Remember the gala celebration will be at the HDSA National Convention scheduled in Oklahoma City June 15-17th 2007! Never too early to start making your plans...
Dear GroupMate, Maybe you've just broken up with a long-time partner - or lost one forever. Maybe you've been without someone special in your life for a long,...
I'm sharing this request on behalf of Helen Brewer, Care Adviser - Juvenile Huntington's Disease for Euro-HD. Any parent of children with JHD, young people...
Touch My heart Touch my heart and I'll touch yours With a gentle word or two, For kindness bears the sweetest fruit That makes our dreams come true. Touch my...
MegaVoteEUREKA.......the times are changing [finally]! 24 states were in favor of this bill. Florida, among others voted against it. Go here to see how they...
Probably just easier if I list several of the Society for Neurosciences [SfN] www.sfn.com excellent resources for HD families to download and share, use for...
I know many of you remember Chris Furbee who is doing the video about his Mom having HD [see below]? His most latest interview will finally be aired tomorrow,...
Just in case y'all don't sign on through the Yahoo message board they've had a warning for the past 2 days on all of them that, due to heavy activity, they are...
Maybe, if you're like me, you didn't know there is a weekly "chat" for Juvenile HD family members so here is the information on how to join in! I've also put...
Reminder from: HDMeetings Yahoo! Group http://groups.yahoo.com/group/HDMeetings/cal JoAnn Curington pHD Thursday February 1, 2007 All Day (This event repeats...
HDMeetings@yahoogroup...
Jan 31, 2007 11:47 pm
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Dr. LaVonne Goodman has an exciting review and update on Trehalose on the HDDW website! When you visit the site, you'll see it's changing! The HDDW is...
I just sent out two documents, described below, on IVD and PGD. If you're interested I'll be happy to share them with you, just send me an email! Love Jean ...
Gail, I received your request for the IVG/PGD documents and tried to send then to you this morning but my email to you was rejected because: your email...
I agree with Karen Milek on this one, Billy is one special young man with a heart bigger then Texas [but he's from Iowa] and heartthrob of the NYA [and ...
"instead [consumers] received a product that, according to preliminary analysis, contains haloperidol FDA reissues Internet Drug Warning Mislabeled medications...
Subject: Huntington's Disease Advocacy Center [HDAC] New Resource "What's New in The News" Interested in a monthly bulletin that will give you information on...
The 22nd annual HDSA National Convention and the 40th anniversary of the HDSA is just 16 short weeks away from this weekend! I heard about the negotiated...
For those that haven't heard, you MUST read the latest article on Huntington's Disease published in the New York Times! New York Times 3-18-07 article "Facing...
Thanks to our friend in HD research, Robbie Blumenstein, I am sharing New York Times writer Amy Harmon's email address below and encourage everyone to contact...
Dear NYA Member and Parents Attached is the HDSA 2007 - 4th Annual National Youth Alliance [NYA] Convention Scholarship Application. This scholarship is open...
HDSA National Convention - Oklahoma City, OK June 15-17, 2007 - Negotiate Rates for Biltmore Hotel [smoking] The HDSA has negotiated a special rate of $87.00...
Just a reminder about the JHD Retreat! Phil is encouraging all families to let him know ASAP if you need a registration package! Juvenile Huntington's Disease!...
My apologies, the correct 800 number is below and attached!! The Biltmore will accept a credit card to guarantee your room but will not bill your card until...
I don't think all the support groups or Chapters were notified of the below request from HDSA! HDSA is looking for personal experiences of people with HD who...
For those in the area, who won't be able to attend the HDSA National Convention in Oklahoma June 14-17th, this might be a good opportunity for you to learn...
For those in the New England area there are two upcoming seminars [see below] that the HDSA New England Chapter is having that you might be interested in. ...
Some terrific topics on the agenda, if you live in the area make your reservations. NYA and young adults, check out the Youth Alliance Meeting 10:15 - 11....
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