The link to order the Huntington's Disease Caregiver CD's on the HDSF has been updated to include shipping & handling to Canada! The site has also been changed...
Phase III of the Huntington's Disease Memorial Quilt made it's grand entrance and unveiling at the HDSA National Convention in June, 2006! As most people...
Kudos' to the Indiana Chapter and it won't hurt all of us to join in on this new Campaign-Oprah HD Awareness! Please, pass this along to all your friends and...
Reminder from the Calendar of HDMeetings http://groups.yahoo.com/group/HDMeetings/cal Caleb AtRish 13th bday Monday July 10, 2006 All Day (This event repeats...
HDMeetings@yahoogroup...
Jul 9, 2006 11:43 pm
133
Sorry if I'm so far behind in reading everyone's messages. I went to the other coast Saturday with my kid sister for my grandniece's 1st birthday...my sister...
Today's the last day for the Oprah Winfrey HD Awareness email campaign initiated by the Indiana HDSA Chapter! Add your personal message/suggestions for an HD...
To all HD On-Line Groups If you missed the HDSA Convention in Milwaukee, or couldn't make it to all the workshops, HDSA has 90%+ of them available in PDF...
Well we've flooded NBC's Oprah email box, BUT for .37 cents you can take it a step further and snail-mail your emails, letters etc. to Oprah? This way you can...
The HDF has a link to a GREAT website "Gene Hunter" by Nancy Wexler http://www.iwaswondering.org/nancy_homepage.html a book and web site experience from the...
What a FANTASTIC resource for HD families to keep current in between the Marker, etc.!!!! For those in your family or HD groups with access to a computer, but...
For those that missed this presentation at the HDSA national convention. Provides a good explanation of clinical care versus clinical research! Covers various...
See below....once you register a letter will automatically be sent to your state reps on your behalf. Hopefully this can be linked to HDSA website! Movement...
The HDSA new monthly newsletter is also requesting all HD families register for the 1st ever Movement Disorder summit 9-14! This is a unique way to raise...
OHBOY I know we have some very talented artists, adults & kids alike! This might be a fun contest for Chapters, support groups etc. to have a winning an...
For anyone who currently isn't signed up to receive this E-newsletter see below to sign up!! From: Barbara T. Boyle Sent: Thursday, August 17, 2006 11:42 AM ...
For anyone living in Arkansas, Missouri or Texas there is an HD Walk coming up either this weekend or on the 30th you might want to plan on attending. The...
My sister in-law sent this last night which I didn't read until this morning! You can still get 40% off some area restaurant's in this area......or your...
Thanks to Anne on Hunt-Dis for this news! KEEP these messages coming! See excerpts from news release below -see link for full article. Since it's in a...
Now what the heck does that mean? Rhonda ... From: Jean E. Miller Date: 09/20/06 04:22:34 To: Undisclosed-Recipient:, Subject: [HDMeetings] CHDI/Amphora...
Gonna keep it short and sweet because Gracie is sleeping restlessly tonight and keeps crying out for me, but I haven't e-mailed in so long and I wanted to drop...
Rhonda Holscher
sawedoffrunt69@...
Sep 21, 2006 4:28 am
152
The first 90 people at-risk [ages 16 and 29] or anyone with HD who contacts Phil Hardt will have their all of their expenses paid! See Phil's email, below. ...
Anyone know the name of a doctor or neuro in the Springfield, Missouri area that has worked with people with HD before? There is a lady recently diagnosed who...
If anyone lives anywhere the New England you might want to get your parents to attend this conference so you can attend the youth forum!! Kudos' to the HDSA...
For anyone in the New England area this sounds like it will be a very informative and eventful day! There will be sessions for parents of a child/children...
New HSG study using Dimebon has begunOnly 111 people will be included in Phase I of this study so if you're interested, contact the HSG for the nearest...
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