yahoo.com/group/HDMeetings/cal Caleb AtRish 13th bday Tuesday July 10, 2007 All Day (This event repeats...
HDMeetings@yahoogroup...
Jul 9, 2007 11:42 pm
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The below email is from Jason Mundy who leads our Jacksonville, FL HD Support group. The Memories of Love website doesn't indicate that wishes are solely for...
It's another GREAT article and Stacy & her husband are to be commended for their willingness to share their heartfelt story with the media. As can be...
Another good resource! Long Term Care Planning Kit http://www.longtermcare.gov/LTC/Main_Site/Planning_LTC/Campaign/Kit/Kit.aspx This planning kit is available...
This looks like an excellent document! The Glossary helps explain all of the terminology you'll find in LTC policies, Shopping Tips which are things to look...
This is where I found those two documents National Clearing House for Long Term Care http://www.longtermcare.gov/LTC/Main_Site/index.aspx This web site was...
For anyone living in the Grand Forks, North Dakota area below is a message from Terry Fore of the Minnesota HDSA CoE about a new HD support group for you! ...
For those living in this area of our beautiful country here's a new HD support group for you! Subject: HD support group--Western Washington, north of Seattle ...
HD Map Where we live: http://huntingtondisease.tripod.com/id18.html Click on "place your pin" and when the map pops up, go to "list" at the top of the page to...
Gosh, keep 'em coming! I'd love to see an HD Support Group in EVERY town across America! East Bay, CA HD Support Group When: 1st Thursday of each month Time:...
This was on CNN's Baynews9 tonight and might be of interested to anyone who follows political actions! Great political links Friday, July 27, 2007 One of the...
Anyone who attended the first HDSA National Youth Alliance Friday night Talent Show in St. Louis in 2004 will remember giving a standing ovation to a young...
Most of you probably already know that the HDSA has uploaded the presentations from the 2007 HDSA National Convention in Oklahoma on their website, available...
Way to go Eric!!! From: Melissa Worthington Sent: Friday, August 03, 2007 2:36 PM Subject: Eric Licht Climbs Mt. Rainier to Raise Money for HD Dear Friends - ...
They restarted the votes so please VOTE TODAY! VOTE HERE: http://www.q1043.com/pages/ltd.html For HDSA NYA Member Stephanie Curnow! Right now she is in 2nd...
Sure, now that my pneumonia and bronchitis is 95% healed! Be better if they include drugs people use EVERY day...but we'll all take what we can get for free...
Please see update from Leo below for links to his presentations! Thanks Leo, Susie & and I weren't aware of the brainstorming session in OKC - these notes...
Thanks to everyone for voting for NYA member Stephanie Cournow in the NYC Rock 'N Roll contest!! The following was posted on the HD Caregivers this morning: ...
For anyone living in the New England area there are a lot of upcoming events and opportunities to meet other HD families living in your area, while having some...
I heard back from Virginia Goolkasian the New England HDSA Regional Development director. The following event had to be cancelled due to a family crisis....
I found some more stuff on YouTube the other day if anyone's interested. Some we've seen before like the favorite Helping Hands or Huntington's Dance, some...
THANK YOU HD Lighthouse, both Steve and Marsha, for these most current updates! You've given us history-making HD research [first one] that can give us all so...
Recently the Huntington's Disease Advocacy Center [HDSA] was contacted by a parent looking for any available resources to help their JHD child during this...
I apologize if this is a duplicate message, but it's an important one! Katie Moser, who we all know and love as the young lady from the NY Times article ...
For those living in or near Wisconsin these State HD Conventions/Conferences offer those living with HD the opportunity to learn more about the resources in...
Another good HD State Conference for all of those of you living in the Rocky Mountain area of the country! RMC Family & Caregiver Symposium Help for Today ~...
WOW it looks like most of the HD Chapers and/or CoE have State HD Conferences this month or coming up soon! Barb Heiman sent me a notice on this Ohio...
I'd love to see more retreats for people with HD!! The below is from the HDSA Events Calendar. The Mid-Atlantic website indicates this is an Overnight...
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