Your Support is Needed!!!! As most of you know, the 2006 RAAM Bike Race across America has the 2CURE-HD Team participating this year, with all money raised...
HD trial informationFor anyone whose nearby HDSA Center of Excellence doesn't already have you participating in either one of these studies, and if you won't...
Below is a message from HDSA national. I apologize if this is a duplication for you but if you have any of the requested video footage, please contact Fred...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
Bonnie Coats
bonbon_54963@...
Jun 13, 2006 12:28 am
118
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
Bonnie Coats
bonbon_54963@...
Jun 13, 2006 9:54 am
119
Below is copied in the attached Word 97 document for sharing. HDSA's Juvenile Huntington's Disease Primer & Guide to Best Practices June 2006 For the past five...
This was reported on Hunt-Dis. The article's author errs in calling HD "untreatable" vs its current common description of "incureable". As. Dr. Goodman...
I've also included the below in the attached Word document for handout and sharing. WE MOVE is a not-for-profit organization that has been educating and...
Hello.......my name is Desirae. I am a 28 year old married mommy. Im walking in the Huntingtons Disease Walk for a Cure in Orange County. My dad was diagnosed...
DESIRAE
hdisunfair@...
Jun 21, 2006 9:13 pm
126
I'm sorry I haven't posted anything on the CD since returning from Milwaukee. My kid sister's husband died on June 10th at age 58 and it all happened so fast,...
The ordering information for the HD Caregiver Resource CD has been linked to the HDSF website where you can use Pay Pal to order copies. Here is the direct...
With over 540 patients, the combined U.S., Canadian and European trials form one of the largest therapeutic programs ever conducted in HD. Amarin Completes...
The link to order the Huntington's Disease Caregiver CD's on the HDSF has been updated to include shipping & handling to Canada! The site has also been changed...
Phase III of the Huntington's Disease Memorial Quilt made it's grand entrance and unveiling at the HDSA National Convention in June, 2006! As most people...
Kudos' to the Indiana Chapter and it won't hurt all of us to join in on this new Campaign-Oprah HD Awareness! Please, pass this along to all your friends and...
Reminder from the Calendar of HDMeetings http://groups.yahoo.com/group/HDMeetings/cal Caleb AtRish 13th bday Monday July 10, 2006 All Day (This event repeats...
HDMeetings@yahoogroup...
Jul 9, 2006 11:43 pm
133
Sorry if I'm so far behind in reading everyone's messages. I went to the other coast Saturday with my kid sister for my grandniece's 1st birthday...my sister...
Today's the last day for the Oprah Winfrey HD Awareness email campaign initiated by the Indiana HDSA Chapter! Add your personal message/suggestions for an HD...
To all HD On-Line Groups If you missed the HDSA Convention in Milwaukee, or couldn't make it to all the workshops, HDSA has 90%+ of them available in PDF...
Well we've flooded NBC's Oprah email box, BUT for .37 cents you can take it a step further and snail-mail your emails, letters etc. to Oprah? This way you can...
The HDF has a link to a GREAT website "Gene Hunter" by Nancy Wexler http://www.iwaswondering.org/nancy_homepage.html a book and web site experience from the...
What a FANTASTIC resource for HD families to keep current in between the Marker, etc.!!!! For those in your family or HD groups with access to a computer, but...
For those that missed this presentation at the HDSA national convention. Provides a good explanation of clinical care versus clinical research! Covers various...
See below....once you register a letter will automatically be sent to your state reps on your behalf. Hopefully this can be linked to HDSA website! Movement...
The HDSA new monthly newsletter is also requesting all HD families register for the 1st ever Movement Disorder summit 9-14! This is a unique way to raise...
OHBOY I know we have some very talented artists, adults & kids alike! This might be a fun contest for Chapters, support groups etc. to have a winning an...
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