Dr. LaVonne Goodman has an exciting review and update on Trehalose on the HDDW website! When you visit the site, you'll see it's changing! The HDDW is...
I just sent out two documents, described below, on IVD and PGD. If you're interested I'll be happy to share them with you, just send me an email! Love Jean ...
Gail, I received your request for the IVG/PGD documents and tried to send then to you this morning but my email to you was rejected because: your email...
I agree with Karen Milek on this one, Billy is one special young man with a heart bigger then Texas [but he's from Iowa] and heartthrob of the NYA [and ...
"instead [consumers] received a product that, according to preliminary analysis, contains haloperidol FDA reissues Internet Drug Warning Mislabeled medications...
Subject: Huntington's Disease Advocacy Center [HDAC] New Resource "What's New in The News" Interested in a monthly bulletin that will give you information on...
The 22nd annual HDSA National Convention and the 40th anniversary of the HDSA is just 16 short weeks away from this weekend! I heard about the negotiated...
For those that haven't heard, you MUST read the latest article on Huntington's Disease published in the New York Times! New York Times 3-18-07 article "Facing...
Thanks to our friend in HD research, Robbie Blumenstein, I am sharing New York Times writer Amy Harmon's email address below and encourage everyone to contact...
Dear NYA Member and Parents Attached is the HDSA 2007 - 4th Annual National Youth Alliance [NYA] Convention Scholarship Application. This scholarship is open...
HDSA National Convention - Oklahoma City, OK June 15-17, 2007 - Negotiate Rates for Biltmore Hotel [smoking] The HDSA has negotiated a special rate of $87.00...
Just a reminder about the JHD Retreat! Phil is encouraging all families to let him know ASAP if you need a registration package! Juvenile Huntington's Disease!...
My apologies, the correct 800 number is below and attached!! The Biltmore will accept a credit card to guarantee your room but will not bill your card until...
I don't think all the support groups or Chapters were notified of the below request from HDSA! HDSA is looking for personal experiences of people with HD who...
For those in the area, who won't be able to attend the HDSA National Convention in Oklahoma June 14-17th, this might be a good opportunity for you to learn...
For those in the New England area there are two upcoming seminars [see below] that the HDSA New England Chapter is having that you might be interested in. ...
Some terrific topics on the agenda, if you live in the area make your reservations. NYA and young adults, check out the Youth Alliance Meeting 10:15 - 11....
Below is the official notice extending the NYA Convention scholarship application deadline. Applications most be post marked by April 18th. This scholarship...
For anyone living in Ohio, Michigan, Southern Ontario, etc. am sharing Jim Pollard's eInvitation for this one day Caregiver's Conference June 2nd. For those...
Since I no longer update my state-by-state HD resource pages, you can find a link to an individual HDSA Chapter/Affiliate or Center of Excellence (CoE) or HD...
A copy of the below is attached in Word format for sharing with your HD family members and support groups! Any support you can provide the 2007 NYA silent...
For anyone living in Europe who might not know this, on the Euro HD Project website there is a section for Patients and relatives to contact the project and...
Info on this site was posted on the HDAC forum. I tried it and it appears to work! So for anyone who searches the Internet once or more a day, please start...
Below is an update from Marie on the 2007 Rockies to Plains bike ride, including the website where you'll be able to follow the bikers daily, once they start...
On 4-2-07 the HDSA and the NYA Adult Advisors notified everyone that the deadline for submitting an application for the 2007 HDSA National Youth Alliance...
National Clearing House for Long Term Care Information U.S. Department of Health & Human Services [HHS] http://www.longtermcare.gov/LTC/Main_Site/index.aspx ...
Katie is the young lady from the recent NY Times article. She posted the below message on the NYA list saying that she will be on the ABC TV show The View...
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